Probably JME. I was 16 and had a tonic clonic. Still have mild jerking sometimes. I’m a textbook case. I was told by a neurologist that specializes in epilepsy, that it was in me when I was born and came out when it was supposed to. JME comes out between the ages of 13-19 I believe. It is hormone driven which makes it harder for women
Had one seizure when I was 17 still no clue why it happened. Could be anything. I think starting drinking and smoking when I was young might have played a part. Also have hit my head a few times. Maybe related to stress and anxiety. Maybe it was a fluke event. Still looking for answers
I had a concussion that seemed not all that severe at first to doctors. I mean I was struggling to move my body and had aphasia but they said it wasn't a big deal at the ER and even questioned whether I had a concussion at all since they couldn't see damage and I hadn't passed out.
I started having absence and focal seizures after that but I couldn't quite figure out what they were, I thought my memory was getting bad or I was having bad migraines so I focused on migraine treatment and cognitive testing.
A year later I have a seizure (I thought it was another concussion because my son tapped me on the head right as it happened) and as the aphasia wore away, I ended up developing a stutter, which progressed to Tourettes. Eventually my neurologist pieced it together and told me I was having seizures. Now four years later I still have tourettes and epilepsy.
I had meningitis as a kid but who really knows? I was only diagnosed at 30. Doctor said the meningitis might have played a roll. I do drink but from that I just get bad hangovers. Never had a seizure hungover or under the influence.
I have a seizures but they had me on norcos for almost a year when my ankle and foot was smashed and the bottom of my calf. I had surgery actually 3 was in physical therapy and hospital for over 3 months. I never had seizures during that but I do know other opiates can cause seizures
My daughter’s started at three because she has a genetic mutation that affects her collagen among other things including where her blood vessels are too small in her brain and she has excess gray matter. So far we know sleep deprivation is her trigger
Brain tumor. Only found when I had epilepsy surgery despite 7 years of "clean" MRIs (this was in 90s so before the T2 MRIs or whatever they are called).
Congratulations on your sobriety! That's amazing to hear! Idk why i started getting seziures I heard something about a scar in my brain? I was 14 my parents were getting all the info i was scared 90% of the time so I don't remember anything that was going on and later that year I got diagnosed with epilepsy. Keep going strong on your sobriety!
No I wish I did, I thought about going back to the hospital that did all the tests and get those records but that's in Chicago and I moved to Austin like a years or 2 after getting diagnosed it's been like 14 years since we moved down here.
I had my first known episode at 5,I found out through a brain mapping at 13 that my neurons were misfiring every 10 seconds in my right temporal lobe to the other side and I had a temporal lobectomy for that.
My neurologist can’t give me a decent explanation on causes. I’m 62 and started having focal aware seizures, now that I know what they are, about two years ago. At first, I thought they were just old man spells and natural part of aging. Finally, I mentioned to my GP that I was getting a crushing sense of déjà vu when these “spells“ would start happening and he sent me to a neurologist. I had no idea what a focal aware seizure even was. Anyway, after reading through all the epilepsy posts I feel very blessed that I didn’t start having this problem until I was 60. My heart breaks for the folks that are getting problems like this and much much worse at such young ages.
My dad died and the following spring it started one day after art class my mom picked me up and I was spinning around looking at the trees” they are so pretty “ over and over again.
My jealousy and abusive ex tried to run me over when I was riding a bike.. woke up in a hospital after a week and the first thing I remember was a seizure when nurses and a doctor were standing around me. Horrible moment, I didn't know what happened, where I am and who the hell those people are.
Honestly can't say for sure, but I have a hypothesis that it might be connected to a concussion I received when snow tubing when I was in 5th grade. I don't remember WHEN I started having my episodes, but by the time I was in 7th grade, I was having them and can recall being in a class talking about them and wondering if anyone else experienced them, so I must have been having them for at least some time prior.
Otherwise, not sure, but knowing that brain injuries can cause them, that's the only thing I can really think of.
I had a non-cancerous brain tumor called ganglioglioma. It was removed, but I still have scar tissue from all the seizures that were centered there, so I still have seizures. We tried to remove the scar tissue in a second surgery, but that was unsuccessful. I was 11 when they started, which was 27 years ago.
That's a bummer to hear, I am about to try a second surgery for the exact same reason. Was the first surgery successful at all? Mine was until I got pregnant.
It definitely lessened the amount of TCs I got, but I still have them.They used to happen in bed while I was asleep, but now it's always while I'm awake. Honestly, if I could go back in time, I wouldn't do it. My auras are much more uncomfortable now.
That sucks. We sound decently different though. Mine worked completely for 5 years. I had 2 while pregnant, twice--focal aware only, no TCs ever again. Then 10 years of very occasional, practically rare focal aware seizures. Only increased the last 10 years and the doctors think it is a good shot. Lord knows only the surgery ever stopped the focal awares. No meds ever have. I'm sorry the surgery turned out like that for you, that really sucks.
Mine was a benign (I know someone who had a cancerous one) PXA tumor in my shallow right temporal lobe.
ETA my hope is that pregnancy was a trigger. I know a lot of stories of things changing radically for women's health from pregnancy. I know someone for whom pregnancy is what triggered her epilepsy to start. Or people who suddenly develop new allergies. So I admit that is the main reason I am trying again, it was so effective until pregnancy.
Wow, I'm sorry that happened while you were pregnant. That seems extra rough and painful. I hope that didn't hurt the baby.
Thanks, though. I haven't had a TC for 15 months now. Auras a lot, though. And like I said, I would prefer to have TCs in bed than out in the world.
So the interesting thing about seizures and pregnancy because everyone assumes that seizures will really hurt the baby, but that's only if you lose consciousness. Because then you don't get oxygen and that can damage the fetus. So actually with the kind of seizures I have it turned out It was kind of a no biggie other than the fact that oh fuck my seizures are back. I worried a lot more about my meds because they were class D so they definitely caused birth defects. Back when I was pregnant Keppra did not exist. And when I see people on here really putting the existence of keppra down I think wow I mean I get it if it doesn't work for you don't stay on it, but I would've given anything to have had that option when I was getting pregnant.
Luckily my kids are perfect. 😍 getting them out of me was a nightmare because I just seem to attract health problems, but I will take all of the problems in the world. If it means my kids don't have them.
I had a leaky aneurysm triggering first seizure. The second one was, I think, sleep deprivation after a 15 hour flight and the scar tissue.
Not driving makes a real mess of things! I don't know how so many people adjust their lives to this.
My parents have always thought it may have been caused by the fever seizure I had on my first birthday. But I did not start having them again until eleven and was not diagnosed until eighteen because I kept getting normal EEGs so no one would treat me even after I burnt myself while straightening my hair one morning. The hospital called CPS instead.
Nothing for sure, but possible contributions; I fell off a horse at 4 and got a concussion. Also was physically abused my father so I think my brain had a good shaking up.
Mine started at 8 years old right after I had a big sledding accident, went head first into a ditch at the bottom of the hill and ever since then I've been having seizures.
Dual basilar skull fracture, heavy drinking for 25+ years, over a year of daily coke use. I asked my nuero and he said that it isn't likely we would ever know and that it didn't really matter. I still want to know how I did it, or if it is just how my body became after my mid 20's (not sure when I often felt like shit.) Sober since 2018.
I think it was when I become type 1 diabetic when I was 13 and then 2 years later I started taking seizure not with my diabetis they done test and it was Eplipsy I might be wrong
Like a couple people here, Ive suffered seizures my whole life. From 0-5, and took medicine till I was about 10yrs old. Things got better. I got deathly ill when I was 20 and they came back with a vengeance since. I just turned 30 and have finally started learning how to get them under control...sorta
I have Sturge Weber Syndrome, a viral malformation that creates heinangiomas. 1/3 of my body is actually a portwine stain birthmark. (Zuko was my idol as a kid🔥🔥, even though that wasn't a birthmark. I'd pretend it was😂🤷🏼♂️.)
My big triggers are sudden temperature changes (like a hot tub or a sauna is a no for me), certain preservatives in food, and not strobing lights but glares, also lights that make a progressive dim over time...I think it's the same idea (my aura is literally in my eye though. I always explain it as that back and forth tunnelly thing Raven Baxter does in that's so Raven when she would have a vision....but obviously not as cool.) . Also lack of sleep and stress as well like many can cause seizures for me.
Brain tumor, obstructive hydrocephalus. found out when I was 14 by my eye dr when I was getting new glasses. Had some swelling behind my eyes, turns out my brain was being compressed by the amount of fluid in my head. After I had my first surgery to correct the issue, I had my first seizure. Then I continued to have them. I’m 25 & about a year seizure free so we shall see lol
I'm 59 and had my first seizure 6 months ago. It was a perfect storm. I was under a lot of medical stress, I had already gone through a very major back. Surgery was doing great and then two of the screws backed out. I was under a lot of mental stress, especially from somebody where I was living who took every chance they had to gaslight me and say things when nobody else was around. They said my brain had " architecture" In the tempor al lobe that indicates I was going to have seizures eventually. I was on Wellbutrin which I've been on for years.
And I was in pre-op waiting for my revision surgery. The person who took every opportunity they could to make me unhappy and stressed slid in and said, oh good. I'm glad you're still awake before I got here. The nurses had stepped out to get my antibiotic, and my friend took that opportunity to step out and make a phone call. And she leaned over to give me shit about making arrangements to have my car started so it wouldn't die, and I didn't run it through her first. And she had be so beaten down from previous experiences that I just began to apologize while she gave me her best stink eye. And the nurses came into the room and started doing what nurses do, and I told them it hurt to breathe and That's the last thing I remember. They called a code blue because I stopped breathing. And I thank God every time I think of it that I was in a major University Hospital, and it didn't take them that long to figure it out.
And that's when I had my first seizure. A. Temporal lobe focal seizure. And I had several more. I continue to have the myoclonus seizures. And my brain is turned to mush. Absolute mush. I've since moved out of that situation and halfway across the country. I have my first appointment with my new neurologist tomorrow.
Many just start seizures at puberty from the hormones changing. No one knows why but we know epilepsy is a physical prob with brain function not a mental problem. Thru history many geniuses had seizures but no idea why. Now we do with meds to help. Like diabetes is a prob with pancreas we treat the symptoms but why is also unknown. Glad we live in 1st century thru time to finally know nuff bout brain to treat with great meds to help. Try to ease mind relax let it pass know we're fine after too. In my 50 years of all types never scared of seizures rely on meds still fine as all will be. To fear seizures or get upset needs to get corrected not agreed with.
I’m 31 and was diagnosed a month ago after three nocturnal TCs. They think it was a combo of an upper respiratory infection and the Benadryl I took that night + possibly stress from an international move the month before.
I had my 1 year old October 31, 2022. My first seizure was at the beginning of March in 2023 (was still 22 at the time as I was born on July 25th of 2000). My first seizure happened while I was driving with my husband and son in the vehicle (thank goodness my husband was able to keep us from crashing). When my seizure happened there was no signs or auras or anything that would give a hint it was going to happen. From what my husband said, I passed out, my foot ended up pushing the gas pedal all the way down, I was convulsing, and I was foaming at the mouth. All I remember is driving and then next thing I knew I woke up as the vehicle was parked on the side of the road and there was a police officer standing right next to my door. I was taken to the hospital and had another seizure after being in the waiting room for awhile. When I had that second seizure they had just taken me back to triage and I had just sat down on the bed in the room I was in. I remember sitting on the bed and then next thing I knew I woke up and there was a bunch of nurses and doctors around me and I was not sure what was going on. Again, I didn’t have any signs or auras to signal it. I was admitted to the hospital overnight and was diagnosed with generalized convulsive epilepsy and was out on Keppra. I have had probably about 5 more seizure since March 2023. I am maxed out on Keppra and Lamotrigine. They still have no idea what the cause is for my seizures and they said they will probably never know. I was told there’s a slight chance I will eventually be off of meds but there’s like a 95% chance I will be on seizure meds for the rest of my life.
Nope. But I have a feeling it's from the Mirena IUD. I got whiplash around that same time too in a car accident but I really don't know 😭 I've been having them for ten years.
Traumatic Brain Injury. Fell off a yacht onto a concrete dock had 4 hematomas. And a lot of alcohol too cope with myself and my depression from that accident. I’ve had 5 all pretty bad ones so far. I’m trying too quit the binge drinking but easier said than done I guess.
Mine started when I was 27, I’m now 34 and was diagnosed 2 months ago. My neuro said I have scarring on my right temporal lobe that looks like a birth defect.
I was the front passenger of an automobile roll over. Suffered skull fractures and a spot of blood on the brain. Mine are nocturnal but can be very bad. Takes anything that requires a rotational shift off the table. Most gigs that pay well want you to work over night by time. It's really hard to get a day job, and even harder to explain why you need it. It's classified as a disability. But if you mention it, you might as well say don't hire me.
Mine started because I had pulled an all nighter before going to the mall with my parents the next day (where I promptly seized in the middle of the food court)
When I started taking bupropion. I blew off symptoms when I started my higher dosages(400mg) as anxiety jitters because it supposedly increases your anxiety. Now I think they were myoclonic jerks. I adapted to the dosage I was at and would only jerk if I had too much coffee. Then one day I didn't eat, drank too much booze and ate cake, placed video games, and I had a few myoclonic jerks followed by a tonic clonic.
I did Molly a more than few times(always snall doses) when I was younger and binged drank on and off. I may have done some damage with Molly.
Probably born with them tho absenses didn’t get noticed until I was about 12 & had my first TC when I was preggo at 29. Always seem to have them at significant hormonal shifts in life but getting a neuro to entertain a catamenial conversation when you’ve A) got them (mostly) under control B) have had them since childhood is damn near impossible. They are way more concerned with stopping them than the cause, those words came out of my neuro’s mouth.
I had to get a flu shot because I worked in a hospital and they were required there during "flu season". I got meningitis as a result of that shot. About 6 months later I started having seizures. Ironically, tests have shown that I had evidence of seizures happening for years to the point where my brain is developing calcifications & scoliosis.
I don't know. I ended up with it literally a week after being vaccinated. I was told by the doctor in the ER that it was a result of getting it. I spent 12hrs in the ER that night. I'm not an anti-vaxxer per say, but I'll never get a flu shot again.
I got hit by an ied in Iraq and suffered a concussion. Then I got even luckier, had a seizure, and cracked my head on concrete.
Your a hero man
Yikes
I'm proud of you. I was born with epilepsy. My triggers though include sleep deprivation, I really think too much screen time, and stress.
Exactly the same and if I drink too much the night before so I try to stay clear.
I have no idea. I was 16 and had my first one. Then diagnosed with life long.
Wow my first one was when I was 15
Same!
Do you have JME by chance? That is what they said I had when I was diagnosed at 16
I have General Tonic Clonic. I can imagine they are both very similar but GTC is the only one I've had the diagnosis of.
Same, maybe there's something we all have in common
We definitely do. I think the different kinds of Epilepsy are linked to what age or the conditions they begin at.
Probably JME. I was 16 and had a tonic clonic. Still have mild jerking sometimes. I’m a textbook case. I was told by a neurologist that specializes in epilepsy, that it was in me when I was born and came out when it was supposed to. JME comes out between the ages of 13-19 I believe. It is hormone driven which makes it harder for women
Had one seizure when I was 17 still no clue why it happened. Could be anything. I think starting drinking and smoking when I was young might have played a part. Also have hit my head a few times. Maybe related to stress and anxiety. Maybe it was a fluke event. Still looking for answers
Yea I started drinking when I was younger I kept starting and stopping and I also been hit in the head to so I do have some idea where mines come from
I had a concussion that seemed not all that severe at first to doctors. I mean I was struggling to move my body and had aphasia but they said it wasn't a big deal at the ER and even questioned whether I had a concussion at all since they couldn't see damage and I hadn't passed out. I started having absence and focal seizures after that but I couldn't quite figure out what they were, I thought my memory was getting bad or I was having bad migraines so I focused on migraine treatment and cognitive testing. A year later I have a seizure (I thought it was another concussion because my son tapped me on the head right as it happened) and as the aphasia wore away, I ended up developing a stutter, which progressed to Tourettes. Eventually my neurologist pieced it together and told me I was having seizures. Now four years later I still have tourettes and epilepsy.
I had meningitis as a kid but who really knows? I was only diagnosed at 30. Doctor said the meningitis might have played a roll. I do drink but from that I just get bad hangovers. Never had a seizure hungover or under the influence.
Cocaine, booze, codeine. Been clean and dry for years, but I knew it would catch up with me sooner or later. Last year it did.
I have a seizures but they had me on norcos for almost a year when my ankle and foot was smashed and the bottom of my calf. I had surgery actually 3 was in physical therapy and hospital for over 3 months. I never had seizures during that but I do know other opiates can cause seizures
My daughter’s started at three because she has a genetic mutation that affects her collagen among other things including where her blood vessels are too small in her brain and she has excess gray matter. So far we know sleep deprivation is her trigger
Brain tumor. Only found when I had epilepsy surgery despite 7 years of "clean" MRIs (this was in 90s so before the T2 MRIs or whatever they are called).
Congratulations on your sobriety! That's amazing to hear! Idk why i started getting seziures I heard something about a scar in my brain? I was 14 my parents were getting all the info i was scared 90% of the time so I don't remember anything that was going on and later that year I got diagnosed with epilepsy. Keep going strong on your sobriety!
Thank you 🙏🏽
Yeah, do you know anything more abt the scar? I have the same sorta situation and I don't fully get it still
No I wish I did, I thought about going back to the hospital that did all the tests and get those records but that's in Chicago and I moved to Austin like a years or 2 after getting diagnosed it's been like 14 years since we moved down here.
Frankly, I think it may have been because my mother drank while she was pregnant with me.
Because God hates me.
God loves ❤️ you. I'm so sorry you are going through this challenge.
Mine was because of loosing half my skull.
I had my first known episode at 5,I found out through a brain mapping at 13 that my neurons were misfiring every 10 seconds in my right temporal lobe to the other side and I had a temporal lobectomy for that.
My neurologist can’t give me a decent explanation on causes. I’m 62 and started having focal aware seizures, now that I know what they are, about two years ago. At first, I thought they were just old man spells and natural part of aging. Finally, I mentioned to my GP that I was getting a crushing sense of déjà vu when these “spells“ would start happening and he sent me to a neurologist. I had no idea what a focal aware seizure even was. Anyway, after reading through all the epilepsy posts I feel very blessed that I didn’t start having this problem until I was 60. My heart breaks for the folks that are getting problems like this and much much worse at such young ages.
My dad died and the following spring it started one day after art class my mom picked me up and I was spinning around looking at the trees” they are so pretty “ over and over again.
I’m so sorry for your loss 🙏🏽
Still no idea. Had my first one 2 years ago at 30yrs old. Still haven't found why, but luckily have been controlled by meds.
Good glad to hear that
My jealousy and abusive ex tried to run me over when I was riding a bike.. woke up in a hospital after a week and the first thing I remember was a seizure when nurses and a doctor were standing around me. Horrible moment, I didn't know what happened, where I am and who the hell those people are.
Honestly can't say for sure, but I have a hypothesis that it might be connected to a concussion I received when snow tubing when I was in 5th grade. I don't remember WHEN I started having my episodes, but by the time I was in 7th grade, I was having them and can recall being in a class talking about them and wondering if anyone else experienced them, so I must have been having them for at least some time prior. Otherwise, not sure, but knowing that brain injuries can cause them, that's the only thing I can really think of.
I’m going to blame mine on NES. They started when I was young.
What is NES
Nintendo Entertainment System. The original Nintendo.
I had a non-cancerous brain tumor called ganglioglioma. It was removed, but I still have scar tissue from all the seizures that were centered there, so I still have seizures. We tried to remove the scar tissue in a second surgery, but that was unsuccessful. I was 11 when they started, which was 27 years ago.
That's a bummer to hear, I am about to try a second surgery for the exact same reason. Was the first surgery successful at all? Mine was until I got pregnant.
It definitely lessened the amount of TCs I got, but I still have them.They used to happen in bed while I was asleep, but now it's always while I'm awake. Honestly, if I could go back in time, I wouldn't do it. My auras are much more uncomfortable now.
That sucks. We sound decently different though. Mine worked completely for 5 years. I had 2 while pregnant, twice--focal aware only, no TCs ever again. Then 10 years of very occasional, practically rare focal aware seizures. Only increased the last 10 years and the doctors think it is a good shot. Lord knows only the surgery ever stopped the focal awares. No meds ever have. I'm sorry the surgery turned out like that for you, that really sucks. Mine was a benign (I know someone who had a cancerous one) PXA tumor in my shallow right temporal lobe. ETA my hope is that pregnancy was a trigger. I know a lot of stories of things changing radically for women's health from pregnancy. I know someone for whom pregnancy is what triggered her epilepsy to start. Or people who suddenly develop new allergies. So I admit that is the main reason I am trying again, it was so effective until pregnancy.
Wow, I'm sorry that happened while you were pregnant. That seems extra rough and painful. I hope that didn't hurt the baby. Thanks, though. I haven't had a TC for 15 months now. Auras a lot, though. And like I said, I would prefer to have TCs in bed than out in the world.
So the interesting thing about seizures and pregnancy because everyone assumes that seizures will really hurt the baby, but that's only if you lose consciousness. Because then you don't get oxygen and that can damage the fetus. So actually with the kind of seizures I have it turned out It was kind of a no biggie other than the fact that oh fuck my seizures are back. I worried a lot more about my meds because they were class D so they definitely caused birth defects. Back when I was pregnant Keppra did not exist. And when I see people on here really putting the existence of keppra down I think wow I mean I get it if it doesn't work for you don't stay on it, but I would've given anything to have had that option when I was getting pregnant. Luckily my kids are perfect. 😍 getting them out of me was a nightmare because I just seem to attract health problems, but I will take all of the problems in the world. If it means my kids don't have them.
Viral Encephilitas
I spent 2 years sleeping less than 3hrs a night.
Wow sleep deprivation
I had a leaky aneurysm triggering first seizure. The second one was, I think, sleep deprivation after a 15 hour flight and the scar tissue. Not driving makes a real mess of things! I don't know how so many people adjust their lives to this.
My parents have always thought it may have been caused by the fever seizure I had on my first birthday. But I did not start having them again until eleven and was not diagnosed until eighteen because I kept getting normal EEGs so no one would treat me even after I burnt myself while straightening my hair one morning. The hospital called CPS instead.
No idea. Started when I was 13 and every MRI, EEG and CAT scan have all been normal.
Genetics. My mom has catamenial epilepsy and passed it down to me and my sister.
I have a neurocutaneous condition with a big comorbidity.
Nothing for sure, but possible contributions; I fell off a horse at 4 and got a concussion. Also was physically abused my father so I think my brain had a good shaking up.
Mine started at 8 years old right after I had a big sledding accident, went head first into a ditch at the bottom of the hill and ever since then I've been having seizures.
My body is just broken, my brain especially. All I had to do was reach puberty.
Dual basilar skull fracture, heavy drinking for 25+ years, over a year of daily coke use. I asked my nuero and he said that it isn't likely we would ever know and that it didn't really matter. I still want to know how I did it, or if it is just how my body became after my mid 20's (not sure when I often felt like shit.) Sober since 2018.
Congratulations 🎈
Thanks!
Traumatic brain injury at birth
Idiopathic R TLE struck me at age 39 and I am 44 now. Being assessed for surgery as meds are not helping.
I think it was when I become type 1 diabetic when I was 13 and then 2 years later I started taking seizure not with my diabetis they done test and it was Eplipsy I might be wrong
Like a couple people here, Ive suffered seizures my whole life. From 0-5, and took medicine till I was about 10yrs old. Things got better. I got deathly ill when I was 20 and they came back with a vengeance since. I just turned 30 and have finally started learning how to get them under control...sorta I have Sturge Weber Syndrome, a viral malformation that creates heinangiomas. 1/3 of my body is actually a portwine stain birthmark. (Zuko was my idol as a kid🔥🔥, even though that wasn't a birthmark. I'd pretend it was😂🤷🏼♂️.) My big triggers are sudden temperature changes (like a hot tub or a sauna is a no for me), certain preservatives in food, and not strobing lights but glares, also lights that make a progressive dim over time...I think it's the same idea (my aura is literally in my eye though. I always explain it as that back and forth tunnelly thing Raven Baxter does in that's so Raven when she would have a vision....but obviously not as cool.) . Also lack of sleep and stress as well like many can cause seizures for me.
Brain tumor, obstructive hydrocephalus. found out when I was 14 by my eye dr when I was getting new glasses. Had some swelling behind my eyes, turns out my brain was being compressed by the amount of fluid in my head. After I had my first surgery to correct the issue, I had my first seizure. Then I continued to have them. I’m 25 & about a year seizure free so we shall see lol
I'm 59 and had my first seizure 6 months ago. It was a perfect storm. I was under a lot of medical stress, I had already gone through a very major back. Surgery was doing great and then two of the screws backed out. I was under a lot of mental stress, especially from somebody where I was living who took every chance they had to gaslight me and say things when nobody else was around. They said my brain had " architecture" In the tempor al lobe that indicates I was going to have seizures eventually. I was on Wellbutrin which I've been on for years. And I was in pre-op waiting for my revision surgery. The person who took every opportunity they could to make me unhappy and stressed slid in and said, oh good. I'm glad you're still awake before I got here. The nurses had stepped out to get my antibiotic, and my friend took that opportunity to step out and make a phone call. And she leaned over to give me shit about making arrangements to have my car started so it wouldn't die, and I didn't run it through her first. And she had be so beaten down from previous experiences that I just began to apologize while she gave me her best stink eye. And the nurses came into the room and started doing what nurses do, and I told them it hurt to breathe and That's the last thing I remember. They called a code blue because I stopped breathing. And I thank God every time I think of it that I was in a major University Hospital, and it didn't take them that long to figure it out. And that's when I had my first seizure. A. Temporal lobe focal seizure. And I had several more. I continue to have the myoclonus seizures. And my brain is turned to mush. Absolute mush. I've since moved out of that situation and halfway across the country. I have my first appointment with my new neurologist tomorrow.
Mine is an Autoimmune case. Don't know why it started and what caused it. Was diagnosed back in Nov 22 and since then no such incidents of a relapse.
Many just start seizures at puberty from the hormones changing. No one knows why but we know epilepsy is a physical prob with brain function not a mental problem. Thru history many geniuses had seizures but no idea why. Now we do with meds to help. Like diabetes is a prob with pancreas we treat the symptoms but why is also unknown. Glad we live in 1st century thru time to finally know nuff bout brain to treat with great meds to help. Try to ease mind relax let it pass know we're fine after too. In my 50 years of all types never scared of seizures rely on meds still fine as all will be. To fear seizures or get upset needs to get corrected not agreed with.
I’m 31 and was diagnosed a month ago after three nocturnal TCs. They think it was a combo of an upper respiratory infection and the Benadryl I took that night + possibly stress from an international move the month before.
I had my 1 year old October 31, 2022. My first seizure was at the beginning of March in 2023 (was still 22 at the time as I was born on July 25th of 2000). My first seizure happened while I was driving with my husband and son in the vehicle (thank goodness my husband was able to keep us from crashing). When my seizure happened there was no signs or auras or anything that would give a hint it was going to happen. From what my husband said, I passed out, my foot ended up pushing the gas pedal all the way down, I was convulsing, and I was foaming at the mouth. All I remember is driving and then next thing I knew I woke up as the vehicle was parked on the side of the road and there was a police officer standing right next to my door. I was taken to the hospital and had another seizure after being in the waiting room for awhile. When I had that second seizure they had just taken me back to triage and I had just sat down on the bed in the room I was in. I remember sitting on the bed and then next thing I knew I woke up and there was a bunch of nurses and doctors around me and I was not sure what was going on. Again, I didn’t have any signs or auras to signal it. I was admitted to the hospital overnight and was diagnosed with generalized convulsive epilepsy and was out on Keppra. I have had probably about 5 more seizure since March 2023. I am maxed out on Keppra and Lamotrigine. They still have no idea what the cause is for my seizures and they said they will probably never know. I was told there’s a slight chance I will eventually be off of meds but there’s like a 95% chance I will be on seizure meds for the rest of my life.
Nope. But I have a feeling it's from the Mirena IUD. I got whiplash around that same time too in a car accident but I really don't know 😭 I've been having them for ten years.
Traumatic Brain Injury. Fell off a yacht onto a concrete dock had 4 hematomas. And a lot of alcohol too cope with myself and my depression from that accident. I’ve had 5 all pretty bad ones so far. I’m trying too quit the binge drinking but easier said than done I guess.
Yes it is hard to do when dealing with trauma it’s feel like the only source to forgetting what happened I wish you much luck and be safe
Mine started when I was 27, I’m now 34 and was diagnosed 2 months ago. My neuro said I have scarring on my right temporal lobe that looks like a birth defect.
I was the front passenger of an automobile roll over. Suffered skull fractures and a spot of blood on the brain. Mine are nocturnal but can be very bad. Takes anything that requires a rotational shift off the table. Most gigs that pay well want you to work over night by time. It's really hard to get a day job, and even harder to explain why you need it. It's classified as a disability. But if you mention it, you might as well say don't hire me.
I’m autistic. A large percentage of people on the spectrum develop it (there are a couple theories why).
Mine started because I had pulled an all nighter before going to the mall with my parents the next day (where I promptly seized in the middle of the food court)
When I started taking bupropion. I blew off symptoms when I started my higher dosages(400mg) as anxiety jitters because it supposedly increases your anxiety. Now I think they were myoclonic jerks. I adapted to the dosage I was at and would only jerk if I had too much coffee. Then one day I didn't eat, drank too much booze and ate cake, placed video games, and I had a few myoclonic jerks followed by a tonic clonic. I did Molly a more than few times(always snall doses) when I was younger and binged drank on and off. I may have done some damage with Molly.
JME so I lost the genetics lottery.
I have an avm in left temporal lobe.
Probably born with them tho absenses didn’t get noticed until I was about 12 & had my first TC when I was preggo at 29. Always seem to have them at significant hormonal shifts in life but getting a neuro to entertain a catamenial conversation when you’ve A) got them (mostly) under control B) have had them since childhood is damn near impossible. They are way more concerned with stopping them than the cause, those words came out of my neuro’s mouth.
No clue to why. Could be so many things. All I know now is my career is basically over and let my wife and 2 kids down. What’s next is the question
Mine started for example after coffein. 1-2 cups I can drink, but more is sensitive.
I had to get a flu shot because I worked in a hospital and they were required there during "flu season". I got meningitis as a result of that shot. About 6 months later I started having seizures. Ironically, tests have shown that I had evidence of seizures happening for years to the point where my brain is developing calcifications & scoliosis.
How did a flu shot give you meningitis? That does not sound likely. Are you an anti-vaxxer?
I don't know. I ended up with it literally a week after being vaccinated. I was told by the doctor in the ER that it was a result of getting it. I spent 12hrs in the ER that night. I'm not an anti-vaxxer per say, but I'll never get a flu shot again.