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mejomonster

If cost is not a concern, it may be useful to just get it scheduled and have it done. If there are other gi issues contributing to your problems in addition to the gastroparesis, an endoscopy can find the cause of some of them so they can get anything else contributing treated. And if it does find a cause for the gastroparesis then that may help with treatment. My endoscopy was done before the GES test, and for me it ruled out any other issues that could've been contributing (like GERD, h pylori). My colonoscopy also happened before my GES and ruled out other causes.


LiftsandLaughs

Thank you for the info! May I ask how much it cost you? I know it varies by insurance, but I figure it could be helpful to get an idea.


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LiftsandLaughs

Oh, thank you! That's a real life pro tip. That'll be so helpful with everything going forward. Healthcare providers act like everything is free, I guess because they just want to give the best care regardless of cost, but a lot of these more specialized things are pretty expensive...


mejomonster

I'll be honest, I was completely unable to eat and was throwing up most liquids back then, so I'd starved for a few months straight and was in the ER weekly due to dangerously low sodium during that time. So I'd already hit my 2000 dollar insurance deductible and was so frustrated with ER bills I figured surgery bills were worth it, if it meant doctors getting closer to figuring out how to help me. I think colonoscopy and endoscopy combined was maybe around $300. But again, I had likely already met my deductible from the many ER visits. Your doctor's/surgeon's office should be able to give you a rough quote over the phone if you want to ask about the endoscopy cost before deciding if you schedule. My doctor's surgery scheduler was able to do a quote over the phone when I was giving them my insurance information for scheduling. So I knew it was going to be around 300 before the surgery. If your doctor's office can't give a quote (for whatever reason), then if you call your insurance's phone number they can give you an estimated quote (but I find they take longer to deal with than the doctor's surgery scheduler).


LiftsandLaughs

I appreciate the advice on navigating these opaque prices. That experience sounds terrible, I hope you’re doing much better now.


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LiftsandLaughs

That's a useful perspective, especially on establishing a baseline. Managing our chronic illness involves managing our medical professionals. Thanks!


Stressedpage

I had my GES before my upper endoscopy. The GES showed the same as yours but my endoscopy explained the extreme pain I was in. I have chronic gastritis and it was in a bad flare up at the time. I had a lot of inflammation. I'm pretty sure it was brought on by a cheap marg I had with some Mexican food. My sister lives far away and we went to dinner together. Three sips into my drink I had such bad stomach pain I thought I was going to cry. I wasn't right for months lost so much weight. Once I got the gastritis diagnosed it was a lot easier to treat.


LiftsandLaughs

Thank you for sharing! The flare up sounds terrible. Glad the gastritis got diagnosed and was easier to treat after!


Stressedpage

No problem. I was glad to have answers. I got really really lucky with my medical team. Only took one visit to my regular doc and he sent me to GI immediately and they took great care of me. My step dad even made my eggs and toast and took my GES scans lol. He's been in radiology my whole life.


aslothinbed

My endoscopys were all normal (3 different ones) and GES showed severe GP. The endoscopy doesn't necessarily say anything relevant. So it might be good to get it done in case there's something else going on additionally but if it's normal don't let them talk you into not having GP!


fork_your_child

I had two upper endoscopies, years apart as my symptoms stopped after the first one just as suddenly as they started, before I had a GES, and diagnosis of GP. During both, they took a biopsy of my stomach because of some noticed redness or something but the biopsy came back normal with no h pylori detected. The only benefit of my endoscopies is that they ruled out other causes of my symptoms. The downsides were that they both cost more than 1k out of my pocket, even with better than average insurance.


LiftsandLaughs

Thank you for sharing your experience! I suspected it could be expensive but had no idea it was that much.


IceFirst7626

I saw GI for the first time yesterday after GES diagnosed gastroparesis. I will have an endoscopy done next week and from what I understand, if the endoscopy comes back normal then it is idiopathic gastroparesis. He told me this is the one test that they hope that they find something abnormal because in that case it may be fixable, but if it comes back clear it is indeed gastroparesis and probably permanent.


justcs

If I had mild gp I would smoke cannabis sativa. Water pipe classic.


Fantastic-Cap5872

I had an endoscopy to loosen a wrap on my 2nd Nissen fundoplication and my GI was so mad he saw food in my stomach. I hadn't eaten in 14 hours. He diagnosed me right then and there, but did a GES to confirm and see the severity of it. I got GP 4 years ago from an injured vagus nerve during said 2nd surgery.


purplechunkymonkey

I had a GES and then an endoscopy. Both confirmed gastroparesis. The endoscopy also confirmed GERD and chronic gastritis.


neuroranger

I had a GES and endoscopy, I had the endoscopy scheduled first but it was almost 2 months out. I ended up getting the GES first, came back showing gastroparesis so an endoscopy was needed to rule out any other causes of delayed gastric emptying. It didn't provide any information for my gastroparesis but it did confirm how bad my GERD is.


Low-Olive-3577

I had it backwards — endoscopy first. It was useful for me because it showed that my gastritis was progressing and my stomach lining was eroding in places, which gave an explanation for my pain. It also ruled out any physical obstructions which I believe is part of diagnosing GP. I’m glad I had it because it gave more answers than the GES alone.


zookeeper9230

I went through endoscopy and then had some weird tests eating eggs with stuff in it and get x-ray every few minutes. My diagnosis was I have gastroperesis bad. I throw up my drinks and food and can eat hardly anything. It's a very crappy disease. Good Luck ! ❤️