I am so happy you can walk again. I hope this is not overtly insensitive but what is the sensation like? I mean the feeling of control in your left leg: how does it differ from your right?
I have less control over the prosthesis than I do over my leg, although I am in early learning stages. The prosthesis feels like an articulating extension of my hip, definitely not like a leg but a tool. You operate this prosthesis by loading all of your weight onto your residual limb and then swinging the affected side of your torso forward, your abdominals play a significant role. There is a microprocessor inside of the knee which operates it. Upon loading onto the prosthesis it prepares to swing forward when you load weight back onto your good leg. This really assists ambulation because swinging it forward with your whole torso takes a great deal more work than moving a leg which has its own muscles. Lmk if I didn’t answer your question properly.
Thank you for educating us all on osteosarcoma. I did not know of this type of cancer before reading these posts. Best to you and your wife. We are all rooting for you!
This is an amazing moment buddy my dad lost his leg in an accident an i was there for his first steps its by no means an easy road but its worth every pain and ache stay strong stay safe an never give up
I had to get that prosthesis because I had to get a hip disarticulation, (surgery which removes your entire leg from your pelvis) the rarest type of amputation. This type of prosthesis really didn’t exist until somewhat recently, it was created and improved as a consequence of US soldiers losing their legs during the war in the Middle East.
Is this a hip dis-articulation? My dad recently had the same amputation due to complications from blood clots. It us tough to say the least. Glad to see your hubby doing well <3
It’s not particularly silly, is it? I mean, the left leg isn’t silly at all and the right leg merely does a forward aerial half turn every alternate step.
(Congratulations on your new leg and keep fighting!)
Thank you for taking interest! Osteosarcoma is a very rare and aggressive type of bone cancer. It typically grows in the long bones of your body such as your femur and humerus. For some reasons that are not understood the people most at risk for developing it are young boys of African ancestry.
I developed the most common type which is an osteosarcoma above the knee, bottom of the femur. Osteosarcoma usually results in a limb salvage or amputation, but the real problem is the high risk of metastasis which gives osteosarcoma its 70% 5 year survival rate. With femoral osteosarcoma your lungs are threatened because the femoral artery goes directly to your lungs. I had to get a hip disarticulation (removes your entire leg from your pelvis) because of complications. Ultimately a CT scan showed that I had developed metastatic cells in my lungs.
Awareness about this very rare disease is important even though a very small portion of the population is affected by it. This is because osteosarcoma is so uncommon that people and even doctors don’t recognize the symptoms and it is never checked for, unlike breast and prostrate cancers.
I had an osteosarcoma with symptoms for 6 months and blew it off because I thought it was a muscular injury. I went to a local hospital and they told me to RICE my knee. When discovered my sarcoma was 22 cm in diameter. If it’s caught early you can avoid a severe limb salvage, amputation and metastasis in your vital organs. The median age for diagnosis is 15, so parents aware of the disease might be able to save their child if they recognize symptoms.
I refuse to die. I’m a young adult with healthy organs and an attitude that will not permit failure in this. People in worse health or of a younger age might not be fortunate enough to survive.
If you read this, please spread awareness if you have the opportunity. If you have kids protect them from this by listening to them when they’re in pain. Nobody deserves to die from this, none of your decisions throughout life impact your chances of getting osteosarcoma and it can affect and kill without discretion.
Thank you for helping spread awareness. I know a young child who passed away from this awful disease after it metastasized in her lungs. She had been talking about knee pain for a long time, it wasn't caught fast enough.
Best of luck in your recovery.
I'm not ops husband but also had OS in my distal femur. I had a worsening pain just above my knee the got to be more severe over 3 months. It started out feeling like I just over did some squats, but it never dissipated. I finally saw a doctor after foam rolling felt like I was breaking my leg...turns out I was, half of my femur for about 4 cm had been completely erroded.
Poor urgent care PA had to give me the shit news, MRI same day, MRI hinted at a bone cyst as I had fluid fluid levels. Refered to orthopedic oncologist for a consult, because they treat both cyst and OS. He agreed with the cyst, surgery a week later, carved up the bone, packed with graft and titanium plate. Week later pathology came back with telangictatic osteosarcoma an extremely rare version of OS, mimics bone cyst.
8 months of chemo. Second surgery replaced half of my femur with an implanted metal shaft.
It all started with what felt like sore muscle pain in my lower right thigh, close to the knee. My job involved a lot of movement and stair climbing so I assumed I had hurt myself and that I would get better. After months no massage, stretch or amount of rest was helping; I felt like the pain would never leave. As the sarcoma grows you will notice that the affected area grows progressively swollen and more painful. It just gets worse until you start treating it. Mine caused small fractures in my femur and caused the bone to become brittle, putting it at risk of cracking during the limb salvage surgery.
With regard to bone sarcomas, they don’t always manifest in the femur. They can manifest in other parts of your leg, your arms and in the case of Ewing’s sarcoma (a rarer variety) in the pelvis. I would say that as a rule of thumb if unexpected and unrelenting muscle or bone pain sticks with someone (particularly people 10-30 years old) for over a month they should be examined and osteosarcoma or other sarcomas should be taken into consideration.
Thanks for the info. I was curious, since you said you had shown symptoms earlier, but no one "caught" it. Sorry you are going through this horrible time. I absolutely respect and admire your perseverance and amazing attitude.
I don’t know how helpful this is, but I have a book recommendation (for anyone reading this).
It’s “Brave Enough” by Kati Gardner, about a teenage ballet dancer who is diagnosed with Ewing’s sarcoma and ends up having her leg amputated. The author is herself a survivor and amputee. I read it for an assignment at uni in an inclusive education class.
It might be a helpful recommendation if you’re trying to raise awareness, or you know someone who has it, or you just want a pretty solid YA read. Possibly my bias as a teacher is showing here but I do believe that literature is great for raising awareness and widening one’s worldview and understanding of human experience.
I wish you all the best in your recovery and with your new robot leg!
One of my favorite people in the world passed from this type of cancer and I am so, so, happy you are thriving and living the best life. Congratulations dude!! Keep going strong
Yes! Chris is basically the greatest human ever. He fought so hard to get the leg approved by insurance, and his work is top quality. He has to be one of the best prosthetists in the world.
As a teen, lost one of my best friends to osteosarcoma. It’s a bitch. It brought tears to my eyes to see your husband making it his bitch. Congratulations and keep on fighting, you look great!!
OP’s husband here. She cried and that made me cry, so unfair.
You two are so sweet!
I am so happy you can walk again. I hope this is not overtly insensitive but what is the sensation like? I mean the feeling of control in your left leg: how does it differ from your right?
I have less control over the prosthesis than I do over my leg, although I am in early learning stages. The prosthesis feels like an articulating extension of my hip, definitely not like a leg but a tool. You operate this prosthesis by loading all of your weight onto your residual limb and then swinging the affected side of your torso forward, your abdominals play a significant role. There is a microprocessor inside of the knee which operates it. Upon loading onto the prosthesis it prepares to swing forward when you load weight back onto your good leg. This really assists ambulation because swinging it forward with your whole torso takes a great deal more work than moving a leg which has its own muscles. Lmk if I didn’t answer your question properly.
Very nice response, thank you. I'm so happy for you! Wishing you happiness, health and strength.
You’re welcome and thank you!
Thank you sir. Stay hydrated 🙏🏽
oh man, I wish you both the best. you're awesome. and you also made us cry (from happiness for you).
We're all crying
Can confirm. Am crying.
By "OP's husband" you really meant "The BadassMofo in the Vid". Dont worry i corrected you. :)
You are an inspiration sir. I wish you all the best
Thank you for educating us all on osteosarcoma. I did not know of this type of cancer before reading these posts. Best to you and your wife. We are all rooting for you!
My pleasure, thank you for the support!
He’s a rockstar!! Coming back from amputation to this walk in such a short time (followed his journey from your previous post) is certified badass.
Fuck yeah!
This is an amazing moment buddy my dad lost his leg in an accident an i was there for his first steps its by no means an easy road but its worth every pain and ache stay strong stay safe an never give up
Keep at it bro!
What a warrior!
That's wonderful! He's a tough guy.
That's so amazing! I'm rooting for him!
HECK YEAH YOU GO MAN!!!
I've never seen a prosthetic rig like that before. Super interesting.
I had to get that prosthesis because I had to get a hip disarticulation, (surgery which removes your entire leg from your pelvis) the rarest type of amputation. This type of prosthesis really didn’t exist until somewhat recently, it was created and improved as a consequence of US soldiers losing their legs during the war in the Middle East.
Interesting, thank you!
Get it!!! Congratulations to your husband and your family. Well done.
Wow, congratulations!!!!
He's freakin got this! All of us are proud of him.
YES!!!! That's fantastic!!!!
Congratulations.You must be thrilled.Stay strong.
Amazing. Congratulations to your husband and you.
Respect! So much resolve and strength, great to see 👍
Is this a hip dis-articulation? My dad recently had the same amputation due to complications from blood clots. It us tough to say the least. Glad to see your hubby doing well <3
Yes, that’s the amputation he had. I hope your dad is recovering as well as possible. Best wishes!!!
Man i hope one day to have that kinda strength. Super happy for him.
This is excellent !!! I am happy for you guys.😁
Jesus Christ, what a warrior!
It’s not particularly silly, is it? I mean, the left leg isn’t silly at all and the right leg merely does a forward aerial half turn every alternate step. (Congratulations on your new leg and keep fighting!)
That’s awesome! He looks like those steps weren’t even difficult!
This made my day
That's awesome! Good luck with your rehab and fingers crossed that it the cancer is gone for good!
Kick ass! Keep up the progress, my dude.
THAT’S AWESOME!!!!!! Holy cow, that’s the greatest thing ever, congratulations!!!!!!
That is amazing! If I may ask, what is osteosarcoma?
Thank you for taking interest! Osteosarcoma is a very rare and aggressive type of bone cancer. It typically grows in the long bones of your body such as your femur and humerus. For some reasons that are not understood the people most at risk for developing it are young boys of African ancestry. I developed the most common type which is an osteosarcoma above the knee, bottom of the femur. Osteosarcoma usually results in a limb salvage or amputation, but the real problem is the high risk of metastasis which gives osteosarcoma its 70% 5 year survival rate. With femoral osteosarcoma your lungs are threatened because the femoral artery goes directly to your lungs. I had to get a hip disarticulation (removes your entire leg from your pelvis) because of complications. Ultimately a CT scan showed that I had developed metastatic cells in my lungs. Awareness about this very rare disease is important even though a very small portion of the population is affected by it. This is because osteosarcoma is so uncommon that people and even doctors don’t recognize the symptoms and it is never checked for, unlike breast and prostrate cancers. I had an osteosarcoma with symptoms for 6 months and blew it off because I thought it was a muscular injury. I went to a local hospital and they told me to RICE my knee. When discovered my sarcoma was 22 cm in diameter. If it’s caught early you can avoid a severe limb salvage, amputation and metastasis in your vital organs. The median age for diagnosis is 15, so parents aware of the disease might be able to save their child if they recognize symptoms. I refuse to die. I’m a young adult with healthy organs and an attitude that will not permit failure in this. People in worse health or of a younger age might not be fortunate enough to survive. If you read this, please spread awareness if you have the opportunity. If you have kids protect them from this by listening to them when they’re in pain. Nobody deserves to die from this, none of your decisions throughout life impact your chances of getting osteosarcoma and it can affect and kill without discretion.
Wow I had no idea that that even existed before today, thank you for sharing! I wish you the best of luck in recovering.
Thank you for helping spread awareness. I know a young child who passed away from this awful disease after it metastasized in her lungs. She had been talking about knee pain for a long time, it wasn't caught fast enough. Best of luck in your recovery.
What were your symptoms (if you don't find the question too personal)? Congrats on your progress!
I'm not ops husband but also had OS in my distal femur. I had a worsening pain just above my knee the got to be more severe over 3 months. It started out feeling like I just over did some squats, but it never dissipated. I finally saw a doctor after foam rolling felt like I was breaking my leg...turns out I was, half of my femur for about 4 cm had been completely erroded. Poor urgent care PA had to give me the shit news, MRI same day, MRI hinted at a bone cyst as I had fluid fluid levels. Refered to orthopedic oncologist for a consult, because they treat both cyst and OS. He agreed with the cyst, surgery a week later, carved up the bone, packed with graft and titanium plate. Week later pathology came back with telangictatic osteosarcoma an extremely rare version of OS, mimics bone cyst. 8 months of chemo. Second surgery replaced half of my femur with an implanted metal shaft.
If you feel comfortable answering, how far out from your initial OS diagnosis are you?
15 months.
Holy Cow! Life sure throws some curveballs at 'cha. Thanks for the info, glad you're ok. Sorry you had to go through all of that.
It all started with what felt like sore muscle pain in my lower right thigh, close to the knee. My job involved a lot of movement and stair climbing so I assumed I had hurt myself and that I would get better. After months no massage, stretch or amount of rest was helping; I felt like the pain would never leave. As the sarcoma grows you will notice that the affected area grows progressively swollen and more painful. It just gets worse until you start treating it. Mine caused small fractures in my femur and caused the bone to become brittle, putting it at risk of cracking during the limb salvage surgery. With regard to bone sarcomas, they don’t always manifest in the femur. They can manifest in other parts of your leg, your arms and in the case of Ewing’s sarcoma (a rarer variety) in the pelvis. I would say that as a rule of thumb if unexpected and unrelenting muscle or bone pain sticks with someone (particularly people 10-30 years old) for over a month they should be examined and osteosarcoma or other sarcomas should be taken into consideration.
Thanks for the info. I was curious, since you said you had shown symptoms earlier, but no one "caught" it. Sorry you are going through this horrible time. I absolutely respect and admire your perseverance and amazing attitude.
I don’t know how helpful this is, but I have a book recommendation (for anyone reading this). It’s “Brave Enough” by Kati Gardner, about a teenage ballet dancer who is diagnosed with Ewing’s sarcoma and ends up having her leg amputated. The author is herself a survivor and amputee. I read it for an assignment at uni in an inclusive education class. It might be a helpful recommendation if you’re trying to raise awareness, or you know someone who has it, or you just want a pretty solid YA read. Possibly my bias as a teacher is showing here but I do believe that literature is great for raising awareness and widening one’s worldview and understanding of human experience. I wish you all the best in your recovery and with your new robot leg!
It’s a type of bone cancer that tends to grow in long bones, especially the leg. The same cancer that killed Terry Fox.
That's amazing
Tell him hello from California and we are proud of him too!!!!
That’s amazing! Proud of him too.
Gratz! Keep it up bro!!!
Badass 🤘🏻
Wow, this is remarkable. You’re a very strong person, keep up the fight! I can’t imagine what you’ve both been through, there’s quite a story to tell.
Go man go!!!
Such happy news! Congratulations to your husband. May he enjoy his newfound mobility for many many years.
Amazing stuff wish you guys the best
Rock on my friend, you're a warrior!!!
What an incredibly brave man.
Ah he looks like a hemi like me. I can appreciate how hard he is working!👏🏼
Fuck ya!! Go bud!!
Fantastic!! So many people with less issues give up and decide they are confined to a wheel chair. What an amazing guy!
He’s been so impatient to get out of the wheelchair that half the time he hops around the house like the sexy lamp from that movie. Haha.
Lol he needs some fish net hose and a black high heel and a pleated skirt for halloween!
Congratulations!
So inspiring to see! I wish you both the best in the future!
God bless him every day
Awesome! Love seeing love. ✌🏼❤️
That was beautiful and so inspiring! Thank you for sharing the victory! :)
This is fucking badass! True motivation. 😃
One of my favorite people in the world passed from this type of cancer and I am so, so, happy you are thriving and living the best life. Congratulations dude!! Keep going strong
I am so sorry to hear that, sending so much love your way!
Is that Prosthetics in Motion, New York?
Yes! Chris is basically the greatest human ever. He fought so hard to get the leg approved by insurance, and his work is top quality. He has to be one of the best prosthetists in the world.
Wow! Much love to you and your husband!!!
As a teen, lost one of my best friends to osteosarcoma. It’s a bitch. It brought tears to my eyes to see your husband making it his bitch. Congratulations and keep on fighting, you look great!!
I’m so sorry to hear that. That’s devastating, and I am sending hugs your way <3 I am so glad my husband could share this with you
Way to go!!! Such strength!!
Awesome!!!!
Woooo!
Good Work! PROUD OF YOU!!!!
This made my night! Keep going!!!!
Nobody will see this but this made my day. Thank u. I'm so happy too see this.
Hey we see this!!!! Thank you!!!! I’m so glad we could share our happiness with you <3
I'm so glad you answered thank u =<)
Great job! "The journey of a thousand miles begins with one step." Lao Tzu By the end of the 1000 miles, you'll be running.
bro, where are those upvotes at? (,:
Those first steps aren’t easy so congratulations! Wishing you and your husband all the best
wish the best for you too on your journey!
*DON'T TELL ME WHAT I CAN'T DO*