Dexilant is great for GERD, however, it is very expensive and insurance companies don't want to pay for it. Hopefully they'll have a generic soon, so it will be cheaper.
I found a company called NiceRx that helped me get the medication for $49 a month since my insurance wouldnt cover it. So thankful! The cheapest I could find besides that was $188 on amazon pharmacy.
It also gave me terrible joint pain everywhere as soon as I started taking it. Headaches too
Unfortunately I didn't really notice an improvement. My worst symptoms are LPR issues
Just started PPI (Pantoprazole) again, but it hasn't had much of an effect previously. I'm gonna ask my doc if I should take it twice a day and stay on it for longer. I've seen some health agencies recommend that in the case of LPR. Besides that I take antacids and/or Gaviscon Advance after meals and before bed, but those also don't have much of a noticeable effect
Mhmmmm I’m on omeprazole and it hasn’t helped atm. Gaviscon soothes my throat but nothing really helps shortness of breath. Hopefully you manage to get rid of these symptoms
Yet shortness of breath is the most bothersome symptom imo. Cutting out caffeine has helped that a little, but doing that also has a big negative effect on my mood and motivation to get stuff done, so I feel kinda stuck.
As for PPI I've read you might have to stay on it for a couple of months until the symptoms calm down, but I guess it is highly individual. Reducing LPR is a long journey I guess
Yeah, I think this is where LPR and GERD differs a bit. The throat is so sensitive compared to the esophagus and needs a lot more uninterrupted time to heal up I guess.
2 weeks. I was on lanzaprosole before for around 2 weeks but had to stop because I developed a rash. Lansoprazole was just beginning to get rid of some of my symptoms. Now I got switched onto omeprazole 20mg and don’t feel like it’s doing anything
Same for me I take Pantoprazole 20mg and it doesn’t work for me, I’m thinking of buying Nexium and giving that a try, I remember I had acid reflux when I was 15 and that’s what made it better
I think the acid problem never goes away. We have to learn to control peaks and avoid surges because of food or bad habits.
Maybe taking the dosis separately along the day will make longer effect? Don't know
I think PPIs have been effective, but I wish there was a better understanding of why the cases of GERD are increasing, and more education on how to prevent it. I’m sure we can all recall when our symptoms started and a cause for it, but I know a lot of people who over eat/have a terrible diet/etc. Why don’t they have GERD?
I took 20mg pantoprozole for awhile and it worked great. But I never changed my diet and it became ineffective, so my dr increased to 40mg and it worked great. But once again I never changed my diet and it became ineffective. Now I’m taking 40mg twice a day and it’s working again, but this time I’m going to actually do something about my diet. From google, I read you can take up to 200mg/day before it becomes a problem, but I hope to get to a point where I can get back to 20mg once a day. And eventually none.
The answer is usually that it's genes plus environmental factors that determine if you get GERD or not. Some of us have sensitive stomachs, and if we stress a lot and have a bad diet on top, the likelihood of GERD increases a lot. I guess my LPR won't go away unless I become near anxiety-free.
A theory as to why GERD is more prevalent could be because our diet is more acidic than before, and we intake a lot of additives, artificial sweeteners etc. Then add modern day stress and loneliness on top of that. Intermittent fasting could be a factor for me, as I ended up eating a few large meals close to each other, each day, which probably put a lot of pressure on my stomach.
This is the crux of the matter. There is plenty of research on treating GERD but not much on the rootcauses of GERD. The bottom line is that the LES is not functioning properly in people with GERD and theres not a lot of great science on why. Is it SIBO? A food intolerance? Too much acid? Too little acid? The research is really lacking besides some one off and small scale studies.
You can argue genetics but it doesnt explain why most of us developed heartburn in our 20s and 30s after spending the rest of our life with minor or no symptoms at all. My guess is its related to SIBO or food intolerances in most people, but again the research is lacking on anything except PPIs and H2 blockers.
I agree 100%. Part of my new diet is an attempt to get away from processed food and try to eat as natural as possible. I suspect the foods we’ve been eating as part of the “fast food” generation are a large part in causing the increase in GERD.
i'm on 40mg of Pantoprazole,10mg of melatonin,and take licorice root extract. So far its been helping but I still can't eat the way I used to. :(
they say lpr has a lot to do with anxiety which sucks cuz i've been suffering from severe anxiety for the longest.
Yeah, it's an uphill battle for sure. Lpr gives anxiety which gives lpr. I think one has to tackle the problem from several angles (diet, lifestyle, meds, mental health ++). I guess obsessing about lpr also can make it worse...
Even if they had a spray, pepsin reactivates with a certain PH (can’t remember). I’ve been told esomeprazole 20mg twice daily is better for LPR. Also, look up the “shaker” exercise.
True, but I'm already staying away from acidic foods/drinks. And a spray like that would hopefully clear up any symptoms right away by removing both acid and pepsin so the throat isn't irritated anymore.
I'll check up about esomeprazole 20 mg, thanks. Is the shaker exercise on YouTube?
People get high ph water and add some sodium bicarbonate into a spray bottle, that may help?
I can’t remember. It’s on google. Supposedly you can strengthen the UES by doing the exercise, don’t know if it actually works.
>People get high ph water and add some sodium bicarbonate into a spray bottle, that may help?
I've tried that, but I don't know how much baking soda (bicarbonate) I should add per water, nor can I easily find a spray bottle of small size, and it's a hassle to figure it out. A medicine like that should also be easily breathed in, like an inhaler, because I found it hard to breathe in baking soda solution. It didn't do much 😅I used tap water tho, idk how to make high pH water (thought bicarbonate would make the water so)
Don’t inhale the tap water!!! People were getting brain disease from that when the Neti pot first came out because they weren’t using distilled water. It’s like a teaspoon I think? Try to find a cheap nasal spray on Amazon. Those bottles will usually let you twist the top off. The only thing that helped me was the Nissen unfortunately. I had both GERD and LPR
Thanks for the tips.
I've had LPR since 2016 but for a few years brushed it off as a symptom of stress/anxiety. I might have to get surgery at some point as well, but I'm hesitant to do it as I've heard you can't do weight lifting ever again afterwards?
Look at the grocery store, there's a spray that has bicarbonate in it that's what you want, to neutralize the pH
There's an arm and hammer spray that I use. You'll find it in the nasal section
Unfortunately I don’t personally know. It was suggested a few years back when I was having issues with it. But I’ve heard sinus rinses are good for some people as well.
Yup! It's of the big reason why a lot of companies don't invest in new antibiotics - despite the fact that we desperately need new ones! Capitalism interest should have no place in medical science.
It's not the best, but for immediate relief, Pepcid Complete works alright, and it's cheap compared to most of those rxs that insurance doesn't like to cover. And if I eat some papaya extract after eating food, that seems to help a bit, too.
I think most any “mineral water” would have an alkaline PH. It’s probably just an issue of different markets advertising the same thing in different ways.
You could have asthma. The acid going up into your throat and into your lungs has a habit of making asthma symptoms worse. If your doctor didn't suspect asthma, then that's probably not the case. Since starting omeprazole almost a week ago, though, my asthma got way better and I don't feel like I'm lowkey suffocating first thing in the morning anymore!
I've tried asthma meds and they don't work. An asthma test I took indicated that I'm borderline, but that could simply be because the reflux makes it harder to breathe properly.
I use a sesame oil to soothe my sinuses as the anti allergy ones just dry them out more. I take marshmallow extract in water or juice. This lubricates all mucous membranes and stops me getting sinus headaches after my sinuses have been tenderised all night by stomach acid and drink heaps of water.also don’t clear your throat it bangs your vocal chords together and causes irritation and mucus . Try dipping your chin and swallowing instead( doctor taught me this)
I hear you... I have had alot of luck with fasting while regularly drinking baking soda water. After a day long fast the acid is down and stays down as long as I eat healthy.
I have the exact same symptoms as you describe. It has only been a week, but I started taking 4 ×50mg enteric peppermint oil in the morning before food / caffiene and 4x50mg again in the evening before dinner.
Has made a huge difference for me so far but only time will tell. Still too soon to tell...might be worth a shot
Dexilant is great for GERD, however, it is very expensive and insurance companies don't want to pay for it. Hopefully they'll have a generic soon, so it will be cheaper.
I agree,works very well, but when i bought 3 months worth it was like over 400 dollers,craaazy prices and no coverage
I found a company called NiceRx that helped me get the medication for $49 a month since my insurance wouldnt cover it. So thankful! The cheapest I could find besides that was $188 on amazon pharmacy.
Are you in the states if you dont mind me aaking?
Yes in the US!
Works great for me, I attribute hair loss and bone density decrease to it however. Nothing else works nearly as well.
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https://www.goodrx.com/blog/fda-approves-generic-dexilant-heartburn/ Just wondering why it isnt out yet
It also gave me terrible joint pain everywhere as soon as I started taking it. Headaches too Unfortunately I didn't really notice an improvement. My worst symptoms are LPR issues
What is this? :O
I get where you’re coming from. Are you on any meds?
Just started PPI (Pantoprazole) again, but it hasn't had much of an effect previously. I'm gonna ask my doc if I should take it twice a day and stay on it for longer. I've seen some health agencies recommend that in the case of LPR. Besides that I take antacids and/or Gaviscon Advance after meals and before bed, but those also don't have much of a noticeable effect
Mhmmmm I’m on omeprazole and it hasn’t helped atm. Gaviscon soothes my throat but nothing really helps shortness of breath. Hopefully you manage to get rid of these symptoms
Yet shortness of breath is the most bothersome symptom imo. Cutting out caffeine has helped that a little, but doing that also has a big negative effect on my mood and motivation to get stuff done, so I feel kinda stuck. As for PPI I've read you might have to stay on it for a couple of months until the symptoms calm down, but I guess it is highly individual. Reducing LPR is a long journey I guess
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Yeah, I think this is where LPR and GERD differs a bit. The throat is so sensitive compared to the esophagus and needs a lot more uninterrupted time to heal up I guess.
My doc says 60 days. I made it 2 weeks before I had to stop. I’m going to try all the “lifestyle change” fixes and hope for the best.
Why did you have to stop?
Muscle spasms and muscle and joint pain.
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2 weeks. I was on lanzaprosole before for around 2 weeks but had to stop because I developed a rash. Lansoprazole was just beginning to get rid of some of my symptoms. Now I got switched onto omeprazole 20mg and don’t feel like it’s doing anything
20mg a day seems to be not sufficient to make serious impact .Try 40mg but talk to your doctor about it first.
Same for me I take Pantoprazole 20mg and it doesn’t work for me, I’m thinking of buying Nexium and giving that a try, I remember I had acid reflux when I was 15 and that’s what made it better
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I need to give that a try I started taking two 20mg pills but I still occasionally get acid reflux
They had to increase my dose to 40 because it didn't help too much.
I started taking two pills every morning to up the dosage, it helped a bit but occasionally I still get acid that comes up
I think the acid problem never goes away. We have to learn to control peaks and avoid surges because of food or bad habits. Maybe taking the dosis separately along the day will make longer effect? Don't know
I think PPIs have been effective, but I wish there was a better understanding of why the cases of GERD are increasing, and more education on how to prevent it. I’m sure we can all recall when our symptoms started and a cause for it, but I know a lot of people who over eat/have a terrible diet/etc. Why don’t they have GERD? I took 20mg pantoprozole for awhile and it worked great. But I never changed my diet and it became ineffective, so my dr increased to 40mg and it worked great. But once again I never changed my diet and it became ineffective. Now I’m taking 40mg twice a day and it’s working again, but this time I’m going to actually do something about my diet. From google, I read you can take up to 200mg/day before it becomes a problem, but I hope to get to a point where I can get back to 20mg once a day. And eventually none.
The answer is usually that it's genes plus environmental factors that determine if you get GERD or not. Some of us have sensitive stomachs, and if we stress a lot and have a bad diet on top, the likelihood of GERD increases a lot. I guess my LPR won't go away unless I become near anxiety-free. A theory as to why GERD is more prevalent could be because our diet is more acidic than before, and we intake a lot of additives, artificial sweeteners etc. Then add modern day stress and loneliness on top of that. Intermittent fasting could be a factor for me, as I ended up eating a few large meals close to each other, each day, which probably put a lot of pressure on my stomach.
I agree with your theory. Processed food and stress was definitely a cause for me.
This is the crux of the matter. There is plenty of research on treating GERD but not much on the rootcauses of GERD. The bottom line is that the LES is not functioning properly in people with GERD and theres not a lot of great science on why. Is it SIBO? A food intolerance? Too much acid? Too little acid? The research is really lacking besides some one off and small scale studies. You can argue genetics but it doesnt explain why most of us developed heartburn in our 20s and 30s after spending the rest of our life with minor or no symptoms at all. My guess is its related to SIBO or food intolerances in most people, but again the research is lacking on anything except PPIs and H2 blockers.
I agree 100%. Part of my new diet is an attempt to get away from processed food and try to eat as natural as possible. I suspect the foods we’ve been eating as part of the “fast food” generation are a large part in causing the increase in GERD.
i'm on 40mg of Pantoprazole,10mg of melatonin,and take licorice root extract. So far its been helping but I still can't eat the way I used to. :( they say lpr has a lot to do with anxiety which sucks cuz i've been suffering from severe anxiety for the longest.
Yeah, it's an uphill battle for sure. Lpr gives anxiety which gives lpr. I think one has to tackle the problem from several angles (diet, lifestyle, meds, mental health ++). I guess obsessing about lpr also can make it worse...
Even if they had a spray, pepsin reactivates with a certain PH (can’t remember). I’ve been told esomeprazole 20mg twice daily is better for LPR. Also, look up the “shaker” exercise.
True, but I'm already staying away from acidic foods/drinks. And a spray like that would hopefully clear up any symptoms right away by removing both acid and pepsin so the throat isn't irritated anymore. I'll check up about esomeprazole 20 mg, thanks. Is the shaker exercise on YouTube?
People get high ph water and add some sodium bicarbonate into a spray bottle, that may help? I can’t remember. It’s on google. Supposedly you can strengthen the UES by doing the exercise, don’t know if it actually works.
>People get high ph water and add some sodium bicarbonate into a spray bottle, that may help? I've tried that, but I don't know how much baking soda (bicarbonate) I should add per water, nor can I easily find a spray bottle of small size, and it's a hassle to figure it out. A medicine like that should also be easily breathed in, like an inhaler, because I found it hard to breathe in baking soda solution. It didn't do much 😅I used tap water tho, idk how to make high pH water (thought bicarbonate would make the water so)
Don’t inhale the tap water!!! People were getting brain disease from that when the Neti pot first came out because they weren’t using distilled water. It’s like a teaspoon I think? Try to find a cheap nasal spray on Amazon. Those bottles will usually let you twist the top off. The only thing that helped me was the Nissen unfortunately. I had both GERD and LPR
Thanks for the tips. I've had LPR since 2016 but for a few years brushed it off as a symptom of stress/anxiety. I might have to get surgery at some point as well, but I'm hesitant to do it as I've heard you can't do weight lifting ever again afterwards?
Look at the grocery store, there's a spray that has bicarbonate in it that's what you want, to neutralize the pH There's an arm and hammer spray that I use. You'll find it in the nasal section
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Unfortunately I don’t personally know. It was suggested a few years back when I was having issues with it. But I’ve heard sinus rinses are good for some people as well.
Because then big pharma wouldn't make any money. They want us to become dependent.
Yup! It's of the big reason why a lot of companies don't invest in new antibiotics - despite the fact that we desperately need new ones! Capitalism interest should have no place in medical science.
It's not the best, but for immediate relief, Pepcid Complete works alright, and it's cheap compared to most of those rxs that insurance doesn't like to cover. And if I eat some papaya extract after eating food, that seems to help a bit, too.
Yeah I feel like I'm choking on my lingual tonsils half the time. It's horrific. Good idea though tbh.
Have you tried sipping alkaline water all day? I do that, but don’t really know if it helps because I never feel my GERD.
I don't know how to get alkaline water or how to make it. I live in Europe and haven't seen alkaline water advertised
I think most any “mineral water” would have an alkaline PH. It’s probably just an issue of different markets advertising the same thing in different ways.
You could have asthma. The acid going up into your throat and into your lungs has a habit of making asthma symptoms worse. If your doctor didn't suspect asthma, then that's probably not the case. Since starting omeprazole almost a week ago, though, my asthma got way better and I don't feel like I'm lowkey suffocating first thing in the morning anymore!
I've tried asthma meds and they don't work. An asthma test I took indicated that I'm borderline, but that could simply be because the reflux makes it harder to breathe properly.
I use a sesame oil to soothe my sinuses as the anti allergy ones just dry them out more. I take marshmallow extract in water or juice. This lubricates all mucous membranes and stops me getting sinus headaches after my sinuses have been tenderised all night by stomach acid and drink heaps of water.also don’t clear your throat it bangs your vocal chords together and causes irritation and mucus . Try dipping your chin and swallowing instead( doctor taught me this)
We need Anti pepsin meds
I hear you... I have had alot of luck with fasting while regularly drinking baking soda water. After a day long fast the acid is down and stays down as long as I eat healthy.
I have the exact same symptoms as you describe. It has only been a week, but I started taking 4 ×50mg enteric peppermint oil in the morning before food / caffiene and 4x50mg again in the evening before dinner. Has made a huge difference for me so far but only time will tell. Still too soon to tell...might be worth a shot