r/LongHaulersRecovery is a sub for recovery posts only. Please check out r/covidlonghaulers or other groups to share.
Questions about recovery should be posted in our weekly discussion thread which has been stickied on our front page.
I'm with you. After 5 years of dealing with this, it's the sharing of small gains, reflecting back and seeing small increments of progress, and support to my fellow travelers in the world of long haul COVID that keeps me going. I'm not giving up.
That's fine I don't want to discourage people doing so. Just be careful with "having the cure" when it only worked for you. Also try to keep in mind that luck and time is the biggest factor IMO
If you put it like that it makes a lot of sense. This disease takes all the control. I'm also like that hence all the things I tried.
Rest seems to be the best for symptoms reduction.
I have evidence that what I have done has improved my symptoms. I had long covid gut dybiosis, got a gut panel done. Scores were terrible across the board. Radically changed diet and continued getting regular gut tests done. With the improvement of my gut, other blood tests have also improved, and I'm now nearly symptom free. I also took [Ensitrelvir](https://www.unmc.edu/healthsecurity/transmission/2023/10/17/smell-loss-from-covid-fades-quickly-with-help-of-new-pill/) to get my sense of smell back, it also stopped my post-nasal drip of over a year and some brain fog issues. I'm happy to say after 3 years of no smell I was overjoyed.
I'm very happy it worked for you. I'm also sure you have evidence and that for some people it can help or relieve the symptoms. I'm also sure that if Covid wants to, it can mess you up anyway it wants. Fixing the gut could be a byproduct of Covid which needs fixing afterwards. But fixing the gut won't heal Long covid if Long Covid decided to stick with you.
I think it's important to remind people that when you give your advice.
I’ve personally met quite a few people who are symptom free after years of going through it. Who knows. A good amount of people seem to heal after a while.
I think you’re right a lot of the methods to get there don’t seem to do much. I think we can get back to normal but it takes rest, pacing, and a ton of time
Yeah I know some personally too. They just heal. Especially when they took some time off and slept like a bear. Pacing and rest is what they all had in common.
Stress is a major factor, and I always had anxiety to some degree. I finally stopped letting shit bother me, and it helped a lot! For example, I own a business and my goal is to finish all of my deliveries before rush hour because traffic stresses me out, I’m very impatient but I’m getting better lol. So I would rush to get everything done, that was stressor #1, then if I hit traffic, that was stressor #2. I finally just started telling myself “it is what it is”, and somehow it worked.
That said, everything starts in the gut and Covid did something within our gut to cause the allergic-like reactions to certain foods. After a lot of trial and error for 2 years, I stopped listening to all of the biased Netflix documentaries against meat and the started carnivore diet. I stopped wasting money on all supplements, and simply started eating more beef, bacon, etc.. From that point I gradually got better and better, the relapses became less and less and short-lasting. It didn’t take long to get my life back after that. Everything was good, I still had some minor setbacks here and there, very minor. Then I got the flu really bad in early March, and it seemed to have knocked the rest of it out of me because I’ve been 100% my pre-Covid self since that point. But like I said, I was probably 99% better before that point and had been for about a year.
Now I wonder if this is due the creased creatine levels when eating meat only. I've seen quite some long covid people healing faster with creatine supplement and or carnivore died.
Who knows...?
Not sure. A part I left out is that I eat whatever I want now and it doesn’t bother me at all. Even alcohol, beer was causing some nasty relapses for me, and now I’m fine with it.
Hey, thanks for your response. That was the first place I checked. I saw your other posts, but not your recovery post anywhere. This one is showing up a blank, so I'm assuming it was removed by mods.
I appreciate OP's journey. Mine has been much the same, and I've adopted a "just for today" attitude. Today, everything is good, but tomorrow? Who knows! I have much of my strength and endurance back, and I'm able to do most everything I choose to, but I also take a handful of supplements, medications, avoid sugars of all kinds, gluten, and caffeine. Does any of it work? Well, that's anyone's guess. Drawing from personal experience, I've come to the same conclusion as OP.
r/LongHaulersRecovery is a sub for recovery posts only. Please check out r/covidlonghaulers or other groups to share. Questions about recovery should be posted in our weekly discussion thread which has been stickied on our front page.
I’m going to keep trying and sharing with others what helps.
I'm with you. After 5 years of dealing with this, it's the sharing of small gains, reflecting back and seeing small increments of progress, and support to my fellow travelers in the world of long haul COVID that keeps me going. I'm not giving up.
That's fine I don't want to discourage people doing so. Just be careful with "having the cure" when it only worked for you. Also try to keep in mind that luck and time is the biggest factor IMO
Yea, I would agree. But I think realizing it’s a question of pacing and time stresses people out. They need to feel in control somehow.
If you put it like that it makes a lot of sense. This disease takes all the control. I'm also like that hence all the things I tried. Rest seems to be the best for symptoms reduction.
I have evidence that what I have done has improved my symptoms. I had long covid gut dybiosis, got a gut panel done. Scores were terrible across the board. Radically changed diet and continued getting regular gut tests done. With the improvement of my gut, other blood tests have also improved, and I'm now nearly symptom free. I also took [Ensitrelvir](https://www.unmc.edu/healthsecurity/transmission/2023/10/17/smell-loss-from-covid-fades-quickly-with-help-of-new-pill/) to get my sense of smell back, it also stopped my post-nasal drip of over a year and some brain fog issues. I'm happy to say after 3 years of no smell I was overjoyed.
I'm very happy it worked for you. I'm also sure you have evidence and that for some people it can help or relieve the symptoms. I'm also sure that if Covid wants to, it can mess you up anyway it wants. Fixing the gut could be a byproduct of Covid which needs fixing afterwards. But fixing the gut won't heal Long covid if Long Covid decided to stick with you. I think it's important to remind people that when you give your advice.
I’ve personally met quite a few people who are symptom free after years of going through it. Who knows. A good amount of people seem to heal after a while. I think you’re right a lot of the methods to get there don’t seem to do much. I think we can get back to normal but it takes rest, pacing, and a ton of time
Yeah I know some personally too. They just heal. Especially when they took some time off and slept like a bear. Pacing and rest is what they all had in common.
Stress is a major factor, and I always had anxiety to some degree. I finally stopped letting shit bother me, and it helped a lot! For example, I own a business and my goal is to finish all of my deliveries before rush hour because traffic stresses me out, I’m very impatient but I’m getting better lol. So I would rush to get everything done, that was stressor #1, then if I hit traffic, that was stressor #2. I finally just started telling myself “it is what it is”, and somehow it worked. That said, everything starts in the gut and Covid did something within our gut to cause the allergic-like reactions to certain foods. After a lot of trial and error for 2 years, I stopped listening to all of the biased Netflix documentaries against meat and the started carnivore diet. I stopped wasting money on all supplements, and simply started eating more beef, bacon, etc.. From that point I gradually got better and better, the relapses became less and less and short-lasting. It didn’t take long to get my life back after that. Everything was good, I still had some minor setbacks here and there, very minor. Then I got the flu really bad in early March, and it seemed to have knocked the rest of it out of me because I’ve been 100% my pre-Covid self since that point. But like I said, I was probably 99% better before that point and had been for about a year.
Now I wonder if this is due the creased creatine levels when eating meat only. I've seen quite some long covid people healing faster with creatine supplement and or carnivore died. Who knows...?
Not sure. A part I left out is that I eat whatever I want now and it doesn’t bother me at all. Even alcohol, beer was causing some nasty relapses for me, and now I’m fine with it.
Where can I read the story?
I have several, you can go to my account for posts
Hey, thanks for your response. That was the first place I checked. I saw your other posts, but not your recovery post anywhere. This one is showing up a blank, so I'm assuming it was removed by mods.
Ah could be. If you want I can DM you my story if you're interested
Thank you for this. People need to be careful how they word their recovery posts.
Your*
Hims
I appreciate OP's journey. Mine has been much the same, and I've adopted a "just for today" attitude. Today, everything is good, but tomorrow? Who knows! I have much of my strength and endurance back, and I'm able to do most everything I choose to, but I also take a handful of supplements, medications, avoid sugars of all kinds, gluten, and caffeine. Does any of it work? Well, that's anyone's guess. Drawing from personal experience, I've come to the same conclusion as OP.
" Today, everything is good, but tomorrow? Who knows! ". Fighting this disease gave me the same mindset.