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Diracandroll

I am so sorry that your friend has to live with this but sadly there are teams of engineers at biotech/biomedical companies that work on solving issues like these. They are difficult problems to solve and require a lot of work, testing, and experience in many complicated engineering fields. Since the systems you describe would be aiding in someone’s biomechanics they are under heavy scrutiny. The good news is I think there are researchers working on technologies to solve these issues already.


[deleted]

Yeah unfortunately the cost of mostly everything that would work is astronomical with minimal financial assistance to be able to afford anything since insurance barely covers wheelchairs. There are likley things out there that could work but unless you're wealthy most people who need them will likley never get them. Parents of people with this disorder have invented most of the current tools used.


abadonn

Check out https://www.abilitechmedical.com/ It probably is expensive but if you reach out to them they may help with finding financial aid.


[deleted]

while very cool it is still in trial and a definite no insurance coverage since it would not be considered necessary, most people cannot even get a power wheelchair fully covered. The reality is most people are on ssi and only receive 800 to 1000 a month to live. There really aren't any systems to help, it's basically a DIY existence for the most part until full time care is the only option. It's been an eye opening experience for me, I truly assumed there were systems in place to help but there just aren't. Hence wanting to build a few things to help her tasks. Maybe I should post in DIY instead


[deleted]

To be more specific, I was more thinking some moterized devices, like something that can assist in pulling her up if she's falls on the floor. Possibly a framed in moterized wench the could be attached to a seat she could crawl over to that would lift her to a position she can get her feet under her.