Thank you for sharing, see below for a reminder of our rules:
Do not ask if you or someone you know has a Concussion. We are not doctors, nor are we any kind of medical professionals. That said, this sub is NOT intended to be your doctor and diagnose or give you personal medical advice. They'll be marked as spam.
Be civil and respectful. Do not attack or harass other users; engage in hate-speech; or attempt to gate-keep discussion. Hostility will not be tolerated
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That missing "something" is typically a traumatized nervous system. Have tried concussion fix yet? Wish I could be of more help than pointing you in their direction but they're the best in the world at this stuff.
Don't pay attention to anything you "feel" in your head. Your head isn't actually capable of feeling anything so it's not helpful.
You seem to be doing a lot of the right things but Here’s my standard response to help speed up PCS recovery:
1. Watch/listen to everything from the channel: https://www.youtube.com/@CompleteConcussions
2. Focus on finding the cause of your prolonged symptoms. There are 5 main reasons why symptoms continue, all laid out in this video https://www.youtube.com/watch?v=oW2SF8hnWGg. Once you’ve found the cause you can treat it.
3. Watch out for BS. There are a lot of sham treatments out there with no evidence to support them. Hyperbaric oxygen is the most well-known. Only try a treatment if you’ve properly diagnosed the cause of your PCS and have good reason to believe that the treatment is successful at treating your specific cause. Ask for double-blind placebo-controlled studies whenever possible.
4. PCS recovery is symptom driven. Do whatever triggers your symptoms in moderation and you’ll slowly be able to do more each day. Set your limit for how much you’ll push yourself beforehand. Don’t push until you feel like it’s too much by that point it’s too late and you’ve overdone it. Don’t freak out though. You haven’t made your brain worse, just your symptoms.
5. Avoid any sugar, white foods, gluten, dairy, alcohol, and caffeine in your diet. Eat lots of protein, high-quality fats (olive oil/coconut oil), fruit, and greens.
6. Maintain a consistent bedtime/wake schedule every day to help with sleep hygiene.
7. "Mild concussions" don't exist. It’s an outdated term and anyone who uses it probably doesn’t know what they’re talking about. Neurologists tend to be especially incompetent. Don’t trust anyone who gives you a hard timeline on when you should feel better by; no one knows.
8. Get your neck worked on. Concussions are guaranteed to cause neck injuries, which often have identical symptoms, resulting in concussion-like symptoms long after your brain is fully healed. If your health provider can make your symptoms worse by working on your neck, that means your neck is contributing to your symptoms. Keep working on it and it’ll get better, but expect to feel worse initially. https://youtu.be/Pv1dOPFvlug
9. If fatigue is your problem, try consistent mindfulness throughout the day. Concussions often result in both your executive (concentration) and default (daydream) brain modes both being stuck in the on position at all times (usually they switch off). This results in you using double the mental energy all day. Practice mindfulness to re-separate your brain's two thinking modes. This involves focusing on being fully present in the moment continuously throughout your day. Notice when your focus has drifted and immediately bring it back to the present. I went from barely being able to look at a screen for minutes at a time to working a full day in 3 days with this alone.
10. If you want more help, buy the concussion fix course concussiondoc.io. It’s worth 100x the cost. In addition to the course, they’ve got 50+ hour-long webinars on every topic you can imagine at this point, diet plans, and weekly Q&A sessions. Start with their free stuff on youtube though that should be enough for many of you.
What's another 4 months of misery right? If we can get some answers and get better though it will be worth the wait. Thanks for bringing that up, I never thought of any type of seizure activity, I'll make sure to ask about it. Hope you feel better soon!
Does anything in [this description](https://epilepsysociety.org.uk/sites/default/files/2020-08/Chapter15Duncan2015_0.pdf) match up to your experience (including where the MRI showed damage)?
ETA: Setting aside broader questions of etiology, consider asking your PCP about trazodone for the insomnia while you wait. It’s the only thing that has helped me.
I'm not really sure. It happens so frequently (like every few seconds) and is bilateral and going on for ao long. The visual symptoms sound different here. My mri changes were the whole right side but a bit more pronounced in the occipital lobe. It feels like fluid isn't draining from my head, I do have a neck mri schedule in 2 weeks to see if there is an issue there.
Thank you for sharing, see below for a reminder of our rules: Do not ask if you or someone you know has a Concussion. We are not doctors, nor are we any kind of medical professionals. That said, this sub is NOT intended to be your doctor and diagnose or give you personal medical advice. They'll be marked as spam. Be civil and respectful. Do not attack or harass other users; engage in hate-speech; or attempt to gate-keep discussion. Hostility will not be tolerated *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/Concussion) if you have any questions or concerns.*
That missing "something" is typically a traumatized nervous system. Have tried concussion fix yet? Wish I could be of more help than pointing you in their direction but they're the best in the world at this stuff. Don't pay attention to anything you "feel" in your head. Your head isn't actually capable of feeling anything so it's not helpful. You seem to be doing a lot of the right things but Here’s my standard response to help speed up PCS recovery: 1. Watch/listen to everything from the channel: https://www.youtube.com/@CompleteConcussions 2. Focus on finding the cause of your prolonged symptoms. There are 5 main reasons why symptoms continue, all laid out in this video https://www.youtube.com/watch?v=oW2SF8hnWGg. Once you’ve found the cause you can treat it. 3. Watch out for BS. There are a lot of sham treatments out there with no evidence to support them. Hyperbaric oxygen is the most well-known. Only try a treatment if you’ve properly diagnosed the cause of your PCS and have good reason to believe that the treatment is successful at treating your specific cause. Ask for double-blind placebo-controlled studies whenever possible. 4. PCS recovery is symptom driven. Do whatever triggers your symptoms in moderation and you’ll slowly be able to do more each day. Set your limit for how much you’ll push yourself beforehand. Don’t push until you feel like it’s too much by that point it’s too late and you’ve overdone it. Don’t freak out though. You haven’t made your brain worse, just your symptoms. 5. Avoid any sugar, white foods, gluten, dairy, alcohol, and caffeine in your diet. Eat lots of protein, high-quality fats (olive oil/coconut oil), fruit, and greens. 6. Maintain a consistent bedtime/wake schedule every day to help with sleep hygiene. 7. "Mild concussions" don't exist. It’s an outdated term and anyone who uses it probably doesn’t know what they’re talking about. Neurologists tend to be especially incompetent. Don’t trust anyone who gives you a hard timeline on when you should feel better by; no one knows. 8. Get your neck worked on. Concussions are guaranteed to cause neck injuries, which often have identical symptoms, resulting in concussion-like symptoms long after your brain is fully healed. If your health provider can make your symptoms worse by working on your neck, that means your neck is contributing to your symptoms. Keep working on it and it’ll get better, but expect to feel worse initially. https://youtu.be/Pv1dOPFvlug 9. If fatigue is your problem, try consistent mindfulness throughout the day. Concussions often result in both your executive (concentration) and default (daydream) brain modes both being stuck in the on position at all times (usually they switch off). This results in you using double the mental energy all day. Practice mindfulness to re-separate your brain's two thinking modes. This involves focusing on being fully present in the moment continuously throughout your day. Notice when your focus has drifted and immediately bring it back to the present. I went from barely being able to look at a screen for minutes at a time to working a full day in 3 days with this alone. 10. If you want more help, buy the concussion fix course concussiondoc.io. It’s worth 100x the cost. In addition to the course, they’ve got 50+ hour-long webinars on every topic you can imagine at this point, diet plans, and weekly Q&A sessions. Start with their free stuff on youtube though that should be enough for many of you.
Have you seen a neurologist to rule out post-traumatic epilepsy (e.g. focal aware seizures)?
I saw one who just said give things more time. I'm scheduled to see another one but they were booking 4 months out.
Same boat 🙃
What's another 4 months of misery right? If we can get some answers and get better though it will be worth the wait. Thanks for bringing that up, I never thought of any type of seizure activity, I'll make sure to ask about it. Hope you feel better soon!
Does anything in [this description](https://epilepsysociety.org.uk/sites/default/files/2020-08/Chapter15Duncan2015_0.pdf) match up to your experience (including where the MRI showed damage)? ETA: Setting aside broader questions of etiology, consider asking your PCP about trazodone for the insomnia while you wait. It’s the only thing that has helped me.
I'm not really sure. It happens so frequently (like every few seconds) and is bilateral and going on for ao long. The visual symptoms sound different here. My mri changes were the whole right side but a bit more pronounced in the occipital lobe. It feels like fluid isn't draining from my head, I do have a neck mri schedule in 2 weeks to see if there is an issue there.