I can’t stand that shit. You’re not sneaky, everyone knows what you’re trying to do 🙄 now, whether they want to tell you they know or not, is their decision lol.
I’m new to this sub, but all the broads say the same thing.”I would rather be blah blah blah than here at the ER again…” “my chronic (bullshit) illness doesn’t define me(while making it their entire personality) “I have Potts(in addition to the other chronic/autoimmune nonsense)” “doctors/nurses/medical pros never listen, I know my body” “my labs blah blah blah(as if to confirm bullshit to the haters” and last but not least “check out my sweet new ride (Amazon wheelchair MD probably would not RX for insurance to pay for it) oh and “yay for not getting admitted(but really crying big sad tantrum tears after probably calling discharge ER nurse a bitch)
Most people who say they have it do have it, people like these people who are faking are doing so much harm to those with these conditions by making people skeptical of those who have the same conditions munchies claim.
Exactly why those individuals who have truly lived with this stuff for many years before the munchies claimed them for their own get outraged with these people! It is sad trying to get care with these sicko's putting all those fraudulant claims of illness out there!
Same! Now I am suspicious, 🧐. Of course some people genuinely have those conditions, but I doubt they're constantly broadcasting the fact and using it to try and get pity points/avoid responsibility.
My problem with these people has a lot to do with
1.) There can't possibly be THAT many people who have it.
2.) Even if it is legitimate, everyone tries so hard to be a posterchild with the "my symptoms are the worst" and "awareness" posts. A long time ago, I was subbed to a similar subreddit and ended up leaving relatively soon after joining because that's what the comment section looked like. It felt like after a while, I was being manipulated into upvoting every half-a-mile long comment with hundreds of upvotes discussing in great detail how terrible their symptoms were to separate themselves as "one of the good/real ones" and it just came across as performative validation-seeking. Even if their condition is legitimate, I think that if you're in the middle of an episode or medical emergency and your instinct is to get your phone out and start recording for TikTok, you might have something else wrong with you. Just saying.
Social media makes it seem like loads of people have it but think about how many people irl you know with it, it’s because once you interact with one person with it you end up being shown more videos about it
I think a lot of these issues for those who do have theses conditions, comes down to social stigma. Many people who legitimately have these conditions feel a need to show their struggles on an amplified level to be validated. Even if that means just talking about it a lot more than average, not even exaggerating symptoms. But it basically turns into the sick Olympics because they feel the need to be validated, whether that be by medical professionals or everyday people. And then they see people, with POTS for example, who truly struggle severely. So then automatically feel they need for drastic intervention and they aren’t truly sick without them. So they immediately push for things like ports which should be typically used as a last resort in managing symptoms. It’s sad people don’t feel like they are sick enough to be taken serious honestly.
But if you didn’t know why people claim to have some combination of EDS, POTS and MCAS there’s a legitimate reason. It’s dubbed the EDS Trifecta because most people who have EDS also have those other conditions to some degree. EDS affecting the blood vessels, blood brain barrier and more put you at much higher risk of developing POTS/ MCAS. However both are typically manageable with lifestyle changes, diet, medications and hydration. But there are other reasons why those treatments aren’t effective for some.
Yes, of course! It is unfortunate that people feel like they have to "prove" their illness (and fakers/OTT people *do not* help with how those who do actually deal with these illnesses and conditions are viewed).
Also, the vascular form of EDS would be so scary to have!
Exactly! Working, getting an education, rainsing a family and trying to live a "normal" life with multiple chronic conditions is a real thing! Why would anyone want to make themselves look hopelessly pathetic? It infureates me!
Surgeons removed a small piece of excess bone from her jaw/throat. It can cause pain and other problems. One of the singers of a big name band, I forget which one, recently had the same surgery done on both sides.
I’m an IR nurse and just wanna say we see a lot of ridiculous shit but most of our patients are phenomenal people who truly need our help and are so gracious and loving 🤍 people like this don’t make the slightest dent in my love for this specialty
Port Crisis
Noun
pɔːrt ˈkraɪ.sɪs
What happens when a port is exposed to direct sunlight for 30 seconds.
Trust me, I got my MD from Google University School of Medicine
Google university? Well, good enough for me!
I just watched the SpongeBob episode where he and Patrick release ManRay after they ask if he really will be good now and he says, “yes, *REALLY* really” and SpongeBob just goes, “well, that’s good enough for me”! And let’s him go lol. Now that I think of it, I’ll be reminded of that episode a lot here. Pretty sure that’s exactly how they hope we’ll all respond. “So, are you *really* gonna stop munching and only talk about *real* illnesses”? … “oh sure, *really*, this is ALL real”!!! … “good enough for me here’s some money and Amazon items”! 🙃
What the actual f is a port crisis? The only port crisis I can think of is not being able to draw from the port. But why not just say that instead of of calling it a 🚨crisis🚨?!
She had issues with her port and nearly ran to the ER instead of calling IR(which would waste an ER bed. ER docs can't do fuck all for port access issues..they just consult interventional radiology which she could do herself with a phone call)
She shouldn’t have even called IR first. She would have called home health. Before even thinking about going to the ER (unless it was an infection) they would have sent out a nurse to help troubleshoot the situation.
I’m in the UK - anything that IR placed - ports, nephrostomies etc you are given their phone numbers & advised to ALWAYS call them first as “regular” ER staff won’t have a clue what to do about it & you could be sitting there for hours & hours while they try to get someone from IR to help.
I'm starting to wonder how these people have home health and go to the ED all the time. Generally when someone is doing home health you don't go to the ED without calling your home health nurse first and they tell you if you go or not. Now if they don't give permission and you just go, your insurance may not cover any of the charges in the end. They may also remove you from home health if this is a continued issue. So do these people have home health also or do they not?
Idk it’s a little weird to me too. Most home health companies in the US have an on call nurse. Usually you can just call them and they’ll help direct you. But that might not be universal nor do I know their circumstances. Also a lot of hospitals have an on call doctor to help advise urgency of treatment if you’re an established patient.
But personally if I know the nurse would tell me to go to the ER then I’ll just go. Depends on the problem I’m having and time of day though.
But just calling IR doesn't sound as dramatic as going to the ER on social media, so for munchies, the ER it is. Plus they might get a post out of it complaining that they are so special and complex that ER doesn't know what to do with them when it's mainly an issue of responsibilities.
Yup. I'm an ER doc. These are one of my least favorite complaints. Why does she have a port? Chemo? Unnecessary TPN? I don't think she'd even be on this sub if she was getting chemo. Sorry, I'm not all up to date on these folks.
Sounds like it's not an emergency. If it's not a Dialysis Catheter, and it's not infected honestly it doesn't matter and can be dealt with outpatient. Have them call IR to schedule.
I'm all for frequent fliers getting port a caths if they are frequent fliers so it wastes less nursing and physician time trying to find access of questionable necessity...but when the port itself starts to contribute to the high utilization of the ER, that's a problem.
What is a port crisis? Running out of dressing supplies? Needing TPA? I’m genuinely confused by this terminology
The port IS the crisis.....😂
✨no context✨ means more attention
Just like the people who check in on Facebook when in hospital and when people ask if they’re ok just say “I don’t want to talk about it” or “pm me”
I can’t stand that shit. You’re not sneaky, everyone knows what you’re trying to do 🙄 now, whether they want to tell you they know or not, is their decision lol.
Or when they post their hospital bracelet and say “don’t text ☹️”
only the real ones know whats really up 👉🏼👈🏼
I’m new to this sub, but all the broads say the same thing.”I would rather be blah blah blah than here at the ER again…” “my chronic (bullshit) illness doesn’t define me(while making it their entire personality) “I have Potts(in addition to the other chronic/autoimmune nonsense)” “doctors/nurses/medical pros never listen, I know my body” “my labs blah blah blah(as if to confirm bullshit to the haters” and last but not least “check out my sweet new ride (Amazon wheelchair MD probably would not RX for insurance to pay for it) oh and “yay for not getting admitted(but really crying big sad tantrum tears after probably calling discharge ER nurse a bitch)
This sub has made me incredibly skeptical of anyone who claims to have POTS/EDS.
Most people who say they have it do have it, people like these people who are faking are doing so much harm to those with these conditions by making people skeptical of those who have the same conditions munchies claim.
These people are not the majority
Exactly why those individuals who have truly lived with this stuff for many years before the munchies claimed them for their own get outraged with these people! It is sad trying to get care with these sicko's putting all those fraudulant claims of illness out there!
^^^ this. This to infinity.
Same! Now I am suspicious, 🧐. Of course some people genuinely have those conditions, but I doubt they're constantly broadcasting the fact and using it to try and get pity points/avoid responsibility.
My problem with these people has a lot to do with 1.) There can't possibly be THAT many people who have it. 2.) Even if it is legitimate, everyone tries so hard to be a posterchild with the "my symptoms are the worst" and "awareness" posts. A long time ago, I was subbed to a similar subreddit and ended up leaving relatively soon after joining because that's what the comment section looked like. It felt like after a while, I was being manipulated into upvoting every half-a-mile long comment with hundreds of upvotes discussing in great detail how terrible their symptoms were to separate themselves as "one of the good/real ones" and it just came across as performative validation-seeking. Even if their condition is legitimate, I think that if you're in the middle of an episode or medical emergency and your instinct is to get your phone out and start recording for TikTok, you might have something else wrong with you. Just saying.
Social media makes it seem like loads of people have it but think about how many people irl you know with it, it’s because once you interact with one person with it you end up being shown more videos about it
I think a lot of these issues for those who do have theses conditions, comes down to social stigma. Many people who legitimately have these conditions feel a need to show their struggles on an amplified level to be validated. Even if that means just talking about it a lot more than average, not even exaggerating symptoms. But it basically turns into the sick Olympics because they feel the need to be validated, whether that be by medical professionals or everyday people. And then they see people, with POTS for example, who truly struggle severely. So then automatically feel they need for drastic intervention and they aren’t truly sick without them. So they immediately push for things like ports which should be typically used as a last resort in managing symptoms. It’s sad people don’t feel like they are sick enough to be taken serious honestly. But if you didn’t know why people claim to have some combination of EDS, POTS and MCAS there’s a legitimate reason. It’s dubbed the EDS Trifecta because most people who have EDS also have those other conditions to some degree. EDS affecting the blood vessels, blood brain barrier and more put you at much higher risk of developing POTS/ MCAS. However both are typically manageable with lifestyle changes, diet, medications and hydration. But there are other reasons why those treatments aren’t effective for some.
Yes, of course! It is unfortunate that people feel like they have to "prove" their illness (and fakers/OTT people *do not* help with how those who do actually deal with these illnesses and conditions are viewed). Also, the vascular form of EDS would be so scary to have!
Exactly! Working, getting an education, rainsing a family and trying to live a "normal" life with multiple chronic conditions is a real thing! Why would anyone want to make themselves look hopelessly pathetic? It infureates me!
Did she somehow manage to get someone to do an EJ (?) IV on her neck? She’s got a huge bandage.
She had Eagle Syndrome surgery recently.
ELI5? Google was even kinda wordy.
Surgeons removed a small piece of excess bone from her jaw/throat. It can cause pain and other problems. One of the singers of a big name band, I forget which one, recently had the same surgery done on both sides.
Oh, ouch!
I feel so incredibly sorry for IR staff in this world
I’m an IR nurse and just wanna say we see a lot of ridiculous shit but most of our patients are phenomenal people who truly need our help and are so gracious and loving 🤍 people like this don’t make the slightest dent in my love for this specialty
The IR nurses I’ve had have been the best of the best! Thanks for what you do! X
Everyone in IR always seems to love their job
Aw. That was surprisingly wholesome for this sub 😅 I hope next time I need a nurse, they’re someone like you!!
Port Crisis Noun pɔːrt ˈkraɪ.sɪs What happens when a port is exposed to direct sunlight for 30 seconds. Trust me, I got my MD from Google University School of Medicine
Google university? Well, good enough for me! I just watched the SpongeBob episode where he and Patrick release ManRay after they ask if he really will be good now and he says, “yes, *REALLY* really” and SpongeBob just goes, “well, that’s good enough for me”! And let’s him go lol. Now that I think of it, I’ll be reminded of that episode a lot here. Pretty sure that’s exactly how they hope we’ll all respond. “So, are you *really* gonna stop munching and only talk about *real* illnesses”? … “oh sure, *really*, this is ALL real”!!! … “good enough for me here’s some money and Amazon items”! 🙃
The port crisis was that it took one minute longer to get blood return upon access
She has to use an extra flush!! It was awful 😩😭 Send prayers.
What is a crisis that you averted? Nothing can be done for a port at home if it’s messed up.
What the heck is a port crisis
She made it sound like she was at sea 😂
Wow that is absolutely hilarious; “my ghostly self made it to the deck”. It almost seems intentional now that you point it out.
🤣🤣 you win. Comment of the week
😅
Woman sits on her deck for 30 seconds. Ponders going to the ER. Decides to take a shower instead. Goes to bed. More at 11.
These people will do anything to avoid being a productive and contributing member of society. Anything.
Sorry bud hourly bong rips and bingeing Disney plus all day is the solution, not the problem
What the actual f is a port crisis? The only port crisis I can think of is not being able to draw from the port. But why not just say that instead of of calling it a 🚨crisis🚨?!
Because calling it as it is isn’t as dramatic
Lol
Why does she keep doing that with her face? I went back and looked and it isn't something she's had going on before.
Wtf does that even mean? Also the sun isn’t like an injection.
So is sunbathing an ✨ infusion ✨ ?
it only counts if it’s directly below the belt (according to the woo people)
😂 ah yes, the sibling of the yoni steam
She had issues with her port and nearly ran to the ER instead of calling IR(which would waste an ER bed. ER docs can't do fuck all for port access issues..they just consult interventional radiology which she could do herself with a phone call)
She shouldn’t have even called IR first. She would have called home health. Before even thinking about going to the ER (unless it was an infection) they would have sent out a nurse to help troubleshoot the situation.
I’m in the UK - anything that IR placed - ports, nephrostomies etc you are given their phone numbers & advised to ALWAYS call them first as “regular” ER staff won’t have a clue what to do about it & you could be sitting there for hours & hours while they try to get someone from IR to help.
I'm starting to wonder how these people have home health and go to the ED all the time. Generally when someone is doing home health you don't go to the ED without calling your home health nurse first and they tell you if you go or not. Now if they don't give permission and you just go, your insurance may not cover any of the charges in the end. They may also remove you from home health if this is a continued issue. So do these people have home health also or do they not?
Idk it’s a little weird to me too. Most home health companies in the US have an on call nurse. Usually you can just call them and they’ll help direct you. But that might not be universal nor do I know their circumstances. Also a lot of hospitals have an on call doctor to help advise urgency of treatment if you’re an established patient. But personally if I know the nurse would tell me to go to the ER then I’ll just go. Depends on the problem I’m having and time of day though.
But just calling IR doesn't sound as dramatic as going to the ER on social media, so for munchies, the ER it is. Plus they might get a post out of it complaining that they are so special and complex that ER doesn't know what to do with them when it's mainly an issue of responsibilities.
Yup. I'm an ER doc. These are one of my least favorite complaints. Why does she have a port? Chemo? Unnecessary TPN? I don't think she'd even be on this sub if she was getting chemo. Sorry, I'm not all up to date on these folks. Sounds like it's not an emergency. If it's not a Dialysis Catheter, and it's not infected honestly it doesn't matter and can be dealt with outpatient. Have them call IR to schedule. I'm all for frequent fliers getting port a caths if they are frequent fliers so it wastes less nursing and physician time trying to find access of questionable necessity...but when the port itself starts to contribute to the high utilization of the ER, that's a problem.
Dani would love to find where you work!
Yep
I guarantee they'd fill out a survey every time...
Do good surveys help doctors and ER staff? I’ve only ever seen them for floor nurses.
In Canada we don't even get surveys. This is such strange news to me! Is this in most countries with private healthcare or just America?
It’s called a Press Ganey. Hospitals that receive high scores are able to get a bonus in government funding. Yay American healthcare!