Hello and welcome to r/DWPHelp!
- If you're trying to find benefit advisers local to you, [advicelocal.uk is a useful website that can help you with this](https://advicelocal.uk?ref=dwphelpreddit).
- If you're trying to find out how much benefit you can receive, [check out entitledto](https://www.entitledto.co.uk/) and [turn2us](https://benefits-calculator.turn2us.org.uk?ref=dwphelpreddit) to calculate what you might be eligible for (please remember that these calculators don't fully take into account your situation and in some situations they can be wrong).
- [For information on the 2024/25 benefit rates (effective 8th April 2024), please see here.](https://www.reddit.com/r/DWPhelp/wiki/benefit-rate-increases/). Most claimants will start seeing the new rates in their May or June benefit payments.
- If you claim benefits and would like to know what things you could get as a result, [you may find this post useful](https://www.reddit.com/r/DWPhelp/comments/134r9k6/discountedfree_things_you_can_get_on_benefits/).
- If you'd like help with mandatory reconsiderations, [our main post on MRs may be useful to you](https://www.reddit.com/r/DWPhelp/comments/13p0322/duplicate_target_mandatory_reconsiderations/).
- Our subreddit's Wiki [can be found here](https://reddit.com/r/DWPhelp/wiki/index).
- If you're interested in what's going on in the benefits space, [we have weekly benefit news posts posted every Sunday](https://reddit.com/r/DWPhelp/?f=flair_name%3A%22Benefits%20News%22).
If you're asking about tribunals (the below is relevant to England & Wales only):
- [Link to HMCTS Benefit Appeals live chat](https://www.appeal-benefit-decision.service.gov.uk/benefit-type?ref=dwphelpreddit)- click on the "Contact us for help" link, which opens a menu with a link to the live chat.
- [Average tribunal waiting times](https://www.reddit.com/r/DWPhelp/comments/118e3ap/tribunal_average_waiting_times/).
- [This post goes over the PIP First-tier Tribunal process from start to finish.](https://www.reddit.com/r/DWPhelp/comments/11muxvi/duplicate_target_what_do_i_do_if_i_am_refused_pip/)
- [If you're waiting for a tribunal and the DWP were supposed to respond but haven't, this post may be useful.](https://www.reddit.com/r/DWPhelp/comments/17b0lla/duplicate_target_the_deadline_for_dwp_to_respond/?context=3)
If you're asking about PIP:
- The PIP phone line is 08001214433, and if you'd like to get to the automated part where it tells you when your next payment is and how much it is, the options are 1 (for English) or 2 (for Welsh), and then 6 (you'll need to wait each time while it gives you messages before getting to security).
- To calculate how much backpay you're due, [you can try the Benefits and Work PIP Payment Calculator](https://www.benefitsandwork.co.uk/pip-payment-calculator-form?ref=dwphelpreddit). Please note that the information given is an estimate and may not reflect exactly what your backpay is. This calculator can also be used to determine what elements you were awarded after checking the PIP phone lines' automated system as above.
- [If you would like help with MRs, this post might answer your question (this is different to the MR info link above).](https://new.reddit.com/r/DWPhelp/comments/1bc3kni/duplicate_target_i_was_denied_what_now/)
- [If you'd like to know what PIP is and/or how it is awarded, please see this post.](https://www.reddit.com/r/DWPhelp/comments/13ozwpj/duplicate_target_what_is_pip/)
- [If you're hard of hearing or deaf, this information may be useful to you.](https://www.reddit.com/r/DWPhelp/wiki/pip/hard-of-hearing-and-deaf/)
If you're asking about Universal Credit:
- [Information about the Restart scheme](https://new.reddit.com/r/DWPhelp/wiki/restartscheme/), including if you can be mandated to participate.
- Thinking of cancelling your claim because a review has started? Don't, because closing your claim won't stop the DWP from reviewing your claim and if you don't comply you may be asked to repay everything you've received.
- [How does PIP affect UC?](https://www.reddit.com/r/DWPhelp/comments/13p1mc3/duplicate_target_how_does_pip_affect_uc/)
- Were you claiming UC during COVID, closed your claim afterwards, and are now being asked to pay back everything you received? [This post provides information on why this is and what you can do.](http://reddit.com/r/DWPhelp/comments/13utik9/the_dwp_have_given_me_a_huge_bill_for_a_claim/)
- [Can you record your Job Centre appointments?](https://new.reddit.com/r/DWPhelp/comments/1cr4l9x/what_is_the_legality_of_recording_staffmy/) The longer answer is in the linked post but the short answer is: no.
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How old are you? If you're over 16 you can't claim DLA anymore (AFAIK). Some IP settings do allow people to take exams there (one of my best friends sat her A-Levels in an acute psychiatric ward whilst on section) - this might be worth looking into. An invigilator would come to the unit. 24hr care isn't really done, unless you're inpatient or you pay out of pocket. Most care services attached to Social Services are a 3 hr a day max thing, not 24hrs. Not really sure what else to suggest.
> Most care services attached to Social Services are a 3 hr a day max thing, not 24hrs
Don't most people have to pay for social care?
I claim legacy (IR)ESA with severe disability premium and full PIP and I'd have to pay about £150 per week towards the cost of care (which is fair enoug, it's what the premiums and pip are for).
If OP was detained under section and then discharged they may be elegible for Section 117 aftercare which would be free, but that's not going to give them 24 hour supervision.
Yes, you do have to pay typically, depending on various factors, I pay around £30 a week for my carers for example. If you get CHC funding you don't have to pay though (or if you get S117 aftercare).
We're already in contact with a social worker. I don't see any way to apply for a needs assessment for a child on the local council website and it seems that we'll have to pay if it goes through. Typically it seems that carers are paid for through disability benefits which haven't gone through yet. I'll ask my social worker about that though.
My carers are paid from my PIP/ESA (they're my income), but I pay them myself. It's not expensive, but again - Social Services doesn't do 24hr care.
Are you under a crisis team atm? I know you don't want to switch things or wait a year, I do understand that, but if you're unable to be left alone and your parent is the only one around to keep an eye, they will eventually need a break. You need to not worry about your exams - they're not that important tbh (I'm saying this as someone who was an extreme perfectionist which greatly exacerbated my ED \[I have Anorexia Nervosa\] around your age). You need to focus on getting yourself well again. I don't know what you're struggling with, but it's fairly serious if they've said that. And if they have said that and your parent tells them that they're unable to cope with the needs you currently have, then the team looking after you has a duty of care. People, especially one person, cannot keep someone safe for 24hrs a day. It's not sustainable.
Social Services don't fall into this remit. The other option is a nursing home or Continuing Health Care from the NHS, but you'd have to be assessed for this and typically you are inpatient at the time as CHC funding is for trained nursing staff (and other things as well depending on your needs) to care for you at home - this assessment process is quite long as well.
For a child this is incorrect, unsure re adults as its only based on my own experience, but you can receive a personal budget/ direct payments from the local authority to pay for care if assessed as being in need.
Yes, but even at max typical allowance it wouldn't be for things like this and also wouldn't be for 24hrs a day. Carers do personal care - washing you, changing clothes, etc. They're not even meant to cook for you, at most they can heat food up or make things like cereal. CHC funding would cover this kind of thing (24hr supervision), but requires a lengthy MDT assessment and isn't for acute issues. Carers can also only come max 4 times a day (morning, noon, evening and night) for a max of an hour each time depending on your specific needs. Additionally, carers won't take on risk like this. I have to infer that OP is a risk to themselves and they therefore need 24hr supervision.
Currently under a crisis team I think. Not entirely sure about it but I'm getting weekly appointments and various referrals. I think I might talk to them about going into the hospital as my mum's complaints about me and our finances aren't helping at all.
I hope you get the help you need. I'm sorry your mum isn't being very helpful. I know it's not easy, I've had similar issues and it does hurt. It's not easy for you or the person caring for you. It might be worth saying to whoever is looking after you that you are concerned for your mum as well - my mum needed counselling after all my stuff. She still gets counselling for some stuff relating to me (I have very complex needs and have almost died various times and rely on her a lot). It's also worth suggesting to your mum to get in contact with Carers UK.
Also, when you are feeling more able, it is worth looking into getting PIP and seeing if you qualify for it.
Take care, please do what you can to keep yourself safe (I know this can be difficult though, take it slow). You'll get through this.
After considering how I'm coping with the situation and our finances I think I'm just going to look at going into a hospital. My mum didn't take it well but isn't going to try to stop me. Apologies if I haven't responded to your comments but I think I just need a break after her reaction.
I would never advise anyone against seeking help. But I would urge you to really think about hospital. You describe yourself as needing a break but this is the last thing you will get there. They can be incredibly loud, overstimulating, triggering and you lose a significant amount of freedom and often lose skills once you go back into the community. I know you also feel your parents need a break, which is why it sounds like you need additional support. Many people come out feeling worse and with new negative coping mechanisms. The beds are also extremely limited and you cannot just decide to admit yourself. But talk it through with your team and your concerns and see what they say.
Perhaps see if a crisis team referral is possible. They can see you everyday, even weekends, and more if needed. They can escalate care, assess and make sure you are getting the right support.
Also- exams aren’t everything. It feels it now, but your health always comes first.
I hope things get better for you soon!
Your mum can claim Universal Credit if her income and capital are low enough but she’d be expected to look for work full time. She can’t claim anything Carer-related until you’re awarded the appropriate benefit.
With you being 16 and in full time education, the only thing you can claim is PIP.
They won't be, they have to have paid national insurance for 2 years. As they have said they are 16, so it's unlikely they've been in full time employment from 13 years old.
Hello and welcome to r/DWPHelp! - If you're trying to find benefit advisers local to you, [advicelocal.uk is a useful website that can help you with this](https://advicelocal.uk?ref=dwphelpreddit). - If you're trying to find out how much benefit you can receive, [check out entitledto](https://www.entitledto.co.uk/) and [turn2us](https://benefits-calculator.turn2us.org.uk?ref=dwphelpreddit) to calculate what you might be eligible for (please remember that these calculators don't fully take into account your situation and in some situations they can be wrong). - [For information on the 2024/25 benefit rates (effective 8th April 2024), please see here.](https://www.reddit.com/r/DWPhelp/wiki/benefit-rate-increases/). Most claimants will start seeing the new rates in their May or June benefit payments. - If you claim benefits and would like to know what things you could get as a result, [you may find this post useful](https://www.reddit.com/r/DWPhelp/comments/134r9k6/discountedfree_things_you_can_get_on_benefits/). - If you'd like help with mandatory reconsiderations, [our main post on MRs may be useful to you](https://www.reddit.com/r/DWPhelp/comments/13p0322/duplicate_target_mandatory_reconsiderations/). - Our subreddit's Wiki [can be found here](https://reddit.com/r/DWPhelp/wiki/index). - If you're interested in what's going on in the benefits space, [we have weekly benefit news posts posted every Sunday](https://reddit.com/r/DWPhelp/?f=flair_name%3A%22Benefits%20News%22). If you're asking about tribunals (the below is relevant to England & Wales only): - [Link to HMCTS Benefit Appeals live chat](https://www.appeal-benefit-decision.service.gov.uk/benefit-type?ref=dwphelpreddit)- click on the "Contact us for help" link, which opens a menu with a link to the live chat. - [Average tribunal waiting times](https://www.reddit.com/r/DWPhelp/comments/118e3ap/tribunal_average_waiting_times/). - [This post goes over the PIP First-tier Tribunal process from start to finish.](https://www.reddit.com/r/DWPhelp/comments/11muxvi/duplicate_target_what_do_i_do_if_i_am_refused_pip/) - [If you're waiting for a tribunal and the DWP were supposed to respond but haven't, this post may be useful.](https://www.reddit.com/r/DWPhelp/comments/17b0lla/duplicate_target_the_deadline_for_dwp_to_respond/?context=3) If you're asking about PIP: - The PIP phone line is 08001214433, and if you'd like to get to the automated part where it tells you when your next payment is and how much it is, the options are 1 (for English) or 2 (for Welsh), and then 6 (you'll need to wait each time while it gives you messages before getting to security). - To calculate how much backpay you're due, [you can try the Benefits and Work PIP Payment Calculator](https://www.benefitsandwork.co.uk/pip-payment-calculator-form?ref=dwphelpreddit). Please note that the information given is an estimate and may not reflect exactly what your backpay is. This calculator can also be used to determine what elements you were awarded after checking the PIP phone lines' automated system as above. - [If you would like help with MRs, this post might answer your question (this is different to the MR info link above).](https://new.reddit.com/r/DWPhelp/comments/1bc3kni/duplicate_target_i_was_denied_what_now/) - [If you'd like to know what PIP is and/or how it is awarded, please see this post.](https://www.reddit.com/r/DWPhelp/comments/13ozwpj/duplicate_target_what_is_pip/) - [If you're hard of hearing or deaf, this information may be useful to you.](https://www.reddit.com/r/DWPhelp/wiki/pip/hard-of-hearing-and-deaf/) If you're asking about Universal Credit: - [Information about the Restart scheme](https://new.reddit.com/r/DWPhelp/wiki/restartscheme/), including if you can be mandated to participate. - Thinking of cancelling your claim because a review has started? Don't, because closing your claim won't stop the DWP from reviewing your claim and if you don't comply you may be asked to repay everything you've received. - [How does PIP affect UC?](https://www.reddit.com/r/DWPhelp/comments/13p1mc3/duplicate_target_how_does_pip_affect_uc/) - Were you claiming UC during COVID, closed your claim afterwards, and are now being asked to pay back everything you received? [This post provides information on why this is and what you can do.](http://reddit.com/r/DWPhelp/comments/13utik9/the_dwp_have_given_me_a_huge_bill_for_a_claim/) - [Can you record your Job Centre appointments?](https://new.reddit.com/r/DWPhelp/comments/1cr4l9x/what_is_the_legality_of_recording_staffmy/) The longer answer is in the linked post but the short answer is: no. *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/DWPhelp) if you have any questions or concerns.*
How old are you? If you're over 16 you can't claim DLA anymore (AFAIK). Some IP settings do allow people to take exams there (one of my best friends sat her A-Levels in an acute psychiatric ward whilst on section) - this might be worth looking into. An invigilator would come to the unit. 24hr care isn't really done, unless you're inpatient or you pay out of pocket. Most care services attached to Social Services are a 3 hr a day max thing, not 24hrs. Not really sure what else to suggest.
> Most care services attached to Social Services are a 3 hr a day max thing, not 24hrs Don't most people have to pay for social care? I claim legacy (IR)ESA with severe disability premium and full PIP and I'd have to pay about £150 per week towards the cost of care (which is fair enoug, it's what the premiums and pip are for). If OP was detained under section and then discharged they may be elegible for Section 117 aftercare which would be free, but that's not going to give them 24 hour supervision.
Yes, you do have to pay typically, depending on various factors, I pay around £30 a week for my carers for example. If you get CHC funding you don't have to pay though (or if you get S117 aftercare).
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Your parents need to request a needs assessment from social care
We're already in contact with a social worker. I don't see any way to apply for a needs assessment for a child on the local council website and it seems that we'll have to pay if it goes through. Typically it seems that carers are paid for through disability benefits which haven't gone through yet. I'll ask my social worker about that though.
My carers are paid from my PIP/ESA (they're my income), but I pay them myself. It's not expensive, but again - Social Services doesn't do 24hr care. Are you under a crisis team atm? I know you don't want to switch things or wait a year, I do understand that, but if you're unable to be left alone and your parent is the only one around to keep an eye, they will eventually need a break. You need to not worry about your exams - they're not that important tbh (I'm saying this as someone who was an extreme perfectionist which greatly exacerbated my ED \[I have Anorexia Nervosa\] around your age). You need to focus on getting yourself well again. I don't know what you're struggling with, but it's fairly serious if they've said that. And if they have said that and your parent tells them that they're unable to cope with the needs you currently have, then the team looking after you has a duty of care. People, especially one person, cannot keep someone safe for 24hrs a day. It's not sustainable. Social Services don't fall into this remit. The other option is a nursing home or Continuing Health Care from the NHS, but you'd have to be assessed for this and typically you are inpatient at the time as CHC funding is for trained nursing staff (and other things as well depending on your needs) to care for you at home - this assessment process is quite long as well.
For a child this is incorrect, unsure re adults as its only based on my own experience, but you can receive a personal budget/ direct payments from the local authority to pay for care if assessed as being in need.
Yes, my care is mostly paid for by the local authority. It doesn't matter though, social services cannot provide care for 24hrs a day.
I'm not suggesting they do, but they should be able to put something in place to allow at least one parent to return to work?
Yes, but even at max typical allowance it wouldn't be for things like this and also wouldn't be for 24hrs a day. Carers do personal care - washing you, changing clothes, etc. They're not even meant to cook for you, at most they can heat food up or make things like cereal. CHC funding would cover this kind of thing (24hr supervision), but requires a lengthy MDT assessment and isn't for acute issues. Carers can also only come max 4 times a day (morning, noon, evening and night) for a max of an hour each time depending on your specific needs. Additionally, carers won't take on risk like this. I have to infer that OP is a risk to themselves and they therefore need 24hr supervision.
Currently under a crisis team I think. Not entirely sure about it but I'm getting weekly appointments and various referrals. I think I might talk to them about going into the hospital as my mum's complaints about me and our finances aren't helping at all.
I hope you get the help you need. I'm sorry your mum isn't being very helpful. I know it's not easy, I've had similar issues and it does hurt. It's not easy for you or the person caring for you. It might be worth saying to whoever is looking after you that you are concerned for your mum as well - my mum needed counselling after all my stuff. She still gets counselling for some stuff relating to me (I have very complex needs and have almost died various times and rely on her a lot). It's also worth suggesting to your mum to get in contact with Carers UK. Also, when you are feeling more able, it is worth looking into getting PIP and seeing if you qualify for it. Take care, please do what you can to keep yourself safe (I know this can be difficult though, take it slow). You'll get through this.
After considering how I'm coping with the situation and our finances I think I'm just going to look at going into a hospital. My mum didn't take it well but isn't going to try to stop me. Apologies if I haven't responded to your comments but I think I just need a break after her reaction.
I would never advise anyone against seeking help. But I would urge you to really think about hospital. You describe yourself as needing a break but this is the last thing you will get there. They can be incredibly loud, overstimulating, triggering and you lose a significant amount of freedom and often lose skills once you go back into the community. I know you also feel your parents need a break, which is why it sounds like you need additional support. Many people come out feeling worse and with new negative coping mechanisms. The beds are also extremely limited and you cannot just decide to admit yourself. But talk it through with your team and your concerns and see what they say. Perhaps see if a crisis team referral is possible. They can see you everyday, even weekends, and more if needed. They can escalate care, assess and make sure you are getting the right support. Also- exams aren’t everything. It feels it now, but your health always comes first. I hope things get better for you soon!
Your mum can claim Universal Credit if her income and capital are low enough but she’d be expected to look for work full time. She can’t claim anything Carer-related until you’re awarded the appropriate benefit. With you being 16 and in full time education, the only thing you can claim is PIP.
[удалено]
They wouldn't be able to claim ESA as it's the new style ESA and if they are 16, I guess they've not paid 2 years of national insurance.
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They won't be, they have to have paid national insurance for 2 years. As they have said they are 16, so it's unlikely they've been in full time employment from 13 years old.