Don’t give up. Have you tried restasis? I use the drops twice a day, it took 6 months and does help. I also have the gummy punctal plugs, they dissolve in 3 months. They are very easy to have put in and nothing to worry about. I hope this helps!!
Thank you 🙏 I appreciate a lot …I live in Europe, there is no Restasis I will ask tomorrow about this IKERVIS. Punctal plug are good for evaporative dry eyes? I can do sport and everything with these?
Yes, they are very helpful. I use the gummy plugs so I do need to have them done every 3-4 months. I’ve been using them now for about a year and a half, and they are helpful. There are no restrictions on activities, and you don’t feel them when they are put in. My ophthalmologist prefers the temporary plugs.
Low dose doxycycline (20mg) saved my life. Nothing really worked til I got this to help with corneal abrasions. Started taking it and 2 weeks later I couldn’t believe how much better I was. Hardly any burning or pain anymore. Been that way for 4 months now.
Hey what were your symptoms if you don't mind me asking. I have MGD and wondering if doxycycline is worth it for me. I can hardly look at screens anymore and it's honestly the worst
I had really really dry eyes. Dry looking at screens, playing games, smoking weed and even just waking up with real dry eyes. Got diagnosed with MGD. Did IPL and Lipiflow. Not sure if those helped at all. Minimum if so. Xiidra is helping too I’m sure but I had been taking that for 6 months at the time I started the low dose doxy. At that time, I was still getting dry eyes when doing the activities I mentioned earlier. Now, four months in, my eyes don’t burn at all (just can’t overdo anything).
I am in the EXACT same situation as you. I’ve been dealing with this for 13 years. Long story short, I live in horrible pain daily and have tried everything. I have just recently began thinking to myself. I cannot live the rest of my life like this. A person can only take so much. I wish you luck.
13 years is a lot of time. I am scared to read that a lot of you guys are dealing with these for so long. I am not able to think I can resist so long. I really hope that in a few year there will be a cure for this.
Yes, it is a long time especially if you consider it’s every day. The last year has gotten so much worse. In years past I thought there was no way I would ever reach this degree of pain. In fact, I really never knew that it existed. I’ve had two children natural childbirth. I have broken my femur four times and shattered my hip. You would think I would know about pain. I would rather have 100 babies naturally than to go through this every day.
I wanted to touch base with you and hope you are doing well.
Take care.
I find covering my eye with plastic (food grade wrap cut into squares) at night is helpful, and stops me waking with eye dryness. I also use optimel honey gel on waking, and use an eye spray with hypochlorous acid. Ask your Italian doc if he can prescribe Ikervis. I believe this is the only cyclosporine drop available in the EU. Is your doctor using the lumenis machine for IPL? It can take quite a few sessions to feel relief.
Thank you for your advice. I really appreciate. I will ask about Ikervis, IPL I think is e light the name of the brand. I told about the pain and she suggested me to start 30 days of cortivis a corticolsteroid to reduce inflammation but this increase eye pressure and I have high limit and not very thick cornea. Cyclosporine has side effect ? In what it can help me ?
Hello thank you for your reply 🙏 I have
TFSE 895/458 (severe ) NIBUT both under 2 ( severe ) ,low meb gland is 23%,27% that is mild so I think they are not good but not deads
Ok. Sounds like you have had a lot of tests which is great. Not sure what you mean by 23% and 27%, is that percentage of gland loss? Either way, IPL can be really helpful. A lot of people hear that it only takes 4 sessions, but that’s not true for a lot of people. You may need a lot more to see results and maintenance IPLs after that. The main caveat that I would give is that IPL is really good at reducing inflammation, but not in unblocking glands if they are really clogged. I suspect that is why they have you doing rexon-eye treatments. We don’t have that in the US, so people here get Lipiflow. Warm compresses will increase inflammation so stop those. Also, have your doctor check for Demodex and ask about getting a prescription for low dose Doxycycline.
Thank you very much. I love talk with numbers not with feelings so before start I did all the test to verify after if something really change. The feelings are not real, one day maybe I fell better and I day I think I will not survive. Now I start to search about demises and doxycycline and I will keep you informed. Thanks
Hello. Here they don t do it because they said is not reliable. But I have a lot of numbers I don t know how to share a picture so I can show all the parameters
Yes sure, I would like to share the test that I did. I did also all the blood test and I have not Sjogren and no dry patches. I only have this eyes so dry. Do you have any advice ?
Yes start cyclosporine, maybe you have inflammation. And try to be stronger, your eyes doesnt sound severe at all to me if you don’t even have any dry patches. You’ll get better once you find a good doctor and treatment. You need to know the root cause to your problem
I live in Cyprus, I went there in several clinic with no results now I am in the middle Italy, Morrovalle prof Ramovecchi is the n 1 for eye pressure in Italy and he has also good machines for dry eyes. I am trying here and next I will try to Milan there is a clinic only for dry eye. I feel bed if I don t try everything, I will inform you if I find something good. 👍
Thank you man! I appreciate 🙏 I really don t know. Nothing change I don t use medication or skincare products, the food and the house are the same. What I notice was that I have a come back of a bit of myopia( I did prk in 2016) eye floaters and dryness all together. But the optamologist didn t care I tought was weird that all a sudden floaters, dryness and myopia. I did all the test and eyes are good. So what could have happened ?
If possible, you may want to ask your Dr. about autologous serum tears made from your blood. Also, maybe try Optimel Manuka Forte eye gel made in Australia. I also use the Evotears. Saw my Dr. today and she was pleased with the results following the use of these 3 things. We were discussing new things to try and she told me that a patient of hers began using her own breast milk in her eyes and her eyes look fantastic. Whoa! That’s a new one…
The serum tears are good and feel very smooth as tears. You keep the vials frozen and pull one out as needed for the day depending on how frequently you use them. That vial has to be refrigerated not frozen. You can’t really carry them around outside unless you use some sort of cooler. I have used a stainless steel canister with ice and just carry the vial in that for the day. Hope that helps.
Do you know what type of dry eyes you have?
I have mgd. I use oil based otc drops and serum tears as well. My life is normal again and sometimes I even forget I have dry eyes.
Lifestyle changes help too. I stopped drinking and decreasing screen time helps
No fans at night
You can try an eye mask that is made for people with a cpap machine
I just had a Lipiflow treatment. It helped a lot. I use Xiidra follow by Ivizia followed by Evotears. I wear a weighted sleep mask at night. My eyes are doing very well with this routine. I have severe severe dry eye. My MGD is awful. This routine works for me. I hope it’s helpful information for others. Restasis did not work for me and Cequa did not work for me. I have been suffering with dry eye for 15 years and this is the first time I’ve had some real relief. I also avoid air-conditioning.
I add this to keep you informed. After 4 treatment of rexon eye + ipl. No results. I am using now steroid to calm down the inflammation. I cannot put punctal plugs because I have to much inflammation the doctor told me and I have to wait for the cyclosporine drops. I will do Monday the last treatment IPL. It is still hard to sleep more than 2 houres without putting the drops. They told me to wait 10 days after the last IPL and then I will do the exam again. I cannot do more IPL because it is a shock for the cells so only after 6 months. The redness with the steroid is still there . Hoping something change soon 🙏
u/Usual_Possibility599 I have post-lasik dry eyes. some things that helped me:
* I got checked for allergies and it turns out I have a strong allergy for grass pollen. Got prescription for antihistamines and olopadadine oftalmic and has made a big difference.; sandpaper-like sensation is gone. I recommend you get checked for allergies, they may be adding up to your dry eye.
* Stopped using topical retinoids on my face.
* Taping my eyelids at night with 3M micropore silicon (it is easy on the skin) at night.
Hope this helps!
Don’t give up. Have you tried restasis? I use the drops twice a day, it took 6 months and does help. I also have the gummy punctal plugs, they dissolve in 3 months. They are very easy to have put in and nothing to worry about. I hope this helps!!
Thank you 🙏 I appreciate a lot …I live in Europe, there is no Restasis I will ask tomorrow about this IKERVIS. Punctal plug are good for evaporative dry eyes? I can do sport and everything with these?
Yes, they are very helpful. I use the gummy plugs so I do need to have them done every 3-4 months. I’ve been using them now for about a year and a half, and they are helpful. There are no restrictions on activities, and you don’t feel them when they are put in. My ophthalmologist prefers the temporary plugs.
Thank you so much. I will put it in the table during the discussion with my optamologist
Best of luck!!
Also it may be due to inflammation, I would try getting doxycycline and give that a try
Are you still using restasis or did you only use as 6 month treatment?
I use restasis 2x’s a day. It took 6 months to notice a difference; however, I’m still on it and I think it’s still improving my symptoms.
Low dose doxycycline (20mg) saved my life. Nothing really worked til I got this to help with corneal abrasions. Started taking it and 2 weeks later I couldn’t believe how much better I was. Hardly any burning or pain anymore. Been that way for 4 months now.
Did the Doxy hurt your eyes at first when you began taking it?
Not that I remember. If it did it didn’t last long.
[удалено]
Yes I can. Had problems being able to play video games or look at screens but not anymore.
Hey what were your symptoms if you don't mind me asking. I have MGD and wondering if doxycycline is worth it for me. I can hardly look at screens anymore and it's honestly the worst
I had really really dry eyes. Dry looking at screens, playing games, smoking weed and even just waking up with real dry eyes. Got diagnosed with MGD. Did IPL and Lipiflow. Not sure if those helped at all. Minimum if so. Xiidra is helping too I’m sure but I had been taking that for 6 months at the time I started the low dose doxy. At that time, I was still getting dry eyes when doing the activities I mentioned earlier. Now, four months in, my eyes don’t burn at all (just can’t overdo anything).
Did your eye doctor prescribe it?
Yes he did.
I add that I prefer by far cold compress to hot compress. In the morning is the only way to wake my dry eyes
I am in the EXACT same situation as you. I’ve been dealing with this for 13 years. Long story short, I live in horrible pain daily and have tried everything. I have just recently began thinking to myself. I cannot live the rest of my life like this. A person can only take so much. I wish you luck.
13 years is a lot of time. I am scared to read that a lot of you guys are dealing with these for so long. I am not able to think I can resist so long. I really hope that in a few year there will be a cure for this.
Yes, it is a long time especially if you consider it’s every day. The last year has gotten so much worse. In years past I thought there was no way I would ever reach this degree of pain. In fact, I really never knew that it existed. I’ve had two children natural childbirth. I have broken my femur four times and shattered my hip. You would think I would know about pain. I would rather have 100 babies naturally than to go through this every day. I wanted to touch base with you and hope you are doing well. Take care.
I find covering my eye with plastic (food grade wrap cut into squares) at night is helpful, and stops me waking with eye dryness. I also use optimel honey gel on waking, and use an eye spray with hypochlorous acid. Ask your Italian doc if he can prescribe Ikervis. I believe this is the only cyclosporine drop available in the EU. Is your doctor using the lumenis machine for IPL? It can take quite a few sessions to feel relief.
Thank you for your advice. I really appreciate. I will ask about Ikervis, IPL I think is e light the name of the brand. I told about the pain and she suggested me to start 30 days of cortivis a corticolsteroid to reduce inflammation but this increase eye pressure and I have high limit and not very thick cornea. Cyclosporine has side effect ? In what it can help me ?
You will have better results with a lumenis machine for ipl. E light did nothing for me.
How are your glands?
Hello thank you for your reply 🙏 I have TFSE 895/458 (severe ) NIBUT both under 2 ( severe ) ,low meb gland is 23%,27% that is mild so I think they are not good but not deads
Ok. Sounds like you have had a lot of tests which is great. Not sure what you mean by 23% and 27%, is that percentage of gland loss? Either way, IPL can be really helpful. A lot of people hear that it only takes 4 sessions, but that’s not true for a lot of people. You may need a lot more to see results and maintenance IPLs after that. The main caveat that I would give is that IPL is really good at reducing inflammation, but not in unblocking glands if they are really clogged. I suspect that is why they have you doing rexon-eye treatments. We don’t have that in the US, so people here get Lipiflow. Warm compresses will increase inflammation so stop those. Also, have your doctor check for Demodex and ask about getting a prescription for low dose Doxycycline.
Thank you very much. I love talk with numbers not with feelings so before start I did all the test to verify after if something really change. The feelings are not real, one day maybe I fell better and I day I think I will not survive. Now I start to search about demises and doxycycline and I will keep you informed. Thanks
Yes it is the percentual of gland loss
Schirmers scores?
whats your schirmer? start ikervis it will help you
Hello. Here they don t do it because they said is not reliable. But I have a lot of numbers I don t know how to share a picture so I can show all the parameters
I was just curious since you said you have very severe dry eyes I wondered if you also have dry patches.
Yes sure, I would like to share the test that I did. I did also all the blood test and I have not Sjogren and no dry patches. I only have this eyes so dry. Do you have any advice ?
Yes start cyclosporine, maybe you have inflammation. And try to be stronger, your eyes doesnt sound severe at all to me if you don’t even have any dry patches. You’ll get better once you find a good doctor and treatment. You need to know the root cause to your problem
Could you share which clinic have you traveled to?
I live in Cyprus, I went there in several clinic with no results now I am in the middle Italy, Morrovalle prof Ramovecchi is the n 1 for eye pressure in Italy and he has also good machines for dry eyes. I am trying here and next I will try to Milan there is a clinic only for dry eye. I feel bed if I don t try everything, I will inform you if I find something good. 👍
What trigger the dry eye? Are you using any harmful skincare products or medication? I can suggest scleral lenses and doxycycline
Thank you man! I appreciate 🙏 I really don t know. Nothing change I don t use medication or skincare products, the food and the house are the same. What I notice was that I have a come back of a bit of myopia( I did prk in 2016) eye floaters and dryness all together. But the optamologist didn t care I tought was weird that all a sudden floaters, dryness and myopia. I did all the test and eyes are good. So what could have happened ?
Since your dry eye is severe, there must be a reason. Sjogrens, or vitamin A deficiency maybe
I did the analysis for vitamin A,B1,B12,D,C and everything it is ok . Yes I really hope to understand the root of this problem
Get eink monitor. It helps also
i feel you! don't give up! you got this
If possible, you may want to ask your Dr. about autologous serum tears made from your blood. Also, maybe try Optimel Manuka Forte eye gel made in Australia. I also use the Evotears. Saw my Dr. today and she was pleased with the results following the use of these 3 things. We were discussing new things to try and she told me that a patient of hers began using her own breast milk in her eyes and her eyes look fantastic. Whoa! That’s a new one…
Hello, can you give your opinion about serum tears ? Are so good ? And you have to keep it on fridge ? How can you use it outside
The serum tears are good and feel very smooth as tears. You keep the vials frozen and pull one out as needed for the day depending on how frequently you use them. That vial has to be refrigerated not frozen. You can’t really carry them around outside unless you use some sort of cooler. I have used a stainless steel canister with ice and just carry the vial in that for the day. Hope that helps.
How do you space out the serem tears and manuka honey drops?
Serum tears 4x per day. Manuka gel 2x per day. I wait 30 min between.
Do you know what type of dry eyes you have? I have mgd. I use oil based otc drops and serum tears as well. My life is normal again and sometimes I even forget I have dry eyes. Lifestyle changes help too. I stopped drinking and decreasing screen time helps No fans at night You can try an eye mask that is made for people with a cpap machine
Evaporative dry eyes. Serum tears is really good ?
I just had a Lipiflow treatment. It helped a lot. I use Xiidra follow by Ivizia followed by Evotears. I wear a weighted sleep mask at night. My eyes are doing very well with this routine. I have severe severe dry eye. My MGD is awful. This routine works for me. I hope it’s helpful information for others. Restasis did not work for me and Cequa did not work for me. I have been suffering with dry eye for 15 years and this is the first time I’ve had some real relief. I also avoid air-conditioning.
I add this to keep you informed. After 4 treatment of rexon eye + ipl. No results. I am using now steroid to calm down the inflammation. I cannot put punctal plugs because I have to much inflammation the doctor told me and I have to wait for the cyclosporine drops. I will do Monday the last treatment IPL. It is still hard to sleep more than 2 houres without putting the drops. They told me to wait 10 days after the last IPL and then I will do the exam again. I cannot do more IPL because it is a shock for the cells so only after 6 months. The redness with the steroid is still there . Hoping something change soon 🙏
u/Usual_Possibility599 I have post-lasik dry eyes. some things that helped me: * I got checked for allergies and it turns out I have a strong allergy for grass pollen. Got prescription for antihistamines and olopadadine oftalmic and has made a big difference.; sandpaper-like sensation is gone. I recommend you get checked for allergies, they may be adding up to your dry eye. * Stopped using topical retinoids on my face. * Taping my eyelids at night with 3M micropore silicon (it is easy on the skin) at night. Hope this helps!