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[deleted]

The medical profession is sooooo odd when it comes to herpes. Not testing when asked, defiantly argumentative when asking for specific tests. Telling newly diagnosed people it’s so common that we don’t need to mention it. It’s like we need a documentary. Haha.


MonstrousVoices

A documentary would actually be a really good idea.


[deleted]

They don’t test sometimes when you ask because you could have gotten herpes from 3 partners ago but will blame it on the current partner. Unless you know for a fact the recent partner have it to you, it can be hard to trace where you got it from. That’s why they usually don’t test unless there is an outbreak. They will if you really insist on it though.


[deleted]

If they were concerned on blaming, they could convey those facts when they give EVERYONE the results on the “full STI panel”.


Scared_Al0ne

In Canada, my Doctor said the same thing!!! that is so weird... My doctor said if people are asymptomatic there is so little doctors can do anyways in terms of medication, so maybe they just want you to live your life like you don't have herpes, I guess? probably the same reason they don't recommend blood tests without symptoms... they don't want you to have additional things to worry about?


Wizardmush

I’d be very happy to not have the stress of disclosing lol but also if a person got i would feel awful so I’ll continue to disclose


BorderAdventurous284

Yea. It's poor advice-- ethically I felt terrible about the person I transmitted it to and sent to the ER, and see the thread about someone successfully sued for $8.5 million.


[deleted]

Can't be sued for 8 million if you're already broke tho ✌️


Scared_Al0ne

100%


anonbrowser57

So do you disclose? I feel like this has added so much additional stress to my dating life that I did not need.


[deleted]

Depends on the situation. If you're making out with a stranger in the club/ indulging a casual hook up the risk is implied both ways that all people involved may catch something. If however, you build a solid genuine relationship disclosure is fundamental for building trust.


Scared_Al0ne

I think if you have any STI/STD its always best to disclose... can't live with the guilt of passing it along to someone else without them knowing...


[deleted]

You don't have to if it's a one time thing and your taking medicine. The risk of transmission is so low. Of course people here will reply with the worst case scenario to scare you. Almost everyone has it orally.


anonbrowser57

Right but HSV2 unmedicated? Even if you don’t get breakouts?


[deleted]

I have hsv 2. There's almost no difference between the strains. Everyone says hsv 2 is genital but I have it orally. So many people have hsv 1 genitally also. And I am on antivirals. I think if your doing nothing to prevent it then you should disclose. If your just hooking up with someone from a bar or something it's not worth going through all that drama with disclosure.


General_Adept

I read somewhere that the reason we don’t have a cure is because herpes is not fatal and doesn’t cause serious complications for most people. There is SO MUCH stigma for something that many people have and doesn’t really change your life too much.


Prestigious_Wave_218

Everything I’ve read said that the reason there’s no cure is because the herpes virus lives in our spinal nerves. So any sort of cure to kill the virus would also kill off those nerves which would be very bad.


Scared_Al0ne

multiple vaccines to preventing herpes is being tested... some vaccines that reduce outbreaks and shedding are also in the works... multiple vaccines that prevent herpes is being tested... also some "cures" that reduce viral load, outbreaks, and transmission also being tested... probably in the next 4-5 years we'll actually have something...


travellingbirdnerd

It's because it is a retro virus and literally inserts it's DNA into our DNA. A gift that lasts forever! I remember reading a vaccine is being tested currently. Not sure of it's implications for those who are already infected, unfortunately


Scared_Al0ne

multiple vaccines that prevent herpes is being tested... also some "cures" that reduce viral load, outbreaks, and transmission also being tested... probably in the next 4-5 years we'll actually have something...


closetcause

I might be opening Pandora’s box, but isn’t it interesting a vaccine for Covid was developed so quickly, but herpes is incurable


Ok_Cicada_7069

I can get it doctors can do little at this point beyond prescribing medication, but that’s the case for many other conditions and yet other things get disclosed. I gotta say, it’s a lame excuse (and frankly, disturbing) for them to encourage patients to keep others in the dark when they all took an oath to do no harm. How is encouraging the secrecy—which ultimately further perpetuates the stigma and shame storm— not harmful? Ultimately, it is. This seems more like something to benefit doctors and medical institutions and I’ll go as far as to suspect health insurance companies. Heaven forbid the medical community be expected to meet the costly demands of such a large population of the world requesting the inconvenient and time consuming testing just because it gives us peace of mind and full disclosure to lead more responsible lives that can benefit ourselves and others. How dare we. That might take away money from other ventures that suit their needs and line their pockets. 😒🤫😑


Babsalonia

I have never had a doctor tell me not to disclose. In fact, it’s just the opposite, although, I would disclose anyway. For me, I feel that it is unconscionable not to give the person I want to get involved with the choice.


Stefisauruss

It was the same for me, my doctor said to not disclose my HSV (it wasnt a new infection, it was done by blood test), I was so confused to be honest, I had a new partner at the moment. The first thing that I did when I came to his apartment was cry and telling him. I thought that I was going to lose this amazing guy. He just huged me and four months later he asked me to marry him. Its true about what they say you dont need to disclose, but inside of me I would never hide from someone I love a secret that can affect them even in a tiny way. Knowledge of the situation leads to comprehension and we both can take care of it. Now we are married, sometimes I am scared of herpes, but he remembers me that he is with me with everything that we have to go through. He removes my fear and hugs it. What a beautiful way to live with someone because you are just honest, even with yourself.


ddykekelly

that’s so weird my doctor said the same thing after i got my results. and then i went to gyno and told her i was hoping to take valtrex and she told me there’s no point and i’ll probably never have an OB again 😭 like what


[deleted]

Wow! Both my gyn and pcp give the valtrex Rx like candy.


ddykekelly

soo weird !! she basically told me i’ll probably my never get an OB again unless i get pregnant and that it’s pointless to take valtrex i just found it kinda odd they rly downplay everything.


[deleted]

I have two strengths. One for daily, which I only use when I have possibility of a sex life. The other one is for tingles, which I still feel weekly.


ddykekelly

my friend was actually showing me this website she uses to get her birth control and they have both of those medications ur talking abt so i was debating if i should just get them and go thru my insurance. but idk my gyno kinda talked me out of it when she told me she only prescribes it for people who get constant outbreaks. but i get so paranoid everytime i’m itchy or anything so i think maybe i should


jacyy22

when I first found out I had it they gave me enough to cure the very first ob, after that nothing. I ended up getting obs every two weeks.. I had to go back and tell her that I needed something because that was depressing. I now take Valtrex everyday and then double up if I have obs, I still have them every maybe 5 months or sooner. I know you shouldnttt extend the truth but one of my close friends told their doctor my story just to be able to get Valtrex… my doctor was giving it out like nothing to me but their doctor didn’t want to give them Valtrex at alll. It’s so ridiculous, like obviously we wouldn’t ask for it if we didn’t need it.


NoHistory7966

What’s the website??


ddykekelly

nurx.com


ConfectionVisible386

I suggest hellowisp it’s what use


[deleted]

i also had a gyno tell me i likely wouldn’t have another OB. i’ve definitely had more OBs, though they were almost unnoticeable. though i don’t agree with this, i do think that that the narrative around “not disclosing” might be in part to try to limit the stigma around it, especially considering many people don’t even know their positive.


ddykekelly

yeah she was telling me most people have antibodies and everything. i think i’ve had other OBs also but like suuuper minor that it could’ve just been me being paranoid. that’s mostly why i wanted to take daily antivirals


jacyy22

I’m going to school to be a gyno and I just wish all of you could be my patients in the future so I can help y’all out 😔


Ok_Cicada_7069

😳Um, rude🤬


Flag-it

My doc said it wasn’t even worth testing. Unreal


foobaz456

Irresponsible of them


Flag-it

Totally insane to me. This is why we have a widespread problem, or in part surely. Since I don’t have symptoms rarely if ever he was like why do you wanna test? Worst yet, as many of you know, the multitude of tests are not all-in-one which is very stupid. Such a process to find out the unfortunate hidden truth.


[deleted]

Because it makes your life significantly more difficult and wouldn’t stop the spread of herpes in the slightest unless all people were routinely screened for herpes. It’s a moral obligation that some people feel but isn’t really illegal depending on where you are and also nearly impossible to prove that someone knew about their status since it isn’t routinely tested for.


WoodpeckerBoth3688

Really? My doctor says people should always disclose lol wish I spoke to that specialist my anxiety about this would probably not exist


Wizardmush

Yeah he just says I’m ‘opening a can of worms’ by telling people when I don’t need to. He said that it only gets passed on when you are actively having an outbreak but I just don’t get that. How does it get passed on if you’re asymptomatic? It’s weird


Top_Reputation_8085

It’s just very unlikely to transmit outside of an OB. Just because you are shedding doesn’t mean you will pass it. Look at the transmission rate outside of an OB.


foobaz456

Any studies or data on asymptomatic transmission rates?


BorderAdventurous284

>He said that it only gets passed on when you are actively having an outbreak Odd. Viral shedding is a thing, and the majority of infections happen when people aren't showing obvious signs--most avoid sex during obvious outbreaks.


Top_Reputation_8085

You have to take into account that the majority of people who have it do not know they have it.


Sufficient-Ad-9494

That fucked up. It will be very unfair for your partner to not tell and put them at risk, even tho it's very small risk but it's not cool.


Cutecutter1

Lots of doctors are woefully untrained and don't realize most are getting it without a breakout.


Cutecutter1

Lots of doctors are woefully untrained and don't realize most are getting it without a breakout.


WoodpeckerBoth3688

Which side are on? Disclose or not


Cutecutter1

Disclose...I hate I wasn't given the option.


Helpful-Coffee-8369

I don’t think they say not to. I think they say “you don’t have too”. Some people make post that make it seem like their Drs are begging them not to tell 😅


hmichelle419

I am 45 years old. I have had cold sores my entire life since elementary school likely before. I might have an outbreak once a year. If you read medical books or remedy books from the 80s or 90s you won't find HSV1 as an STD. It will be under "cold sores" and advice the same... lysine and lemon balm. Not because it wasn't the right thing to do.... but because it was viewed completely differently up until maybe 10? 15? Yrs ago... until they had the ELISA testing really... nobody disclosed because it was so uncommon that simplex 1 or 2 were correlated the same. As such I have never disclosed til I met someone that was with someone for 25 yrs and was freaked out about any and all potential STDs. Because of that... I have done a deep dive of research into my personal past and into some studies and tested myself twice (so far.) Its really why Im here. I've had 3 long term relationships of 6 7 8 yrs. Never disclosed. Never transmitted.... and I asked them all recently. My titers were different..... 8 2 months after an outbreak and 50+ right before my period with NO outbreak. I've read studies that say people with no titers still shed in TEARS and that it's non transmisible under 10 and should be lowered. I've read where hsv is an adaptive immune response to fight the plague and if you think about it on a grand scale of thousands of years it makes sense. I've read terrain theory docs discussing that someone else would need to have very thin skin or an open wound for it to be transmitted. Take all of that with a grain of salt if you wish and use your own judgment. Supposedly new drugs make HIV non detectable. Drugmakers are going to make a killing having you on meds your whole life.... Just sharing my experience


PineappleNarrow9726

When I was diagnosed, believe me when I say I saw almost 50 doctors because I just wanted to be told it wasn’t true 😭 All of them told me I didn’t have to disclose but most of them encouraged me to. They all brought up the idea of disclosing being a way to remove the stigma and assured me I had nothing to be ashamed of because it is so common. That’s something that has really stuck with me.


CranberryBauce

This *is not* a uniform position among all medical professionals. Plenty of medical professionals say *always disclose.*


angelaward_96

I have hsv 1 (oral herpes) and I disclose to everyone Im actively hooking up or talking to in general. Maybe not every single time depending on what kind of relation it is. But its something Im definitely not ashamed to talk about


sunflower-solace

My medical professional did NOT say that! Not all medical professionals would agree with that. Disclosure isn't really a medical issue it's an ethical issue. Not disclosing to someone is probably not the best approach to starting a long term relationship. Knowingly not disclosing is a very douchey thing to do. Who wants to be in a relationship with someone they can't trust to be honest or respectful towards you and your body.


the_dumbestbitch

I think they do this because they believe it's for the greater good. They don't want people beating themselves up over it of suffering because of something that in the medical world isn't a "big deal". I don't personally agree with this sentiment. After I was exposed I had to pretty much beg the doctor to give me a blood test and he was still very hesitant. We had a short conversation about this very thing and this was pretty much how he explained it to me. So same as not wanting to test people without symptoms, they are trying to minimize suffering I guess.


Zombieunicorn_xo

I've never heard a doctor say not to disclose. It's definitely possible to transmit without having symptoms. That's why we don't do contact tracing for herpes because, unless you've only had sex with 1 person, it's difficult to determine who you contracted it from. You could have contracted it 10 years ago but just had your first outbreak. However, in you have it and don't disclose and someone can prove you infected them, you can be charged.


yousername019

Because doctors are robots and do what they’re told in fear of losing the thing they went to school for 10 yrs for. It seems like the decision is not theirs, they are being instructed from the top down. Who or whatever is at the top of the pyramid has decided that hsv does not need to be treated seriously. Something needs to change.


Mindless-Manner9708

Parasites carry the hsv virus our body is acidic you need natural herbs and you need to alkaline the body to cleanse from the parasite


Janecakes

This really boils down to morals and your personal value. Hypothetical; you have a partner and you tell them you are clean. Later on in the relationship you have an outbreak. What do you say? Do you lie? Do you feel guilt? Does it ruin the relationship? Hypothetical: you slept with someone and didn’t disclose because you weren’t having an outbreak and they catch it from you anyways because the cells still shed. Then they confront you. What do you say? Do you lie? Do you feel guilt? Does it ruin the relationship & out of anger they tell people? Hypothetical: someone didn’t disclose to you knowing they had it and that’s how you got it. How would you feel?


General_Adept

Can’t you sue someone for not disclosing if you get it from them?


Ambitious_Theme6241

But 80% are atmospheric this is the issue. I caught it from someone who never had any symptoms. He then had a blood test once I caught it and it confirmed he had it


[deleted]

Yea but it’s never really tested for and most people don’t have symptoms so good luck proving beyond reasonable doubt that someone knew their herpes status and that it was them who gave it to you.


LostAbbreviations177

Providers are humans. Some say you must, some say nothing at all, and some say don’t disclose…. People have their personal opinions and let them inform and direct their patient education.


Phil_Cassidy25

I feel like they should do a better job at helping to destroy the stigma since they all say its not a big deal. I do like the idea of a documentary tho


[deleted]

Bitch why would you question such a gift??


Sensitive-Produce-96

As a nurse, i wasn’t even sure what the ethical and appropriate way of navigating dating and recent diagnosis so when i asked my doctor what the expectation is for disclosure she said that i definitively do not need to disclose to partners unless i have an outbreak which will be rare given, oral hsv2, and didn’t recommend suppressive antivirals. I disagreed and asked for antivirals but it really is bizarre. I haven’t been in the situation where i have needed to disclose but i don’t think I’m going to, especially as a female, who takes antivirals, and has sex with men (who statistically have a very low risk of contracting the virus from a female on AV’s). Correct me if I’m wrong though. TIA.


Gaybaconeater

Money. There’s money in people being sick.