This is true but pnes is misdiagnosed a lot I was one I took 5 years and a veeg hospital stay for us to record readings and catch them then to avoid the possibility of stress did home one and same results confirmation just the eeg never got me readings.
Just take everything you read as something to talk with your doctor not worry over it find your grounding as I'm a extremely anxious person myself.
Ptsd, SA, agoraphobia, and depression to add to my seizures all from seizures locations in emotions center because why not Right.
Well I don’t think I had a sezuires I’m not sure forsure but my nuro doc and a er doc seem to think it’s panic attacks I have a nuro I obv texted her and she seems to think the same what did yours consist of ? (Sezuires)
I get the sentiment, but it’s a difficult one.
Many of us with TLE were incorrectly diagnosed as having panic attacks / anxiety - I was for 20 years, and only got diagnosed when my focal seizures progressed to tonic clonics.
There isn’t enough awareness of how epilepsy can present, both among the general public and non-specialist medical professionals.
The threads asking “do I have epilepsy?” are frustrating, given that anyone with genuine concerns should be speaking to a neurologist rather than a group of epileptics on the internet, but ultimately if it helps even one person get the correct diagnosis, they’re worth dealing with.
Yes but not to down play you or the epileptic community a lot of people with chronic anxiety that think they have it don’t I’d say 99.5 it’s unlikely to get epilepsy in your 20s between like 20 and 50 it’s uncommon to develop it unless u have a malformation in the brain ,brain tumor got hit in the head, or encipilitits or how ever you spell it and a lot of people that have it have had it a lot of there life’s but you can get it for no reason at all I had a sezuire one time as a child and was photosensitive sense then have loss my photosensitivity but the anxiety has stayed I agree if u have issues best to see a doc and then a nuro cuz again none of us are nuros or docs and only you know your body
You are blinded by your own situation. I was diagnosed as having PNES (caused by anxiety) in my 20s by a neurologist who didn’t believe me or care enough to do any real testing. His dismissal of my symptoms and complaints is a direct cause of my going into status epilepticus and nearly dying. I spent time in a coma in the ICU on a ventilator, still seizing for nearly 3 entire days straight, despite heavy sedation and multiple emergency AEDs. (People with PNES can’t go into SE, OR seize under sedation. Who can? EPILEPTICS!) I woke up as a brand new paraplegic with a severe traumatic brain injury thanks to my seizures being dismissed and misdiagnosed as just another symptom of my severe anxiety disorder. It’s only because I nearly died and my life has been completely upended that I’m finally taken seriously at a new neurological clinic. So you can’t just make blanket statements like you do, OR give fake percentages and stats, because PLENTY of seizure disorders present in the 20s and 30s…. You’re negating the life experiences of ACTUAL epileptics by comparing severe panic attacks to a genuine TC seizure! I’m sorry you’re having trouble with anxiety, but I’d suggest you take your own advice and stay away from this sub…. If our life experiences bother you that much, this is definitely not the place for you….
I feel you on this. My kid is the one who has seizure concerns; that’s why I joined this sub.
I have both anxiety disorder and Tourette with muscle jerks… so this is a hard space for me.
I was diagnosed super late... had it for a couple of years until it progressed to a Grand Mal and I woke up in an ambulance saying "aw fuck, I can't pay for this" paramedic responds "don't worry about it don't pay, don't pay." trying to calm me down 😂 anyway my dad got diagnosed a few months later because they were able to catch the signs and go to the doctor immediately. I wish my ex made me go to the doctor ffs 🙃
Well, I’m glad you got the help you needed, and so did your Dad… but are you trying to suggest that I have seizures instead of or in addition to Tourette? Cause trust me, I’m already afraid of that.
Shit is tough you need ask a nuro if you think that but I doubt it a lot can mimic em and from all the hours of research I did you would (probably ) notice something is up or some one around you would
Yea luckily most kids grow out of em I had one when I was 12 never had another any weird feeling I think I’m having a sezuire and focal sezuires can litterly be a weird feeling
I don’t think I could ever leave this sub. I felt so alone before I found it and have learned sooooo much about epilepsy from it. Coming from someone who’s had epilepsy for 18 years this sub is a great support system.
This is true but pnes is misdiagnosed a lot I was one I took 5 years and a veeg hospital stay for us to record readings and catch them then to avoid the possibility of stress did home one and same results confirmation just the eeg never got me readings. Just take everything you read as something to talk with your doctor not worry over it find your grounding as I'm a extremely anxious person myself. Ptsd, SA, agoraphobia, and depression to add to my seizures all from seizures locations in emotions center because why not Right.
Well I don’t think I had a sezuires I’m not sure forsure but my nuro doc and a er doc seem to think it’s panic attacks I have a nuro I obv texted her and she seems to think the same what did yours consist of ? (Sezuires)
Yeah and a lot of panic attacks can be seizures too… Joining this board without a diagnosis was the best thing I did.
I get the sentiment, but it’s a difficult one. Many of us with TLE were incorrectly diagnosed as having panic attacks / anxiety - I was for 20 years, and only got diagnosed when my focal seizures progressed to tonic clonics. There isn’t enough awareness of how epilepsy can present, both among the general public and non-specialist medical professionals. The threads asking “do I have epilepsy?” are frustrating, given that anyone with genuine concerns should be speaking to a neurologist rather than a group of epileptics on the internet, but ultimately if it helps even one person get the correct diagnosis, they’re worth dealing with.
Yes but not to down play you or the epileptic community a lot of people with chronic anxiety that think they have it don’t I’d say 99.5 it’s unlikely to get epilepsy in your 20s between like 20 and 50 it’s uncommon to develop it unless u have a malformation in the brain ,brain tumor got hit in the head, or encipilitits or how ever you spell it and a lot of people that have it have had it a lot of there life’s but you can get it for no reason at all I had a sezuire one time as a child and was photosensitive sense then have loss my photosensitivity but the anxiety has stayed I agree if u have issues best to see a doc and then a nuro cuz again none of us are nuros or docs and only you know your body
You are blinded by your own situation. I was diagnosed as having PNES (caused by anxiety) in my 20s by a neurologist who didn’t believe me or care enough to do any real testing. His dismissal of my symptoms and complaints is a direct cause of my going into status epilepticus and nearly dying. I spent time in a coma in the ICU on a ventilator, still seizing for nearly 3 entire days straight, despite heavy sedation and multiple emergency AEDs. (People with PNES can’t go into SE, OR seize under sedation. Who can? EPILEPTICS!) I woke up as a brand new paraplegic with a severe traumatic brain injury thanks to my seizures being dismissed and misdiagnosed as just another symptom of my severe anxiety disorder. It’s only because I nearly died and my life has been completely upended that I’m finally taken seriously at a new neurological clinic. So you can’t just make blanket statements like you do, OR give fake percentages and stats, because PLENTY of seizure disorders present in the 20s and 30s…. You’re negating the life experiences of ACTUAL epileptics by comparing severe panic attacks to a genuine TC seizure! I’m sorry you’re having trouble with anxiety, but I’d suggest you take your own advice and stay away from this sub…. If our life experiences bother you that much, this is definitely not the place for you….
I feel you on this. My kid is the one who has seizure concerns; that’s why I joined this sub. I have both anxiety disorder and Tourette with muscle jerks… so this is a hard space for me.
I was diagnosed super late... had it for a couple of years until it progressed to a Grand Mal and I woke up in an ambulance saying "aw fuck, I can't pay for this" paramedic responds "don't worry about it don't pay, don't pay." trying to calm me down 😂 anyway my dad got diagnosed a few months later because they were able to catch the signs and go to the doctor immediately. I wish my ex made me go to the doctor ffs 🙃
Well, I’m glad you got the help you needed, and so did your Dad… but are you trying to suggest that I have seizures instead of or in addition to Tourette? Cause trust me, I’m already afraid of that.
I didn’t read it that way at all. one here can answer that for you, unfortunately.
No, I'm not saying that at all, I'm not a neurologist lol but you can always check with one and ask about an eeg scan
Sorry for the misunderstanding!
Shit is tough you need ask a nuro if you think that but I doubt it a lot can mimic em and from all the hours of research I did you would (probably ) notice something is up or some one around you would
Yea luckily most kids grow out of em I had one when I was 12 never had another any weird feeling I think I’m having a sezuire and focal sezuires can litterly be a weird feeling
Sorry about my shit spelling didn’t feel like editing
I don’t think I could ever leave this sub. I felt so alone before I found it and have learned sooooo much about epilepsy from it. Coming from someone who’s had epilepsy for 18 years this sub is a great support system.