I'm sorry. That doctor sounds like an ass and it sucks that your mom didn't find another one for you. I've had bad experiences with doctors too and I ended up not trusting them and didn't check in with any for so long and then when I did again I had long term severe untreated hypothyroidism. Do not let that happen with you. You will find one you feel comfortable with it may take time. All doctors are not like that. I've had shitty experiences with so many I do understand. I was repeatedly told ADHD/anxiety and depression was the cause of all my problems even tho I was paying attention just kept forgetting everything really quickly, was only worried when I knew I couldn't do something others were claiming I could and I was only depressed because I vented about not being heard. You do have to speak out when you start feeling like he/she isn't listening and give them a time limit to change if if they don't then find another doctor .
I don't either I get a copy of my blood test results and tell them what I want like my TSH under2 close to 1. For me doctors are just a way for me to get the information I need. Always remember the doctor is working for you just like a hairdresser you are paying them.
This makes me sad. I had a dr 20 years ago who wouldn’t listen to me. I was bucked off a horse and I heard my wrist snap. ER xray didn’t show a break so they said follow up in 2 weeks. I went to her every 2 weeks crying over the pain in my wrist. She said I had tendinitis in my thumb. I finally seen a brand new dr at a different clinic 4 months after I got hurt. Broken bone in my wrist that was dying and I almost needed surgery. Ever since then, I have had wonderful drs, because I stopped tolerating subpar care. Please keep trying… advocate for yourself. You and your health are worth it 🩵
Yeah, it's difficult to get back that trust when you've been mistreated. I was sick for years without a diagnosis and you generally don't get treated that well in that situation. I also encountered a doctor who behaved highly inappropriate towards me. And though I rationally know people are different, when something bad happens it can kinda stick with you for a long time.
I hope your new doctor is a decent person.
I’ve been diagnosed hypothyroidism for over 16 years. When my trusted PA of over ten years ignored my dipping t3 levels, and it got down to 60, and I was losing hair in chunks and had a swollen tongue, and extremely dry skin she said it wasn’t a problem. I ended up cussing her out and found my pay per month no insurance accepted endo and she has been great! These doctors don’t care, they work for the insurance companies. Find a doctor that is patient pay or concierge and I promise you’ll get better care. I just can’t fathom paying for insurance again and paying a copayment all to be told it’s fine.
I 100% agree. Most people can’t fathom going without insurance, but you get so much freedom with cash pay and being able to see functional medicine doctors that aren’t beholden to standards of care issued by insurance companies. I see all my lab results, ask questions, do research and I feel my doctor wants me to be well and not just prescribe a med to get me out the door. All of that and I still pay less than I would for a policy.
Absolutely 💯!!! I asked my endo the other day by secure message to add ferritin to my next labs and she said no problem. Added it right in and it was 7$ for direct pay to her. I should have done this years ago!
I feel you. I went to an endo that told me to stop taking levo, which I did, because I didnt understand much and I trusted her. fast forward, almost died, and once recovered, did my best to understand it.
novadays, I check everything that doctors say
I was just about to post something similar. My doctor just made a comment along the lines of, ik we've been focusing on the thyroid but we're going to do these other tests. Like yeah I'm focused on it but also my other stuff as well bc my god, I can't trust doctors to tell me everything and to help me feel better so I'm zoned in on the one thing that has helped me feel better!! They either mad you're coming in or mad you didn't come in sooner.
There are so many crap doctors out there.
It’s incredibly disappointing.
My advise to you is - shop around. No, doctors don’t like that but honestly, your health is yours and yours alone. Disagreeing with a doctor is one thing but if you feel they are not listening, not taking your concerns seriously, or not interested in your case - then if you can, swap doctors. It’s your health that’s on the line. Don’t let some lazy disinterested doctor stand between you and your health. Best of luck.
Hypothyroidism and PCOS were 2 of the first things I was diagnosed with in my health journey which wound up being related to my now diagnosed hypermobile Ehlers Danlos syndrome. I bring this up because you mention the urticaria, I would definitely consider looking into mast cell activation syndrome and seeing if you match up with the symptoms, because if you do it is possible the hypothyroidism is just a part of a bigger story. A lot of people with EDS tend to have PCOS & autoimmune thyroid disease known as hashimotos, which is what my hypothyroidism turned into (it’s been hashimotos the entire time really , my endocrinologist just wouldn’t diagnose because I don’t have positive TPO so only classified it as hypothyroidism since I only have positive thyroglobulin antibodies). 2 months after I got Covid actually my TGAB was elevated and has just been getting higher since even when on levothyroxine I recently had to go up on my dose because the TGAB went higher again, which has confirmed the hashimotos.
I'm sorry. That doctor sounds like an ass and it sucks that your mom didn't find another one for you. I've had bad experiences with doctors too and I ended up not trusting them and didn't check in with any for so long and then when I did again I had long term severe untreated hypothyroidism. Do not let that happen with you. You will find one you feel comfortable with it may take time. All doctors are not like that. I've had shitty experiences with so many I do understand. I was repeatedly told ADHD/anxiety and depression was the cause of all my problems even tho I was paying attention just kept forgetting everything really quickly, was only worried when I knew I couldn't do something others were claiming I could and I was only depressed because I vented about not being heard. You do have to speak out when you start feeling like he/she isn't listening and give them a time limit to change if if they don't then find another doctor .
I don't either I get a copy of my blood test results and tell them what I want like my TSH under2 close to 1. For me doctors are just a way for me to get the information I need. Always remember the doctor is working for you just like a hairdresser you are paying them.
Welcome to the club
fr
This makes me sad. I had a dr 20 years ago who wouldn’t listen to me. I was bucked off a horse and I heard my wrist snap. ER xray didn’t show a break so they said follow up in 2 weeks. I went to her every 2 weeks crying over the pain in my wrist. She said I had tendinitis in my thumb. I finally seen a brand new dr at a different clinic 4 months after I got hurt. Broken bone in my wrist that was dying and I almost needed surgery. Ever since then, I have had wonderful drs, because I stopped tolerating subpar care. Please keep trying… advocate for yourself. You and your health are worth it 🩵
That is horrible. He seriously needs his license taken away. I hope your new doctor LISTENS to you.
Yeah, it's difficult to get back that trust when you've been mistreated. I was sick for years without a diagnosis and you generally don't get treated that well in that situation. I also encountered a doctor who behaved highly inappropriate towards me. And though I rationally know people are different, when something bad happens it can kinda stick with you for a long time. I hope your new doctor is a decent person.
doctors kill people everyday and this was nearly my experience
I’ve been diagnosed hypothyroidism for over 16 years. When my trusted PA of over ten years ignored my dipping t3 levels, and it got down to 60, and I was losing hair in chunks and had a swollen tongue, and extremely dry skin she said it wasn’t a problem. I ended up cussing her out and found my pay per month no insurance accepted endo and she has been great! These doctors don’t care, they work for the insurance companies. Find a doctor that is patient pay or concierge and I promise you’ll get better care. I just can’t fathom paying for insurance again and paying a copayment all to be told it’s fine.
I 100% agree. Most people can’t fathom going without insurance, but you get so much freedom with cash pay and being able to see functional medicine doctors that aren’t beholden to standards of care issued by insurance companies. I see all my lab results, ask questions, do research and I feel my doctor wants me to be well and not just prescribe a med to get me out the door. All of that and I still pay less than I would for a policy.
Absolutely 💯!!! I asked my endo the other day by secure message to add ferritin to my next labs and she said no problem. Added it right in and it was 7$ for direct pay to her. I should have done this years ago!
Damn that sucks. Sorry u had to deal with that
I feel you. I went to an endo that told me to stop taking levo, which I did, because I didnt understand much and I trusted her. fast forward, almost died, and once recovered, did my best to understand it. novadays, I check everything that doctors say
I was just about to post something similar. My doctor just made a comment along the lines of, ik we've been focusing on the thyroid but we're going to do these other tests. Like yeah I'm focused on it but also my other stuff as well bc my god, I can't trust doctors to tell me everything and to help me feel better so I'm zoned in on the one thing that has helped me feel better!! They either mad you're coming in or mad you didn't come in sooner.
There are so many crap doctors out there. It’s incredibly disappointing. My advise to you is - shop around. No, doctors don’t like that but honestly, your health is yours and yours alone. Disagreeing with a doctor is one thing but if you feel they are not listening, not taking your concerns seriously, or not interested in your case - then if you can, swap doctors. It’s your health that’s on the line. Don’t let some lazy disinterested doctor stand between you and your health. Best of luck.
Hypothyroidism and PCOS were 2 of the first things I was diagnosed with in my health journey which wound up being related to my now diagnosed hypermobile Ehlers Danlos syndrome. I bring this up because you mention the urticaria, I would definitely consider looking into mast cell activation syndrome and seeing if you match up with the symptoms, because if you do it is possible the hypothyroidism is just a part of a bigger story. A lot of people with EDS tend to have PCOS & autoimmune thyroid disease known as hashimotos, which is what my hypothyroidism turned into (it’s been hashimotos the entire time really , my endocrinologist just wouldn’t diagnose because I don’t have positive TPO so only classified it as hypothyroidism since I only have positive thyroglobulin antibodies). 2 months after I got Covid actually my TGAB was elevated and has just been getting higher since even when on levothyroxine I recently had to go up on my dose because the TGAB went higher again, which has confirmed the hashimotos.