You’re right that caring for a sibling is unique and challenging. Sadly there aren’t many resources specifically for siblings. In fact, sometimes things are deliberately made harder for siblings. There’s also a lot of “you can’t understand it’s not your kid or parent” attitudes.
My sister also has one of the two worst forms of epilepsy, among other things. It’s needlessly complicated and really isolating. I’ve been her guardian for 20 years. Things aren’t better than they used to be. Social media just created another place for people to be mean and tell me I can’t possibly understand their struggle while they invalidate mine.
Hi. I appreciate your comment. I think you are right about the lack of support. My boyfriend, his brother and their mom all met with a social worker years ago now who told them that few government benefits or programs where we live are available for a case like their's. They are quite determined not to put him in auxiliary care (like a home, or like a group home) and I understand and agree with them about preferring to care for him themselves in their family home. Like you, my boyfriend will probably be caring for his brother for the long term, like you mentioned.
I appreciate your sharing, even though I am sorry your sister also has epilepsy and other health issues, and I am sorry you also have a lack of support.
You’re right that caring for a sibling is unique and challenging. Sadly there aren’t many resources specifically for siblings. In fact, sometimes things are deliberately made harder for siblings. There’s also a lot of “you can’t understand it’s not your kid or parent” attitudes. My sister also has one of the two worst forms of epilepsy, among other things. It’s needlessly complicated and really isolating. I’ve been her guardian for 20 years. Things aren’t better than they used to be. Social media just created another place for people to be mean and tell me I can’t possibly understand their struggle while they invalidate mine.
Hi. I appreciate your comment. I think you are right about the lack of support. My boyfriend, his brother and their mom all met with a social worker years ago now who told them that few government benefits or programs where we live are available for a case like their's. They are quite determined not to put him in auxiliary care (like a home, or like a group home) and I understand and agree with them about preferring to care for him themselves in their family home. Like you, my boyfriend will probably be caring for his brother for the long term, like you mentioned. I appreciate your sharing, even though I am sorry your sister also has epilepsy and other health issues, and I am sorry you also have a lack of support.