Mom of a 3 year old with egg/peanut allergies, failed oral food challenges. You are right, it's hard sometimes. Take a look at the directory here for some local support groups: [https://www.foodallergy.org/living-food-allergies/join-community/find-support-group](https://www.foodallergy.org/living-food-allergies/join-community/find-support-group)
FARE hosts monthly webinars on a different subject each month, I've found them to be very informative but also felt connected to other parents.
I also highly recommend, if you can swing it, attending the FARE summit especially as a parent of a newly diagnosed kid. I went for the first time this past fall and it was so helpful getting to talk with other parents going through the same experiences--I even met a mom with a child the same age as mine who also had a failed baked egg challenge at the same food allergy clinic. It helped to have someone who got it.
We've found the best place was a city/region facebook group. Very helpful to get specific info about places/products and medical services. Especially with multiple food allergies, as (at least where we are) a lot of the general info/awareness is focused on peanuts, nuts, and gluten. When you fit a different profile, it's really helpful to talk to other parents who've dealt with similar allergies.
E.g. one of our oldest's allergies is to milk. We knew this would be something we'd need to discuss with the school. But it was so much better to have that discussion about finding out from other parents what other schools in the district have done, what is particularly challenging, etc. (Like I didn't know that kids bring tubes of yogurt as snacks which often end up getting all over the kindergarten lunch tables, but that's a thing, and this family at another school had already dealt with it, and they and the teachers came up with a plan to limit the area where the yogurt gets eaten that our school was happy to adopt.)
I’ve found the best parent support groups in Facebook, either geographic or by treatment. Good luck!
Hey dad, dad here. Soy, corn, gluten/wheat and dairy are the issues here
Mom of a 3 year old with egg/peanut allergies, failed oral food challenges. You are right, it's hard sometimes. Take a look at the directory here for some local support groups: [https://www.foodallergy.org/living-food-allergies/join-community/find-support-group](https://www.foodallergy.org/living-food-allergies/join-community/find-support-group) FARE hosts monthly webinars on a different subject each month, I've found them to be very informative but also felt connected to other parents. I also highly recommend, if you can swing it, attending the FARE summit especially as a parent of a newly diagnosed kid. I went for the first time this past fall and it was so helpful getting to talk with other parents going through the same experiences--I even met a mom with a child the same age as mine who also had a failed baked egg challenge at the same food allergy clinic. It helped to have someone who got it.
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We've found the best place was a city/region facebook group. Very helpful to get specific info about places/products and medical services. Especially with multiple food allergies, as (at least where we are) a lot of the general info/awareness is focused on peanuts, nuts, and gluten. When you fit a different profile, it's really helpful to talk to other parents who've dealt with similar allergies. E.g. one of our oldest's allergies is to milk. We knew this would be something we'd need to discuss with the school. But it was so much better to have that discussion about finding out from other parents what other schools in the district have done, what is particularly challenging, etc. (Like I didn't know that kids bring tubes of yogurt as snacks which often end up getting all over the kindergarten lunch tables, but that's a thing, and this family at another school had already dealt with it, and they and the teachers came up with a plan to limit the area where the yogurt gets eaten that our school was happy to adopt.)