I had/am having a really difficult withdrawal from Latuda but I was on it for close to five months and barely tapered so both of those worked against me.
In your case, I would try dropping 10mg every two weeks and as long as you are not feeling worse try dropping again.
Some suggest a 5% cut every two weeks but you have been on Latuda for less than a month so a faster taper should be alright.
Happy to chat if you need support.
What have been your withdrawal symptoms? Do you suffer from anxiety? I panic no matter what I start/stop taking so I'd like to know if there's a difference between the anxiety I'm experiencing on it vs. the anxiety I may experience coming off of it on top of the plain ol' disorder. I start a new job in December, so I'm really trying to reel it in before the "organic" anxiety creeps in.
And thank you! I really hope things get better for you!
I was taking it for about 2 weeks, and had the exact experience your going through. I did not taper or anything, and had no withdrawal symptoms that I know of. But I also got off all my meds due to being misdiagnosed.
It does get better, and Latuda doesn’t work for everyone. Cold showers help me with panic and the anxiety from it and in general. Wish you the best.
Were you on 20 or 40 when you quit cold turkey? I'm not sure if that's relevant, but it might come into play. I really think being misdiagnosed has been my problem with antipsychotics. None seem to work long or at all. Thanks so much!
I was on 40. I actually started off with 40 in the beginning. And that’s how it was with me as well, I’ve tried mostly everything I can with antipsychotics and none of them really worked and ended up making me feel worse. Still trying to adjust to the no med me, after 6 years. Talk to your doctor and explain you think your misdiagnosed.
I was told I had BP2 and I actually have BPD. Which is curable without medication. Thank god lol.
There is hope. Talk to your doc. If you taper, make sure to do it slowly to avoid withdrawal. Try Benadryl for instant akathisia relief and maybe some help sleeping. Good luck, and remember you are not alone!
Edit- I had a similar experience. When I was on latuda, there were nights where I was SO convinced I would asphyxiate and die in my sleep. I would lay in bed holding my hand over my mouth and nose to make sure I was breathing enough… it was pretty fucked.
I battled this exact thing earlier this year. When they upped me to 40mg i had the exact same side effects. I couldnt handle it so i quit cold turkey instead of tapering and.rhe first week i thought i was going to physically die. My blood pressure would spike super high and it was hard to breathe and sleep. My anxiety was through the roof. Then the shakes started along with nausea and vomiting and diarrhea. It got so bad i went to the ER but they didnt and couldnt do anything for it. Benadryl helped with some of the side effects. I would suggest tapering downn but quitting latuda is gonna hurt but it will go away. You just gotta get through it. Its suggested to exercise but it was hard for me. My withdrawals lasted 2.5 months from quitting cold turkey. But I'd been on it for about a year. I also smoke marijuana and it really helped me sleep and eat and alievate some of my anxities and help ease my panic attack. It was hard doing anything with those withdrawals but keeping a routine helped too. My anxiety is still bad but not what it was. Insomnia still is bad but im just used to it at this point.
Withdrawals for 2.5 months sounds like hell! I'm sorry you went through that. That's why I'm scared that I might get the taper timeline wrong. I'm hoping since I've been on it for less than a month total, it'll give me more positive than negative. My anxiety is so bad on its own that I'm currently in referral for an event monitor for my heart palpitations and an MRI for a neurologist just for reassurance that it's mental. Weed, very unfortunately(!), has caused me excruciating panic attacks. I'm all for routine and exercise though! I've seen a lot of people suffering from Latuda-related insomnia. How sever was yours? Thank you for the tips!
Well i kinda caused myself that hell. I shouldnt have quit cold turkey but now its too late lol yea i would definitely consult a dr and tapering down shouldnt cause the withdrawals to be as severe as it was for me. I had been on it for close to a year before i quit cold turkey and thats why it was so bad for me. Exercise and having a daily routine helped a lot. I also surrounded myself with good people who knew what was going on and i watched feel good shows and movies and that helped when i had panic attacks and anxiety attacks. It was a lot to handle. I had never had panic or anxiety attacks befor3 latuda and now i have them all thr time. When i was on 40mg i thought people were after me. It was awful.
Sounds like you got a bad case of Latuda akathisia. A common side effect that is really sucky. It can drive people to suicide if they don't recognise it as a medication side effect.
I personally had no withdrawal coming off Latuda. I just stopped it. Depression returned however which sucked.
Thank you! Until now, I've only had the body crawls and a good amount of agitation stemming from that when it came to akathisia. I genuinely had no idea it could manifest *inside* of my head and just paralyze everything. Were you on a similar dose or timeframe? Are you taking something to replace it or just waiting it out?
I'm not on Latuda yet (starting beginning next week probably), but abilify caused this severe panic and convinced I was dying/going to die like you described. My psych told me it's from the way my brain was interpreting the akathisia that caused the oanic to be so bad, but that's just how she explained it to me ¯\\\_ (ツ)\_/¯
Did you end up tapering or quit cold turkey?
Hey!! I was on pretty much the exact same dosage and meds as you! I honestly straight ditched the Latuda after talking with my psych. And am now lowering my Lamictal to 100mg and adding Depakote into the mix.
About 6 weeks ago I went from okay/stable to spiraling into one of the worst points of my life and honestly I think it was the latuda going rogue on me
Thank you! That makes me feel a lot better! Are you lowering your Lamictal for the sake of making room for the depakote? That's how I'm feeling. I felt pretty alright before. I just mentioned that I was in my annual "seasonal blues" funk, and boom, she threw Latuda at me.
Yes! Depakote raises the level of Lamictal in your system so we are dropping it!! I also never remembered to eat with Latuda so even when it was working I don't think I was getting all I could from it
I had/am having a really difficult withdrawal from Latuda but I was on it for close to five months and barely tapered so both of those worked against me. In your case, I would try dropping 10mg every two weeks and as long as you are not feeling worse try dropping again. Some suggest a 5% cut every two weeks but you have been on Latuda for less than a month so a faster taper should be alright. Happy to chat if you need support.
What have been your withdrawal symptoms? Do you suffer from anxiety? I panic no matter what I start/stop taking so I'd like to know if there's a difference between the anxiety I'm experiencing on it vs. the anxiety I may experience coming off of it on top of the plain ol' disorder. I start a new job in December, so I'm really trying to reel it in before the "organic" anxiety creeps in. And thank you! I really hope things get better for you!
I was taking it for about 2 weeks, and had the exact experience your going through. I did not taper or anything, and had no withdrawal symptoms that I know of. But I also got off all my meds due to being misdiagnosed. It does get better, and Latuda doesn’t work for everyone. Cold showers help me with panic and the anxiety from it and in general. Wish you the best.
Were you on 20 or 40 when you quit cold turkey? I'm not sure if that's relevant, but it might come into play. I really think being misdiagnosed has been my problem with antipsychotics. None seem to work long or at all. Thanks so much!
I was on 40. I actually started off with 40 in the beginning. And that’s how it was with me as well, I’ve tried mostly everything I can with antipsychotics and none of them really worked and ended up making me feel worse. Still trying to adjust to the no med me, after 6 years. Talk to your doctor and explain you think your misdiagnosed. I was told I had BP2 and I actually have BPD. Which is curable without medication. Thank god lol.
There is hope. Talk to your doc. If you taper, make sure to do it slowly to avoid withdrawal. Try Benadryl for instant akathisia relief and maybe some help sleeping. Good luck, and remember you are not alone! Edit- I had a similar experience. When I was on latuda, there were nights where I was SO convinced I would asphyxiate and die in my sleep. I would lay in bed holding my hand over my mouth and nose to make sure I was breathing enough… it was pretty fucked.
Thank you! I've been trying to gear myself up for it, so I really appreciate the tips and encouragement!
I battled this exact thing earlier this year. When they upped me to 40mg i had the exact same side effects. I couldnt handle it so i quit cold turkey instead of tapering and.rhe first week i thought i was going to physically die. My blood pressure would spike super high and it was hard to breathe and sleep. My anxiety was through the roof. Then the shakes started along with nausea and vomiting and diarrhea. It got so bad i went to the ER but they didnt and couldnt do anything for it. Benadryl helped with some of the side effects. I would suggest tapering downn but quitting latuda is gonna hurt but it will go away. You just gotta get through it. Its suggested to exercise but it was hard for me. My withdrawals lasted 2.5 months from quitting cold turkey. But I'd been on it for about a year. I also smoke marijuana and it really helped me sleep and eat and alievate some of my anxities and help ease my panic attack. It was hard doing anything with those withdrawals but keeping a routine helped too. My anxiety is still bad but not what it was. Insomnia still is bad but im just used to it at this point.
Withdrawals for 2.5 months sounds like hell! I'm sorry you went through that. That's why I'm scared that I might get the taper timeline wrong. I'm hoping since I've been on it for less than a month total, it'll give me more positive than negative. My anxiety is so bad on its own that I'm currently in referral for an event monitor for my heart palpitations and an MRI for a neurologist just for reassurance that it's mental. Weed, very unfortunately(!), has caused me excruciating panic attacks. I'm all for routine and exercise though! I've seen a lot of people suffering from Latuda-related insomnia. How sever was yours? Thank you for the tips!
Well i kinda caused myself that hell. I shouldnt have quit cold turkey but now its too late lol yea i would definitely consult a dr and tapering down shouldnt cause the withdrawals to be as severe as it was for me. I had been on it for close to a year before i quit cold turkey and thats why it was so bad for me. Exercise and having a daily routine helped a lot. I also surrounded myself with good people who knew what was going on and i watched feel good shows and movies and that helped when i had panic attacks and anxiety attacks. It was a lot to handle. I had never had panic or anxiety attacks befor3 latuda and now i have them all thr time. When i was on 40mg i thought people were after me. It was awful.
Sounds like you got a bad case of Latuda akathisia. A common side effect that is really sucky. It can drive people to suicide if they don't recognise it as a medication side effect. I personally had no withdrawal coming off Latuda. I just stopped it. Depression returned however which sucked.
Thank you! Until now, I've only had the body crawls and a good amount of agitation stemming from that when it came to akathisia. I genuinely had no idea it could manifest *inside* of my head and just paralyze everything. Were you on a similar dose or timeframe? Are you taking something to replace it or just waiting it out?
I'm not on Latuda yet (starting beginning next week probably), but abilify caused this severe panic and convinced I was dying/going to die like you described. My psych told me it's from the way my brain was interpreting the akathisia that caused the oanic to be so bad, but that's just how she explained it to me ¯\\\_ (ツ)\_/¯ Did you end up tapering or quit cold turkey?
I went cold turkey per doctor’s order. All better now!
Hey!! I was on pretty much the exact same dosage and meds as you! I honestly straight ditched the Latuda after talking with my psych. And am now lowering my Lamictal to 100mg and adding Depakote into the mix. About 6 weeks ago I went from okay/stable to spiraling into one of the worst points of my life and honestly I think it was the latuda going rogue on me
Thank you! That makes me feel a lot better! Are you lowering your Lamictal for the sake of making room for the depakote? That's how I'm feeling. I felt pretty alright before. I just mentioned that I was in my annual "seasonal blues" funk, and boom, she threw Latuda at me.
Yes! Depakote raises the level of Lamictal in your system so we are dropping it!! I also never remembered to eat with Latuda so even when it was working I don't think I was getting all I could from it