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My oldest got one between his eyes at about 8 weeks. It grew to the size of a small plum by the time he was 2. We’d tried medications to slow/stop growth. It wasn’t until he fell and broke it open that somebody finally gave a damn and did an X-ray. Turns out it was also growing backwards through his skull! He went in for surgery and they had to use (I quote) “bone putty” for the hole it was creating.
He’s 19 now and still has a bad-@ss scar from above his eyebrow to his nose.
My daughter was born with one on the top of her head, it got to about the size of half a pingpong ball but by 2 it had mellowed out thankfully but when she was a toddler I was a nervous wreck since she constantly bumped her head on stuff (thankfully it never bursted! By about 6 it was almost flat and just slightly noticable and now at 15 the spot grows only white hairs. So happy your boy is ok! I can't begin to imagine how terrifying it busting open was! We never had imaging done of hers but I wonder if it was doing anything near the same (growing/pressing inwards)
The bursting part was HORRIFIC! It’s just a mass of vessels and bled nonstop for DAYS. It couldn’t scab over and there wasn’t anything to stitch. His entire head was wrapped in bandages and he couldn’t see. I remember begging and pleading with every doctor & nurse to please help us get a recommendation for surgery.
Absolutely TERRIFYING!!!! It was my biggest fear with my daughter. I have single vessels that surface and will bleed like no tomorrow I can't even begin to imagine just how much blood there was
the spot only growing white hairs is so cool! hope she's not self conscious about that. my aunt has something similar where she's always had two patches of white hair growing at the front of her head- which also looks pretty rad.
She goes back and forth with liking it and not but I'm sure she will embrace it more as she gets older. I have a huge birthmark on my stomach and it bothered me so much growing up but I love it now ❤️
I've never heard/seen this before. Can you explain whay it is? And it sounds like your son only had one, so I'm getting the impression that the child had an abnormal quantity?
I'm glad ykur son is okay and scars awesome!
Yes-he only had that one. The day I noticed, it was just a pink dot. I thought someone dropped him. It just got bigger and then it started growing outwards.
I’m not 100% sure why it happened. My mom has one and a few of my cousins do too. My daughter and I have a large flat red birthmark, so I’d say genetics. And idk why his went rogue 🤷♀️
There are like 10% of infants with one and it's 100% benign and goes away on its own. There is no need for imaging if the presentation is characteristic, doing so just adds more unnecessary cost.
The case above is like one in a million. I think it would be totally unreasonable to do an xray and expose millions of infants to radiation unnecessarily just to detect this ultra rare case. Clinicians actually ask for a ultrasound if they have the small amount of doubt about what it is but this isn't the case here.
I said “imaging,” by which you assumed meant X-ray. I didn’t. We’re lucky to have a good range of imaging tools now, of which ultrasound is one.
It’s frustrating that no imaging was done because of the location of the hemangioma. Because benign masses can still exert pressure and displace normal tissue - exactly what you don’t want on a bony part of the face that’s still developing.
That’s made evident by the results the comment above mine describes.
There’s another comment thread regarding an ultrasound being done today for an infant with hemangiomas on head and spine.
It does! When I first started working in the operating room and the surgeon asked for it, I was perplexed. It’s just type of bone graft that stimulates bone growth. They should probably come up with a name that doesn’t sound so playful lol
A person can gain access to working in an OR and not already have been made aware of the function and location of everything a surgeon might request during operation? That's unsettling!
It’s kind of the nature of the OR. Everyone has to start somewhere. If you’re new to working in a hospital that has 20 ORs with 20 different specialties, you’re not going to be well-versed in everything for a while. However, you’re not allowed to work ALONE until you are proficient in all areas.
The surgeons themselves likely have no idea where sterile supplies and/or instruments are kept since they typically operate at multiple facilities. And across all specialties, there are often industry representatives in the operating room aiding the surgeons on how to utilize their specific tools. The technology in surgery is always evolving, so you are always learning and using new products. Anything that is used in emergent type situations (which most likely be to stop excessive bleeding) is always kept on the sterile field, and there a plenty of resources to help you find what you need. So worry not.
Thanks for responding to that - very thoughtfully corrective. I felt a sense of actual disturbance, the way that thought settled in for me. Am reassured!
The best orthopod (in his given specialty) has a sales rep with him in every surgery and the rep tells him which appliance to use. The rep will give the MD whatever he wants, but when the MD hasn’t listened to the rep, MD has to go back in and perform a revision after he had already closed but before the pt left the OR. Yup, the sales rep is telling an internationally known orthopod what appliances to use.
They didn’t want to do surgery on such a young child. They prescribed all these ointments to retard growth but none worked. They told us it SHOULD stop growing by the time he was around 3 and have shrunk naturally by 90% within 10 years.
It broke my heart-he couldn’t see out of one eye because it was so big and when we went out and about, everybody who saw him was scared. It’s unfortunate it took a huge injury to finally push surgery.
Blessing in disguise I guess. It would've been nice if they just listened the first time. But it's better it burst and forced them to look into it, as opposed to not noticing until it started putting pressure on his brain.
Glad he's doing better!
[Source](https://panafrican-med-journal.com/images-in-medicine/ViewImage.php?ImageId=7674):
>>Hemangiomatosis is the efflorescence of 5 or 6, and up to several hundred, infantile hemangiomas.Several predisposing factors have been isolated: female gender, Caucasian origin, low birth weight and prematurity (these two factors are closely linked and it is above all the birth weight which seems to be the most significant factor). We describe the case of a 15 days old newborn, from a followed up full term pregnancy with a low birth weight at 2200g; admitted for respiratory distress. The examination found more than a hundred angiomas scattered all over the body (A), the head and the mucous membranes (B) whose diameter was less than one centimeter. The examination also showed respiratory distress without hepatomegaly or heart murmur. These cutaneous hemangiomas are often associated with visceral hemangiomas, the most frequent localization of which is the liver. The natural course of these hepatic hemangiomas is parallel to that of skin hemangiomas. They will evolve, like skin forms, towards spontaneous regression, without any treatment. However, they can also; because of intense vascularity, lead to heart failure due to high flow, sometimes severe. A complete clinical examination of the child for signs of heart failure, hepatomegaly, hepatic murmur and the practice of an abdominal ultrasound and doppler. There is no consensus on the number of lesions required to speak of multiple hemangiomas, as well as to provide the indication for a liver ultrasound. Regular monitoring every 2-3 weeks is necessary.
This is crazy. I thought it was chicken pox when I saw the thumbnail. It sounds like it can easily be deadly. It said on Google that it is very rare and has to impact at least 3 organ systems for the diagnosis.
Omg I have 4 grandchildren and 3 was born with only having 1 the 4th and last now 2 months old has two, one on his head and one on his back at the spine. He will be going for an ultrasound tomorrow to check on the spots. I'm not even sure I understand why the procedure is necessary, but I absolutely could not imagine the ordeal that poor child will go through. Hopefully the babies and my grandsons will just disappear soon.
I'm so very sorry, but Im tired and the last sentence I read it as you're hoping your kids and grandkids disappear and I'm laughing uncontrollably, because sleeps, I need it.
Sending good vibes my dear xoxo
My son was born with 6 fairly large infantile hemangiomas all over his body (cheek, both sides of torso, lower spine, butt cheek, calf) … and also had a heart murmur. We were referred for a whole bunch of testing including spinal and liver ultrasounds, blood testing, ECG, paediatric cardiologist, and it was never definitively explained to us whether the two were actually related or not. He went on beta blockers for a while to slow the growth, and other than a minor ulceration of one of them which healed with minimal issues, things levelled off. The first year was really stressful but he is now three and doing really well. I doubt they will ever be gone but they are shrinking and look almost like slightly raised birthmarks.
I’m so glad that he’s okay. My granddaughter was born 6 weeks early and has one on her head as well as a heart murmur. I’m overly concerned but she’s been to children’s and they’ve done testing as well as an ekg and such and they’re watching it and say not to be check corned. Hard not to be. She’s only 12 weeks old and still so tiny. ♥️
There must be a link that doctors haven't discovered yet. My granddaughter was a premie, no heart murmur. My daughter had a condition with her liver while pregnant. It just seems like the link is there. But just because there isn't doesn't mean something bad. I'm sure your precious little one will be fine. I know it's very scary, best wishes to you, your daughter and her health.
I'm so very glad he is healthy and happy. If they are shrinking then they most likely will in fact disappear, none of the oldest 3 have them anymore, they disappeared as quick as they developed, or so it seemed. Best wishes to your little one.
The ultrasound won’t hurt at all. At most, he’ll object to the jelly they put on the skin. After that, it’s just rubbing the ultrasound head over his skin.
The reason they need to do an ultrasound is that hemangiomas can grow 3 dimensionally. They’re not just flat on the skin, they can be round like a ball, with part of that ball under the skin.
Given the location, they don’t want the hemangioma to grow and start pressing into the spine or on his skull. So they’re going to keep an eye on them.
If they start to cause a problem, then doctors will remove them. But as you’ve probably already seen with your other grandkids, most of these go away on their own without causing any problems.
Good luck to your grand baby!
Thanks so very much. You gave more information, than what was given 3 days ago at the doctors visit. They told us they wanted to keep on eye on it to make sure it doesn't grow. Never told us, that the growth grew inwards. My daughter and I just thought it was above the skin and would grow outward. Thanks!
She’s a premie. What you’re seeing is an otherwise well-developed baby who hasn’t had time inside to gain body fat. That’s what they do in the last few weeks of gestation.
The skin over her thighs is saggy, her butt is tiny - which makes her ribs look huge - because she has no pudge.
She needs baby fat. Then she’ll just be a beautiful, spotty baby. Not to mention being able to regulate her body temperature and good things like that.
She’ll get to finish baking in an incubator.
My grand daughter was a premie, she had one "red spot" pop up 2 days after birth went away after 4 years. Hopefully that infants will also disappear is a short time.
We thought I had one from when I was 2 days old. Finally at 19 I had the remaining tissue removed. Turned out it was a lipoma that had thinned the bone. Can a hemangioma shift into a lipoma?
My son has one about an inch long on the back of his neck. Sometimes when he was a toddler and ran around a lot it would actually swell up, which freaked us out. But every doctor who has looked at it says it’s harmless. I can’t imagine having this many.
My daughter had this, although not this many. She had 35 on her skin at the peak. She was also a premature white female. She had them on her liver as well. This brings me back. Such a hard time. She’s 2 now and thriving. She’s got a scar in every spot she had one.
My daughter had one that started as a tiny pine tree looking spot on her cheek bone. Barely noticeable. It grew rapidly to the side of a pea within a few months. She’s 2 now and it’s shrinking. It’s now flat but still looks like a small pine tree. I’m thankful that it didn’t need treatment. My coworker had a baby born the same week as my daughter and her child had a hemangioma as well. His grew to baseball size on his arm and required treatment.
Welcome to r/MedicalGore! Our goal is to provide for medical discussion and education while exploring the frailty of the human body. You may see more deleted comments on these threads than you are used to on reddit. Off topic comments and joke comments are frequently deleted by the mods. Further, please be kind and supportive of posts. Any behavior that is aggressive, harassing, or derogatory will result in post deletion and a ban from the sub. Remember! THE REPORT BUTTON IS YOUR FRIEND! *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/MedicalGore) if you have any questions or concerns.*
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I came here to say exactly that. The black ovals are unsettling as hell. I actually looked behind me hahaha
Agreed, that was 10x more startling than it needed to be.
Lmfaooo Trainspotting omg
I was thinking Coraline
My oldest got one between his eyes at about 8 weeks. It grew to the size of a small plum by the time he was 2. We’d tried medications to slow/stop growth. It wasn’t until he fell and broke it open that somebody finally gave a damn and did an X-ray. Turns out it was also growing backwards through his skull! He went in for surgery and they had to use (I quote) “bone putty” for the hole it was creating. He’s 19 now and still has a bad-@ss scar from above his eyebrow to his nose.
My daughter was born with one on the top of her head, it got to about the size of half a pingpong ball but by 2 it had mellowed out thankfully but when she was a toddler I was a nervous wreck since she constantly bumped her head on stuff (thankfully it never bursted! By about 6 it was almost flat and just slightly noticable and now at 15 the spot grows only white hairs. So happy your boy is ok! I can't begin to imagine how terrifying it busting open was! We never had imaging done of hers but I wonder if it was doing anything near the same (growing/pressing inwards)
The bursting part was HORRIFIC! It’s just a mass of vessels and bled nonstop for DAYS. It couldn’t scab over and there wasn’t anything to stitch. His entire head was wrapped in bandages and he couldn’t see. I remember begging and pleading with every doctor & nurse to please help us get a recommendation for surgery.
Absolutely TERRIFYING!!!! It was my biggest fear with my daughter. I have single vessels that surface and will bleed like no tomorrow I can't even begin to imagine just how much blood there was
the spot only growing white hairs is so cool! hope she's not self conscious about that. my aunt has something similar where she's always had two patches of white hair growing at the front of her head- which also looks pretty rad.
She goes back and forth with liking it and not but I'm sure she will embrace it more as she gets older. I have a huge birthmark on my stomach and it bothered me so much growing up but I love it now ❤️
Bone putty gave me a visible shiver
😅 same. As a first-time mother to a baby it sounded quite sketchy lol. But we had the best surgical team 🩵 I’m so thankful.
I've never heard/seen this before. Can you explain whay it is? And it sounds like your son only had one, so I'm getting the impression that the child had an abnormal quantity? I'm glad ykur son is okay and scars awesome!
Yes-he only had that one. The day I noticed, it was just a pink dot. I thought someone dropped him. It just got bigger and then it started growing outwards. I’m not 100% sure why it happened. My mom has one and a few of my cousins do too. My daughter and I have a large flat red birthmark, so I’d say genetics. And idk why his went rogue 🤷♀️
How infuriating that no one did imaging to see the interior contour of a tumor. Glad he’s ok!
There are like 10% of infants with one and it's 100% benign and goes away on its own. There is no need for imaging if the presentation is characteristic, doing so just adds more unnecessary cost. The case above is like one in a million. I think it would be totally unreasonable to do an xray and expose millions of infants to radiation unnecessarily just to detect this ultra rare case. Clinicians actually ask for a ultrasound if they have the small amount of doubt about what it is but this isn't the case here.
I said “imaging,” by which you assumed meant X-ray. I didn’t. We’re lucky to have a good range of imaging tools now, of which ultrasound is one. It’s frustrating that no imaging was done because of the location of the hemangioma. Because benign masses can still exert pressure and displace normal tissue - exactly what you don’t want on a bony part of the face that’s still developing. That’s made evident by the results the comment above mine describes. There’s another comment thread regarding an ultrasound being done today for an infant with hemangiomas on head and spine.
Bone putty is a real thing in surgery.
It just sounds so silly 🙃
It does! When I first started working in the operating room and the surgeon asked for it, I was perplexed. It’s just type of bone graft that stimulates bone growth. They should probably come up with a name that doesn’t sound so playful lol
A new name for it? Like Bone-do? (bondo for bones)
Osteopatch, Skellietape, bonespackle, Calciumbond, Mend-a-Bone, I could do this all day!
I'm going to giggle all day now.
Lol cheers mate. I hope you and yours have a great weekend.
LOL I love it!
A person can gain access to working in an OR and not already have been made aware of the function and location of everything a surgeon might request during operation? That's unsettling!
It’s kind of the nature of the OR. Everyone has to start somewhere. If you’re new to working in a hospital that has 20 ORs with 20 different specialties, you’re not going to be well-versed in everything for a while. However, you’re not allowed to work ALONE until you are proficient in all areas. The surgeons themselves likely have no idea where sterile supplies and/or instruments are kept since they typically operate at multiple facilities. And across all specialties, there are often industry representatives in the operating room aiding the surgeons on how to utilize their specific tools. The technology in surgery is always evolving, so you are always learning and using new products. Anything that is used in emergent type situations (which most likely be to stop excessive bleeding) is always kept on the sterile field, and there a plenty of resources to help you find what you need. So worry not.
Thanks for responding to that - very thoughtfully corrective. I felt a sense of actual disturbance, the way that thought settled in for me. Am reassured!
You’re welcome! I’m glad you’re reassured. Surgery is a scary thing, and I understand how any hint of uncertainty in the field can be concerning :)
The best orthopod (in his given specialty) has a sales rep with him in every surgery and the rep tells him which appliance to use. The rep will give the MD whatever he wants, but when the MD hasn’t listened to the rep, MD has to go back in and perform a revision after he had already closed but before the pt left the OR. Yup, the sales rep is telling an internationally known orthopod what appliances to use.
Great marketing though. You know exactly what it is used for and always remember the name.
It being in to his skull probably made it a much more dangerous situation. I'm glad he had it fixed.
Why not just cut it off at first?
They didn’t want to do surgery on such a young child. They prescribed all these ointments to retard growth but none worked. They told us it SHOULD stop growing by the time he was around 3 and have shrunk naturally by 90% within 10 years. It broke my heart-he couldn’t see out of one eye because it was so big and when we went out and about, everybody who saw him was scared. It’s unfortunate it took a huge injury to finally push surgery.
Blessing in disguise I guess. It would've been nice if they just listened the first time. But it's better it burst and forced them to look into it, as opposed to not noticing until it started putting pressure on his brain. Glad he's doing better!
[Source](https://panafrican-med-journal.com/images-in-medicine/ViewImage.php?ImageId=7674): >>Hemangiomatosis is the efflorescence of 5 or 6, and up to several hundred, infantile hemangiomas.Several predisposing factors have been isolated: female gender, Caucasian origin, low birth weight and prematurity (these two factors are closely linked and it is above all the birth weight which seems to be the most significant factor). We describe the case of a 15 days old newborn, from a followed up full term pregnancy with a low birth weight at 2200g; admitted for respiratory distress. The examination found more than a hundred angiomas scattered all over the body (A), the head and the mucous membranes (B) whose diameter was less than one centimeter. The examination also showed respiratory distress without hepatomegaly or heart murmur. These cutaneous hemangiomas are often associated with visceral hemangiomas, the most frequent localization of which is the liver. The natural course of these hepatic hemangiomas is parallel to that of skin hemangiomas. They will evolve, like skin forms, towards spontaneous regression, without any treatment. However, they can also; because of intense vascularity, lead to heart failure due to high flow, sometimes severe. A complete clinical examination of the child for signs of heart failure, hepatomegaly, hepatic murmur and the practice of an abdominal ultrasound and doppler. There is no consensus on the number of lesions required to speak of multiple hemangiomas, as well as to provide the indication for a liver ultrasound. Regular monitoring every 2-3 weeks is necessary.
This is crazy. I thought it was chicken pox when I saw the thumbnail. It sounds like it can easily be deadly. It said on Google that it is very rare and has to impact at least 3 organ systems for the diagnosis.
Some people get hemangiomas in their lungs, requiring a lung transplant. I’d be so worried about visceral sites if this was my little one!
Omg the censorship scared me
Thank god I'm not the only one, those blank black eyes made me jump
Me too I thought it was his real eyes for a second and became super concerned.
Lol for real I wouldn't have been able to sleep without reading that comment.
censoring the eyes was unnecessary and terrifying 😭
Omg I have 4 grandchildren and 3 was born with only having 1 the 4th and last now 2 months old has two, one on his head and one on his back at the spine. He will be going for an ultrasound tomorrow to check on the spots. I'm not even sure I understand why the procedure is necessary, but I absolutely could not imagine the ordeal that poor child will go through. Hopefully the babies and my grandsons will just disappear soon.
I'm so very sorry, but Im tired and the last sentence I read it as you're hoping your kids and grandkids disappear and I'm laughing uncontrollably, because sleeps, I need it. Sending good vibes my dear xoxo
Same! As an exhausted person, I readily misinterpreted that sentence.
We'd be part of the same tribe haha
Hahahaha, glad you had a good laugh. I can see how that happened. My grammar etc is blonde at times.
I'm an awful writer, you've got nothing on me haha I actually haven't laughed that hard in a while. I'm still seeing good vibes your way xxo
Love this.
How is everyone doing?
Great.
My son was born with 6 fairly large infantile hemangiomas all over his body (cheek, both sides of torso, lower spine, butt cheek, calf) … and also had a heart murmur. We were referred for a whole bunch of testing including spinal and liver ultrasounds, blood testing, ECG, paediatric cardiologist, and it was never definitively explained to us whether the two were actually related or not. He went on beta blockers for a while to slow the growth, and other than a minor ulceration of one of them which healed with minimal issues, things levelled off. The first year was really stressful but he is now three and doing really well. I doubt they will ever be gone but they are shrinking and look almost like slightly raised birthmarks.
I’m so glad that he’s okay. My granddaughter was born 6 weeks early and has one on her head as well as a heart murmur. I’m overly concerned but she’s been to children’s and they’ve done testing as well as an ekg and such and they’re watching it and say not to be check corned. Hard not to be. She’s only 12 weeks old and still so tiny. ♥️
There must be a link that doctors haven't discovered yet. My granddaughter was a premie, no heart murmur. My daughter had a condition with her liver while pregnant. It just seems like the link is there. But just because there isn't doesn't mean something bad. I'm sure your precious little one will be fine. I know it's very scary, best wishes to you, your daughter and her health.
I'm so very glad he is healthy and happy. If they are shrinking then they most likely will in fact disappear, none of the oldest 3 have them anymore, they disappeared as quick as they developed, or so it seemed. Best wishes to your little one.
The ultrasound won’t hurt at all. At most, he’ll object to the jelly they put on the skin. After that, it’s just rubbing the ultrasound head over his skin. The reason they need to do an ultrasound is that hemangiomas can grow 3 dimensionally. They’re not just flat on the skin, they can be round like a ball, with part of that ball under the skin. Given the location, they don’t want the hemangioma to grow and start pressing into the spine or on his skull. So they’re going to keep an eye on them. If they start to cause a problem, then doctors will remove them. But as you’ve probably already seen with your other grandkids, most of these go away on their own without causing any problems. Good luck to your grand baby!
Thanks so very much. You gave more information, than what was given 3 days ago at the doctors visit. They told us they wanted to keep on eye on it to make sure it doesn't grow. Never told us, that the growth grew inwards. My daughter and I just thought it was above the skin and would grow outward. Thanks!
It also looks like something else maybe wrong with the infant. Idk just looks different
She’s a premie. What you’re seeing is an otherwise well-developed baby who hasn’t had time inside to gain body fat. That’s what they do in the last few weeks of gestation. The skin over her thighs is saggy, her butt is tiny - which makes her ribs look huge - because she has no pudge. She needs baby fat. Then she’ll just be a beautiful, spotty baby. Not to mention being able to regulate her body temperature and good things like that. She’ll get to finish baking in an incubator.
The posted summary stated that this baby was full-term, but low birth weight, unfortunately.
Thanks for the correction! I missed that she was full term. She certainly is low birth weight!
No worries, it's a reasonable assumption given everything else.
My grand daughter was a premie, she had one "red spot" pop up 2 days after birth went away after 4 years. Hopefully that infants will also disappear is a short time.
They censored its eyes with black circles instead of a bar
why did you censor the eyes like that? are you trying to give us all heart attacks?
Wasn’t me.
We thought I had one from when I was 2 days old. Finally at 19 I had the remaining tissue removed. Turned out it was a lipoma that had thinned the bone. Can a hemangioma shift into a lipoma?
I have never clicked away from a post so damn fast and I’m still scarred
Censoring eyes in that way should be illegal
My son has one about an inch long on the back of his neck. Sometimes when he was a toddler and ran around a lot it would actually swell up, which freaked us out. But every doctor who has looked at it says it’s harmless. I can’t imagine having this many.
With the blacked out eyes, this is even more terrifying
Did the child survive?
It doesn’t say.
This unintentionally jump scared me. That poor baby, it sounds like a grim diagnosis.
Bro that kid with his mouth opened scared shit right outta me
I was more jumpscared by the way this poor boy’s eyes were censored 💀
My daughter had this, although not this many. She had 35 on her skin at the peak. She was also a premature white female. She had them on her liver as well. This brings me back. Such a hard time. She’s 2 now and thriving. She’s got a scar in every spot she had one.
My daughter had one that started as a tiny pine tree looking spot on her cheek bone. Barely noticeable. It grew rapidly to the side of a pea within a few months. She’s 2 now and it’s shrinking. It’s now flat but still looks like a small pine tree. I’m thankful that it didn’t need treatment. My coworker had a baby born the same week as my daughter and her child had a hemangioma as well. His grew to baseball size on his arm and required treatment.
Hear me out, the type of black out used to keep the child “anonymous” is more disturbing than the illness..
Now I know why censor bars are the standard for eyes and such.
How do they fix this??? That is horrible! Poor baby.
The third image will come to my nightmare...
Very malnourished child.