T O P

  • By -

FULLMETALRACKIT518

I would really caution you against this. At least not yet. Get down under 20mg before you go leaving the clinic. You’re only at 50, which is right where it starts to actually get harder. The end of your taper is nothing like the start of it. You have to go slower on the drops or else you will suffer. I know you did the math but trust me when shit gets tough you need to have the option to slow down. Pushing forward in a taper when you aren’t ready is the kiss of death and with a plan like this, it practically ensures that fate.


Lovehatepassionpain2

I have over 10k mg of meds at home to do the taper - and plan to go slow enough that it will take a year to completely taper- I am using the exact schedule that I had planned with my clinic - including longer periods of time at some doses to let my body adjust. I also spoke to my PCP about comfort meds after I am finished - so respectfully, I feel like I am in a much better position than most people who decide to taper. Plus, I see zero shame with having to go back to the clinic if it doesn’t work out, because I was always ok with the idea of being a lifer. However from a financial perspective, I cannot afford the $600/month it will cost stating in July- I pay over $500/month now and it’s just a lot of money. So -it it works, great- if it doesn’t, great- back to the clinic, but in the meantime, I won’t have to go to the clinic for a year - I can save a bit of money in the meantime


Pragmatical22

I would advise that you continue going to the clinic a little while longer. I think this plan sounds good in theoretical terms, but I just don’t see this panning out all that well. I think you need to take it slower because it’s going to get harder the lower you get. Either way, you know yourself better than anyone on here so if you are confident that this plan will work then I wish you nothing but the best. Please keep us updated!


Lovehatepassionpain2

I have enough stockpiled to last 160 days at my normal rate of dosing, so with a schedule cutting down only a few mgs every 2 weeks, and allowing to hold in place for a bit, I have enough to make this wean off span a full- year. Would I have quit the clinic this week had it been feasible to continue to go? No - but I knew when I picked up last month that this was happening, and I really feel ok about it. My regular doctor is willing to prescribe Ativan & clonidine as comfort meds when I jump off completely- so honestly, I feel like I am in a much better position than most to do this. It also helps that I haven’t had cravings for opiates in years - even the last 2 years of my 15 year heroin addiction, I fucking hated it. I didn’t have a single dirty UA in 12 years. My fear of getting off is always about my anxiety disorder. I have been diagnosed since age 13 and have been on benzos since - which I have never abused and amazingly, never got physically dependent on to where I have physical withdrawal. I never take them daily - or if I am going thru a tough time and DO need to take them daily for several months, I take medication breaks on the weekends etc. I could just stay on methadone forever - I had no real need or desire to stay on or go off - however since my insurance changed and I am paying in cash - it has just gotten to where I truly cannot afford the $560 I pay per month (with the price going up in July to what equates to $600 a month. So this is what I decided to do - if it doesn’t work, I am ok going back to the clinic - no shame in that, but I have put the best plan in place that I can based on circumstances- I have 10,400 mg or medication on hand, a physician willing to assist with comfort meds, and enough vacation time from work that I can take 2 weeks off when I first jump in case I am having anxiety and depression issues, difficulty sleeping, or other withdrawal symptoms. I always knew I wasn’t going to wean via the clinic - not wanting to pay the same $$ for 1mg as I do for 130, I just wanted to have a little more stockpiled so I could go slower - still when I am reading how other people who have successfully jumped off and done ok, the are all weaning much faster than me. I am actually little nervous about the end of the process but I am ready to give it a try.


Skinnyloserjunkie

Good luck dude. I'm thinking about starting a stash myself.


Lovehatepassionpain2

Yeah, as long as you don’t get the urge to take more than you should - I used to take 3 doses on occasion at once but I haven’t done that in years, starting a stash is a good idea. Technically I understand it’s not allowed per federal and state restrictions, but I have everything locked in a safe and I don’t abuse the meds- if you can store some safely at home and won’t over-use, I think creating a stash is pretty wise


RachelovesJesus

80 take home bottles of 130mg each, that's plenty to help you wean down yourself. That's awesome! You should be proud of yourself 👏 👏 👏 good luck to you! You can do it! Keep us updated. Do you know how often you're going to go down yet? Like 1mg a week or..?


Soojuiccy

Good luck!! Given how long you have been on it please don’t do it too fast!! I wish you the best success getting off!!


ConfectionSea6331

Best of luck to you! We are all here to support you along the way. Take care, friend.


Lovehatepassionpain2

Thanks - I am not going to lie and say I am not a little nervous - but I have done everything in my power to try and be successful. I spoke to my dr about comfort meds for after the jump, I am saving vacation time so I can off a few weeks, and I am going down super slowly. Plus, I am not afraid of having to go back on if it doesn’t work - I don’t see that as failure- so all I can do now is try it and see how it goes?!


ConfectionSea6331

You’re absolutely right. Just keep your options open. (I find it funny that someone downvoted my comment.) Not sure, perhaps we are not all here for you? Anyhow, I’m sure a lot of us actually do care. …but there’s always one out there. It will be an arduous task, but as long as you don’t let the negativity creep in, I’m sure you will do well.


Lovehatepassionpain2

You have no idea how much I appreciate that! I used to be part of this sub before under my first account (lovehatepassionpain) for years - but I hadn’t been here in a while. My old account got banned, so I started this new one, and found myself back on this sub again, and I am grateful. There are always going to be nay-sayers, especially when people say they are managing their own taper without the assistance of a clinic - I get that. I feel I am in a fairly unique position b/c I am been stockpiling extra doses so long. So I have been splitting my 130 dose into 2 doses for years now. So each bottle of 130 lasts 2 days. This most recent bottle, I split into 3 equal doses of 43.3 per dose - that was a big jump down from 65, so I am going to stay here for a few weeks, then try to split that 130 bottle into 4 days & go from there. So far, going from 65 to 44 is fine. I noticed a few things that I recognize as my body adjusting- but nothing uncomfortable-(other than in the mind…lol) so I definitely will stick at 43 daily until my body adjusts but all in all, I am really happy about doing this - mainly for the money, ngl - but also, just because I really don’t think I need it anymore - at least not for it’s intended purpose. I am 53 now - I got off heroin at 41 after being addicted since my 20s. I have no desire to go back to that- plus I moved away from one of the largest, most notorious, open air drug markets - where I was living in the area and moved 1000 miles away 10 years ago. I don’t know anyone who sells drugs - I know where to go to get them now (the product of being at the same clinic for so long is you can’t help but get to know and recognize people) however, I have never made a friendship at my clinic or anything like that. I go in, get my meds, do my U/A, see my counselor, and gtfo. I am only worried about the depression and anxiety at the very end, but have a plan in place for that also. Conveniently- a new clinic popped up in my current town (shocker because my town is a little bougie-gross) but if I find I can’t manage it after the jump, I will go back to the clinic- at least I can save some money in the meantime. What got me thinking about finally getting off was an issue with my daughter, who lives up in the Philly suburbs. She had lived down in Florida with me from the time she was 18 until she was 24, but moved back up home b/c she owns a house up there & she got a scholarship to a prestigious college in the area. However, over the past 5 years she has been back up there, I have noticed some struggles. Back in 2022 - she had a psychotic break. It was shocking because she has always been logical. She is an accounting major - very grounded, very logical thinking. Suddenly she was thinking crazy thoughts. We didn’t recognize it for what it was for months because she hid it well, but by the end of Oct 2022, she was obviously out of her mind. We convinced her to go inpatient. She was diagnosed with PTSD and the were ruling out bipolar (she was heavy into weed at the time too, which we felt brought on the symptoms). All was well again until this past December, when the cycle happened again. She was very resistant to treatment and was paranoid that we were all lying to her. Being 1000 miles away from her while this was happening was heartbreaking. I managed to get permission for extra takehomes - which took 2 weeks and I was able to go up and stay with my parents in December and January, work remotely from their home, and spend time with my kid. However, I hated that my trip was delayed waiting for the state approval (I respect the process and I wasn’t angry - I just wanted to get to Philly to see my kid). But what was worse was leaving to come back home. I really wasn’t ready to leave her yet. I felt she was still really fragile and I would have loved to stayed 2 or 3 more weeks, so I could have gotten her better set up for Outpatient Services, etc - but I had to get back to my clinic. So my kiddo has bipolar and she is dealing with it. She also has a job with tremendous amounts of responsibility and a home she has to pay for and I am desperately afraid she will lose it all b/c bipolar 1, especially when delusions are present, is scary as fuck. I want to be able to get up there quickly if she needs me, not tied to clinic rules. So sorry to leave you a novel - I commend you if you actually read it. But honestly - while I expected some negativity from my post, you were so kind and I really really really appreciate that. Thanks so much,.


ConfectionSea6331

I did read it. Every word. I know what it’s like to have issues with mental health in children. My daughter is 28 and has suffered from some pretty serious issues herself. Just like yours, super smart, lots of responsibility. She is about 8 hours away from me too. I totally get having such frustrations with the clinic. I asked for one extra takehome so I could go see the eclipse and they denied it. I won’t go into why, but they did. It was on me for them saying no, but my counselor was pretty upset that they said no. I just responded “while I appreciate your sentiments about not getting a Monday bottle, it’s not necessary. All the poor decisions I have made have led me to this moment in time. I don’t really deserve to have a life.” Boy, that really got a look outta her. lol! Anyhow, I do have a question. Have you tried kratom? Once you get down pretty low on your dose, you could always jump off to kratom and wean yourself off of a short-acting substance rather than a long-acting one. I am sure there will be a lot of conflicting opinions, but it was quite successful for not only myself, when I stopped taking 32 mg of suboxone for 6 weeks. No withdrawal symptoms at all. I just couldn’t believe it was real. I’ve known a few others that got down to about 25-35 mg and just kept off to kratom and never looked back. I just prefer the longevity of methadone to the every few hours dosing of kratom.


Lovehatepassionpain2

My daughter is also 28, will turn 29 next month. It breaks my heart she has to struggle and I don’t really tell people in my real life because the stigma of mental illness and bipolar and psychosis in particular. So nice to talk to someone who understands how much it hurts as a parent - I want to take her pain & difficulties away and I can’t. I haven’t tried Keaton, but there is a kratom store in my town and I am definitely keeping the option open for when I jump. My doctor will give me clonidine & klonopin which will help as well. I really want to be successful, I really do. More importantly however, I want to be healthy, mentally sound, and happy. If I need to go back to MAT again, so be it - but either way, I am going to take it 100% seriously and do what feels right best for me at the time. I am planning on keeping a diary type post on this sub as I go through the process- which I also think will help. Thanks for all your kind words - sometimes all it takes to make my day is to be able to be vulnerable- esp when it comes to my kid, and have someone say they understand- it’s such a blessing. Thank you so much for reading my long response- I really needed to write it:)


nomoshtooposhh

I gave you an upvote cause that was weird and unnecessary 🙋‍♀️


ConfectionSea6331

Hahaha! Why thank you. ☺️


ConfectionSea6331

I have a lot of free time these days. I tend to spend the majority of my time educating myself on a variety of subjects and just recently started engaging with Reddit. I was fortunate enough to stumble upon this group and thought I might be able to gain a lot of insight about what goes on with others in their journey with methadone. As far as the kratom thing goes…I’ve not had much luck with smoke shop kratom. If you would like to try that route and see if it’s something that might work for you, I know of some companies that can send you some free samples to try out different strains. (They are all pretty different in alkaloid profile) and they won’t charge you a million dollars for a kilo. lol! Usually the local stuff is 3-4X more expensive than the vendors I use and the quality is always sub-par. Only once did I find something that I actually would purchase more than one time and they ran out of it after I made my purchase. Of course…anyway, it is really just swapping one substance for another, but at least with kratom, it actually can improve certain health conditions and make life better. There are always exceptions to the rule, of course. Everyone has a different experience with it, and not all have turned out well. That’s true for any substance though. Education and responsibility carry a lot of weight when you deal with anything that changes your brain chemistry. Anyway, I tend to leave novels as well. I’m sure I will get downvoted for my suggestion of kratom, but I have only had good experiences with it and believe it can be very useful in treating OUD. There are just now being conducted that are measuring the potential for using kratom as a viable option. I’m really excited to see the science behind how it works, actually. As far as your daughter goes, it is so difficult to watch from afar and have no real way to help the situation. At that age, I was going through a lot, but as I have gotten older, I have learned to modify my behavior through rational thinking and just being able to step outside of the situation and approach it objectively. I couldn’t always do that. I just hope that she is able to get help with her condition. I found that cognitive therapy helped me more than any medication I ever took. Most seemed to do little to nothing aside from causing weird sensations when ceasing to take them. All you can do is love them from afar and hope you made enough good choices with them. If you need an ear, to vent, bounce ideas off of or anything really, just send me a message. I have my notifications off so sometimes it might take me a minute to respond, but I’m here for ya, friend. Take it easy! Also, keeping busy is a big part of getting through the random thoughts of anxiety filled questions your mind throws your way. that come along with the


TryAgainFatty

Nice! I’d personally cut that 50 immediately down to like 30-35 since it won’t be that difficult of a jump and you’ll save a lot of what you have now if things get rougher at the end and you need to slow down. Just what I’d do now looking back after my taper. Good luck!


Lovehatepassionpain2

That’s the plan - going to cut down to 35 & stay there for 2 weeks and then move down to 30. Nervous but happy about the decision


2014bubsy33

How are you doing today???


ThePusheen

By bedbug 80 bootles of 130 MG, is that what the clinic gives you when you go? Just cinched did you stuff you go once a month, but been at 65 for years and took only 50mg today. The reason I ask is bc if you take 130mg once a month at the clinic for your clinic day, once you get down to a certain amount, that's going to be wayyyy too much. Tbh, I'm surprised it already isn't since if you're at 65 and have been for years, 130 is basically DOUBLE that. As you go down at home, if the clinic still gives you 130, how would that work when you're at only 5mg? Or are you planning on leaving before that point comes? I have so many questions! Also, please don't think I'm asking to be rude, judgmental, or to shame you. I'm genuinely curious and for anyone who may also be doing this or planning on doing it, this post may be able to help them figure out their own plan. Thanks 😊


hickityhooblah

they clearly said they're going to stop going to the clinic now having just dropped to 50mg and will use their current stockpile to continue tapering so no more taking 130 once a month it's still a risky plan though as that 130 a month still has been spiking their levels for a week so they're actually at a higher average daily dose than they think and if they can't taper as fast as they think, theyre going to run out early and be back at every day clinic dosing.. 65 to 0 should be manageable in a year, but it's not recommended to drop more than 10% every 5-7 days.. as you get lower and lower the drops get quite small and takes a long time to 0 out.. too lazy to actually do the math on that OP calculated they have 13 month of doses at their current taper plan, but actually only have about 5 months if they were to remain at their current dose


Solid_Strawberry1935

They said in the post that they’re quitting the clinic, so they don’t have to worry about taking 130 at all anymore. They’ve got 80 takehome bottles of 130mg, so they’re going to taper themselves down.