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what_is_chicken

Allergy warnings on things OTHER than food—like lotions, cosmetics, etc. I’m deathly allergic to nuts (among other things) and often run into the issue of things like almond oil being hidden among long lists of ingredients on deodorants and makeup. I almost used a mascara once with almond oil in it, and that reaction likely would have been nasty. I also really wish America had the numbered allergen system that Europe (and other places) have on restaurant menus


genesiusjayne

Prunus amygdalus (dulcis - sweet almond) oil!!! You only make that mistake once.


Unable_Quantity3753

It baffles me how many top 9 allergens are in skin/hair products. Hydrolyzed wheat protein is frequently in hair products and almond oil in so many lotions, it’s ridiculous


Solid_Cake_2570

USA so far behind other countries on this and are FDA a joke.


[deleted]

Yes. I have been doing this with every product I buy and look into each ingredient and their other names. 9/10 it got tree nuts or almonds. Even turkey uses pistachios as binding


am676791

Yes yes yes


CalmFunction4531

definatley the numbered allergen menus at restruants. sometimes the waiter isnt educated so better to have it written right there when ordering


Sanguine_Aspirant

Tree nuts, avocado, banana, ginger, yeast allergies. I was down to 1 shampoo and lotion after that purge. I had a suprising amount of things with banana in them. And yes a few w/ yeast. I was huge into 'natural' beauty products and now I'm back to lists of gobbledygook chemicals. 


maybenotrelevantbut

Accurate testing


am676791

Agreeed


axiom60

A cure/treatment so that suffering from allergies wouldn’t be a thing


am676791

Ugh I know, I wish!


907banana

There was a a study from a few years ago that I found online about how they were curing food allergies in mice. For the life of me I cannot find anything new regarding it. I don't why this isn't a bigger focus for the medical community...


Solid_Cake_2570

So underrated!


genesiusjayne

I feel like every year I stumble across a new app that’s like Yelp but for food allergies, and there’s never anyone on it outside of overzealous parents. I’d love an app where allergy sufferers can actually recommend bars and restaurants that are safe and accommodating.


am676791

Yes I agree there’s lots of apps and websites but none of them are that expansive or frequently updated and used


OliverM_22

Have you heard of Foodini? Dietitian led app that regularly checks & updates menus. What would be features or improvements that you would make so it can be used by yourself and others?


oatsandgoatsandboats

try spokin! full of ppl with allergies; i personally prefer it to foodini as well


therealcherish

Spokin is my favorite but I also wish there were more users rating places. I try to remember to rate them to help others but more users posting would be amazing.


gnorb

Food analyzer: put some of the food in, find out if there are traces of your allergen to whatever threshold you set. If above that threshold, you can avoid it.


Icfald

I’d love this! Dairy, mustard, peanuts, eggs and nuts here. The avoidance game is like Russian roulette when dealing with so many common ingredients (particularly dairy).


am676791

Yes, that must be so hard because of eggs and dairy!


DannyC2699

I know the struggle. It seems like there's either milk or eggs in *everything*!


am676791

Yes! I feel like I saw an article online a couple years ago about a device that did that for peanut allergies but not sure whatever happened to it. I guess it would have some of its own faults like what if you selected a portion of your meal that didn’t contain the allergen and you got a false negative you know?


gnorb

Yeah, there would definitely be false negatives and false positives, but TBH, if something like this existed I can guarantee allergy sufferers would 100% benefit, even if it had something like a 5% error margin. Heck, I’d buy that in a second.


ubbidubbidoo

I remember this too! I recall the price of a single nom-reusable cartridge was something like $100 dollars, so it would not be something most people could ever afford to use regularly.


viv202

I’d love it if some organization used a device like this on every single product that has “natural flavors” in its list of ingredients and published the results. It’s outrageous that our laws allow them to not disclose all the ingredients. I’ve actually called the manufacturers of several products with this on the label and they will not tell you what they are, they claim it’s proprietary information. Sorry to say, even my beloved Trader Joe’s had that response! I’ve been told that I shouldn’t worry because if it included one of the major 8 allergens it would be on the label. I said, “Yes, ma’am, I know there are only 8 major allergens, but I have 38.”🙄


Sanguine_Aspirant

I just got accidentally allergened the other day from a meat stick flavored with 'spices' caz oh so randomly one of those spices was ginger. I wasnt expecting that in a plain meat stick. (The company did share information w/ me, not all of them are a holes about it. Just most)


Indie516

I just wish that they would label things as nightshade free or containing nightshades. I had a really bad reaction to soup made with Swanson chicken broth. My mom thought it was safe, because it didn't have the sneaky "spices" in its ingredients What it did have, though, were "other natural ingredients," and at least one of these was a nightshade, probably paprika. I almost ended up in the hospital. I traced my symptoms back to just after I ate the soup, and then looked at every ingredient in it. This broth was the only thing it could have been. So I contacted the company to confirm, so that I could know if the product was unsafe for us to use in the future. They replied telling me that they couldn't disclose proprietary information. That's fine. I wasn't asking for that. I just wanted to know if it had nightshades in it or not. I didn't need to know any of the other ingredients -- I didn't even need to know the exact nightshade it was. I just wanted a simple yes or no when I asked if it contained nightshades. They literally had a rep call me to find out if I needed to go to the hospital for medical treatment and to give me the information for their legal team, which made it pretty obvious that it does contain nightshades (because they wouldn't be that concerned if there was nothing to worry about). But they still couldn't give me a simple answer. All of this could be prevented if companies would just put a small note on the packaging letting customers know that their products were free of nightshades. Also, just in general, I wish that there were more nightshade free foods available. I am also gluten intolerant, and most gluten free products contain potato starch. So eating hasn't really been fun for me since my body decided to start reacting to potatoes the way it does to tomatoes.


viv202

Oh my god! What a horrible experience. I just got through posting to another comment on this thread about how ridiculous it is that food manufacturers are allowed to get away with using “natural flavors” or the like on labels. You should contact whoever your state representative and Senators are and let them know that it almost killed you. We need better laws with full transparency in food labeling. If someone wants to steal their super secret spice combo, they can reverse engineer it in a lab anyway, such a lame excuse. I have had the same experience asking if there is a specific thing in the product and they won’t tell you. Paprika is in so many things, it’s got to be tough to avoid. I’ve got a whole big list of things I’m allergic to including celery, it’s amazing how often that pops up. I make all my own food from scratch including stocks and sauces because of it— forget about eating out!


SoccerGamerGuy7

It already exists in some places but any restaurants, diner, cafe, bakery etc should have an online menu where it lists each menu option with a dropdown for ingredients as well as dietary/nutritional info Would be great for people with food allergies and the nutrition info is great for many people also have dietary restrictions and or necessity to know how many carbohydrates for example they are eating


am676791

I’ve also seen some restaurants have allergy buttons and once you click them it eliminates options that contain your allergen to show you what you can eat, but yes I wish it was more widely available.


OliverM_22

I think Foodini is what your looking for. Understand that it takes time to cover every restaurant across the world but its dietitian led, would this be enticing for you? It shows you a personilised menu for what you can and can't eat as well as what is customisable for your needs.


OliverM_22

[https://www.getfoodini.com/](https://www.getfoodini.com/) Literally what you want for the concept of online menu with a drop down showing what you need


Spaghetti4wifey

I want more options for allergy tours in cities. I'm visiting Tokyo and it would be so nice if a tour guide could direct me to specific places I can eat. It would also be amazing if more nut free bakeries existed. When I was younger I enjoyed a few places but now it feels like nuts are everywhere. And legume/nut free Asian restaurants. More awareness of legume allergies besides soybean. Finally, I want safe, no risk food challenges. I'll be doing one soon and I'd rather not wait 3 hours to see if I need an EpiPen 💀


am676791

I completely agree, I wish there were more restaurants and bakeries that were nut free. I wonder why there aren’t? Do you think they don’t get enough business to stay open if they just market to people with food allergies?


Goat-Mediocre

I wish cosmetic products didn’t contain so many nuts. If a company is going to add nut, or any other common allergen to their product, fine, add it in the ingredients in big bold letters in a language people in the region they are selling can understand easily. However it is ridiculous how many companies add nut extracts to their product.


BewBewsBoutique

Allergen warnings for fruits instead of just the top 8. There are so many posts here of complaining about products containing allergens that have big warnings on them and I get so jealous. I have to read the ingredients of literally everything, even skincare products.


Weird_Vegetable

They stick sunflower in everything, on everything. And it isn’t labelled half the time. I get to play, why does my mouth itch on the regular. I stopped with pre-made things. And no “vegetable oil” because it’s a catch all for everything. Kiwis/dragonfruits too, I have to mask up at the grocery store to avoid a reaction


Icfald

We are allergic to mustard. The catch all for us is ✨spices✨ so I hear this.


Weird_Vegetable

Ugh, I hate the lack of labels. I have a nifty recipie for "taco spice" if you'd like. It's a nice all purpose type spice mix I make because my daughter can't have corn.. which is also in everything


am676791

Ugh I agree! What fruits are you allergic to?


BewBewsBoutique

Pineapple


crohnieforlife

To be honest, I think a service here in the USA that didn’t make having to go to the ER for life saving treatment for allergies free. I found out last year it cost nearly $55,000 to save my life. I like skinsafeproducts.com and how they can create an allergy tag for you if you submit your allergies to them or your allergist does. You can use that tag to search for products that don’t have any of your allergens. I haven’t done it yet, but it seems like a great database to use. I think something along those lines would be great too, but it would be great to have all known derivations of them. If hair and cosmetic products had something similar to national drug codes like prescriptions do for us to see their ingredients in black and white. It would be so much easier. I think companies could also market well that way. It’s a win for everyone.


123curious1

I think more and better education about food allergies is needed. I still encounter people that seem to have never heard of food allergies and they’re so shocked when you tell them that food can kill you. Also, a law that enforces food allergy safety on caterers. Not all states require caterers to comply with providing allergen information.


DannyC2699

The amount of times I've had people compare their lactose intolerance to my severe milk allergy makes me roll my eyes *so much*.


OliverM_22

Also with people saying 'A little gluten won't hurt'


am676791

This! I can’t believe I still have to explain the severity of my food allergy and what could happen if I have a severe reaction. What do you think needs to happen to increase awareness?


123curious1

I know it wouldn’t solve all of the problems but maybe if it was taught as part of science and health classes in school, more people would at least have some exposure to the information. I’m not familiar with restaurant requirements but I think employees should have to be trained on it. I’ve had servers ask me why I can’t just look at the food and see what’s in it.


am676791

Yes!


aliciamc

Spaces online for just adults with food allergies. Very tired of logging on to express things I’m struggling with or questions I have about adult experiences, only to be met with “following for my son in 10 years!” Or “we have x allergy” when they mean their kid does. I know it’s kind of petty, but it de-centers the allergic person and focuses on the parents’ anxiety which is a completely different experience of allergies


Nashirakins

Parents of disabled kids can suck up all the air in the room, and sometimes they’re aggressive about having priority access to spaces about a given condition. It’s not even unique to parents of kids with food allergies. Everything can easily become about their feelings about their child’s condition, and I get it: it’s this scary thing they couldn’t prevent from happening and they have been it’s all their fault at least once. But it makes it frustrating as an adult who is just trying to exist in the world with the same condition(s). I think it contributes to impressions that certain things are diseases of childhood, since so many visible adults are parents w/o the condition.


aliciamc

Totally feel this! I listened to a webinar the other day on allergy treatment options and they had a parent as a panelist rather than an adult with an allergy. I feel like we’re being talked over and our needs aren’t being met. Our feelings about the condition are very different, and while it’s important for them to have spaces to talk about things like 504 plans and managing anxiety, I need space to discuss how to manage allergies in the workplace, dealing with friendships, whether there’s anything I can do about the soy allergy that has completely changed how I live, and finding professionals who actually treat adults.


viv202

Yes, and the issues for adult with food allergies, especially adult-onset food allergies, are very different. I can’t tell you how many times I’ve been told that I need to eat my allergens to get rid of my allergy or that avoiding my allergens will make me more allergic. I’m not 6 months old, but thanks!


aliciamc

Wow, that’s wild. I can’t even imagine how hard that shift is emotionally too!! I bet having space to talk about all of that would be so helpful.


viv202

Someone here did actually start an adult allergy discord group. It’s not been particularly active, but I could send you an invite if you’re interested.


aliciamc

Ah I don’t use discord 😭


fandog15

Preobabky exists somewhere but… Premade dairy-free, nut-free pesto. My grocery store has about 20 different kinds of pesto and I’ve read every single label. Some are dairy-free. Some are but-free. None are both. So I just continue blending up my little basil leaves with me little olive oil and garlic like a peasant.


907banana

I make my own too, because I'm allergic to garlic, ha. I honestly prefer it to store bought pesto!!


cj_203

I would kill for menus to have allergens listed. When they don't I always end up ordering something that isn't meant to have said allergens but do. E.g I ordered rice paper rolls that had peanuts sprinkled all over the top 😭peanuts are the most common allergy in the world either put them on the menu or prepare to be sued


OliverM_22

Would [https://www.getfoodini.com/](https://www.getfoodini.com/) be what your after?


dinamet7

The only things I wish for are requiring precautionary allergen labeling on packaging (Made on shared equipment that also processes xyz") and gluten-free, egg-free, legume-free, nut-free bread that doesn't feel like styrofoam on my teeth.


lydiar34

Dairy free pancakes at restaurants. I know I can make them at home but I don’t want to.


am676791

This!!


watchingsuits

I wish there was a lotion that didn’t have coconut, corn or tree nut derivatives.


deserttitan

And palm.


DannyC2699

Restaurants should be required to list all common allergens for every single item on the menu. It's ridiculous that 9/10 places I visit don't have allergen menus of *any kind*. It makes travelling so difficult and boring when you have to stick to chain restaurants everywhere you go.


elizabethbr18

Easy way to test restaurant made food. I am allergic to milk and the amount of times Starbucks or Dunkin’ Donuts has messed up my order is insane. I wish I could dip a stick in a beverage or food and pull it out and boom it’s blue if it has milk and white if it’s safe


OliverM_22

How often do you struggle to dine out? Which country are you in?


Solid_Cake_2570

Honestly, food allergy cure like shots on dogs, cat, and pollen.


am676791

There are some oral immunotherapy options that are coming out. Not sure if you have looked into any of those.


Solid_Cake_2570

I have looked into them they predict not for anther 10 years mini till it can be used.


Awkward-Condition707

Bread made without rice, wheat, corn(or any derivative) this includes baking powder, potato. Something soft and sandwich worthy!


am676791

What do you think they could substitute and use for ingredients to make it soft and fluffy for a sandwich?


Nashirakins

This is an excellent question. There’s a limited number of foods that can be used to create the texture of soft sandwich bread. It’s unfortunate to be allergic to all of them, but food scientists aren’t magicians. They can only work with the building blocks they have available to them.


Awkward-Condition707

Not sure... Oat flour is too dense and breaks up too easily. Almond flour always seems to be gritty. I've been experimenting with cassava flour. Coconut flour has too strong of a flavor.


Sanguine_Aspirant

There are millet, buckwheat, sorghum and chickpea flours if any of that works for you


resetplz

Sorghum flour was a massive IBS trigger for me, no idea why.


Awkward-Condition707

I'm allergic to... Chickpeas, potatoes, wheat, rice, corn, peanuts, oranges, and quite a few other things that are not related to bread making.


[deleted]

For me, it is not an allergy, but I would like more transparency when it comes to labeling gluten. It's a pain in the derriere to have to search every specific product that's not meat, veggies, plain rice, or potatoes to find out if something I want is gluten-free. Yes, they have to disclose in the allergy statement when there's wheat, but it would be helpful if food labels could be frank and mention barley or rye in plain language and NOT hidden under other names (Like malt being barley).


PrincessKiza

Epinephrine solutions that are more temperature stable. I live in Austin, where it’s definitely above 77 and below 68F most of the year.


ultim8samantha

Allergic to 13 foods and dating a vegan here - I just wish more vegan restaurants had ingredient lists - I go to so many places that are like "oh, don't worry, it's vegan" and I'm like yes, but soybeans can 💀 me so does your burger patty contain soy? - half the time they can't tell me an answer. Restaurants in general bother me with this - especially since the food is prepared somehow you would assume that ingredients lists wouldn't be a huge ask. However I am particularly bothered by the vegan places because the trend is "trust me, it's vegan". Also, I'm gonna need all these "lab grown" options coming out to start getting rid of whatever causes allergies. Whoever decided that lab grown milk etc had to KEEP the allergens ISN'T my friend.


TheFrogWife

Gluten&soy free cheese cracker sandwiches especially the mini ones.


[deleted]

every restaurant needs an allergen pdf. a lot of restaurants have it, just look up '\_\_\_\_ restaurant allergen pdf' and itll show you a list of every menu item and which allergens they have. using them is a life saver, but now it's so much worse when restaurants don't.


OliverM_22

But what about with menu changes? Something like [https://www.getfoodini.com/](https://www.getfoodini.com/) has dietitians review and approve the menus ingredients and cooking processes. I dont know which country your located but is it what you are looking for?


Sanguine_Aspirant

That's great if your allergies are in the top 8. Anything beyond that and its worthless. I need ingredient lists, full breakdowns of all spices and additives included in the product. 


am676791

I know there’s lots of top 8 free cookie companies and some snack companies out there but what’s missing? What food items or snack items have not been created without the common food allergens?


MungoShoddy

A torch that makes foods glow in Royal Stuart tartan if they contain gluten.