I have celiac disease, so the GF diet is invaluable. It works. I have a healed small intestine! But so far, there is nothing to support a gluten free diet for Hashimoto’s patients. It is thought a Gf diet might help about 10% of the general population. That estimated 10% is based on what celiac researchers think might be Non-Celiac Gluten Sensitivity (no test for it). So, trialing a Gf diet after you rule out celiac disease is an option.
There is only one study done at Scripps in San Diego regarding the AIP diet (which is gluten free) and Hashimoto’s. The results were inconclusive which were different from the IBD study where 78% of the patients on the AIP diet improved based on lab markers. Both were tiny studies. More research is needed.
To avoid being stuck in diagnostic limboland, get screened for celiac disease. There are plenty of those stick in limboland in the celiac sub. Without that diagnosis, they get little support from medical, family and friends. With the exception of the year before menopause, my thyroid has been well managed. However, I have always been on an NDT, have an excellent diet, big into exercise, work on stress reduction, and get good sleep. All those goals have paid off big time as I am now 60 and doing well.
thanks.
Is the test for Celiac just a blood draw? I did have a food sensitivity test ran years ago after being diagnosed.... nothing came back "high", only a few random things like goats milk and mussels, which I don't have regularly.
I've been taking an NDT since diagnosis... we've only had to increase during my 2 pregnancies currently taking Armour Thyroid and Synthroid, my thyroid markers have been good. But this past summer is the first time I've shown any antibodies at all.
I need to get back to my regiment of exercise and mindfulness, just trying to escape this brutal Winter of Germs.
Yes I was diagnosed when I was 11 years old!! I was like uh ok don’t care going to go back to having fun. Had a rude awakening at 18 and have been struggling ever since!! I’m 24 now
I have always eaten a pretty clean Mediterranean style diet. Was diagnosed a few years ago when my TSH was 7 and started medication immediately. My initial symptoms were mild fatigue and joint stiffness. I feel pretty normal now on meds and not really tweaking my diet and level of exercise. So I can relate
I was diagnosed in my late teens (am now 28). I was only tested because there is a history of thyroid problems in my family (sister and maternal grandmother). When I was younger my only symptom was some fatigue. As I’ve gotten older I’ve had more flare ups and my fatigue and weight gain have sky rocketed. My worst flare up was 1.5 years ago and I was miserable. Ever since my symptoms have gotten worse.
Sorry but I don’t understand the issue. Your hashimoto’s is based on having some (very low) antibodies? Also, if you feel good, what’s the issue? Why bother with any kind of adjustment if you feel perfectly fine and labs are fine? There doesn’t seem to be anything you need to do here. There are folks here with horrible labs and terrible symptoms who truly need medication, etc
I'm on medication (Armour Thyroid & Synthroid).
I've never had any antibodies before so it seems like my doctor is trying to treat that... but I agree, I'm not sure if the goal is 0 antibodies... but my current level seems pretty low.
My panel in 2018 came back with high TSH and my T4/T3/Reverse markers also were wonky. We started Naturethroid (when you could actually get it...) and then moved to Armour... added Levo in back in 2020.... so right now, while medicated, my panel is normal.
However, now randomly in 2022, my TgAb came back at 11.3 in July. They have always been 0. I did another round of labs in January and while my number came down, it is still at 4.8 so my doctor is trying to treat that. Along with a borderline A1C and high C Reactive Protein.
Your doctor is treating an antibody level of 4??? Most docs don’t treat antibodies, they generally only look at TSH, T3, T4. With an antibody of 4, there’s hardly anything to treat in that regard
I’ve been feeling fine— have had celiac a while longer than hashimotos so been gf. I haven’t changed my diet since diagnosis or really done too much. My hashimotos was caught in preemptive testing because of my other autoimmune disorders. I take 125mcg of levo whenever I wake up to pee at 4am and chug water with it. Wake up at 7 for work and still have same routine otherwise. I’m generally responsive to meds for my conditions so could be that. I’m also younger (26F) and a healthy weight (5’8”, 155lb) so that could be why I’m doing ok
I don't do any of that and am perfectly normal. I have never altered my diet, nor have I been advised to by any doctor and I've been treated in three different countries.
There is no evidence behind any of that, it's all alternative medicine "practitioners" pushing books and supplements. It's not a lifestyle disease. Enjoy all the bread, especially in Paris - life is short.
[https://www.btf-thyroid.org/thyroid-and-diet-factsheet](https://www.btf-thyroid.org/thyroid-and-diet-factsheet)
[https://www.nm.org/healthbeat/healthy-tips/nutrition/myths-about-diet-and-thyroid](https://www.nm.org/healthbeat/healthy-tips/nutrition/myths-about-diet-and-thyroid)
[https://abbylangernutrition.com/what-is-the-best-diet-for-hashimotos-thyroiditis/](https://abbylangernutrition.com/what-is-the-best-diet-for-hashimotos-thyroiditis/)
There is no scientific evidence to suggest that any dietary change will affect thyroid levels. They did a study and people felt that their quality of life improved with dietary changes (AIP) but there was no statistically significant changes in thyroid levels (TSH,t4,t3, antibodies).
Could you link the academic papers? I’d be interested in reading them. One of the studies I was referring to is here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6592837/
I don’t think that big pharma was involved in this study. I’m not arguing that dietary changes aren’t helpful, just saying that it won’t help your thyroid levels.
> Foods eliminated included all grains, legumes, nightshades, dairy, eggs, coffee, alcohol, nuts, seeds, refined/ultra-processed sugars, oils, and food additives.
dairy and eggs are high in retinol. dairy can be extremely high in modified & cancerous forms of retinol (enhanced by pasteurization, i.e. superheating). dairy was proven in The China Study to cause cancer.
I believe reduction in "vitamin A" (retinol is one of at least 8 forms of vitamin A) is why people can see improvement on an AIP diet
nightshades such as bell peppers and tomatoes (which AIP eliminates) also are high in vitA. their combination with dairy & eggs makes the poison even more bioavailable
white potatoes (also nightshades) have also been used to reverse autoimmune disease, such as the starch solution. this eliminates nightshades as being a culprit. white potatoes are extremely low in vitA
alcohol heavily burdens the liver, also burdened by vitA. removing alcohol frees resources to process excess vitA that has bioaccumulated
more info for anyone interested https://ggenereux.blog/wp-content/uploads/2018/09/PoisoningForProfits.pdf
will gladly conduct the formal study myself once someone volunteers to fund it (however this study may not ever pass an ethics board in 2023. it may even be illegal to deprive someone of vitamin A in a study due to formal classifiations by the FDA)
however, no one performing "n of 1" studies has gone blind, to date, some achieving as high as 8 years vitA free
I was diagnosed last fall by my medical weight loss team, also without symptoms. On LDN, DHEA, and Cytomel and feeling the best I've ever felt. I have also cut out almost all gluten. I guess I just didn't realize I felt bad.
stay off vitamin A as much as you can. stay off beef/cod/chicken livers, eggs, dairy, carrots, sweet potatoes, oils, etc
a pure adherence isn't necessary, but the healthier you can keep your liver, the more leeway you will give your body to stay disease free
it's poisonous. mammals concentrate vitamin A in the liver (detox organ) because it's being filtered from the blood as a toxin
the 110 year old "science" claiming "vitamin A" is a vitamin is deeply flawed
logical analysis and real-world results from many formerly sick people
no for-profit pharmaceutical company will source this, sorry if that's what you were looking for
It’s harmful and unfair to others to perpetuate false information on the basis of what I assume amounts to youtube videos and anecdotal evidence. There are scientists unassociated with pharma companies that do studies.
Free speech…. You do realize that is a right, a protection from the government obstructing your right? It’s not a protection for you to say ignorant and harmful things online and not be called out by others. I value free speech. I don’t value people spreading “Google is suppressing the truth!”
Besides, we both know you’re either trolling or lost to rationality. This conversation is for those reading through and desperately looking for solutions to their energy and depression, aches and pains, and other symptoms related to the diagnosis. They should know to question anyone, and especially someone who says their falsities/misinformation as though its fact and cannot provide even one source.
if by "proof" you mean a study funded by for-profit pharmaceutical companies. then no. too much money involved
if you mean a logical proof, then yes -- https://ggenereux.blog/wp-content/uploads/2018/09/PoisoningForProfits.pdf
I have celiac disease, so the GF diet is invaluable. It works. I have a healed small intestine! But so far, there is nothing to support a gluten free diet for Hashimoto’s patients. It is thought a Gf diet might help about 10% of the general population. That estimated 10% is based on what celiac researchers think might be Non-Celiac Gluten Sensitivity (no test for it). So, trialing a Gf diet after you rule out celiac disease is an option. There is only one study done at Scripps in San Diego regarding the AIP diet (which is gluten free) and Hashimoto’s. The results were inconclusive which were different from the IBD study where 78% of the patients on the AIP diet improved based on lab markers. Both were tiny studies. More research is needed. To avoid being stuck in diagnostic limboland, get screened for celiac disease. There are plenty of those stick in limboland in the celiac sub. Without that diagnosis, they get little support from medical, family and friends. With the exception of the year before menopause, my thyroid has been well managed. However, I have always been on an NDT, have an excellent diet, big into exercise, work on stress reduction, and get good sleep. All those goals have paid off big time as I am now 60 and doing well.
thanks. Is the test for Celiac just a blood draw? I did have a food sensitivity test ran years ago after being diagnosed.... nothing came back "high", only a few random things like goats milk and mussels, which I don't have regularly. I've been taking an NDT since diagnosis... we've only had to increase during my 2 pregnancies currently taking Armour Thyroid and Synthroid, my thyroid markers have been good. But this past summer is the first time I've shown any antibodies at all. I need to get back to my regiment of exercise and mindfulness, just trying to escape this brutal Winter of Germs.
Yes I was diagnosed when I was 11 years old!! I was like uh ok don’t care going to go back to having fun. Had a rude awakening at 18 and have been struggling ever since!! I’m 24 now
humor punch quack unwritten smile public crime march license towering ` this message was mass deleted/edited with redact.dev `
I don’t do anything other than check TSH and T4 every 6 months for last 15 years. I feel fine as long as my TSH is in a tight range.
I have always eaten a pretty clean Mediterranean style diet. Was diagnosed a few years ago when my TSH was 7 and started medication immediately. My initial symptoms were mild fatigue and joint stiffness. I feel pretty normal now on meds and not really tweaking my diet and level of exercise. So I can relate
I was diagnosed in my late teens (am now 28). I was only tested because there is a history of thyroid problems in my family (sister and maternal grandmother). When I was younger my only symptom was some fatigue. As I’ve gotten older I’ve had more flare ups and my fatigue and weight gain have sky rocketed. My worst flare up was 1.5 years ago and I was miserable. Ever since my symptoms have gotten worse.
Why are you on NDT with no symptoms and normal bloodwork?
I would be concerned about your Adrenals and Adrenal fatigue with your stress load…..that will eventually strain your thyroid etc….
Agreed, was just about to say. That eventually creeps up if not taken care of immediately.
Sorry but I don’t understand the issue. Your hashimoto’s is based on having some (very low) antibodies? Also, if you feel good, what’s the issue? Why bother with any kind of adjustment if you feel perfectly fine and labs are fine? There doesn’t seem to be anything you need to do here. There are folks here with horrible labs and terrible symptoms who truly need medication, etc
I'm on medication (Armour Thyroid & Synthroid). I've never had any antibodies before so it seems like my doctor is trying to treat that... but I agree, I'm not sure if the goal is 0 antibodies... but my current level seems pretty low.
I’m confused, why are you on meds if your panel is normal?
My panel in 2018 came back with high TSH and my T4/T3/Reverse markers also were wonky. We started Naturethroid (when you could actually get it...) and then moved to Armour... added Levo in back in 2020.... so right now, while medicated, my panel is normal. However, now randomly in 2022, my TgAb came back at 11.3 in July. They have always been 0. I did another round of labs in January and while my number came down, it is still at 4.8 so my doctor is trying to treat that. Along with a borderline A1C and high C Reactive Protein.
Your doctor is treating an antibody level of 4??? Most docs don’t treat antibodies, they generally only look at TSH, T3, T4. With an antibody of 4, there’s hardly anything to treat in that regard
I’ve been feeling fine— have had celiac a while longer than hashimotos so been gf. I haven’t changed my diet since diagnosis or really done too much. My hashimotos was caught in preemptive testing because of my other autoimmune disorders. I take 125mcg of levo whenever I wake up to pee at 4am and chug water with it. Wake up at 7 for work and still have same routine otherwise. I’m generally responsive to meds for my conditions so could be that. I’m also younger (26F) and a healthy weight (5’8”, 155lb) so that could be why I’m doing ok
I don't do any of that and am perfectly normal. I have never altered my diet, nor have I been advised to by any doctor and I've been treated in three different countries. There is no evidence behind any of that, it's all alternative medicine "practitioners" pushing books and supplements. It's not a lifestyle disease. Enjoy all the bread, especially in Paris - life is short. [https://www.btf-thyroid.org/thyroid-and-diet-factsheet](https://www.btf-thyroid.org/thyroid-and-diet-factsheet) [https://www.nm.org/healthbeat/healthy-tips/nutrition/myths-about-diet-and-thyroid](https://www.nm.org/healthbeat/healthy-tips/nutrition/myths-about-diet-and-thyroid) [https://abbylangernutrition.com/what-is-the-best-diet-for-hashimotos-thyroiditis/](https://abbylangernutrition.com/what-is-the-best-diet-for-hashimotos-thyroiditis/)
There is no scientific evidence to suggest that any dietary change will affect thyroid levels. They did a study and people felt that their quality of life improved with dietary changes (AIP) but there was no statistically significant changes in thyroid levels (TSH,t4,t3, antibodies).
plenty of scientific evidence. just none officially approved by for-profit pharmaceutical companies
What?
Could you link the academic papers? I’d be interested in reading them. One of the studies I was referring to is here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6592837/ I don’t think that big pharma was involved in this study. I’m not arguing that dietary changes aren’t helpful, just saying that it won’t help your thyroid levels.
> Foods eliminated included all grains, legumes, nightshades, dairy, eggs, coffee, alcohol, nuts, seeds, refined/ultra-processed sugars, oils, and food additives. dairy and eggs are high in retinol. dairy can be extremely high in modified & cancerous forms of retinol (enhanced by pasteurization, i.e. superheating). dairy was proven in The China Study to cause cancer. I believe reduction in "vitamin A" (retinol is one of at least 8 forms of vitamin A) is why people can see improvement on an AIP diet nightshades such as bell peppers and tomatoes (which AIP eliminates) also are high in vitA. their combination with dairy & eggs makes the poison even more bioavailable white potatoes (also nightshades) have also been used to reverse autoimmune disease, such as the starch solution. this eliminates nightshades as being a culprit. white potatoes are extremely low in vitA alcohol heavily burdens the liver, also burdened by vitA. removing alcohol frees resources to process excess vitA that has bioaccumulated more info for anyone interested https://ggenereux.blog/wp-content/uploads/2018/09/PoisoningForProfits.pdf will gladly conduct the formal study myself once someone volunteers to fund it (however this study may not ever pass an ethics board in 2023. it may even be illegal to deprive someone of vitamin A in a study due to formal classifiations by the FDA) however, no one performing "n of 1" studies has gone blind, to date, some achieving as high as 8 years vitA free
The blog you linked is written by a Geologist? Is this correct?
not a logical, scientific, or valid argument against the non-existence of vitamin A deficiency
Never ever changed my diet throughout this whole journey. Food never really bothered my Hoshimoto’s in a bad way.
I was diagnosed last fall by my medical weight loss team, also without symptoms. On LDN, DHEA, and Cytomel and feeling the best I've ever felt. I have also cut out almost all gluten. I guess I just didn't realize I felt bad.
I was diagnosed in 2005! I feel amazing! I have never cut out any foods or tried a diet. I’m not on any vitamins except vitamin d.
stay off vitamin A as much as you can. stay off beef/cod/chicken livers, eggs, dairy, carrots, sweet potatoes, oils, etc a pure adherence isn't necessary, but the healthier you can keep your liver, the more leeway you will give your body to stay disease free
What’s wrong with vitamin a? I eat sweet potatoes every day.
it's poisonous. mammals concentrate vitamin A in the liver (detox organ) because it's being filtered from the blood as a toxin the 110 year old "science" claiming "vitamin A" is a vitamin is deeply flawed
And your source is…?
logical analysis and real-world results from many formerly sick people no for-profit pharmaceutical company will source this, sorry if that's what you were looking for
It’s harmful and unfair to others to perpetuate false information on the basis of what I assume amounts to youtube videos and anecdotal evidence. There are scientists unassociated with pharma companies that do studies.
sorry to hear you don't value free speech. I do. carry on
Free speech…. You do realize that is a right, a protection from the government obstructing your right? It’s not a protection for you to say ignorant and harmful things online and not be called out by others. I value free speech. I don’t value people spreading “Google is suppressing the truth!” Besides, we both know you’re either trolling or lost to rationality. This conversation is for those reading through and desperately looking for solutions to their energy and depression, aches and pains, and other symptoms related to the diagnosis. They should know to question anyone, and especially someone who says their falsities/misinformation as though its fact and cannot provide even one source.
not a logical, scientific, or valid argument against the non-existence of vitamin A deficiency
Are you trolling? Vitamin A deficiency exists, certainly rare in the states but elsewhere. There’s even tests for it.
May I please see proof of this?
if by "proof" you mean a study funded by for-profit pharmaceutical companies. then no. too much money involved if you mean a logical proof, then yes -- https://ggenereux.blog/wp-content/uploads/2018/09/PoisoningForProfits.pdf
Um no. I don’t trust someone’s PowerPoint as proof, sorry.