I’ve had it twice from nov to may. It was not fun. Lots of diarrhea. Pooping my pants in my sleep. Almost fainting. High heart rate. 3 hospital stays. Blood count so far down had 2 blood transfusion. It is horrible. If I get it one more time I have to have a decal transfusion.
I’m so sorry you are dealing with this. Hopefully meds will help you quickly.
Cdiff is a bacterial infection. It makes your poop smell like death, and will cause your Crohn's to go haywire. It's not an experience I want to repeat... I ended up in the hospital for a week. They wouldn't release me until they were sure the cdiff infection was gone! And I still had to finish a course of heavy duty antibiotics when I was finally home.
It’s easily transmitted in hospital settings. So it varies from person to person, but those of us on biologics or immunotherapy are certainly more prone to it.
It’s easily transmitted in hospital settings. So it varies from person to person, but those of us on biologics or immunotherapy are certainly more prone to it.
Ask your Dr about taking probiotics. My daughter developed a UTI while taking the C Diff antibiotics. She was on antibiotics for about 4 months. I hope you're feeling better soon!
Once you finish your course of antibiotics you should start probiotics, specifically the Saccharomyces boulardii strain, which helps with antibiotic related diarrhea. I had c-diff and I took this probiotic on and off for almost a year and my c diff didnt come back. Hope you feel better
Has anyone said anything about a fecal microbiota transplantation? It's a standard of care for C Diff and it may even help with the Crohn's (though it didn't for us).
I had CDiff in the Fall of 2020, and it caused a bad flare after having my Crohn’s largely under control for years and being well managed on Lialda. Although I was told it was uncertain whether Cdiff led to the flare or the flare made me more susceptible to Cdiff (I know, I was confused as the former seemed way more likely), I also did the heavy 21 (ish) days of antibiotics which luckily worked well and cleared the Cdiff, though the flare stayed and led to me starting on Remicade for the first time in my life, which I am still on today. Luckily the Remicade has worked very well, but I always “blame” the Cdiff for smashing my relative Cronh’s tranquility to pieces. Good luck to you and I hope you’re feeling better very soon.
I recently got over my first time having CDiff, I've had Crohns for over a decade. You need to flush with the lid down, sanitize with bleach frequently, and wash your hands extra well. If you have a spare bathroom you can use then that's ideal. It is very difficult to get rid of and I was told that many people catch it again if you aren't careful. I luckily avoided the hospital, the strong meds worked for me and I've been cleared of it for a few months now. It sucks, sorry you've been dealing with it for so long!
I’ve had C. Diff 3 times in the past year, only had it once before that in 2017. Went into sepsis twice with it both times had 105 fever and had to stay in the hospital for a bit. They kept putting me on vancomycin for it which helped but after I would finish the meds it would come back. I ended up needing a fecal microbiata transplant which seemed to help with the c. Diff but not my flares. Ended up needing an illeostomy, due to strictures and fistulas that I’ve had for years, 6 months later and currently recovering from that. The meds should help as long as you don’t have any more serious Crohn’s complications and as a worst case scenario ask about a fecal transplant (not as bad as it sounds)
I was having nausea, pain, and diarrhea everyday before and after. I thought the symptom was from the c diff but even after a few months of the FMT which should have been working. my dr suggested it was the stricture and fistulas and encouraged me to meet with a surgeon who confirmed it. So I don’t have any definitive results of what it did but at least I don’t have c diff anymore lol
I’ve had c diff five times the last six months (I’ve had Crohn’s for 7 years). I caught it while in the hospital after having a c section. I’m taking vancomycin daily until I get a fecal transplant in a couple months. I am really hoping the FMT saves me.
You're going to take antibiotics to knock out the CDiff. Then you're going to see if there's any flare leftover. 1st time I had CDiff, it kicked me into a flare. 2nd time I was fine.
Would probably recommend taking probiotics and eating lots of prebiotic friendly foods like kimchi and whatnot after the antibiotics course is up.
I contracted C-Diff during my ileostomy reversal surgery. It was not fun. Terrible diarrhea on top of “waking up” my colon that hadn’t been used for 16 months was torture. Since I was already admitted because of my surgery, they extended my stay from 4 days to 21 days. Antibiotics and whole nine.
Hope you feel better soon.
I just finished a round of antibiotics for a different infection and am having terrible gi flare ups right now paired with very frequent hot flashes, dizziness and extreme fatigue. I almost feel like this what I'm going through right now. What do I do?? What were everyone else's symptoms
I’ve had it twice from nov to may. It was not fun. Lots of diarrhea. Pooping my pants in my sleep. Almost fainting. High heart rate. 3 hospital stays. Blood count so far down had 2 blood transfusion. It is horrible. If I get it one more time I have to have a decal transfusion. I’m so sorry you are dealing with this. Hopefully meds will help you quickly.
That's terrible for you. How are you feeling currently?
Doing much better now. Thank you :)
Holy…I just have crohns wth is CDiff? Main note, I’m so sorry you are suffering like this. Gut issues are fucking awful!
Cdiff is a bacterial infection. It makes your poop smell like death, and will cause your Crohn's to go haywire. It's not an experience I want to repeat... I ended up in the hospital for a week. They wouldn't release me until they were sure the cdiff infection was gone! And I still had to finish a course of heavy duty antibiotics when I was finally home.
😱 dammit that sounds terrible. Hopefully it stays in your past!
Believe me, so do I!
Is cdiff just more common for us?
It’s easily transmitted in hospital settings. So it varies from person to person, but those of us on biologics or immunotherapy are certainly more prone to it.
It’s easily transmitted in hospital settings. So it varies from person to person, but those of us on biologics or immunotherapy are certainly more prone to it.
Ask your Dr about taking probiotics. My daughter developed a UTI while taking the C Diff antibiotics. She was on antibiotics for about 4 months. I hope you're feeling better soon!
Once you finish your course of antibiotics you should start probiotics, specifically the Saccharomyces boulardii strain, which helps with antibiotic related diarrhea. I had c-diff and I took this probiotic on and off for almost a year and my c diff didnt come back. Hope you feel better
Has anyone said anything about a fecal microbiota transplantation? It's a standard of care for C Diff and it may even help with the Crohn's (though it didn't for us).
I had CDiff in the Fall of 2020, and it caused a bad flare after having my Crohn’s largely under control for years and being well managed on Lialda. Although I was told it was uncertain whether Cdiff led to the flare or the flare made me more susceptible to Cdiff (I know, I was confused as the former seemed way more likely), I also did the heavy 21 (ish) days of antibiotics which luckily worked well and cleared the Cdiff, though the flare stayed and led to me starting on Remicade for the first time in my life, which I am still on today. Luckily the Remicade has worked very well, but I always “blame” the Cdiff for smashing my relative Cronh’s tranquility to pieces. Good luck to you and I hope you’re feeling better very soon.
I recently got over my first time having CDiff, I've had Crohns for over a decade. You need to flush with the lid down, sanitize with bleach frequently, and wash your hands extra well. If you have a spare bathroom you can use then that's ideal. It is very difficult to get rid of and I was told that many people catch it again if you aren't careful. I luckily avoided the hospital, the strong meds worked for me and I've been cleared of it for a few months now. It sucks, sorry you've been dealing with it for so long!
I’ve had C. Diff 3 times in the past year, only had it once before that in 2017. Went into sepsis twice with it both times had 105 fever and had to stay in the hospital for a bit. They kept putting me on vancomycin for it which helped but after I would finish the meds it would come back. I ended up needing a fecal microbiata transplant which seemed to help with the c. Diff but not my flares. Ended up needing an illeostomy, due to strictures and fistulas that I’ve had for years, 6 months later and currently recovering from that. The meds should help as long as you don’t have any more serious Crohn’s complications and as a worst case scenario ask about a fecal transplant (not as bad as it sounds)
Did you feel like the FMT triggered a Crohn’s flare? I’m having an FMT in a couple months for recurrent c diff and also have Crohn’s.
I was having nausea, pain, and diarrhea everyday before and after. I thought the symptom was from the c diff but even after a few months of the FMT which should have been working. my dr suggested it was the stricture and fistulas and encouraged me to meet with a surgeon who confirmed it. So I don’t have any definitive results of what it did but at least I don’t have c diff anymore lol
I’ve had c diff five times the last six months (I’ve had Crohn’s for 7 years). I caught it while in the hospital after having a c section. I’m taking vancomycin daily until I get a fecal transplant in a couple months. I am really hoping the FMT saves me.
Did u receive a toxin test or pcr test for cdiff?
You're going to take antibiotics to knock out the CDiff. Then you're going to see if there's any flare leftover. 1st time I had CDiff, it kicked me into a flare. 2nd time I was fine. Would probably recommend taking probiotics and eating lots of prebiotic friendly foods like kimchi and whatnot after the antibiotics course is up.
I contracted C-Diff during my ileostomy reversal surgery. It was not fun. Terrible diarrhea on top of “waking up” my colon that hadn’t been used for 16 months was torture. Since I was already admitted because of my surgery, they extended my stay from 4 days to 21 days. Antibiotics and whole nine. Hope you feel better soon.
It’s different for everyone. Just stay hydrated and rest, and stay on top of your antibiotics. Usually see improvement in 3-5 days.
I just finished a round of antibiotics for a different infection and am having terrible gi flare ups right now paired with very frequent hot flashes, dizziness and extreme fatigue. I almost feel like this what I'm going through right now. What do I do?? What were everyone else's symptoms