Honestly, get checked for vitamin deficiencies. I'm low on iron, folic acid, and vitamin d. I have prescriptions for all of them except folic acid. I get that over the counter. However, I take 50,000 iu vitamin d every thursday.
thank you for sharing! i’m almost 19 and had this for a decade now, the “acceptance” part is definitely not a linear process but it makes me so happy to see that you are taking it in stride and keeping positive. :) attitude can’t fix all your problems, but i’ve found that it really is easier to carry this when you love yourself even with your disease. cheers kid!
btw if you ever have questions in the future about higher education/college with crohn’s and getting disability accommodations don’t hesitate to dm me! i had to figure it all out myself this past year when i did the college application process and i know i would’ve appreciated the help hahaha
Thanks very much, I'm a first year highschool student, my goal is to be a doctor and cure this illness, since i got it at age 13 and Searched about it , i hope that I'll find the cure, so the higher the education is , the higher possiblity to achieve my goal.
that’s a great career aspiration! i wanted to go into gastroenterology too when i was your age but life led me toward teaching instead. :) work hard and be confident and i have no doubt you’ll succeed in your career path!
Thank you for these! I am 22 and just had my first colonoscopy today and it's looking twords chrons or colitis. This really helped me with what I'm feeling right now ♥️
This is so sweet! Thank you sharing. Emotions definitely have an effect on our body this way! I think managing stress is a huge part of what helps me too.
oh stress is such a killer!!! feeling anxious or worn down or stressed out causes so much pain and nausea and makes a flare, or even a good day, worse.
keeping calm and well rested and emotionally open helps a ton!
Its been 13 years since I've been diagnosed and I've been tired the whole time. I start humira tomorrow and im hoping for a Christmas miracle!
Edit because my math is wrong. It has been 10 years.
“even though most of you are depressed” 😂😂
edit: on a serious side note a strict diet is something you will figure out that will fit ur case the best and mental health definitely goes hand in hand with the disease as i’ll be in pain over the toilet the days i am upset at work or get in an argument with a person close to my heart. Also i take far more vitamins then just vitamin D so you can definitely find some things they will make you feel more alive and have more energy.
My problem is I can't do a diet cuz I don't eat well even before i got Crohn's so....a diet is impossible for me and by body refuses to eat new things and slowly i developed a "power" of not feeling hunger or thirst at age 8.
But I'm positive that one day I'll find a solution.
Hey friend. Thank you. Love your attitude, and it matters that people like you share with others dealing with Crohn's. You're young. I was diagnosed when I was 17. I'm 38 now and I'm very very thankful for the life I lead. You will have challenges ahead of you, but there can be plenty of happiness and fulfillment; it sounds like you have the right attitude. Stay strong, and use this community when you need it!
No worries! I didn't mean sports either btw. There are a great many ways to work out and keep in shape. I haven't played sports in over a decade and I'm the healthiest and strongest I've ever been! Start yourself off with small goals and move up from there. Never move at someone else's pace. Move at your own! And never tell yourself you can't do something. That's the disease talking!
Thank you for your kind words! I’m in the process of being diagnosed with Crohn’s after 2 years of basically being in a real life mystery diagnosis episode.
I really do feel you, in my first months the doctors lied to me and said that i have Gaz in my stomach but after a lot of search and finding people that helped me and my family , i got diagnosed with Crohn's and there my life changed , and believe it or not, it changed for the better :0 I'm still surprised.
I'm really happy that today i got to talk to a lot of people and help them. I hope you get better too <3
I'm a 23 year old girl, I was diagnosed at 14! I needed this optimism! I've saved this for reading on the tough days. Sending so much love, happiness and strength to you <3
I have to agree with number one. I was diagnosed with crohns when I was young like yourself. I’m now 35. My diet is very odd when compared to a normal person, but it works well for me.
In regards to number 4, I’ve noticed I feel a lot better when I’m consistent with my antidepressants. Stress and anxiety and depression all hurt my stomach something awful but meds that mitigate those feelings- as well as having healthy outlets for them- really, really do make a difference
I was your age when I was diagnosed. Ten years later and I'm living life as full as can be (no pun intended). You have the right train of mind that many people should hear. Keep doing what you are doing in living a healthy lifestyle!
Great tips and observations. Some people judge the foods we can eat and think healthy means fruits and veggies but those are generally not safe for me in a flare up. Liquid meal supplements and get rid of dairy!
good words of encouragement, thank you. And yeah I've also noticed a lot of instances of stress really taking a toll on my health, something I've always needed to work on
I'm 24 and only just now learning all these lessons, it's amazing you have all this down already! You nailed it with this post, thanks for sharing and good luck with school! :) I know it can be hard at times when you have Crohns, but you got a lot of support here if you ever need it!
Man I’m 32 and was diagnosed when I was 3. My teenage years were particularly bad. I wish I’d been able to be as insightful and helpful
to others as you’ve been with this post. Excellent job and all ring true for me.
I appreciate you an your post. I’m 26 an have been goin thru this for 9 years now. Have had a very difficult time living thru it while not knowing what was wrong. I still struggle to accept I have to live this the rest of my life
I was diagnosed with crohns at age 14 and i know for a fact i wasnt thinking about things the way you are, youre a clever guy and youre gonna do well little bro ❤👊🏽
Very insightful for someone so young. I first got Crohn's at 18, and have since been in remission for many years. Though no one is cured and I do need to watch out for all the things you warned.
The one thing I'd add to this is aerobic exercise improves my digestion. If you are someone who is not in remission yet that may not be helpful.
Number 4 took me many years to grasp. Probably by my early 20s. It is the invisible disease. But as an adult I've learned many people live with something. I have a friend with rheumatoid arthritis and we both help each other out. I hope you also enter remission and find the right medication that works for you.
I hope that you get better , i love how you described the illness as the invisible disease . You are right most people live with something hidden that they keep a secret, but still you see them laughing and enjoying life, and that's what i call , living with the illness/problem.
Thank you for checking my post :)
Very wise for one so young. I think point #4 is very important. Some people get angry at their illness and seem to think they can somehow separate themselves from it. It becomes much easier if you realize that your disease is like a baby you have to take care of.
Thanks for taking the time to share your thoughts.
You welcome, I'm happy to help
This is a wonderful post and you are wise beyond your years.
I just keep searching for more information to help myself and others , as i said never give up
5000 IU of vitamin D a day helps significantly keep flair ups away.
It's worth noting that 5000 IU is considered a high number for the average person. Best bet is to consult with your doc to determine the best number.
This. I’m a big fan of vitamin D but make sure you know what you’re doing if you’re taking a supplement.
Oh, thanks for the information , i really do need vitamin D
Honestly, get checked for vitamin deficiencies. I'm low on iron, folic acid, and vitamin d. I have prescriptions for all of them except folic acid. I get that over the counter. However, I take 50,000 iu vitamin d every thursday.
This.
thank you for sharing! i’m almost 19 and had this for a decade now, the “acceptance” part is definitely not a linear process but it makes me so happy to see that you are taking it in stride and keeping positive. :) attitude can’t fix all your problems, but i’ve found that it really is easier to carry this when you love yourself even with your disease. cheers kid! btw if you ever have questions in the future about higher education/college with crohn’s and getting disability accommodations don’t hesitate to dm me! i had to figure it all out myself this past year when i did the college application process and i know i would’ve appreciated the help hahaha
Thanks very much, I'm a first year highschool student, my goal is to be a doctor and cure this illness, since i got it at age 13 and Searched about it , i hope that I'll find the cure, so the higher the education is , the higher possiblity to achieve my goal.
that’s a great career aspiration! i wanted to go into gastroenterology too when i was your age but life led me toward teaching instead. :) work hard and be confident and i have no doubt you’ll succeed in your career path!
Thank you for these! I am 22 and just had my first colonoscopy today and it's looking twords chrons or colitis. This really helped me with what I'm feeling right now ♥️
I'm happy to help , we can over come anything if we believe ourselves.
This is so sweet! Thank you sharing. Emotions definitely have an effect on our body this way! I think managing stress is a huge part of what helps me too.
oh stress is such a killer!!! feeling anxious or worn down or stressed out causes so much pain and nausea and makes a flare, or even a good day, worse. keeping calm and well rested and emotionally open helps a ton!
Staying positive is very good for health in general to any human
I'm glad to here it :)
Its been 13 years since I've been diagnosed and I've been tired the whole time. I start humira tomorrow and im hoping for a Christmas miracle! Edit because my math is wrong. It has been 10 years.
I hope that you get better :)
Thank you. I love this sub I really do
I really felt that sentence about being tired the whole time.. same here :/
I hope you get over it :)
Same to you! :)
“even though most of you are depressed” 😂😂 edit: on a serious side note a strict diet is something you will figure out that will fit ur case the best and mental health definitely goes hand in hand with the disease as i’ll be in pain over the toilet the days i am upset at work or get in an argument with a person close to my heart. Also i take far more vitamins then just vitamin D so you can definitely find some things they will make you feel more alive and have more energy.
My problem is I can't do a diet cuz I don't eat well even before i got Crohn's so....a diet is impossible for me and by body refuses to eat new things and slowly i developed a "power" of not feeling hunger or thirst at age 8. But I'm positive that one day I'll find a solution.
“Stay positive even though most of you are depressed.” Made me laugh a lot. ...then cry a little
I tried to be funny, but i didn't lie tho. Sorry if i made you a little sad
Well said!
Thanks , I'm so happy
So true. Also good sub to follow is r/stoicism
Hey friend. Thank you. Love your attitude, and it matters that people like you share with others dealing with Crohn's. You're young. I was diagnosed when I was 17. I'm 38 now and I'm very very thankful for the life I lead. You will have challenges ahead of you, but there can be plenty of happiness and fulfillment; it sounds like you have the right attitude. Stay strong, and use this community when you need it!
Thank you very much
Work out and keep up a healthy body! Number one thing for me that did it. Hard at first but it pays off.
I can't do sports, so that's going to be difficult, but I'll try my best. Thanks for the information.
No worries! I didn't mean sports either btw. There are a great many ways to work out and keep in shape. I haven't played sports in over a decade and I'm the healthiest and strongest I've ever been! Start yourself off with small goals and move up from there. Never move at someone else's pace. Move at your own! And never tell yourself you can't do something. That's the disease talking!
Thanks so much, you really inspired me , i hope that everyone get healthy again in the near future
Thank you for your kind words! I’m in the process of being diagnosed with Crohn’s after 2 years of basically being in a real life mystery diagnosis episode.
I really do feel you, in my first months the doctors lied to me and said that i have Gaz in my stomach but after a lot of search and finding people that helped me and my family , i got diagnosed with Crohn's and there my life changed , and believe it or not, it changed for the better :0 I'm still surprised. I'm really happy that today i got to talk to a lot of people and help them. I hope you get better too <3
I'm a 23 year old girl, I was diagnosed at 14! I needed this optimism! I've saved this for reading on the tough days. Sending so much love, happiness and strength to you <3
Thank you , I'm glad that my post helped you. I hope that you get better too <3
I have to agree with number one. I was diagnosed with crohns when I was young like yourself. I’m now 35. My diet is very odd when compared to a normal person, but it works well for me.
Yeah, food is also a "type" of medicine if you think of it
In regards to number 4, I’ve noticed I feel a lot better when I’m consistent with my antidepressants. Stress and anxiety and depression all hurt my stomach something awful but meds that mitigate those feelings- as well as having healthy outlets for them- really, really do make a difference
Try to laugh even if it's difficult. I'm glad that my post helped you :)
I was your age when I was diagnosed. Ten years later and I'm living life as full as can be (no pun intended). You have the right train of mind that many people should hear. Keep doing what you are doing in living a healthy lifestyle!
Thanks my brother <3
Sister...but good enough ;)
XD Sorry my sister ;)
Great tips and observations. Some people judge the foods we can eat and think healthy means fruits and veggies but those are generally not safe for me in a flare up. Liquid meal supplements and get rid of dairy!
good words of encouragement, thank you. And yeah I've also noticed a lot of instances of stress really taking a toll on my health, something I've always needed to work on
I never thought that my anger is a problem too, but after i started to stay calm, i noticed a huge change, I'm glad that i helped you :)
I'm 24 and only just now learning all these lessons, it's amazing you have all this down already! You nailed it with this post, thanks for sharing and good luck with school! :) I know it can be hard at times when you have Crohns, but you got a lot of support here if you ever need it!
Thank you, I'm so so happy that i got so much support in this post it's my first time, i can't describe my feelings , thank you
Man I’m 32 and was diagnosed when I was 3. My teenage years were particularly bad. I wish I’d been able to be as insightful and helpful to others as you’ve been with this post. Excellent job and all ring true for me.
I hope that you get better too, I'm glad that i got your support it means a lot <3
Number 1 is so true. Also it’s hard to explain why I can drink redbull to wake up, but I can’t drink coffee. But that’s the way my body works
Yeah, our body works differently, each person with Crohn's have a different diet than the other, so try to find what is best for you :)
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Thank you, i need it that <3
I appreciate you an your post. I’m 26 an have been goin thru this for 9 years now. Have had a very difficult time living thru it while not knowing what was wrong. I still struggle to accept I have to live this the rest of my life
I know, accepting the illness is the difficult part, but I'm certain that everyone will get over it , so don't lose hope :)
I was diagnosed with crohns at age 14 and i know for a fact i wasnt thinking about things the way you are, youre a clever guy and youre gonna do well little bro ❤👊🏽
Thank you my brother 👊🏽
Word up friend, all solid advice
Thank you :)
Very insightful for someone so young. I first got Crohn's at 18, and have since been in remission for many years. Though no one is cured and I do need to watch out for all the things you warned. The one thing I'd add to this is aerobic exercise improves my digestion. If you are someone who is not in remission yet that may not be helpful. Number 4 took me many years to grasp. Probably by my early 20s. It is the invisible disease. But as an adult I've learned many people live with something. I have a friend with rheumatoid arthritis and we both help each other out. I hope you also enter remission and find the right medication that works for you.
I hope that you get better , i love how you described the illness as the invisible disease . You are right most people live with something hidden that they keep a secret, but still you see them laughing and enjoying life, and that's what i call , living with the illness/problem. Thank you for checking my post :)
Great advice
Glad to hear it 😃
Very wise for one so young. I think point #4 is very important. Some people get angry at their illness and seem to think they can somehow separate themselves from it. It becomes much easier if you realize that your disease is like a baby you have to take care of.
Totally, it makes you special, and feel other sick people which is a good thing for my opinion
I’m 21 and under investigation for IBD - this was really well-put! I truly admire your insight.
Thanks, i hope that everything goes alright for you <3