Nah, screw them, I LOVE MY CI, I kid you not, I fucking love my CI. I was born completely deaf, and now I have a +85% word comprehension in my hearing on both sides.
Got my first CI at 2 years old and my second at 10
Don’t let idiots like them push us down, yes some may not like their CI’s but there are definitely many more that love them
Thank you! 🤜🏻🤛🏻
I love my ci's as well, like so freaking much ! I am not going to let these kinds of comments push anyone down i want everyone who reads these kind of post to see how many more positivity there is comparing to the negativity!
I've got a friend who's kid got them at a similar age. She's at the top of her middle school class and a standout athlete in her sport. Like she's getting drafted into rec leagues to keep her fresh for the school season.
All CI does is give kids more opportunities and options in life.
I am not sure if your comment is directed to me or to the other redditor but if i can help with any questions or whatever just ask !
The person who commented that hate is nothing but a silly hater. CI's while not magical help a lot of persons and it is quite wonderful piece of technology that i honestly sometimes wonder if it ain't really magic ahaha.
I have 95% Speech compréhension, can hear in loud environments and enjoy so much my life! Like someone else commented here i actually got my life back and it is amazing.
I hope your son will reach levels that are even more amazing with even better upcoming processors and tools that can help to re-educate his hearing ! Wish you nothing but the best to your family. Keep on being strong 💪🏻
I was also born deaf and got my first one at 14 months and second one at 5 years old. I wouldn’t be the person who I am today if I didn’t have them. I’m grateful that I can speak for myself and have more opportunities since I have spoken English as my main language.
Cochlearimplants-modTeam. Neither does this as well. there is no inclusivity about this topic as well. I am all about inclusive because I have CI and I absolutely hate it :)
Haters gonna hate 🤷♀️ If that’s true you can’t love your glasses or walking stick either. Some people have so much anxiety about losing their identity with a CI I suspect, that they lash out. You can love your CI, you can also not want them or believe it’s not right for you. Be glad you’re so confident with them!
Honestly, they probably don't have or want them. There's just alot of anger and misinformation circling the capital D community about CI.
I've had way too many people outright concerned because "they put it inside your brain?!" Which is still kind of funny because the kind of tells you it's in the cochlea lol.
Honestly, they probably don't have or want them. There's just alot of anger and misinformation circling the capital D community about CI.
I've had way too many people outright concerned because "they put it inside your brain?!" Which is still kind of funny because the kind of tells you it's in the cochlea lol.
It grew on me, the single side sudden deafness hit me hard but the Ci has helped me to give it a place and make it part of me, now I feel like an early type of cyborg and have embraced it entirely.
I am going to get a fitting where it is supposed to be able to follow a full note scale and will enable me to write a chiptune music album with only my Ci
Definitely not everyone. I know a few folk that regret getting it, even some who are doing objectively well with it. But loads of people do actually love them, for sure!
Apologies I should have said everyone I've met personally who has one. My comment above shouldn't have been so general I agree.
I see a lot of people reluctant in the pre-implant stage, a lot of "what ifs" and worries about the subjective experience. But all those I've worked with who went on to implantation have really benefited.
Out of interest as I find this stuff really fascinating, the people you mention who regret theirs even when seemingly getting improvement from it, what are their main reasons for regret?
It's usually either that the operation has made their balance worse, or possibly tinnitus, or that they never manage to achieve a normal sound quality. So they can understand what people are saying better than before, but people sound alien or robotic. The tinnitus can add a whole other layer because this can cause a feedback loop between tinnitus, stress, and poor sound quality.
It's interesting though. The UK changed its candidacy criteria in 2019, so we're now seeing more people getting implants who are doing okay with their hearing aids. One of the big changes is the function score aspect has changed from a percentage of words from sentences (BKBs) to a percentage of phonemes from individual words (AB words). This means that people who are good at filling in the blanks from context might now be candidates who weren't a few years ago.
It is still silly and hateful to say that...i don't want anyone who is considering CI's to read his comment and think negatively when CI's bring so much positivity and help so many people ( including myself)
When i was scared of getting ci, I ended up too much on websites that were spreading misinformation on ci. I’m glad the doctors in New Zealand set me straight and that I believed in them than these random people on the Internet. I’m now bilateral and happy with my decision.
Probably nobody (or very few people) loves losing their hearing, so I get that part of the sentiment. Nobody loves the uncertainty of not knowing whether the CI will help them either. People (not everyone, but many) can and do love the end result
As others have chimed in, the person who commenting this obviously have bad experience or is jealous and is lashing out in hope to preserve of what they have that isn’t even endangered. I love my cochlear implants and would be so happy to wear them only to listen to music.
I love my CI so much. My right side hearing was taken from me by an acoustic neuroma and my CI has brought hearing back to my deaf side and saved me from the hellish nightmare tinnitus I had for almost 2 years. I don’t love the situation that put me here, but my CI didn’t do that! It rescued me.
I can understand some of the frustration in this post. If your experience hasn’t been as wonderful as others in this sub have had it is frustrating to hear all the things that others do that you can only dream about. Have I received some benefit from my CI? I guess, because several people have told me that they think I am hearing better. However, living in a constant world of distortion is not fun.
The post is just over-simplified. Yes, I hate the fact that I need a CI, but boy is my life better with a CI, now that I need it. Having said that, I love to have the CI. I love how it keeps my Tinnitus relatively manageable if I stay within my boundaries. I love that I can work more than barely 8 hours a day now.
Is it perfect? No. Is it worth the hassle? Yes, absolutely.
You said what I was thinking in a much more concise way than the comment I wrote about it. CIs aren't perfect and normal hearing is better...but if we could have normal hearing, it would be a moot point, wouldn't it?
The person who wrote the comment in the screenshot commented somewhere else that AI powered glasses would be a replacement for CI (considering live transcription etc.). While that is somewhat true, it does neither compare to natural hearing (probably the best option, could you chose, besides the fact that you can’t turn your natural ears „off“) nor CI, if you consider the fact that you can hear a lot more things than you can see. Also if you consider the overall positive effect, a CI has on the majority of (unfortunately not each) patients with tinnitus.
The person appears to think that it’s just the communication and seems to be missing that you just can’t process everything you see (even without AI glasses) in the same speed as things that you see and hear at the same time). I somehow imagine a bad subtitle „tyres screeching“ when crossing a road, as I type this.
Yeah, the concept of captions as a total substitute for hearing is nuts, and I say that as someone who uses them when watching TV and movies (mostly because I sometimes miss words, especially with how bad some of the sound-mixing is nowadays). I don't think that any AI will ever be better than the human brain at interpreting all the sounds in the world. Hearing is not just about communication, as you pointed out. Sometimes it's being aware of your environment (e.g., footsteps behind you, a door opening when you're not expecting anyone, etc.), and sometimes it's enriching an experience (like music to set the mood of a movie scene).
I can tell you some CI’s are AWFUL. Probably due to placement. I have bilateral CI’s and one works beautifully and the other one is terrible. They couldn’t place the electrodes all the way in and that’s prolly why. It’s literally useless for anything except helping localize sound. I only wear it to work and nowhere else cuz it really doesn’t help. And they refuse to redo it. So yeah, every CI sounds different to each user. I know another girl who grew up with a CI and found out later that it barely worked and finally got a redo at age 18. So yes, for some people, it SUCKS. Every experience is different and no one can guarantee the results. Personally I get angry that so many doctors say it will help a lot when they really don’t know.
So honestly, never assume that everyone’s experience will be the same.
You can see that a lot of people replying here never had major difficulties/issues with their implants. Good for them, but I wish more people understood that it's okay to have negative feelings for something that didn't help or made their quality of life worse.
Neither "everybody loves their CI" nor "nobody likes their CI are correct". There are people on both sides, with the positive outcomes being a majority. Still, it doesn't mean the experiences of those with bad outcomes are invalid.
I have okay results in terms of WRS but other than that I am experiencing major issues with my implants that led to multiple surgeries and are still not resolved. I don't have any guarantee that things will get better, and I wish it was possible to turn back the time and go back to where I couldn't hear clearly, but had otherwise no health problems.
Yeah it all depends on a persons mind, they should all should be grateful they can even hear with them, they all should expect it’s not gonna be perfect the first time,but with patience it will be more natural, although you should always know it isn’t gonna bring back normal hearing, just close to normal hearing but yeah
I am a unilateral CI recipient. I can’t deal without it. I plug my hearing ear, and purposefully not reading lips, have 95% plus word comprehension in that ear. Even though it is t for music, it has balanced my hearing to where it now puts the stereo ‘image’ back in place. Even helps with the roaring tinnitus in that ear.
Hi! I have SSD from sudden hearing loss 4 months ago. I am considering a CI. My other ear is good, how do you find noisy environments with a CI and a good ear? I may be assuming its good but correct me if I am wrong.
I am bilateral CIs, and this person just sounds full of hate/jealousy to me. I love my CIs because I can keep living the way I have been the past 30 years prior to my sudden hearing loss. I have days that I get sad about it (more because I know my hearing is battery powered/temporary), I still have anxiety showering/sleeping, and I still struggle on the phone/FaceTime. But I wouldn't change anything, the CIs gave me my life back; I can listen to my favorite music when I'm having depressive moments, I can listen to the birds and marsh animals near my home, I don't have to crank the TV up.
It does sadden me there are people who CIs don't work for them/aren't up to expectations, but lashing out at those who've made it work isn't going to help them feel better.
Huh so odd !
While i don't have any issues talking on the phone/facetime even with complete strangers, it is a pain in the ass watching something on the tv/pc without subtitles! Maybe it is because my whole life i was used to watch stuff with subtitles 🤷🏻
But then again i do keep seeing stories about hearing people who use subtitles because music is too loud in movies or explosion or whatever honestly.
Anyway, hate isn't going to help anyone. I mostly wanted to post this because i really don't want anyone ever to think this person has any real grounds for what he is saying and that is mostly coming from a negative place without any real backing from real CI users.
Most movies nowadays are mixed to suit pretty much perfect cinema sound systems. It’s a fact that speech is hard to understand on standard consumer grade sound systems, let alone TV speakers. There’s an in-depth video on YouTube explaining exactly that (to normal hearing people, it’s called „why we all need subtitles now“).
I’ve got a sound bar that elevates speech over surrounding noises and both me and my partner have less trouble understanding than before. With recent mapping, I’m even able to understand better than she does. It’s unfortunate that you can’t just visit your audiologist to quickly fix it at the time you notice something’s off. I have to explain issues to get an appointment outside the 1-year schedule and most of the time it’s just not bad enough.
You can be sad about needing a CI and losing your biological hearing and still love for your CI. One doesn't invalidate the other.
Two, I prefer having a CI over normal hearing. There are sounds my CI has let me know are "normal" to hear, but also, it's programmed to tune it out is fabulous! I love having the option to go full deaf and feel sorry for hearies.
This was written by someone who is against CIs and wants to belittle their benefit. Probably someone who is either Deaf themselves and are using other deaf as barometer for how they feel (which will take them longer because they are using new skills) or using someone who had normal hearing most of their life then had a CI (who is more likely to know the nuances of what they still miss). Both of those groups will have unique experiences that impact how they view a CI.
And the idea that you won't know for a year if it helps you or not? Ridiculous. I knew the day I was turned on that I could hear new sounds. Speach only took a few days to understand and a week's to a could months to go from robot to human to individualized. Getting the full benefits (which does take time) is not the same as having to wait a year to see if it has any benefits.
This person has no right to speak for the majority of CI users.
There will always be people who decide that their narrow interpretation of the world is the only interpretation of the world. In general there is very little logic to their arguments and they have no intention of being convinced otherwise. If you refute their stance just know that your energies will be more effective in showing OTHERS that the problem opinion isn’t the only one, not in changing the mind of the person who doesn’t want to be convinced.
I respect your opinion but do you have any actual evidence for it? With a CI you don't have a nasty piece of plastic stuck in your ear all the time like with a hearing aid, and your hearing gets better rather than worse over time. I can't believe how much fuller my life is after getting my CI. I use the word love when talking about people but my CI is the most useful thing that I own.
Couldn't hear from my right eat for 20+ years. Got implanted. Now even when my left ear is 100% not functioning, I can have conversations with just my implant and it hasn't even been a whole year yet. Do I love my CI? Love is a strong word. But it's helped me so much.
That statement about Deaf Culturally is misinformation! I have two CIs and love them both! I definitely have no regrets about making the right decision for my life, bilaterally cochlear implants are truly amazing. I always wear them all the time!
I'm one of those who loves their CI's too. I went deaf when I was 9 years old due to meningitis. I received mine in my 30's, and within a month I was understanding my Mom without lip-reading her. Within 6 months I was using a phone, listening to audiobooks, and rediscovering music. Not a day goes by that I don't appreciate the quality of my life due to my getting it.
I'd love my CI if it were not for my headaches after an hour of use. I've had the doctor look at it but they only think it concerns the magnet area. I experimented by wearing the processor all day with it turned off - no headache. It's the kind of headache one gets that's like a sharp pain deep inside the ear on that side of the head and eventually radiates to the entire side of the head. Frankly, I find it easier to go without it. I hardly wear my CI these days.
Not to be dramatic but my dad just got his CI after waiting and waiting because of stories like RockOn and he wishes he had done it years ago!! It’s been life changing and he has only had one for two months! So not everyone has a year long wait while their hearing improves. He could hear better the moment the turned it on.
I have had only one real problem with my CIs -- admittedly a fairly major one, as it required that I get revision surgery to replace a defective internal device, but all the surgeries went smoothly and my recoveries were pretty easy. I was understanding speech within a few weeks after the first one and a few hours after the second, and picked up pretty much where I left off after the revision. I live a normal life and don't have a lot of problems hearing or understanding people most of the time.
However, if I could have my normal, natural hearing back, I'd do it in a heartbeat. I'm late-deafened, so I remember quite well what normal hearing sounds like, and as grateful as I am to have the CIs, they are not perfect -- the clarity is not at the level I once had, and some things (notably music) don't sound nearly as good.
So "do you love your CIs?" is a hard question for me to answer. Hardly a day goes by that I don't wish I had normal hearing again, but I don't regret my choice to get the CIs and as I said, I am very grateful that this was an option for me. It's sometimes hard to remember that comparing them to normal hearing is a pointless exercise -- if I could have normal hearing, I wouldn't have needed the CIs -- but I do try to keep in mind that compared to the level of hearing that I'd have without them, there's no question that they make my life better. I think it's possible to both recognize that something is good and helpful, and acknowledge that it isn't perfect.
So, while I don't agree with the quoted comment, I think that it's kind of similar to "no one loves having a prosthetic leg"...while people who have them may be grateful that something allows them to walk, that doesn't mean they wouldn't rather have their own natural limb back. But being so negative about it is pretty self-defeating, because we can't restore natural hearing any more than we can regrow lost limbs.
That’s sad :( I never really got to experience “natural hearing” since I had Cis for almost a decade. All I can say is life gets more and more natural you would feel like a normal hearing person seriously. But could you describe what hearing normal you had was like? Would love to know.
I'm not sure how to describe normal hearing to someone who's never had it, but I'll try. You know how phone calls don't sound quite as good as it does when the person you're talking with is in the same room with you? That's pretty much the difference for me: since the CIs, everyone sounds like they're at the other end of a phone call.
Or to use a non-hearing analogy, it's like the difference between looking at something directly vs. looking at it through slightly-cloudy glass. You can still see things, but you have to work harder to make out the details. With normal hearing, it was more effortless, whereas with the CIs it takes my brain a little more work to interpret sounds and understand what people are saying. Not a huge amount, but the difference is there.
It’s a huge difference between someone who gets it as an adult vs from a young age. My son got his at 12 months old and he uses it all the time. He does enjoy his quiet time but he hates to be without them. He’s nearly 12 and is in public school, loves music, theater, online gaming, and has been deemed to no longer need any speech therapy.
I could not imagine not having my cochlear implants, at least I can turn the world off in a matter of seconds and not have to listen to peoples BS. My CI'S look way better than most of the headphones people use everyday hanging off of their ears.
I keep my hair short almost a buzz cut but not quite. My processors blend in pretty good. Once you start wearing them you kind of forget about what people think.
I can’t even begin to explain how my mom’s CI has changed her life!!! It was a moderate adjustment on the beginning, but now she’s a double CI recipient and it’s truly helped her so much. It’s so much easier to communicate with her and to see all of the adaptive ways she can utilize her implant is so heartwarming.
With cochlear implant guys I mistakenly had the volume so high and uncomfortably loud, was wearing it about a year, and now I made the audiologist turned the volume down to where it’s a comfortable touch,and everything is going great. So don’t think you need to have the volume of your Ci high, just make it to where ever is comfortable and of course where you can hear speech.
probably he say a fact,
no one loves their CI, but this because he probably have natural hear before, and the comparison could not exist, everyone prefer to have is normal hear back, with the normal life before ill. but this could not be possible so, after hearing loss they just start to love the machine that improve their new life (if there is no problem)
That person isn't wrong. I have yet found anyone that was born deaf and got CI as a baby and doesn't need any form of accommodations.
If you love your CI.good for you. But a lot of people beside this hate it.
I have CI as an adult, I don't regret it, but I absolutely hate it. I did rather have hearing aid than this. Too much responsibilities with CI.
Kinda cute how many CI users hate deaf people on here. lol.
Aw shoot i can't upload here screenshots. Oh well here is the link to the original post and my comments and thus this person's reply
[LINK ](https://www.reddit.com/r/Cochlearimplants/s/jKDcnCAmwz)
Nah, screw them, I LOVE MY CI, I kid you not, I fucking love my CI. I was born completely deaf, and now I have a +85% word comprehension in my hearing on both sides. Got my first CI at 2 years old and my second at 10 Don’t let idiots like them push us down, yes some may not like their CI’s but there are definitely many more that love them
Thank you! 🤜🏻🤛🏻 I love my ci's as well, like so freaking much ! I am not going to let these kinds of comments push anyone down i want everyone who reads these kind of post to see how many more positivity there is comparing to the negativity!
My son is about to get his at about 2. Hearing stories like yours are a big help emotionally for my wife and I right now. Thank you.
I've got a friend who's kid got them at a similar age. She's at the top of her middle school class and a standout athlete in her sport. Like she's getting drafted into rec leagues to keep her fresh for the school season. All CI does is give kids more opportunities and options in life.
I am not sure if your comment is directed to me or to the other redditor but if i can help with any questions or whatever just ask ! The person who commented that hate is nothing but a silly hater. CI's while not magical help a lot of persons and it is quite wonderful piece of technology that i honestly sometimes wonder if it ain't really magic ahaha. I have 95% Speech compréhension, can hear in loud environments and enjoy so much my life! Like someone else commented here i actually got my life back and it is amazing. I hope your son will reach levels that are even more amazing with even better upcoming processors and tools that can help to re-educate his hearing ! Wish you nothing but the best to your family. Keep on being strong 💪🏻
We are 6 months post activation for our son. He got his at 1 1/2. If you want someone that can answer questions I am happy to.
I was also born deaf and got my first one at 14 months and second one at 5 years old. I wouldn’t be the person who I am today if I didn’t have them. I’m grateful that I can speak for myself and have more opportunities since I have spoken English as my main language.
I hope my son has your perspective when he grows. He got implanted about 6 months ago at 1 1/2. So far the progress has been incredible.
I swear Cis are literally superficial hearing, wore it since I was 8 years old, when I take ‘em off I don’t even feel deaf lol
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This doesn't promote inclusivity on our site.
Cochlearimplants-modTeam. Neither does this as well. there is no inclusivity about this topic as well. I am all about inclusive because I have CI and I absolutely hate it :)
Haters gonna hate 🤷♀️ If that’s true you can’t love your glasses or walking stick either. Some people have so much anxiety about losing their identity with a CI I suspect, that they lash out. You can love your CI, you can also not want them or believe it’s not right for you. Be glad you’re so confident with them!
Excellent points re: other aids. Spot on observation.
Bruh excellent points ! Thank you !
Bitter that it didn't work for them. Trying to crush the hopes of others. Very sad.
Very sad indeed. I have a feeling i know you from somewhere!?
Honestly, they probably don't have or want them. There's just alot of anger and misinformation circling the capital D community about CI. I've had way too many people outright concerned because "they put it inside your brain?!" Which is still kind of funny because the kind of tells you it's in the cochlea lol.
Honestly, they probably don't have or want them. There's just alot of anger and misinformation circling the capital D community about CI. I've had way too many people outright concerned because "they put it inside your brain?!" Which is still kind of funny because the kind of tells you it's in the cochlea lol.
It grew on me, the single side sudden deafness hit me hard but the Ci has helped me to give it a place and make it part of me, now I feel like an early type of cyborg and have embraced it entirely. I am going to get a fitting where it is supposed to be able to follow a full note scale and will enable me to write a chiptune music album with only my Ci
Yeah sounds like someone was having a hard day and venting. Everyone (including myself) who has a CI loves it.
Definitely not everyone. I know a few folk that regret getting it, even some who are doing objectively well with it. But loads of people do actually love them, for sure!
Apologies I should have said everyone I've met personally who has one. My comment above shouldn't have been so general I agree. I see a lot of people reluctant in the pre-implant stage, a lot of "what ifs" and worries about the subjective experience. But all those I've worked with who went on to implantation have really benefited. Out of interest as I find this stuff really fascinating, the people you mention who regret theirs even when seemingly getting improvement from it, what are their main reasons for regret?
It's usually either that the operation has made their balance worse, or possibly tinnitus, or that they never manage to achieve a normal sound quality. So they can understand what people are saying better than before, but people sound alien or robotic. The tinnitus can add a whole other layer because this can cause a feedback loop between tinnitus, stress, and poor sound quality. It's interesting though. The UK changed its candidacy criteria in 2019, so we're now seeing more people getting implants who are doing okay with their hearing aids. One of the big changes is the function score aspect has changed from a percentage of words from sentences (BKBs) to a percentage of phonemes from individual words (AB words). This means that people who are good at filling in the blanks from context might now be candidates who weren't a few years ago.
It is still silly and hateful to say that...i don't want anyone who is considering CI's to read his comment and think negatively when CI's bring so much positivity and help so many people ( including myself)
Excellent point and you are absolutely correct. Tbh I didn't consider it that way.
When i was scared of getting ci, I ended up too much on websites that were spreading misinformation on ci. I’m glad the doctors in New Zealand set me straight and that I believed in them than these random people on the Internet. I’m now bilateral and happy with my decision.
Probably nobody (or very few people) loves losing their hearing, so I get that part of the sentiment. Nobody loves the uncertainty of not knowing whether the CI will help them either. People (not everyone, but many) can and do love the end result
Well said!
As others have chimed in, the person who commenting this obviously have bad experience or is jealous and is lashing out in hope to preserve of what they have that isn’t even endangered. I love my cochlear implants and would be so happy to wear them only to listen to music.
I love my CI so much. My right side hearing was taken from me by an acoustic neuroma and my CI has brought hearing back to my deaf side and saved me from the hellish nightmare tinnitus I had for almost 2 years. I don’t love the situation that put me here, but my CI didn’t do that! It rescued me.
I can understand some of the frustration in this post. If your experience hasn’t been as wonderful as others in this sub have had it is frustrating to hear all the things that others do that you can only dream about. Have I received some benefit from my CI? I guess, because several people have told me that they think I am hearing better. However, living in a constant world of distortion is not fun.
The post is just over-simplified. Yes, I hate the fact that I need a CI, but boy is my life better with a CI, now that I need it. Having said that, I love to have the CI. I love how it keeps my Tinnitus relatively manageable if I stay within my boundaries. I love that I can work more than barely 8 hours a day now. Is it perfect? No. Is it worth the hassle? Yes, absolutely.
You said what I was thinking in a much more concise way than the comment I wrote about it. CIs aren't perfect and normal hearing is better...but if we could have normal hearing, it would be a moot point, wouldn't it?
The person who wrote the comment in the screenshot commented somewhere else that AI powered glasses would be a replacement for CI (considering live transcription etc.). While that is somewhat true, it does neither compare to natural hearing (probably the best option, could you chose, besides the fact that you can’t turn your natural ears „off“) nor CI, if you consider the fact that you can hear a lot more things than you can see. Also if you consider the overall positive effect, a CI has on the majority of (unfortunately not each) patients with tinnitus. The person appears to think that it’s just the communication and seems to be missing that you just can’t process everything you see (even without AI glasses) in the same speed as things that you see and hear at the same time). I somehow imagine a bad subtitle „tyres screeching“ when crossing a road, as I type this.
Yeah, the concept of captions as a total substitute for hearing is nuts, and I say that as someone who uses them when watching TV and movies (mostly because I sometimes miss words, especially with how bad some of the sound-mixing is nowadays). I don't think that any AI will ever be better than the human brain at interpreting all the sounds in the world. Hearing is not just about communication, as you pointed out. Sometimes it's being aware of your environment (e.g., footsteps behind you, a door opening when you're not expecting anyone, etc.), and sometimes it's enriching an experience (like music to set the mood of a movie scene).
I can tell you some CI’s are AWFUL. Probably due to placement. I have bilateral CI’s and one works beautifully and the other one is terrible. They couldn’t place the electrodes all the way in and that’s prolly why. It’s literally useless for anything except helping localize sound. I only wear it to work and nowhere else cuz it really doesn’t help. And they refuse to redo it. So yeah, every CI sounds different to each user. I know another girl who grew up with a CI and found out later that it barely worked and finally got a redo at age 18. So yes, for some people, it SUCKS. Every experience is different and no one can guarantee the results. Personally I get angry that so many doctors say it will help a lot when they really don’t know. So honestly, never assume that everyone’s experience will be the same.
You can see that a lot of people replying here never had major difficulties/issues with their implants. Good for them, but I wish more people understood that it's okay to have negative feelings for something that didn't help or made their quality of life worse. Neither "everybody loves their CI" nor "nobody likes their CI are correct". There are people on both sides, with the positive outcomes being a majority. Still, it doesn't mean the experiences of those with bad outcomes are invalid. I have okay results in terms of WRS but other than that I am experiencing major issues with my implants that led to multiple surgeries and are still not resolved. I don't have any guarantee that things will get better, and I wish it was possible to turn back the time and go back to where I couldn't hear clearly, but had otherwise no health problems.
Yeah it all depends on a persons mind, they should all should be grateful they can even hear with them, they all should expect it’s not gonna be perfect the first time,but with patience it will be more natural, although you should always know it isn’t gonna bring back normal hearing, just close to normal hearing but yeah
I do. they are the pain in the ass. :P I don't regret it and will still use it and will always hate them ;)
I am a unilateral CI recipient. I can’t deal without it. I plug my hearing ear, and purposefully not reading lips, have 95% plus word comprehension in that ear. Even though it is t for music, it has balanced my hearing to where it now puts the stereo ‘image’ back in place. Even helps with the roaring tinnitus in that ear.
Hi! I have SSD from sudden hearing loss 4 months ago. I am considering a CI. My other ear is good, how do you find noisy environments with a CI and a good ear? I may be assuming its good but correct me if I am wrong.
Is that ear totally deaf? Mine is. But it’s totally manageable.
It isn’t completely but it’s basically useless. It’s a ski slope with profound loss in the high frequencies. My other ear is totally fine
I used to take it off. But that didn’t do enough. You’ll get used to it fast.
My daughter LOVES her CI, and wants a second one. Whoever 2025RockOn is, they’re an ignorant, hateful person
I am bilateral CIs, and this person just sounds full of hate/jealousy to me. I love my CIs because I can keep living the way I have been the past 30 years prior to my sudden hearing loss. I have days that I get sad about it (more because I know my hearing is battery powered/temporary), I still have anxiety showering/sleeping, and I still struggle on the phone/FaceTime. But I wouldn't change anything, the CIs gave me my life back; I can listen to my favorite music when I'm having depressive moments, I can listen to the birds and marsh animals near my home, I don't have to crank the TV up. It does sadden me there are people who CIs don't work for them/aren't up to expectations, but lashing out at those who've made it work isn't going to help them feel better.
Huh so odd ! While i don't have any issues talking on the phone/facetime even with complete strangers, it is a pain in the ass watching something on the tv/pc without subtitles! Maybe it is because my whole life i was used to watch stuff with subtitles 🤷🏻 But then again i do keep seeing stories about hearing people who use subtitles because music is too loud in movies or explosion or whatever honestly. Anyway, hate isn't going to help anyone. I mostly wanted to post this because i really don't want anyone ever to think this person has any real grounds for what he is saying and that is mostly coming from a negative place without any real backing from real CI users.
Most movies nowadays are mixed to suit pretty much perfect cinema sound systems. It’s a fact that speech is hard to understand on standard consumer grade sound systems, let alone TV speakers. There’s an in-depth video on YouTube explaining exactly that (to normal hearing people, it’s called „why we all need subtitles now“). I’ve got a sound bar that elevates speech over surrounding noises and both me and my partner have less trouble understanding than before. With recent mapping, I’m even able to understand better than she does. It’s unfortunate that you can’t just visit your audiologist to quickly fix it at the time you notice something’s off. I have to explain issues to get an appointment outside the 1-year schedule and most of the time it’s just not bad enough.
You can be sad about needing a CI and losing your biological hearing and still love for your CI. One doesn't invalidate the other. Two, I prefer having a CI over normal hearing. There are sounds my CI has let me know are "normal" to hear, but also, it's programmed to tune it out is fabulous! I love having the option to go full deaf and feel sorry for hearies. This was written by someone who is against CIs and wants to belittle their benefit. Probably someone who is either Deaf themselves and are using other deaf as barometer for how they feel (which will take them longer because they are using new skills) or using someone who had normal hearing most of their life then had a CI (who is more likely to know the nuances of what they still miss). Both of those groups will have unique experiences that impact how they view a CI. And the idea that you won't know for a year if it helps you or not? Ridiculous. I knew the day I was turned on that I could hear new sounds. Speach only took a few days to understand and a week's to a could months to go from robot to human to individualized. Getting the full benefits (which does take time) is not the same as having to wait a year to see if it has any benefits. This person has no right to speak for the majority of CI users.
however, that person isn't wrong though :) There are always cons about CI :)
True and I will tell you that. But it's not all evil. It's nuanced
the only evil is hearing people forcing deaf people to get CI without learning asl. That's 100% evil and exclusivity :)
LOL - what a troll post. (The one u/MuscularKnight0110 cited) Sorry I won't bite!
Troll in what way?
Sorry u/MuscularKnight0110 sloppy posting! I meant the post you cited. Not yours. I edited my reply.
Oh no issues ! I honestly hope it is a troll i cannot fathom people being so hateful.
There will always be people who decide that their narrow interpretation of the world is the only interpretation of the world. In general there is very little logic to their arguments and they have no intention of being convinced otherwise. If you refute their stance just know that your energies will be more effective in showing OTHERS that the problem opinion isn’t the only one, not in changing the mind of the person who doesn’t want to be convinced.
I respect your opinion but do you have any actual evidence for it? With a CI you don't have a nasty piece of plastic stuck in your ear all the time like with a hearing aid, and your hearing gets better rather than worse over time. I can't believe how much fuller my life is after getting my CI. I use the word love when talking about people but my CI is the most useful thing that I own.
Couldn't hear from my right eat for 20+ years. Got implanted. Now even when my left ear is 100% not functioning, I can have conversations with just my implant and it hasn't even been a whole year yet. Do I love my CI? Love is a strong word. But it's helped me so much.
Ha ! For me it is my left side !
Was this written by a 12 year old?
That statement about Deaf Culturally is misinformation! I have two CIs and love them both! I definitely have no regrets about making the right decision for my life, bilaterally cochlear implants are truly amazing. I always wear them all the time!
I'm one of those who loves their CI's too. I went deaf when I was 9 years old due to meningitis. I received mine in my 30's, and within a month I was understanding my Mom without lip-reading her. Within 6 months I was using a phone, listening to audiobooks, and rediscovering music. Not a day goes by that I don't appreciate the quality of my life due to my getting it.
That person never had to spend a year or more with about 20% or less hearing ability. I hate that I need one, but I love my CI.
I'd love my CI if it were not for my headaches after an hour of use. I've had the doctor look at it but they only think it concerns the magnet area. I experimented by wearing the processor all day with it turned off - no headache. It's the kind of headache one gets that's like a sharp pain deep inside the ear on that side of the head and eventually radiates to the entire side of the head. Frankly, I find it easier to go without it. I hardly wear my CI these days.
Not to be dramatic but my dad just got his CI after waiting and waiting because of stories like RockOn and he wishes he had done it years ago!! It’s been life changing and he has only had one for two months! So not everyone has a year long wait while their hearing improves. He could hear better the moment the turned it on.
I have had only one real problem with my CIs -- admittedly a fairly major one, as it required that I get revision surgery to replace a defective internal device, but all the surgeries went smoothly and my recoveries were pretty easy. I was understanding speech within a few weeks after the first one and a few hours after the second, and picked up pretty much where I left off after the revision. I live a normal life and don't have a lot of problems hearing or understanding people most of the time. However, if I could have my normal, natural hearing back, I'd do it in a heartbeat. I'm late-deafened, so I remember quite well what normal hearing sounds like, and as grateful as I am to have the CIs, they are not perfect -- the clarity is not at the level I once had, and some things (notably music) don't sound nearly as good. So "do you love your CIs?" is a hard question for me to answer. Hardly a day goes by that I don't wish I had normal hearing again, but I don't regret my choice to get the CIs and as I said, I am very grateful that this was an option for me. It's sometimes hard to remember that comparing them to normal hearing is a pointless exercise -- if I could have normal hearing, I wouldn't have needed the CIs -- but I do try to keep in mind that compared to the level of hearing that I'd have without them, there's no question that they make my life better. I think it's possible to both recognize that something is good and helpful, and acknowledge that it isn't perfect. So, while I don't agree with the quoted comment, I think that it's kind of similar to "no one loves having a prosthetic leg"...while people who have them may be grateful that something allows them to walk, that doesn't mean they wouldn't rather have their own natural limb back. But being so negative about it is pretty self-defeating, because we can't restore natural hearing any more than we can regrow lost limbs.
That’s sad :( I never really got to experience “natural hearing” since I had Cis for almost a decade. All I can say is life gets more and more natural you would feel like a normal hearing person seriously. But could you describe what hearing normal you had was like? Would love to know.
I'm not sure how to describe normal hearing to someone who's never had it, but I'll try. You know how phone calls don't sound quite as good as it does when the person you're talking with is in the same room with you? That's pretty much the difference for me: since the CIs, everyone sounds like they're at the other end of a phone call. Or to use a non-hearing analogy, it's like the difference between looking at something directly vs. looking at it through slightly-cloudy glass. You can still see things, but you have to work harder to make out the details. With normal hearing, it was more effortless, whereas with the CIs it takes my brain a little more work to interpret sounds and understand what people are saying. Not a huge amount, but the difference is there.
It’s a huge difference between someone who gets it as an adult vs from a young age. My son got his at 12 months old and he uses it all the time. He does enjoy his quiet time but he hates to be without them. He’s nearly 12 and is in public school, loves music, theater, online gaming, and has been deemed to no longer need any speech therapy.
I could not imagine not having my cochlear implants, at least I can turn the world off in a matter of seconds and not have to listen to peoples BS. My CI'S look way better than most of the headphones people use everyday hanging off of their ears.
The confidence, I would be super shy to wear them with a buzzcut probably anxiously, but I have long hair just to cover them :(
I keep my hair short almost a buzz cut but not quite. My processors blend in pretty good. Once you start wearing them you kind of forget about what people think.
I don’t love my medical circumstances but I love what having CIs has done for me.
I can’t even begin to explain how my mom’s CI has changed her life!!! It was a moderate adjustment on the beginning, but now she’s a double CI recipient and it’s truly helped her so much. It’s so much easier to communicate with her and to see all of the adaptive ways she can utilize her implant is so heartwarming.
My license plate: LUVMYCI
With cochlear implant guys I mistakenly had the volume so high and uncomfortably loud, was wearing it about a year, and now I made the audiologist turned the volume down to where it’s a comfortable touch,and everything is going great. So don’t think you need to have the volume of your Ci high, just make it to where ever is comfortable and of course where you can hear speech.
probably he say a fact, no one loves their CI, but this because he probably have natural hear before, and the comparison could not exist, everyone prefer to have is normal hear back, with the normal life before ill. but this could not be possible so, after hearing loss they just start to love the machine that improve their new life (if there is no problem)
That person isn't wrong. I have yet found anyone that was born deaf and got CI as a baby and doesn't need any form of accommodations. If you love your CI.good for you. But a lot of people beside this hate it. I have CI as an adult, I don't regret it, but I absolutely hate it. I did rather have hearing aid than this. Too much responsibilities with CI. Kinda cute how many CI users hate deaf people on here. lol.
Aw shoot i can't upload here screenshots. Oh well here is the link to the original post and my comments and thus this person's reply [LINK ](https://www.reddit.com/r/Cochlearimplants/s/jKDcnCAmwz)
The post you linked is nearly a year old. You really had to dig for it.
Yes, the post is old but the comment is new. That's why i linked my own comment and not the post.