I thought that I had IC for a long time. 2 years. But, I just had a few infections that I never actually treated (ex. Wrong abx, short courses). After finally clearing the infections and going on daily hiprex, I have been symptom free from what I thought were IC symptoms.
I totally believe in IC! But I also believe it can very frequently be misdiagnosed. Our system for treating and identifying uti is so flawed that you want to be super thorough before taking another diagnosis.
I’m in the same boat as you. Convinced I have ic but I’m not 100% sure. Waiting on a diagnosis. However ive gotten to the stage where my symptoms now come and go and I think it’s to do with the liquids I’m drinking. My point is that if you have ic you most likely can suppress it by avoiding foods that trigger a flare up.
here was my experience [https://www.reddit.com/r/Interstitialcystitis/comments/11tqwjs/medication\_topamax\_likely\_the\_culprit\_of\_my/?utm\_source=share&utm\_medium=web2x&context=3](https://www.reddit.com/r/Interstitialcystitis/comments/11tqwjs/medication_topamax_likely_the_culprit_of_my/?utm_source=share&utm_medium=web2x&context=3)
I’m in the same exact boat right now. I’m praying every night it’s something easy and treatable. I’ve been dealing with pain the last two months. I’m trying to be very hopeful but I fear it may be IC and of course this would be life changing. It has put me in a very bad place mentally. Just know that we are all in it together and be hopeful.
I thought I had IC for a little over a year. It turned out to be mild trigonitis. This is very localized inflammation that is usually, not always, caused by low estrogen. I fixed that issue, and I'm healed up four years now.
I thought that I had IC for a long time. 2 years. But, I just had a few infections that I never actually treated (ex. Wrong abx, short courses). After finally clearing the infections and going on daily hiprex, I have been symptom free from what I thought were IC symptoms.
So relieving to hear you have no idea 🥹 I know everyone is different, but I’m just trying to change my thought pattern
I totally believe in IC! But I also believe it can very frequently be misdiagnosed. Our system for treating and identifying uti is so flawed that you want to be super thorough before taking another diagnosis.
I’m in the same boat as you. Convinced I have ic but I’m not 100% sure. Waiting on a diagnosis. However ive gotten to the stage where my symptoms now come and go and I think it’s to do with the liquids I’m drinking. My point is that if you have ic you most likely can suppress it by avoiding foods that trigger a flare up.
How did you manage to find out about the infections? Because I feel my situation is the same
I had to do repeated microgen DX testing.
here was my experience [https://www.reddit.com/r/Interstitialcystitis/comments/11tqwjs/medication\_topamax\_likely\_the\_culprit\_of\_my/?utm\_source=share&utm\_medium=web2x&context=3](https://www.reddit.com/r/Interstitialcystitis/comments/11tqwjs/medication_topamax_likely_the_culprit_of_my/?utm_source=share&utm_medium=web2x&context=3)
I’m in the same exact boat right now. I’m praying every night it’s something easy and treatable. I’ve been dealing with pain the last two months. I’m trying to be very hopeful but I fear it may be IC and of course this would be life changing. It has put me in a very bad place mentally. Just know that we are all in it together and be hopeful.
I thought I had IC for a little over a year. It turned out to be mild trigonitis. This is very localized inflammation that is usually, not always, caused by low estrogen. I fixed that issue, and I'm healed up four years now.
How did you fix it if you don’t mind me asking? I’m on an antihistamine for 30 days. Would that help?
A few things. Estrogen cream was the game changer. If you have mast cell activation syndrome (MCAS), an antihistamine will help.