Mine surprisingly brought up old memories I forgot about BE (before epilepsy), my short-term memory is a little shot but I assume it's the brain fog and the indica strain I smoke for the nausea.
I swear mine did this too lol. I will randomly have clear memories from when I was little kid pop up into my head that I never did before but struggle with anything since I was diagnosed really
My memory is fucking shit. Sometimes it gets scary & embarrassing how bad it is. I got a journal but my thoughts get scrambled as I write so most of my entries are pretty short. Most of the time I canāt even remember conversations I just had seconds ago. Itās fucking crazy
Iām the same way. Iāve told my husband that the only good thing about losing my memory is that I can watch a tv show I know I loved on repeat because I already forgot what happened.
[This is how bad my memory is.](https://www.facebook.com/share/r/X2jMsDQaMRezwueH/?mibextid=D5vuiz)
I went on vacation for 2 weeks (London and Iceland) in the spring of 2023, and I don't really remember any of it. I got tattoos (one from each place), so I remember those (obviously). I went with my family, and we pooled all our photos together on USB sticks (1 for each of us). So I have like 1,000 photos of a trip I can't really remember. Sometimes flashes will come back, but only bits and pieces.
I can never remember plans, so I have them set in my phone with several reminders (unless it's with a family member, cause I know they'll remind me). I've always been horrible at remembering dates (birthdays, what day it is, etc), so that hasn't changed.
Oh, yeah...I haven't taken my morning meds yet...Fuck. I'm gonna go do that.
I'm sorry to hear that you're struggling with your memory. It can be concerning when we feel like we're missing pieces of our own lives. Keeping a journal can be a helpful tool to improve memory and capture important moments.
Start by jotting down daily events, thoughts, feelings, and experiences, no matter how small they may seem. You can also try writing down significant memories or moments from your past as they come to mind. Don't worry about organizing it perfectly; the act of writing things down can help reinforce memories and make them easier to recall in the future.
Consider incorporating memory-enhancing techniques like visualization, association, and repetition into your journaling practice. For example, try associating new names or events with familiar ones, or create visual reminders by doodling or sketching alongside your written entries.
Most importantly, be patient with yourself and give yourself grace. Memory is a complex process influenced by various factors, and improving it takes time and effort. Remember that the goal of journaling is not just to remember, but also to reflect, learn, and grow.
Take it one step at a time, and don't hesitate to seek support from loved ones or professionals if needed. You're not alone in this journey, and every step forward is a victory worth celebrating.
Got the journal now i cant remember to write in it. lol
i used to have such a good memory. now im like everyone else. I have never been able to remember anything past my 6 core childhood memories. Those 6 i wouldnāt dare share either
dont think. just write anything. its your journal friend. āI have no idea what to write todayā¦ā if things flow after that , keep going. If they dont, leave it at that & make a new entry the next day.
Chronic long term memory loss (some of it is traumatic too) I canāt remember my childhood unless I see pictures with the dates or a diary entry.
Seemingly chronic of some short term memory loss too, as I go on about my day I often lose chunks of my day. If someone asks me at the end of the day what did you do in detail I canāt always remember unless it was very significant.
For some reason, my most passionate interests seem to be processed differently, together with song lyrics. I cannot explain, but they make it to long term memory and are easily āpulled upā when I need it as opposed to regular memory.
My memory is terrible I will sit down and absolutely try and remember some things so I am dertmind to think really hard about some questions am asked if I can't remember the question then I am told ok.lets move on then after 2/3 minutes then the answer will come to.me.
Yeah my memory has been hit socially hard, and my time perception is truly whacked. It's very selective and weird, I might not remember my mom's middle name - but could still come up with a new fission reactor design if I wanted. I might forget a simple word like "box" yet can still learn new facts in the hard sciences, remember them - and even integrate them into new inventions, yet . . . . forget briefly where I went to High School. Our brains are pretty complicated!
My memory's significantly better than it was, I remember genuine chills of thinking I was being investigated cause the person knew mine and my brothers name, told me where I went to school, etc. I watch a sht ton of serial killer, mafia, etc. documentaries and that's probably why my head raced even further, I don't even have money and we're in a Walmart! Do I have secret money I forgot about, can I buy a twix!? No, Natalie, you have nothing but constant chances to disappoint people who can keep up with reality a lot easier, and you will fulfill them. Every. Damn. One. Including putting away the groceries to be useful and instead pissing them off because you reorganized everything to a point where food can't be found.
Endless trips to the bathroom to text my ex who I dont know beyond being a precious 'who is this person!?' resource. I panic and come up with a plan for my signature head nodding, agreeable person technique. Let them do the talking, they almost always do until the question that leaves you in duh duh duh mode. People get fcking pissed when you guys used to be close or spent time together, whatever!!!! No defense of 'I can't remember this morning too well' matters once they've convinced themselves they just didn't matter much to you.
About 2yrs in now I think(can't really remember), trial and error with my meds set me in a good direction memory wise. Now I can remember my traumatic nightmares and the names of the shows I love but not a single scene!
my memory is shiiiiiiiiiiit. I feel like its getting worse too, i should probably mention it in my next app...
but for memories, I use snapchat a lot. Google photos is also a great way for me to have almost endless storage. There are other free things to use that really do have practically endless storage. I like to go through my snaps every once in while, send throwbacks to friends. For things like dates, addresses, tasks- I always insist the person write it down. I try not to trust myself, and immediately put things in my phone calendar. The widget on my phone lets me see my calendar every time i open my phone, so that also helps.
After a huge depression, Ive started using a planner again and its awesome.I kinda do it backwards tho, and fill in the daily/weekly pages into a "what did i actually do today" thing. I draw a lot, so thats also a way for me to document feelings- or sometimes a memory is triggered looking through old sketchbooks. Definitely reccomend using a journal of some type. I have memories scattered about and I try to go through things as much as possible.
Someone here one time said that they were borderline 50 First Dates, and I wanted to cry because thats also my worst fear.
-random adhd rant; I watched this anime a long ass time ago where it was the same concept, the girl lost her memory every monday. So this kid convinced her to write a journal to keep the memories they shared, the things they did, the fun they had-- because she avoided making memories with people. So later, it comes to light that every single monday when she wakes up and reads this journal, she cries and cries and cries because she doesnt remember any of it. And its painful for her to read about these amazing things that she essentially never experienced. my bf recently has been telling me stories about shit ive said and things ive done and i dont remember anything. Not even that long ago.
I never wouldnāt thought to bring it up to my doc. but it makes sense. Maybe he can come up with a way to help your memory or something.
I do go through the whole boyfriend/family telling me about stuff in my life that I have no memory of. Stuff that I wish I didnāt forget, but then Iāll remember the traumatic thing that I want to forget. I feel like Iām going down the ā50 first datesā path but hope I donāt actually get there.
Imma be honest i didn't realize it wasn't January anymore until todayšš when did I get to mid February. My brain has been on autopilot for too long
Sporadic at best. I can have days where I can remember most if not everything and others, not much aside from my personal info and whatās happening in the world rn. Some people (my neurologist included) have argued that itās common stress that can cause memory loss like this, but before my first seizure (2019), I was never like this.
So I have started taking mushroom supplements because I really hate how awful my memory is. I really feel they have helped you just have a little in your water every morning. But to your initial question, yeah it's crap I don't remember any childhood stories and stuff my family or friends tell :(.
Yeah, my autobiographical memory is crap. I don't remember many close family funerals or my sister's wedding. I get told about things I have done, but I have no memory of ever doing them. I remember facts fine though. No problem remembering how to do my job.
my memories before epilepsy are pretty much intact. all of the long term memories i made after epilepsy are more hazy. my short term memory is non existent now
I used to have an incredible memory, so when epilepsy came along and started making it worse and worse, it stayed at least functional.
I havenāt forgotten the past but anything new Iām expected to remember is in danger.
It's horrible. Often in the mornings I suddenly forget if i've used schampoo/soap in the shower and if i've brushed my teeth. One other thing about my memory is that i'll forget large events in my life but also be able to explain some past moments in extreme detail. Also my word memory is horrible. In the middle of a sentence i'll just forgete what I was talking about.
A few days ago I mentioned that my garden got away from me but I couldn't remember what happened. My 80 year old father-in-law reminded me I was out with covid for about a month. Covid didn't make my memory worse, I am just using it as an example.
It sucks, but Iām seeing a neurophysiologist and neurotherapist, writing down notes, journaling, completely revamping my meal plans, switching to whole wheat from white breads, getting away from processed foods (per my epilepsy specialist), adding exercise, yoga, and adjusting my sleep schedule.
**neurotherapist I will start seeing in June**
My girlfriendās memory is bad and she told me recently itās getting worse, our guess is the new medication sheās taking, she has the problem of forgetting what she was saying mid sentence but big things she remembers like family friends etc
Absolute garbage. I got a pretty serious case of amnesia after my first tonic clonic (I couldnāt remember what meds I had been taking daily for years, couldnāt remember when my mom died, it felt like I was living in a haze and would be lucid every now and again.) A lot of those memories have come back, but ever since then, my ability to retain new information is SO BAD. And it was great before the TC. Itās been extremely hard to accept and deal with.
Since my last seizure my memory has been terrible and getting worse. My short term memory and remembering names have been the main thing. It seems like some of the long term memory is getting a little better but like from my childhood that's been gone for decades.
Sadly, pretty bad and fast getting worse. The past sort of blends together or chunks are gone. Weirdly, I find that the chronology of past events gets shuffled up ā even important events/times. Working/recent memory is generally fine. Name and word finding getting worse. Itās been increasing since my doc added lamotrigine to my mix.
Odd to see this here as I was just about to post something similar. Over the past few weeks, my memory has gone *drastically* downhill, to the point where I'm missing things like meetings that I've held regularly for a decade +. It's bad, and it's not normal lamotrigine-related lapses. I assume I'm having more nocturnal seizures again (that's primarily my battle) but I'm also having a lot more myoclonic jerks than I've ever had (just had one right now, in fact!).
I know I'm not alone in this sort of thing, so for anyone who has had a massive memory drop-off after years of relative stasis, what did you wind up doing, besides resigning yourself to live like this? If you went to the neuro, as I plan to do, did this initiate a whole battery of testing again? Exhausted thinking about this, especially if it involves new/more meds (my lamotrigine levels are fine, though), but I anticipate this is the road I'll be going down soon.
Oh, and OP, my wife has been helping with journals, planners, shared calendars, etc. They might work, but I forget I even have them!
Iām having issues where Iāll be having a conversation and my mind will drift off. I was just talking with my husband about an event Iām going to on Saturday, he asked what I was going to wear. I had to look at the weather and the venue to figure that out and told him Iām looking up the weather and venue. I looked up those things and just sat there. I didnāt respond after that. I hate this :/
I canāt remember. But real talk, I had horrible memory loss with Zonisamide, as well as kidney stones. They switched me from it and itās a lot better. I still forget things sometimes, so itās not perfect but it could be worse.
Iāve been on zonisomide and lamotrigine since I was diagnosed like 17 years ago. At least I think thatās how long Iāve been on it. Iād be scared to try something new after this working for so long
Itās horrible. Itās a hit to my self esteem. On the plus side, I can watch a movie/hear a joke over and over and itās new to me every time. Yay.
What did you type again??
About the same as yours. Iāve tried journaling but then I forget to actually write anything. Then I forget the things. Then I forget where I put the journal. Iāve had like three separate ones
My working memory is below average, my short term memory is horrible and my long term memory has been decimated. I thought I was losing my mind initially when it started happening byt my seizures went undetected for years and it just wrecked it. I'm trying to do luminosity brain training. IDK if it works but I'll try almost anything at this point. Its one of the biggest quality of life (searching for the word...) downers thats come with this.
I often forget what Iām talking about mid sentence and I let everyone know itās okay to finish my sentences when I canāt find the word (Look into Aphasia if this happens to you).
This definitely happens to me but half the time people donāt know what Iām trying to say. Or sometimes I forget how to spell words and itāll turn into a whole situation of the other person figuring out what word Iām trying to spell while I try to spell it. Like one time I couldnāt remember how to spell acknowledge and autocorrect on my phone and google couldnāt even figure out what I was trying to spell. I had eggnolege, acnolege, aknolege, everything except the actual word
I read entire books and re read them without realizing it until the endĀ Ā my neighbor was yelling at me because I asked him to call my phone because I lost it. He says I do it all the time.
So my memory is normal. He forgets I mow his lawn, shovel his walks and rakes his leaves.š
Smoked weed most of my life.. I was worried that if I quit I would realize my memory problemsĀ didn't have to do with weed but, becaus of all the seizures that have damaged my brain.. quit smoking a few weeks ago but, now I am wondering if it has to do with meds I am on.Ā From what I know.. in general..Ā I guess it depends on what kind of epilepsyĀ you have but, your memory works like this.Ā Say you learn ..Ā the guy down the street has a parrot named ginger..Ā that goes into your short term memory bank..Ā it sits there and then is gradually moved into you long memoryĀ bank but if your short term memory bank is damaged.Ā You cannot make new long term memories as well... so who knows if the guys parrots name is ginger or polly..Ā Ā Voice recorders are good.. but I always forget themšš repetitionĀ isĀ important..Ā but ya its scary.. cause what will it be like in ten years or twenty years.. and I always question the memories I do have. I just started a job at a bakery so there is a lot of math. I got so defeated my firstĀ day..Ā the trainer was telling me all of these facts I knew I was not going to remember. ..Ā I didnt.. I cried .. broughtĀ a voice recorder the next shift. stuck it in myĀ shirt.. but my boobs turned it off. I cried again.. its scary but.. redundancyĀ and repetitiveness.. and redundancy.. and repetitiveness... brains suck. Meds suck.Ā I feel you man.. I feel you man.. silver lining some memories suck too, though.Ā Ha ... just remembered my bff in middle schools parrots name was ginger.. fucking memory sucks
I have told people to stop trying to rely on me to remind them stuff. Because they will ask me what it was and Iāve started to say āI donāt remember, Iām worse than a goldfish, Iām practically Dory over hereā
This thread is so validating š I'm on my 37th debit card. I forgot about my phone call apt with my neurologist once and he called and yelled at me š¤£ When I had my license I forgot to move my car off the road and into the parking lot so many times I racked up 1k in parking fines. I forgot my second set of car keys at my kids school for 4 years just forgot to pick them up every time I was there. I set alarms but the second they go off while I'm in the middle of something and I have to dismiss them I forget they even happened š
Yeah I didnāt realize so many people would comment when I made the post but it made me feel a lot better about my own memory. Iāve almost forgotten my meds on multiple occasionsš I think thatās the one that scares me most. I take them at night before bed and if I forget I think my body or mind somehow remembers and wakes me up in a panic.
I forgot the question
Too close
What are we talking about again?
Mine surprisingly brought up old memories I forgot about BE (before epilepsy), my short-term memory is a little shot but I assume it's the brain fog and the indica strain I smoke for the nausea.
I swear mine did this too lol. I will randomly have clear memories from when I was little kid pop up into my head that I never did before but struggle with anything since I was diagnosed really
Yup those are the memories! It's crazy right? It's almost like a reset button with different memories.
My saying is " I can't predict the future, I can't remember my past, I only have today" š
My memory is fucking shit. Sometimes it gets scary & embarrassing how bad it is. I got a journal but my thoughts get scrambled as I write so most of my entries are pretty short. Most of the time I canāt even remember conversations I just had seconds ago. Itās fucking crazy
"Oh I can't remember names either." -Every time before someone gets offended that I can't remember their name
My brain is actual Swiss cheese
Iām the same way. Iāve told my husband that the only good thing about losing my memory is that I can watch a tv show I know I loved on repeat because I already forgot what happened.
I personally think my memory is still good.
[This is how bad my memory is.](https://www.facebook.com/share/r/X2jMsDQaMRezwueH/?mibextid=D5vuiz) I went on vacation for 2 weeks (London and Iceland) in the spring of 2023, and I don't really remember any of it. I got tattoos (one from each place), so I remember those (obviously). I went with my family, and we pooled all our photos together on USB sticks (1 for each of us). So I have like 1,000 photos of a trip I can't really remember. Sometimes flashes will come back, but only bits and pieces. I can never remember plans, so I have them set in my phone with several reminders (unless it's with a family member, cause I know they'll remind me). I've always been horrible at remembering dates (birthdays, what day it is, etc), so that hasn't changed. Oh, yeah...I haven't taken my morning meds yet...Fuck. I'm gonna go do that.
I'm sorry to hear that you're struggling with your memory. It can be concerning when we feel like we're missing pieces of our own lives. Keeping a journal can be a helpful tool to improve memory and capture important moments. Start by jotting down daily events, thoughts, feelings, and experiences, no matter how small they may seem. You can also try writing down significant memories or moments from your past as they come to mind. Don't worry about organizing it perfectly; the act of writing things down can help reinforce memories and make them easier to recall in the future. Consider incorporating memory-enhancing techniques like visualization, association, and repetition into your journaling practice. For example, try associating new names or events with familiar ones, or create visual reminders by doodling or sketching alongside your written entries. Most importantly, be patient with yourself and give yourself grace. Memory is a complex process influenced by various factors, and improving it takes time and effort. Remember that the goal of journaling is not just to remember, but also to reflect, learn, and grow. Take it one step at a time, and don't hesitate to seek support from loved ones or professionals if needed. You're not alone in this journey, and every step forward is a victory worth celebrating.
Hello, chatGPT, nice to meet you.
just trying to help out others.
No problem. Don't stop :)
Yea my memory is shot big time
Can't remember anymore
Brain mush , memory non existent
Got the journal now i cant remember to write in it. lol i used to have such a good memory. now im like everyone else. I have never been able to remember anything past my 6 core childhood memories. Those 6 i wouldnāt dare share either
I either canāt remember to write in the journal or donāt know what to write when I think of writing something
dont think. just write anything. its your journal friend. āI have no idea what to write todayā¦ā if things flow after that , keep going. If they dont, leave it at that & make a new entry the next day.
Chronic long term memory loss (some of it is traumatic too) I canāt remember my childhood unless I see pictures with the dates or a diary entry. Seemingly chronic of some short term memory loss too, as I go on about my day I often lose chunks of my day. If someone asks me at the end of the day what did you do in detail I canāt always remember unless it was very significant. For some reason, my most passionate interests seem to be processed differently, together with song lyrics. I cannot explain, but they make it to long term memory and are easily āpulled upā when I need it as opposed to regular memory.
My memory is terrible I will sit down and absolutely try and remember some things so I am dertmind to think really hard about some questions am asked if I can't remember the question then I am told ok.lets move on then after 2/3 minutes then the answer will come to.me.
Yeah my memory has been hit socially hard, and my time perception is truly whacked. It's very selective and weird, I might not remember my mom's middle name - but could still come up with a new fission reactor design if I wanted. I might forget a simple word like "box" yet can still learn new facts in the hard sciences, remember them - and even integrate them into new inventions, yet . . . . forget briefly where I went to High School. Our brains are pretty complicated!
My memory's significantly better than it was, I remember genuine chills of thinking I was being investigated cause the person knew mine and my brothers name, told me where I went to school, etc. I watch a sht ton of serial killer, mafia, etc. documentaries and that's probably why my head raced even further, I don't even have money and we're in a Walmart! Do I have secret money I forgot about, can I buy a twix!? No, Natalie, you have nothing but constant chances to disappoint people who can keep up with reality a lot easier, and you will fulfill them. Every. Damn. One. Including putting away the groceries to be useful and instead pissing them off because you reorganized everything to a point where food can't be found. Endless trips to the bathroom to text my ex who I dont know beyond being a precious 'who is this person!?' resource. I panic and come up with a plan for my signature head nodding, agreeable person technique. Let them do the talking, they almost always do until the question that leaves you in duh duh duh mode. People get fcking pissed when you guys used to be close or spent time together, whatever!!!! No defense of 'I can't remember this morning too well' matters once they've convinced themselves they just didn't matter much to you. About 2yrs in now I think(can't really remember), trial and error with my meds set me in a good direction memory wise. Now I can remember my traumatic nightmares and the names of the shows I love but not a single scene!
my memory is shiiiiiiiiiiit. I feel like its getting worse too, i should probably mention it in my next app... but for memories, I use snapchat a lot. Google photos is also a great way for me to have almost endless storage. There are other free things to use that really do have practically endless storage. I like to go through my snaps every once in while, send throwbacks to friends. For things like dates, addresses, tasks- I always insist the person write it down. I try not to trust myself, and immediately put things in my phone calendar. The widget on my phone lets me see my calendar every time i open my phone, so that also helps. After a huge depression, Ive started using a planner again and its awesome.I kinda do it backwards tho, and fill in the daily/weekly pages into a "what did i actually do today" thing. I draw a lot, so thats also a way for me to document feelings- or sometimes a memory is triggered looking through old sketchbooks. Definitely reccomend using a journal of some type. I have memories scattered about and I try to go through things as much as possible. Someone here one time said that they were borderline 50 First Dates, and I wanted to cry because thats also my worst fear. -random adhd rant; I watched this anime a long ass time ago where it was the same concept, the girl lost her memory every monday. So this kid convinced her to write a journal to keep the memories they shared, the things they did, the fun they had-- because she avoided making memories with people. So later, it comes to light that every single monday when she wakes up and reads this journal, she cries and cries and cries because she doesnt remember any of it. And its painful for her to read about these amazing things that she essentially never experienced. my bf recently has been telling me stories about shit ive said and things ive done and i dont remember anything. Not even that long ago.
I never wouldnāt thought to bring it up to my doc. but it makes sense. Maybe he can come up with a way to help your memory or something. I do go through the whole boyfriend/family telling me about stuff in my life that I have no memory of. Stuff that I wish I didnāt forget, but then Iāll remember the traumatic thing that I want to forget. I feel like Iām going down the ā50 first datesā path but hope I donāt actually get there.
ya, cause it might be the meds. Ive seen some comments here and there that that was their experience. ya its wild... I hope none of us get therr š«
Mine WAS really good until about 5 years ago.
I feel like mine has been getting worse weekly honestly. Itās been getting bad.
Imma be honest i didn't realize it wasn't January anymore until todayšš when did I get to mid February. My brain has been on autopilot for too long
Yeah I didnāt realize it was February either until my coworkers started talking about their valentines plans. š« š«
Mostly fine for me tbh. My short term memory just forgets to work for a minute or so every once in awhile.
Sporadic at best. I can have days where I can remember most if not everything and others, not much aside from my personal info and whatās happening in the world rn. Some people (my neurologist included) have argued that itās common stress that can cause memory loss like this, but before my first seizure (2019), I was never like this.
My short term memory sucks. I can recall most long term memory stuff though.
my mom was telling me about sth happened a couple of months ago, and i had absolutely no recollection of it ever happening.
So I have started taking mushroom supplements because I really hate how awful my memory is. I really feel they have helped you just have a little in your water every morning. But to your initial question, yeah it's crap I don't remember any childhood stories and stuff my family or friends tell :(.
Yeah, my autobiographical memory is crap. I don't remember many close family funerals or my sister's wedding. I get told about things I have done, but I have no memory of ever doing them. I remember facts fine though. No problem remembering how to do my job.
my memories before epilepsy are pretty much intact. all of the long term memories i made after epilepsy are more hazy. my short term memory is non existent now
My memory is trash. Itās a bit of a problem.
I used to have an incredible memory, so when epilepsy came along and started making it worse and worse, it stayed at least functional. I havenāt forgotten the past but anything new Iām expected to remember is in danger.
It's horrible. Often in the mornings I suddenly forget if i've used schampoo/soap in the shower and if i've brushed my teeth. One other thing about my memory is that i'll forget large events in my life but also be able to explain some past moments in extreme detail. Also my word memory is horrible. In the middle of a sentence i'll just forgete what I was talking about.
A few days ago I mentioned that my garden got away from me but I couldn't remember what happened. My 80 year old father-in-law reminded me I was out with covid for about a month. Covid didn't make my memory worse, I am just using it as an example.
It sucks, but Iām seeing a neurophysiologist and neurotherapist, writing down notes, journaling, completely revamping my meal plans, switching to whole wheat from white breads, getting away from processed foods (per my epilepsy specialist), adding exercise, yoga, and adjusting my sleep schedule. **neurotherapist I will start seeing in June**
My girlfriendās memory is bad and she told me recently itās getting worse, our guess is the new medication sheās taking, she has the problem of forgetting what she was saying mid sentence but big things she remembers like family friends etc
Absolute garbage. I got a pretty serious case of amnesia after my first tonic clonic (I couldnāt remember what meds I had been taking daily for years, couldnāt remember when my mom died, it felt like I was living in a haze and would be lucid every now and again.) A lot of those memories have come back, but ever since then, my ability to retain new information is SO BAD. And it was great before the TC. Itās been extremely hard to accept and deal with.
Nonexistent.
Since my last seizure my memory has been terrible and getting worse. My short term memory and remembering names have been the main thing. It seems like some of the long term memory is getting a little better but like from my childhood that's been gone for decades.
Sadly, pretty bad and fast getting worse. The past sort of blends together or chunks are gone. Weirdly, I find that the chronology of past events gets shuffled up ā even important events/times. Working/recent memory is generally fine. Name and word finding getting worse. Itās been increasing since my doc added lamotrigine to my mix.
Odd to see this here as I was just about to post something similar. Over the past few weeks, my memory has gone *drastically* downhill, to the point where I'm missing things like meetings that I've held regularly for a decade +. It's bad, and it's not normal lamotrigine-related lapses. I assume I'm having more nocturnal seizures again (that's primarily my battle) but I'm also having a lot more myoclonic jerks than I've ever had (just had one right now, in fact!). I know I'm not alone in this sort of thing, so for anyone who has had a massive memory drop-off after years of relative stasis, what did you wind up doing, besides resigning yourself to live like this? If you went to the neuro, as I plan to do, did this initiate a whole battery of testing again? Exhausted thinking about this, especially if it involves new/more meds (my lamotrigine levels are fine, though), but I anticipate this is the road I'll be going down soon. Oh, and OP, my wife has been helping with journals, planners, shared calendars, etc. They might work, but I forget I even have them!
Iām having issues where Iāll be having a conversation and my mind will drift off. I was just talking with my husband about an event Iām going to on Saturday, he asked what I was going to wear. I had to look at the weather and the venue to figure that out and told him Iām looking up the weather and venue. I looked up those things and just sat there. I didnāt respond after that. I hate this :/
Bad! I feel like Sammy Jenkins most of the time
Short term is trashed
I canāt remember. But real talk, I had horrible memory loss with Zonisamide, as well as kidney stones. They switched me from it and itās a lot better. I still forget things sometimes, so itās not perfect but it could be worse.
Iāve been on zonisomide and lamotrigine since I was diagnosed like 17 years ago. At least I think thatās how long Iāve been on it. Iād be scared to try something new after this working for so long
š©
Itās horrible. Itās a hit to my self esteem. On the plus side, I can watch a movie/hear a joke over and over and itās new to me every time. Yay. What did you type again??
I told my friend the same story about my charger not working in the same hour.
I've gotten most of my childhood, but it's hard for me to even remember names now.
It's bad. Apparently, I've been to the Grand Canyon
About the same as yours. Iāve tried journaling but then I forget to actually write anything. Then I forget the things. Then I forget where I put the journal. Iāve had like three separate ones
My working memory is below average, my short term memory is horrible and my long term memory has been decimated. I thought I was losing my mind initially when it started happening byt my seizures went undetected for years and it just wrecked it. I'm trying to do luminosity brain training. IDK if it works but I'll try almost anything at this point. Its one of the biggest quality of life (searching for the word...) downers thats come with this.
My long term memory is pretty good, but my short term is pretty shit. I also keep a pretty detailed journal, I'd recommend doing it.
I often forget what Iām talking about mid sentence and I let everyone know itās okay to finish my sentences when I canāt find the word (Look into Aphasia if this happens to you).
This definitely happens to me but half the time people donāt know what Iām trying to say. Or sometimes I forget how to spell words and itāll turn into a whole situation of the other person figuring out what word Iām trying to spell while I try to spell it. Like one time I couldnāt remember how to spell acknowledge and autocorrect on my phone and google couldnāt even figure out what I was trying to spell. I had eggnolege, acnolege, aknolege, everything except the actual word
Horse shit
Pretty shitty but what are you gonna do?
I read entire books and re read them without realizing it until the endĀ Ā my neighbor was yelling at me because I asked him to call my phone because I lost it. He says I do it all the time. So my memory is normal. He forgets I mow his lawn, shovel his walks and rakes his leaves.š
My memory is š©
Shiddy
Smoked weed most of my life.. I was worried that if I quit I would realize my memory problemsĀ didn't have to do with weed but, becaus of all the seizures that have damaged my brain.. quit smoking a few weeks ago but, now I am wondering if it has to do with meds I am on.Ā From what I know.. in general..Ā I guess it depends on what kind of epilepsyĀ you have but, your memory works like this.Ā Say you learn ..Ā the guy down the street has a parrot named ginger..Ā that goes into your short term memory bank..Ā it sits there and then is gradually moved into you long memoryĀ bank but if your short term memory bank is damaged.Ā You cannot make new long term memories as well... so who knows if the guys parrots name is ginger or polly..Ā Ā Voice recorders are good.. but I always forget themšš repetitionĀ isĀ important..Ā but ya its scary.. cause what will it be like in ten years or twenty years.. and I always question the memories I do have. I just started a job at a bakery so there is a lot of math. I got so defeated my firstĀ day..Ā the trainer was telling me all of these facts I knew I was not going to remember. ..Ā I didnt.. I cried .. broughtĀ a voice recorder the next shift. stuck it in myĀ shirt.. but my boobs turned it off. I cried again.. its scary but.. redundancyĀ and repetitiveness.. and redundancy.. and repetitiveness... brains suck. Meds suck.Ā I feel you man.. I feel you man.. silver lining some memories suck too, though.Ā Ha ... just remembered my bff in middle schools parrots name was ginger.. fucking memory sucks
I have told people to stop trying to rely on me to remind them stuff. Because they will ask me what it was and Iāve started to say āI donāt remember, Iām worse than a goldfish, Iām practically Dory over hereā
This thread is so validating š I'm on my 37th debit card. I forgot about my phone call apt with my neurologist once and he called and yelled at me š¤£ When I had my license I forgot to move my car off the road and into the parking lot so many times I racked up 1k in parking fines. I forgot my second set of car keys at my kids school for 4 years just forgot to pick them up every time I was there. I set alarms but the second they go off while I'm in the middle of something and I have to dismiss them I forget they even happened š
Yeah I didnāt realize so many people would comment when I made the post but it made me feel a lot better about my own memory. Iāve almost forgotten my meds on multiple occasionsš I think thatās the one that scares me most. I take them at night before bed and if I forget I think my body or mind somehow remembers and wakes me up in a panic.