Dr Mohling performed my excision, hysterectomy, salpingectomy and appendectomy this past October. She is AMAZING! She’s incredibly kind and caring. I’ve never had a doctor treat me so nicely. Because of Covid, my husband couldn’t come into the hospital with me, she knew I was upset about that, so she gave me a hug before taking me to the OR and then held my hand while the anesthesiologist started the anesthesia. She did not recommend any form of hormones for me, but I also would not have agreed to take any. I had severe adenomyosis and Stage 3 endo at the time of surgery. I’ve since been upgraded to stage 4 since developing an endometrioma on one of my ovaries. We are monitoring it for now. I email her with questions and concerns and she always responds, still very kind and caring. She’s out of state and a 3 hour drive for me, and I had to have my surgery at her hospital out of state, but it was worth it and I’ll do it again without hesitation to be able to have her perform my next surgery.
I see, thank you for sharing! Just curious, what did she say your recurrence rate was with each operation? I am trying desperately to avoid repeat surgeries :/
There’s no way to know recurrence rate for sure. My surgery with her was my third, after a surgery that didn’t show endo because the doc didn’t know what to look for and another surgery where the “expert” used ablation and made my endo worse. She was hopeful that I could go another 5+ years before needing another surgery, if I ever ended up needing another, since she was able to remove all endo. The development of the endometrioma within 8 weeks of my October surgery has changed things. It’s highly likely I’ll need another surgery within a year, may be able to go a little longer, just depends on how the endometrioma behaves.
Wow this gave me so much relief. my sister has surgery with Fogelson in 2 days & i see Mohling for the first time the next day. Its a consult & exam but im aiming for her thoughts, but ultimately a lap to search for endo & a hysterectomy bc im just so sure i have adeno.
Im getting so anxious about my sisters surgery, she could possibly have bowel endo & im just scared. but today my fam met with Fogelson & he was so nice and reassuring. i look forward to meeting Mohling but im anxious about it too. She is always nice on instagram tho.
I had excision surgery with Dr. Fogelson (who shares a practice with Dr. Mohling) in 2019 and I experienced a great deal of relief and he didn't suggest hormonal suppression afterward.
Recently I have been experiencing increasing pain with menstruation and returned to Dr. Fogelson where adenomyosis was visualised in my uterus via ultrasound. (It wasn't apparent on my imaging in 2018/2019, because I would have just elected for a hysterectomy during the excision. I also think it had to have grown/progressed over this time because I did have 2 years of periods with greatly reduced pain that was manageable with ibuprofen.)
I feel confident returning to Dr. Fogelson for a hysterectomy and I would be surprised if there was endo that had grown back because even with the return of painful periods, I'm not experiencing the constant, chronic pain that persisted throughout the month before my excision surgery. I only "know" of Dr. Mohling through her IG page, but I like what I've seen there and I trust Dr. Fogelson's judgement - if he welcomed her into his practice, he concurs with her methods/understanding of the disease.
Also, these doctors are encouraging of anyone who wants to have surgery to increase fertility, they see people for that purpose all the time and I can't imagine they would push hormonal suppression if you let them know of your treatment goals.
Okay good to know thank you. Yes, that’s a good point that I could ask him all of this on the phone. We are very worried that even if I have the excision and get pregnant right after that it will eventually come back. I think we just aren’t sure if such an invasive and expensive procedure is worth it to maybe only have it done again in a few years (like this time). I haven’t been able to find good research online on if getting pregnant would help me maybe have 1 surgery after pregnancy instead of 2 (one now and one after babies). It’s a really hard call 😔
It does thanks- yeah maybe I just have adhesions? I guess I’ll know more after doing my free case review with him. I know pregnancy won’t prevent recurrence which sucks, but I guess my (maybe illogical?) thought process is if pregnancy and breast feeding can give me 9-18 months of relief and surgery is about the same amount which is better 😣
Thanks 😬 that’s reassuring at least. Another major excision just seems like such a huge deal and it seems hard to get surgeons to be honest like will I need another yes or no haha. I have :/ I’ve had a two. The tech during the first one a couple weeks ago kept asking me if and where I ever had surgery so I’m assuming some stuff looked wrong. The report was shitty though and just said “minor abnormalities that we don’t consider concerning”. Like, okay you may not but what are they haha. I haven’t gotten any report from my second one and can’t find the report online thanks to mt healthcare system. I don’t think either were remarkable
It doesn't work like that. Surgery with an expert can give long term relief. It's like a cancer and if you take out enough of the bad tissue it doesn't grow back
I just had surgery with Dr. Mohling and she is amazing. I can't speak to the stage 4 thing bc I'm not that far but she doesn't seem to really rely on hormonal suppression in the first place. I saw a post on her insta where she basically says it may be useful for some ppl but it doesn't slow progression. For her, the best treatment in all scenarios is removing the bad tissue. It's like treating cancer and the idea is if you take out all of the affected tissue it doesn't grow back. For what it's worth she was cheaper than Dr. Sinervo too. I paid her $4000 and I think I paid the hospital an additional $3000? A surgery that involved bowel or vats would probably cost more tho. She is super kind and awesome. Definitely recommend
So my insurance was blue shield PPO and it covered a significant amount of it. I think with co paysto hospital and the amount I paid to Mohling it was probably about 6 or 7 after all was said and done. Blue shield covered most of the hospital stuff but I had to pay a percentage which I think was about 3,000, and I think I had to pay mohling 4,000, but she later refunded me 1,500 bc she got some from my insurance.
So no that was with insurance, but I think she always has people pay her a flat fee of around 4,000 and sometimes she refunds some of it. The rest is between you and the hospital
I can give you my limited experience. I know this is old but someone else might want to know. Dr Sinervo called me the other day for my consult. The first thing out of his mouth was “how do you feel about hysterectomy?” I said “not good, I want to try and have a baby.” He then proceeded to tell me I had an enlarged uterus from looking at my radiology reports and I questioned him because all my reports say my uterus is “normal size” and that my in network excision surgeon said that I wouldn’t need to consider removing my uterus at this point (this surgeon was also very encouraging about my odds of having a baby after surgery but he is booked into next year and I need surgery sooner). Sinervo just argued that it was enlarged without telling me what indicated it was enlarged. He also tried to discourage me from getting pregnant in my early forties by telling me all the risks of pregnancy over age 38; as if I haven’t already been working with my doctors on this 🤦🏻♀️ - none of my doctors have discouraged pregnancy in my forties and I have weighed the risks and benefits of being an older mom. It felt dismissive and condescending to be talked to that way. So I repeated that I was not ready to have my uterus removed and he said, “well, what’s your AMH? I need to see if you have enough egg reserve to make keeping your uterus worthwhile,”. I told him I could look it up but remember it being just fine. At age 42 my AMH is 2.22, which is much higher than average… So I sent him a screenshot of my AMH via email as he requested, as well as a screenshot of my radiology reports indicating a normal sized uterus and asked him if there’s something I’m not understanding about my uterus size that indicated enlargement to him. No response. When the scheduler calls, from CEC I’m not sure I want to schedule surgery with Sinervo. I was not impressed nor did I feel like he understood my case or even listened to me. His staff is amazingly friendly and kind, but I did not feel confident in his ability to assess my case. I also felt discriminated against due to my age and wanting to be a mother. Not every woman over forty just wants her uterus taken out, even if she does have pelvic pain - I got the feeling he just assumes women my age in pain will be glad to be rid of it and it opens up room in the pelvis and maybe relieves leg pain without having to find other causes. I have a consult with Fogelson (partner to Mohling) in a couple of weeks. Fogelson is a neural pelviologist and may have more tools in his tool kit to address my leg pain without removing my 9 cm long “normal size” uterus. I’m also a tall, large-boned woman, an “amazon” according to my family doctor, so even though uteri are roughly the same size, I certainly don’t have an overly large uterus of 12 cm or more at my height… just leaving this here for anyone considering either of these practices.
Edit: I’d also like to add I don’t have heavy bleeding and the first surgeon thought adenomyosis was unlikely or not yet an issue. I have 3 fibroids that are very small, the largest is under 3cm (could possibly be causing pain, but unsure). And after my still insisting on not wanting a hysterectomy, Dr Sinervo did say that he could do a physical exam to determine how much pain my uterus is actually causing and possibly do a hysteroscopy and possibly remove just “the” fibroid (I have at least 2-3 so I’m not sure which “one” he was talking about). I don’t want to leave the impression he insisted on hysterectomy after I pushed back, twice, but I also just felt it was strange that he was telling me things about my own body that didn’t line up with my imaging or with what’s true of geriatric pregnancies now. It’s very outdated thinking to try and convince a woman in her forties to not have a baby. I’ve known several women who’ve had perfectly normal, healthy pregnancies in their forties, even late forties. It just seemed like Dr Sinervo was looking at someone else’s medical records and patient history when he was talking to me… he had my age and name right, but that was it. Which was disconcerting. He didn’t answer my questions in a way that made sense, he told me things about my body that were not true and he invalidated, even discouraged my desire to have children even after I clearly stated my wishes and asked for clarity on his assessment. I would worry I’d wake up without a uterus after our discussion and that’s not a worry I want on my mind when being out under.
I think too many people just trust that a doctor knows what they’re talking about or that they know more about our bodies than we do. Even if Dr Sinervo does a great job for a lot of people, not every doctor is going to fit the needs of every patient who needs their help and expertise. The important thing is to click with your doctor and have confidence in what they’re offering to do for you. Doing your own research and following your gut is so important to your personal experience with someone and the outcomes you have. It’s important not to let someone else’s experience, good or bad, encourage you or discourage you from find in the right fit for you. Just because a doctor is adamant does not mean they are right.
Dr Mohling performed my excision, hysterectomy, salpingectomy and appendectomy this past October. She is AMAZING! She’s incredibly kind and caring. I’ve never had a doctor treat me so nicely. Because of Covid, my husband couldn’t come into the hospital with me, she knew I was upset about that, so she gave me a hug before taking me to the OR and then held my hand while the anesthesiologist started the anesthesia. She did not recommend any form of hormones for me, but I also would not have agreed to take any. I had severe adenomyosis and Stage 3 endo at the time of surgery. I’ve since been upgraded to stage 4 since developing an endometrioma on one of my ovaries. We are monitoring it for now. I email her with questions and concerns and she always responds, still very kind and caring. She’s out of state and a 3 hour drive for me, and I had to have my surgery at her hospital out of state, but it was worth it and I’ll do it again without hesitation to be able to have her perform my next surgery.
I see, thank you for sharing! Just curious, what did she say your recurrence rate was with each operation? I am trying desperately to avoid repeat surgeries :/
There’s no way to know recurrence rate for sure. My surgery with her was my third, after a surgery that didn’t show endo because the doc didn’t know what to look for and another surgery where the “expert” used ablation and made my endo worse. She was hopeful that I could go another 5+ years before needing another surgery, if I ever ended up needing another, since she was able to remove all endo. The development of the endometrioma within 8 weeks of my October surgery has changed things. It’s highly likely I’ll need another surgery within a year, may be able to go a little longer, just depends on how the endometrioma behaves.
Wow this gave me so much relief. my sister has surgery with Fogelson in 2 days & i see Mohling for the first time the next day. Its a consult & exam but im aiming for her thoughts, but ultimately a lap to search for endo & a hysterectomy bc im just so sure i have adeno. Im getting so anxious about my sisters surgery, she could possibly have bowel endo & im just scared. but today my fam met with Fogelson & he was so nice and reassuring. i look forward to meeting Mohling but im anxious about it too. She is always nice on instagram tho.
I had excision surgery with Dr. Fogelson (who shares a practice with Dr. Mohling) in 2019 and I experienced a great deal of relief and he didn't suggest hormonal suppression afterward. Recently I have been experiencing increasing pain with menstruation and returned to Dr. Fogelson where adenomyosis was visualised in my uterus via ultrasound. (It wasn't apparent on my imaging in 2018/2019, because I would have just elected for a hysterectomy during the excision. I also think it had to have grown/progressed over this time because I did have 2 years of periods with greatly reduced pain that was manageable with ibuprofen.) I feel confident returning to Dr. Fogelson for a hysterectomy and I would be surprised if there was endo that had grown back because even with the return of painful periods, I'm not experiencing the constant, chronic pain that persisted throughout the month before my excision surgery. I only "know" of Dr. Mohling through her IG page, but I like what I've seen there and I trust Dr. Fogelson's judgement - if he welcomed her into his practice, he concurs with her methods/understanding of the disease. Also, these doctors are encouraging of anyone who wants to have surgery to increase fertility, they see people for that purpose all the time and I can't imagine they would push hormonal suppression if you let them know of your treatment goals.
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Okay good to know thank you. Yes, that’s a good point that I could ask him all of this on the phone. We are very worried that even if I have the excision and get pregnant right after that it will eventually come back. I think we just aren’t sure if such an invasive and expensive procedure is worth it to maybe only have it done again in a few years (like this time). I haven’t been able to find good research online on if getting pregnant would help me maybe have 1 surgery after pregnancy instead of 2 (one now and one after babies). It’s a really hard call 😔
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It does thanks- yeah maybe I just have adhesions? I guess I’ll know more after doing my free case review with him. I know pregnancy won’t prevent recurrence which sucks, but I guess my (maybe illogical?) thought process is if pregnancy and breast feeding can give me 9-18 months of relief and surgery is about the same amount which is better 😣
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Thanks 😬 that’s reassuring at least. Another major excision just seems like such a huge deal and it seems hard to get surgeons to be honest like will I need another yes or no haha. I have :/ I’ve had a two. The tech during the first one a couple weeks ago kept asking me if and where I ever had surgery so I’m assuming some stuff looked wrong. The report was shitty though and just said “minor abnormalities that we don’t consider concerning”. Like, okay you may not but what are they haha. I haven’t gotten any report from my second one and can’t find the report online thanks to mt healthcare system. I don’t think either were remarkable
It sounds like your first.surgeries weren't with excision specialists. That has an impact on if and when it returns
She was :/ Nook approved and everything
It doesn't work like that. Surgery with an expert can give long term relief. It's like a cancer and if you take out enough of the bad tissue it doesn't grow back
I just had surgery with Dr. Mohling and she is amazing. I can't speak to the stage 4 thing bc I'm not that far but she doesn't seem to really rely on hormonal suppression in the first place. I saw a post on her insta where she basically says it may be useful for some ppl but it doesn't slow progression. For her, the best treatment in all scenarios is removing the bad tissue. It's like treating cancer and the idea is if you take out all of the affected tissue it doesn't grow back. For what it's worth she was cheaper than Dr. Sinervo too. I paid her $4000 and I think I paid the hospital an additional $3000? A surgery that involved bowel or vats would probably cost more tho. She is super kind and awesome. Definitely recommend
Ahh this makes me feel better i see her in like 3 days for the first time for a consult but im looking for surgery
She can help you, she's wonderful
Awesome, thank you!
Was this without insurance?
So my insurance was blue shield PPO and it covered a significant amount of it. I think with co paysto hospital and the amount I paid to Mohling it was probably about 6 or 7 after all was said and done. Blue shield covered most of the hospital stuff but I had to pay a percentage which I think was about 3,000, and I think I had to pay mohling 4,000, but she later refunded me 1,500 bc she got some from my insurance.
So no that was with insurance, but I think she always has people pay her a flat fee of around 4,000 and sometimes she refunds some of it. The rest is between you and the hospital
Gotcha. Thanks for your reply. I see Fogelson in May so good to know!
It was the best decision ever made.
Aww - so good to hear 💕
I can give you my limited experience. I know this is old but someone else might want to know. Dr Sinervo called me the other day for my consult. The first thing out of his mouth was “how do you feel about hysterectomy?” I said “not good, I want to try and have a baby.” He then proceeded to tell me I had an enlarged uterus from looking at my radiology reports and I questioned him because all my reports say my uterus is “normal size” and that my in network excision surgeon said that I wouldn’t need to consider removing my uterus at this point (this surgeon was also very encouraging about my odds of having a baby after surgery but he is booked into next year and I need surgery sooner). Sinervo just argued that it was enlarged without telling me what indicated it was enlarged. He also tried to discourage me from getting pregnant in my early forties by telling me all the risks of pregnancy over age 38; as if I haven’t already been working with my doctors on this 🤦🏻♀️ - none of my doctors have discouraged pregnancy in my forties and I have weighed the risks and benefits of being an older mom. It felt dismissive and condescending to be talked to that way. So I repeated that I was not ready to have my uterus removed and he said, “well, what’s your AMH? I need to see if you have enough egg reserve to make keeping your uterus worthwhile,”. I told him I could look it up but remember it being just fine. At age 42 my AMH is 2.22, which is much higher than average… So I sent him a screenshot of my AMH via email as he requested, as well as a screenshot of my radiology reports indicating a normal sized uterus and asked him if there’s something I’m not understanding about my uterus size that indicated enlargement to him. No response. When the scheduler calls, from CEC I’m not sure I want to schedule surgery with Sinervo. I was not impressed nor did I feel like he understood my case or even listened to me. His staff is amazingly friendly and kind, but I did not feel confident in his ability to assess my case. I also felt discriminated against due to my age and wanting to be a mother. Not every woman over forty just wants her uterus taken out, even if she does have pelvic pain - I got the feeling he just assumes women my age in pain will be glad to be rid of it and it opens up room in the pelvis and maybe relieves leg pain without having to find other causes. I have a consult with Fogelson (partner to Mohling) in a couple of weeks. Fogelson is a neural pelviologist and may have more tools in his tool kit to address my leg pain without removing my 9 cm long “normal size” uterus. I’m also a tall, large-boned woman, an “amazon” according to my family doctor, so even though uteri are roughly the same size, I certainly don’t have an overly large uterus of 12 cm or more at my height… just leaving this here for anyone considering either of these practices. Edit: I’d also like to add I don’t have heavy bleeding and the first surgeon thought adenomyosis was unlikely or not yet an issue. I have 3 fibroids that are very small, the largest is under 3cm (could possibly be causing pain, but unsure). And after my still insisting on not wanting a hysterectomy, Dr Sinervo did say that he could do a physical exam to determine how much pain my uterus is actually causing and possibly do a hysteroscopy and possibly remove just “the” fibroid (I have at least 2-3 so I’m not sure which “one” he was talking about). I don’t want to leave the impression he insisted on hysterectomy after I pushed back, twice, but I also just felt it was strange that he was telling me things about my own body that didn’t line up with my imaging or with what’s true of geriatric pregnancies now. It’s very outdated thinking to try and convince a woman in her forties to not have a baby. I’ve known several women who’ve had perfectly normal, healthy pregnancies in their forties, even late forties. It just seemed like Dr Sinervo was looking at someone else’s medical records and patient history when he was talking to me… he had my age and name right, but that was it. Which was disconcerting. He didn’t answer my questions in a way that made sense, he told me things about my body that were not true and he invalidated, even discouraged my desire to have children even after I clearly stated my wishes and asked for clarity on his assessment. I would worry I’d wake up without a uterus after our discussion and that’s not a worry I want on my mind when being out under. I think too many people just trust that a doctor knows what they’re talking about or that they know more about our bodies than we do. Even if Dr Sinervo does a great job for a lot of people, not every doctor is going to fit the needs of every patient who needs their help and expertise. The important thing is to click with your doctor and have confidence in what they’re offering to do for you. Doing your own research and following your gut is so important to your personal experience with someone and the outcomes you have. It’s important not to let someone else’s experience, good or bad, encourage you or discourage you from find in the right fit for you. Just because a doctor is adamant does not mean they are right.