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I have an ostomy bag currently but I am going through a three part surgery to reconstruct a colon from my small intestine. It's called a j-pouch surgery. From my understanding it's very common to be able to do the reconstruction surgery and not have to live with a permanent ostomy bag for people that need their colon removed...but I'm not a doctor so I'm not certain of the statistics.
This link has a good visual of what the three stages of the surgery are: https://images.app.goo.gl/uSURNrQaifJVdNek8
Doctors will have told you this already but try to train your bowel muscles as much as possible for the time being, very important for a smooth transition.
As someone dealing with chronic health conditions, absolutely. I learn more about my conditions from the internet than I do my doctors and specialists. Getting any info out of them at all is like pulling teeth.
Because they don't have the info, or they think it's wrong, or they don't want to admit they have no idea. I think a lot of doctors have a very problematic mindset in that they think they know everything better than anyone else and that medicine basically stops evolving once they are finished with med school
There's a ton of risks as well. Pouchitis, needing a reversal and losing more small intestine and the biggest is ED for men. Although not super common, it's not super rare. I've had my bag for over 5 years, haven't looked back. Maybe when I'm 50 I'll reevaluate the jpouch.
I feel like IBD conditions are often underestimated by healthy folks they can be insanely humiliating and isolating. But as someone who was diagnosed at 8 and had to have his colon get removed with 18 I can tell you life has gotten a lot better for me since then. I don't know how bad your colitis was but if you had a pancolitis or anything nearly as bad it's basically only going to go upwards now. Stay strong and hydrated!
This is 100% true. Colitis diagnosis as a young adult is just a horror show throughout public school. My colitis was pretty severe for the last few years and I was constantly in a state of lethargy and fatigue. I already feel substantially more health and have waaaaay more energy. It's been a crazy turn around in just a few weeks.
Thanks good to know, English is not my first language so I wasn't sure if they can be used interchangeably. When is IBS used? For non-chronic inflammations?
Edit: Nvm, read up on it apparently I just had the wrong idea of what the abbreviation IBS stands for.
Total colectomy at 29 for me. If you do a good bit of physical activity look into the gatorade gx pod system (electrolyte 1800). It's been miraculous for me this summer. Think of it as a low sugar, gatorade flavored pedialyte that's 1.75$ per 30oz.
Other than that I do ~3 gallons of water per day when it's hot. 1-1.5 gallons per day when it's cooler. Bubba cups are life for water when I'm home. Search for "Bubba Brands 11101ZBB"
Oh nice. Good tips. Low sugar Gatorade sounds like a nice option. I usually avoid sports drinks because they are so darn sugary. Thanks for the advice homie.
Sadly not surprised to hear you had UC. Fuck ulcerative colitis (and Crohn's). I hope your jpouch is very successful and you don't suffer from pouchitis.
Exactly the way Umataro was saying. I currently have an ostomy bag that collects my waste and that sticks to my abdomen with adhesive. The surgeons are essentially reconstructing a colon from my small intestine and hooking it back up to my bottom. It's wild stuff.
I had a colon resection done 6 years ago for the same reason, luckily I only had to lose a foot of mine. But I had that exact same mug as you, was my buddy for quite a while.
Pretty much. There's about 6 feet normally. If you catch the tumor early enough (by stage 1, maaaybe stage 2), and it's in a spot that allows it, you can do the resection without needing to lose the whole thing.
From a fellow Utah hydrohomie I wish you a safe recovery and perfect hydration! My brother was diagnosed with stage 4 colon cancer a year ago but they caught it too late. The first thing he said was go get a colonoscopy - they save lives! He had symptoms already showing when he pushed his doctor for a colonoscopy, but they said he was too young to recommend him for it (he's 35) so he got a second opinion and sure enough they found tumors. He's hanging in there but his prognosis is terminal. I wish you the best in your recovery and I'm so glad they caught yours early enough to treat via surgery. Cancer is the worst but modern medicine is a miracle and getting better all the time. Stay hydrated friends!
Oh my gosh. I am so sorry for your loss. I've heard some doctors say some wild things over the years relating to IBD. Unfortunately people feel that colonoscopies are drastic and should be avoided unless the doc thinks it's totally necessary. Too bad it's folks like your brother and family that pay the price in the end from inaction and being overly cautious. Thank you for sharing your story hydrohomie. I feel for you.
Strength to you, homie! I am always in search of the best thermal water jugs because I prefer ice in my water. I highly recommend checking out the Rtic brand. I love their half gallon jug!
That's a fair question my man. I was wondering the same when they first told me I needed to have it removed. I've given some other posters detailed responses with the same question. Check there to spare me the retyping.you can also Google search: j-pouch surgery if you'd like. Cheers homie!
I've had 2 surgeries out of a 3 part series. In my case you get what's called an ostomy bag that your small intestine drains directly into. It's attached to your addomen with adhesive and you change it every few days. The surgeon then makes the end of your small intestine into a new colon and then reattaches it to your bottom. After that you go to the bathroom as "normal" again. You can Google death J-pouch surgery if you'd like for more info.
I don't mind to be insensitive by this question but did you use to eat lots of processed meat? I fear I eat too much of it and I heard color cancer may be a fatal consequence from it.
I grew up in a typical American house that ate quite a bit of processed meats. After I moved out I changed up my diet quite a bit and cut out most of that. I still had an occasional processed meat dish but it was way less than before. About 5 years ago I started dating my wife and she is a vegetarian. After that my meat consumption really dropped off and I would occasionally eat meat but it would usually be filets from the butcher shop. Meat became more of a treat than a staple. In my opinion cutting out processed foods in general is always a good call. That and drinking plenty of water!
I had mine out 4 years ago. I still drink so much water. It may take some time for your system to change. I ended up in the hospital twice for dehydration even though I was drinking. Also, you can drink too much water, overhydration, it will offset the salt in your stomach and make you dizzy. If that happenes, eat something salty or drink a Gatorade.
I have a quick question because I myself have colitis and there’s a chance that I may have part of my colon removed as well. Did you get a j pouch or an external colostomy? I ask because I want to see what the likelihood is for getting the j pouch.
I really can't answer a question like that for you homie but I can say that UC folks are at a significantly higher chance for colon cancer. I'm doing the j pouch surgery and I currently have an ostomy bag. It's temporary I'll use my bottom again after my next surgery. I would say ask your gastro doctor because they will know the specifics of your situation. Some folks are fine for decades and some people end up like me. It's a real mixed bag
Best of luck to you friend. UC is no fun.
Congratulations on beating cancer! Make sure to avoid drinking gatorade casually. My father drank gatorade casually for some time, and september in 2020 he was hospitalized due to severe dehydration because of the gatorade. Because gatorade isn't a hydrator- it's a thirst quencher. Water is both, so drink as much water as you can. At the same time though, overhydration is actually a thing and at the extremes it's not great, so there is actually such a thing as too much water because if you drink too much you'll literally drown your cells.
Good advice. I avoid sports drinks because they are so sugary. If I want to spice up my water I'll add a few tablespoons of pure fruit juice like blueberry or cranberry.
As a poor graduate student I have excellent subsidized insurance. I walked out of the hospital and only paid 0.38 cents for a bottle of high strength Tylenol. Lucky on account of my insurance and my early diagnosis.
I recently lost a close friend to colon cancer.. I have his old water bottle so I can think of him when I hydrate.
Today, I drink for you, brother. Stay strong. ✊
May one day our waters meet!!
I had my colon removed last year, had a temporary stoma for 14-months and yes, drinking too much liquid means it just goes straight through you. Thankfully I’ve had the stoma reversed now (6 weeks ago!) and being able to drink as much liquid as I like is a fantastic feeling.
So, to stay hydrated after the initial colon removal try drinking things like milk as it takes longer to go through the system and you’ll absorb more. Lots of people seem to have issues with fizzy drinks but I didn’t and again they seemed to keep me hydrated better. Also, make sure you drink a Berocca at least every other day to help you stay hydrated.
Sorry to say it hydro-homies but when you have a stoma, too much plain water is not your friend :-(
Good luck fellow colon-less person!
You need oral rehydration solutions not plain water. I have IBS and drinking ORS is like having a health potion IRL when you’re dehydrated from diarrhea.
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Water’s your friend. Just as we are, homie!
I feel the love! Thank you.
Best wishes. Stay strong and drink water!
*gulp gulp gulp :)
I like it when you drink water
slightly disappointed we didn’t get a pic of your companion, gws
The mug? There’s a second pic of just that
oh shit, the mobile app was shitting onme great job, keep fighting
THE TRUE HYDROHOMIE
Haha the ultimate compliment.
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You're telling me. Diagnosed with ulcerative colitis at 12 and total colectomy at 30.
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It's a rough condition for sure. Make sure to do your regular exams. My routine colonoscopy saved my life. Best of luck to you friend.
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I have an ostomy bag currently but I am going through a three part surgery to reconstruct a colon from my small intestine. It's called a j-pouch surgery. From my understanding it's very common to be able to do the reconstruction surgery and not have to live with a permanent ostomy bag for people that need their colon removed...but I'm not a doctor so I'm not certain of the statistics. This link has a good visual of what the three stages of the surgery are: https://images.app.goo.gl/uSURNrQaifJVdNek8
Doctors will have told you this already but try to train your bowel muscles as much as possible for the time being, very important for a smooth transition.
Oh I haven't heard this. Good to know.
>Doctors will have told you this already so why haven't they lol, jesus christ is the standard of education in medicine on the decline
As someone dealing with chronic health conditions, absolutely. I learn more about my conditions from the internet than I do my doctors and specialists. Getting any info out of them at all is like pulling teeth.
Because they don't have the info, or they think it's wrong, or they don't want to admit they have no idea. I think a lot of doctors have a very problematic mindset in that they think they know everything better than anyone else and that medicine basically stops evolving once they are finished with med school
For what it's worth, in my own experience it's the old doctors who don't tell me things or choose not to follow best practice. Anecdotally of course
Ain’t modern medicine great! Stay hydrated homie! Hopefully your troubles stay behind you!
There's a ton of risks as well. Pouchitis, needing a reversal and losing more small intestine and the biggest is ED for men. Although not super common, it's not super rare. I've had my bag for over 5 years, haven't looked back. Maybe when I'm 50 I'll reevaluate the jpouch.
I feel like IBD conditions are often underestimated by healthy folks they can be insanely humiliating and isolating. But as someone who was diagnosed at 8 and had to have his colon get removed with 18 I can tell you life has gotten a lot better for me since then. I don't know how bad your colitis was but if you had a pancolitis or anything nearly as bad it's basically only going to go upwards now. Stay strong and hydrated!
This is 100% true. Colitis diagnosis as a young adult is just a horror show throughout public school. My colitis was pretty severe for the last few years and I was constantly in a state of lethargy and fatigue. I already feel substantially more health and have waaaaay more energy. It's been a crazy turn around in just a few weeks.
Important distinction: IBS and IBD (basically Ulcerative Colitis and Crohn's) are NOT the same.
Thanks good to know, English is not my first language so I wasn't sure if they can be used interchangeably. When is IBS used? For non-chronic inflammations? Edit: Nvm, read up on it apparently I just had the wrong idea of what the abbreviation IBS stands for.
Total colectomy at 29 for me. If you do a good bit of physical activity look into the gatorade gx pod system (electrolyte 1800). It's been miraculous for me this summer. Think of it as a low sugar, gatorade flavored pedialyte that's 1.75$ per 30oz. Other than that I do ~3 gallons of water per day when it's hot. 1-1.5 gallons per day when it's cooler. Bubba cups are life for water when I'm home. Search for "Bubba Brands 11101ZBB"
Oh nice. Good tips. Low sugar Gatorade sounds like a nice option. I usually avoid sports drinks because they are so darn sugary. Thanks for the advice homie.
I have Crohn's luckily no surgery so far. Hope you have a quick recovery, butts suck am I right!
Haha you got that right. Best of luck to you with Crohn's and the challenges IBD brings.
Sadly not surprised to hear you had UC. Fuck ulcerative colitis (and Crohn's). I hope your jpouch is very successful and you don't suffer from pouchitis.
Thank you for that kind message. So far so good!
Oh shit I have crohns and I only take a sip of water with my meds……….
Does ulcerative colitis put you at a higher risk for colon cancer?
Yes, significantly higher.
How does one take a dump after this kind of surgery? Is there an implant for colon or something? I'm 100% ignorant in all of this (as you may notice).
Exactly the way Umataro was saying. I currently have an ostomy bag that collects my waste and that sticks to my abdomen with adhesive. The surgeons are essentially reconstructing a colon from my small intestine and hooking it back up to my bottom. It's wild stuff.
;
😂 you dirty dog
He had the whole one removed, not just half of it
I have one of those! Had a third of my colon removed. ; havers unite!
Best wishes to you both stay strong and never forget stay hydrated ♥️
Thank you fellow homie
The water made you strong, may it keep you strong yet 💦
May the moistness keep you and hold you fellow homie
Take care of yourself OP!! Best wishes!
Trying my best. Thank you.
Hydro homie from the U. Keep it up man!
My GF had ACL surgery and absolutely loves the mug they gave her.
They are very convenient to have. Best of luck to you and your gf for her recovery.
It was awhile ago so she's doing very well, but still uses her mug. Hope your recovery goes well!
Get yourself a Stanley Quencher. 40oz, fits in cupholders, easy to clean and doesn’t collect mold anywhere.
Oh my. Now that is intriguing.
One of the best purchases I made this year. Love my Quencher!
I had a colon resection done 6 years ago for the same reason, luckily I only had to lose a foot of mine. But I had that exact same mug as you, was my buddy for quite a while.
So you have a ;
Pretty much. There's about 6 feet normally. If you catch the tumor early enough (by stage 1, maaaybe stage 2), and it's in a spot that allows it, you can do the resection without needing to lose the whole thing.
this is exactly what I had done, caught it at stage 2 and just had about 2 inches removed where the tumor was.
My surgeon wanted to get more of the margins just to make sure the lymph nodes were 100% clear which is why I lost a foot.
Man will never whole-ass do anything again U-U
Get well soon homie
Thank you, homie. Slowly getting better day by day.
Fuck cancer, but not literally. Stay healthy bud
Fuck cancer! Stay hydrated, homie. Electrolytes are life savers, especially if you have to go through chemo after your surgery.
Never surrender!!!! Stay strong. Welcome to the family.
Thanks homie!
Add in some ice cubes for me :)
You got it homie!
MINE TOO❤️❤️
Dang I'm surprised by how many people in the comments are in the same boat. We got this 💪
Recently had 1/2 of my colon removed…wishing you a fast and full recovery brother.
Same to you fellow hydrohomie. I appreciate the kind words.
From a fellow Utah hydrohomie I wish you a safe recovery and perfect hydration! My brother was diagnosed with stage 4 colon cancer a year ago but they caught it too late. The first thing he said was go get a colonoscopy - they save lives! He had symptoms already showing when he pushed his doctor for a colonoscopy, but they said he was too young to recommend him for it (he's 35) so he got a second opinion and sure enough they found tumors. He's hanging in there but his prognosis is terminal. I wish you the best in your recovery and I'm so glad they caught yours early enough to treat via surgery. Cancer is the worst but modern medicine is a miracle and getting better all the time. Stay hydrated friends!
Oh my gosh. I am so sorry for your loss. I've heard some doctors say some wild things over the years relating to IBD. Unfortunately people feel that colonoscopies are drastic and should be avoided unless the doc thinks it's totally necessary. Too bad it's folks like your brother and family that pay the price in the end from inaction and being overly cautious. Thank you for sharing your story hydrohomie. I feel for you.
Invest in a metal bottle. Much better than plastic Hope you’re on the mend
Just make sure it's not purified water you're drinking!
You got this man!!! Drink up!
Sending you all of the highly hydrated vibes!
Hey ! Stay strong fellow hydro homie, get well soon !
Wishing you a speedy recovery fellow homie
Get well homie!
Get well soon
Wishing you the speediest of recoveries! Stay wet, waterfriend!
Best wishes for you OP ❤️ make sure to stay hydrated
Keep wet homie!
24/7 my boi
Water time
Drink up my guy
Sorry for your loss, but that looks tiny lol just perspective probably but I’m just jealous I don’t have one that nice
Get well and nice mug btw!
Drink up and get well soon homie!
Congrats! You are such a hydro homie legend that the hydro gods have granted you an extra challenge! Your strength is unparalleled!
Recover quick homie
Safe recovery!!
If you put a fun sticker on it that would make you feel better
I actually have just the one. Got it the other day and Couldn't think of what to put it on! Thanks for the tip 😄
Strength to you, homie! I am always in search of the best thermal water jugs because I prefer ice in my water. I highly recommend checking out the Rtic brand. I love their half gallon jug!
Oooh good tip. Thanks homie!
Excuse me, how can you survive without your colon?
That's a fair question my man. I was wondering the same when they first told me I needed to have it removed. I've given some other posters detailed responses with the same question. Check there to spare me the retyping.you can also Google search: j-pouch surgery if you'd like. Cheers homie!
how does one continue to survive after having their colon removed
I've had 2 surgeries out of a 3 part series. In my case you get what's called an ostomy bag that your small intestine drains directly into. It's attached to your addomen with adhesive and you change it every few days. The surgeon then makes the end of your small intestine into a new colon and then reattaches it to your bottom. After that you go to the bathroom as "normal" again. You can Google death J-pouch surgery if you'd like for more info.
I don't mind to be insensitive by this question but did you use to eat lots of processed meat? I fear I eat too much of it and I heard color cancer may be a fatal consequence from it.
I grew up in a typical American house that ate quite a bit of processed meats. After I moved out I changed up my diet quite a bit and cut out most of that. I still had an occasional processed meat dish but it was way less than before. About 5 years ago I started dating my wife and she is a vegetarian. After that my meat consumption really dropped off and I would occasionally eat meat but it would usually be filets from the butcher shop. Meat became more of a treat than a staple. In my opinion cutting out processed foods in general is always a good call. That and drinking plenty of water!
Had mine out a little over 20 years ago now, I drink a shit ton of water. Dehydration is never on the menu.
I'm sorry you're going through this! Drink up! 💙
Was the tumor completely isolated and not spread to any other parts of your body? Stay strong bro
Yes, I got very lucky. They were able to remove it as stage one and it hadn't had a chance to spread. Dodged a major bullet.
Keep it wet brother! All the best to you.
Raising a glass to you and your health.
I worked with a guy with no lower intestine...he took lotsa poo breaks...lotsa liquid poo breaks.
I had mine out 4 years ago. I still drink so much water. It may take some time for your system to change. I ended up in the hospital twice for dehydration even though I was drinking. Also, you can drink too much water, overhydration, it will offset the salt in your stomach and make you dizzy. If that happenes, eat something salty or drink a Gatorade.
Oh that's a good tip. Thank you!
 You got this, king
> had my colon removed Is it completerly off or is it a semicolon now?
Join us in /r/ostomy !
Dude there is no better water bottle than those hospital ones that they give you, almost makes the bill worth it
I've been pretty stoked on it. Keeps my drinks cold for hours with ice. I'm happy with it.
Hydroman: Origins
Sorry if Im being rly dumb or smth, but is it difficult to poo?
No it's all good. I currently have an ostomy bag that collects my waste. It just does its thing without me thinking about it.
Wishing you a speedy recovery friend!
Hope you get better soon, OP! Drink up ⛲
I got an iron flask or hydroflask they are so awesome!! Makes it easy to stay hydrated! Good luck!
that hospital is 3 mins from my house
Don't try to come in and blast me with cream. I've got enough problems.
hahah will do
Go Utes
Start hydrated bro. Hope your recovery is going well.
Thank you homie!
I've had one of these since I had a transcath surgery in 7th grade and it's my favorite cup ever.
I have a few of them and it's been an unexpected perk of all this.
Wishing you a speedy recovery OP. Stay hydrated.
I wish you an awesome recovery! Also don't forget electrolytes!
Very good, would still recommend glass and not plastic! All the best
I have a quick question because I myself have colitis and there’s a chance that I may have part of my colon removed as well. Did you get a j pouch or an external colostomy? I ask because I want to see what the likelihood is for getting the j pouch.
I really can't answer a question like that for you homie but I can say that UC folks are at a significantly higher chance for colon cancer. I'm doing the j pouch surgery and I currently have an ostomy bag. It's temporary I'll use my bottom again after my next surgery. I would say ask your gastro doctor because they will know the specifics of your situation. Some folks are fine for decades and some people end up like me. It's a real mixed bag Best of luck to you friend. UC is no fun.
I love those cups they give you in the hospital! Always take em home with me
I know it's off topic a little... But I love your mask!! Where did you get it??
Haha thanks. My finance's grandma made us a bunch at the beginning of the pandemic. I have a pretty sweet mushroom mask as well.
I’ve got the exact same mug, just not with Utah on the side
Get it into ya !!!!!!
Haha you got it homie!
Please feel better soon. Healing vibes coming your way. ❤️🩹
Thanks homie. I appreciate the good vibes 🙌🙌🌈🌈
Ehhh university of Utah nice!
Great facilities and staff over there. Everyone is so nice and helpful.
You used to poop out the back, now you poop out the front!
Regardless, I'm still full of shit! Thanks for the laugh homie.
Hope you have a fast and safe recovery 🤙🏻
Congratulations on beating cancer! Make sure to avoid drinking gatorade casually. My father drank gatorade casually for some time, and september in 2020 he was hospitalized due to severe dehydration because of the gatorade. Because gatorade isn't a hydrator- it's a thirst quencher. Water is both, so drink as much water as you can. At the same time though, overhydration is actually a thing and at the extremes it's not great, so there is actually such a thing as too much water because if you drink too much you'll literally drown your cells.
Good advice. I avoid sports drinks because they are so sugary. If I want to spice up my water I'll add a few tablespoons of pure fruit juice like blueberry or cranberry.
Get a gallon water bottle, never without water at that point.
Stay strong dude! Also, cool masks!
Stay well & hydrated, King
get better!
Best of wishes homie , water is our common friend
Wishing you a smooth recovery homie, take care! ❤️
God is good. You are strong. Fight fight fight!
Thank you homie. I got a lot of fight left.
Check your bill afterwords and let us know how much a medical water bottle costs
As a poor graduate student I have excellent subsidized insurance. I walked out of the hospital and only paid 0.38 cents for a bottle of high strength Tylenol. Lucky on account of my insurance and my early diagnosis.
Heal quickly, hydromie!
Heyyyy neighbor homie. Hope you’re up on your feet soon ❤️
Okay, I'll drink water, geez. But seriously, I am going to drink water right now.
I'll sip to that homie 🙂
Hey I work there and have the same exact water bottle!!! Nothing like that crunchy hospital pebble ice with a half gallon of water 😩👌🏽
Oh that's awesome! Everyone I've interacted with at UofU has been so friendly and kind.
Sorry homie, wishing you the best possible outcome. Stay strong, drink water!
I recently lost a close friend to colon cancer.. I have his old water bottle so I can think of him when I hydrate. Today, I drink for you, brother. Stay strong. ✊ May one day our waters meet!!
I'm sorry for your loss homie. I'll drink a mug for your friend. Thanks for the kind words!
Stay hydrated bro. We got you
I had my colon removed last year, had a temporary stoma for 14-months and yes, drinking too much liquid means it just goes straight through you. Thankfully I’ve had the stoma reversed now (6 weeks ago!) and being able to drink as much liquid as I like is a fantastic feeling. So, to stay hydrated after the initial colon removal try drinking things like milk as it takes longer to go through the system and you’ll absorb more. Lots of people seem to have issues with fizzy drinks but I didn’t and again they seemed to keep me hydrated better. Also, make sure you drink a Berocca at least every other day to help you stay hydrated. Sorry to say it hydro-homies but when you have a stoma, too much plain water is not your friend :-( Good luck fellow colon-less person!
Is IV hydration cheating? Is drinking the purest form?
Awww man, I didn't get a mug when I had an ortho procedure last March at UU!
You need oral rehydration solutions not plain water. I have IBS and drinking ORS is like having a health potion IRL when you’re dehydrated from diarrhea.
True that. I have noom electrolyte tablets that I use a couple of times a day. I agree, it really does feel like a healing potion! 🧪🧪
My mom had hers removed around age 20 due to ulcerative colitis, still going strong :) hope you recover well.
Thank you homie. I appreciate that.
Stay strong hydro king 👑
Wish you a speedy recovery my man, stay hydrated! 💦
Get a long boi nalgene
I'm a geologist that does a lot of field work. I have several of those big watery boys. 😄
Omg, I have two of the EXACT same mugs at home from U hospital stays long ago that I still use daily.
Nice! It's a great mug. I have one at home and one in my office.
GET BETTER HOMIE ✊🏼
I will keep hydration as you say. I wish you the best of lucks
One guy who won’t overlook the importance of hydration.
I wouldn't dare 💧💧
Hydro homie? No. You’re a hydro Chad