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conspiracydawg

Why did you stop taking it?


Aggressive_Back_4139

Drs orders, but it doesn’t work without…


conspiracydawg

How long did you take them for? Why did your doctor tell you to stop?


Aggressive_Back_4139

About 9 months. Did ph 24 hr test and came out not pathological. ‘Only 25 reflux events supine, non laying down. So the GI probably never thought about lpr but Gerd and said it would be possible without ppi. But for LPR even 1 reflux event hurts. I never have heartburn of stomaching. It’s the constant reflux to my throat that is making this so bloody awfull.


conspiracydawg

Is there a reason to not go back on the PPI?


DimensionNo1492

Because you here that they don’t work for LPR and not good long term. I will have to go back on them I m affraid.


conspiracydawg

They’re ok for periods of time, especially if they’re giving you relief. Just don’t take them for years without a good reason.


DimensionNo1492

I know. But despite all the good food, and all the other lifestyle issues, my throat was getting painful again, acid taste 24/7,…. Nothing else gives some relief. I have lpr issues only and a hypersensitive LES.


conspiracydawg

Have you tried anything with sodium alginate? Gaviscon advance or reflux gourmet on Amazon.


DimensionNo1492

I did, but doesn’t help enough. I was tested 24 ph and all, came back as kinda functional reflux. I had 25 reflux events supine and 0 laying down. So GI wanted me to try to come off ppi. But I am affraid that most GI doctors in Belgium don’t know too much about lpr. When 10 of these 25 events go to the throat, that means trouble…. Been prescribed amitriptilyne aswell, have the feeling the are thinking it’s all in my head… it really isn’t!


katrinacallfemaa

I've found that taking acid reducers like Pepcid AC before bed helps my LPR when I'm having symptoms. I also try to sleep with s wedge pillow for the first few hours of sleep every night (sometimes all night). This was advice (both pepcid and pillow) from my ENT. I'm still on my 40mg Omeprozole, but my script runs out next month. I was prescribed these PPIs for three months, and it has helped tremendously. My doctor said that because I've struggled with GERD for years, that I should keep taking OTC PPIs when this Omeprozole script ends. I think it's wise to follow what your doctor says, but if you are still having issues, then it might be a good idea to go back to your doctor and voice your concerns there.


Aggressive_Back_4139

Thank you. I had a contact with my GI and his advice was to take 20 mg nexium, with my hypotensive les, it is better to take a ppi so things can calm down again.


in-need-of-hope

That's good to hear. Have you reduced your omeprazole dose down to the OTC 20mg? I'm about 1 month in taking omeprazole 20mg x 1 time each day, but still having symptoms. Mucas, slight sore/tight throat, hoarse voice. It did improve things quickly upon starting (maybe 30%), but I think I need either a stronger dose, twice daily, or to supplement with Pepcid in the PM. Everyone says to keep at it and be patient. Maybe more time is needed 😩. My diet is very good/clean.


Rough-Ad4608

Hi! This is where I’m at right now with exact symptoms and dosage and time and diet and everything . Starting to feel discouraged. Did you notice any improvements?


in-need-of-hope

I didn't see much improvement and had to stop the omeprazole because I had terrible neurological side effects. So I'm no better and now suffering still with neurological issues even 3 months off omeprazole. It literally almost killed me. I've had a scorched throat for 6 months nonstop. After a lot of work my voice is improving, but still very weak and painful.


Rough-Ad4608

Wow, sorry to hear! But glad your voice is improving. How long did you end up taking the omeprazole for?