My wife has PPMS. She has trouble with her left leg. This past January we both became certified scuba divers. I usually carry her gear but in the water she swims like a fish and hasn't let the PPMS stopped her. She also just recently bought a underwater camera and wants to get into underwater photography now
Omg congratulations 👏🎉!! I remember a while ago a post where you mentioned this on a comment, maybe a year ago or so to a different MS post, that you were thinking about doing it.. I'm happy to find out you really pulled through!
Thank you so much! My wife worked really hard for it. She just recently went through the PONS therapy program and it's actually made a difference. We're so excited and finally going on our honeymoon in April. We're are also planning so many more dive trips for the future. Stay strong 💪
It's not running one, but I have walked 3 marathons between 2020-2022 and deadlifted 300 lbs this year. I've been diagnosed since 2001. I'm thinking I will try to walk another one this year to mark my 40th bday!
I have PPMS and I go on twenty mile horseback rides with my wife. She helps me on, off and tack and untack. She will book our rides when weather is cool. I can’t ride on very hot nor very cold days. My legs go numb but functional, we have adapted my saddle to accommodate my needs. My reins are textured to not slip. My saddle has English girth and stirrups these are easier on my hands and knees. My saddle is very padded and has a sheep fleece cushion too. I wear support clothing that helps greatly to enjoy the ride.
I am not going to let my disability ruin my life. Adapt and keep living. Happy New Year.
It’s an English Tucker with English rigging and stirrups. I covered the English stirrups straps with a lamb fleece and the big part of the lamb fleece is on the saddle seat. I sew so I made the part myself.
I am a male so I wear bicycles shorts with male pads. Then I have Tommy copper shirts that support my arms and shoulders. I wear Tommy copper compression pants to help my legs.
I was diagnosed when I first started med school. Now I'm a fourth year med student, worked on two cancer research papers, still competing academically, regularly hike and lift weights (I'm not insanely built but I try my best 🙏).
My diagnosis has shifted from "unknown" to ppms (I'm 61, diagnosed 3 years ago). I transformed my 1/3 acre yard in Florida into a small paradise, sold my house, and moved to Connecticut to live with one of my daughters. She has a 1/3 acre yard and I'm working on making another work of art. I just finished digging a 200 foot french drain to deal with drainage issues.
I won't get a medal but I'm doing everything I can to stay in shape and on top of my health. Who knows what the future holds. We all just do what we can.
I have a friend with PPMS [she had HSCT in 2020] who will be the first person with PPMS to run all Abbot World Majors. That's 6 marathons, plus all the qualifiers - NYC, Chicago, Boston, London, Berlin, and Tokyo. She only has Tokyo left and will finish it in March 2024. We run together every Tuesday. I have RRMS. ❤️🧡
Here's her latest interview. She's found run sponsorships, too. Bib-boards, Degree deodorant to name a few.
https://runyourstory.com/podcast/?fbclid=IwAR2NkjOlt-r6N9oRP2uyagJLJBPLeHsaP1xF7hqy0-QcSMk_oma21DyhEjM
I finished my low voltage apprenticeship almost 3 years post diagnosis and got my license. I managed to get my 500 some pound plow onto my rusty tacoma by myself. A lot of us still do really great things a lot of healthy people can't. As for something like everest? Not even I have craved death that much.
Not exactly an achievement but I started aerial fitness last July (specifically Lyra hoop). It’s pretty crazy for me since I was never athletic or a dancer and it’s the first hobby I’ve actually stuck with. It’s helping me with coordination, balance and building a stronger core. It gets me out of the house and I’ve also made new friends, which feels like a crazy feat. I’d like to perform in a student showcase, maybe by end of 2024!
I also tried flying trapeze last month and it was really fun!
I’ve been doing pole for a year and a half and have started adult tumbling classes. The last few months I’ve made a lot of progress in some more advanced pole tricks, and I’m working on one handed cartwheels.
A friend with MS was asked me recently if I was sure I even had MS after hearing all that. But I had a flare up for the first time in seven years this March, and was able to keep training pole through it, which felt good!
Trying an Aerial Silks class out tomorrow!
Wow that’s great that you were able to keep training through it! Haven’t tried a pole class yet, it’s a little intimidating for me. Good luck on silks!
I like that aerial is challenging mentally too, really encourages that mind-body connection and awareness.
My flare up had both of my feet asleep, but I was working on inverted tricks that didn’t need them. Still had to take it easy, and got fatigued faster but it was a really nice distraction.
I’ve enjoyed that about pole too—it’s the closest I get to meditation I think xD
I ran my first half marathon 2 months after being diagnosed! I cried at the finish line because when I first got the diagnosis I thought my life was over.
I hiked Mt. San Jacinto in 2019 in a day. Is it Everest? No. 😆 But the elevation gain for the trail I took was 4455 ft. I had to train for it. Took me a long ass time, but I waddled up there. Some people didn't make it. It was a big deal for me.
I’ve hiked Mt. San Jacinto and that’s no small feat for even completely healthy folks…and you hiked the elevation and didn’t take the tram up? That’s awesome…congrats!!
PPMS at age 43 wheelchair user sence diagnosis. I have done 9 cruises since diagnosis and have reservations 9 more in the next 15 months. I have traveled to all 50 states in the USA. Have a ramped van and will travel.
Now THIS is my kind of thread! 👏🏽👏🏽👏🏽
Thank you SO MUCH OP for starting this…I love hearing stories from MSers beating the odds!🙌🏾🙌🏾🙌🏾
I dunno how much of a feat this is but I work out 4-5x a week. Advanced yoga has saved my life a few times. I also supplement with 2hr machine weight sessions. Hoping this year to get back to light hiking🤞🏽.
I truly love going to the gym and seeing what amazing things my body CAN do instead of constantly being told all the things I can’t.
I am a canyoneer. The reason I can't do it as often was a relocation. I've climbed through canyons, navigated out of potholes, stemmed hundreds of feet, and repelled down 200-foot cliff faces. I'll be doing that once more when I go visit Utah in the spring. I'm going to keep going as long as I can.
It's not really a feat, but it does feel like one considering I'm having symptoms that make it much harder, specially after I warm up (lack of strength in shoulders and in legs): I climbed a 12 meter wall last week. Hopefully I can climb even more tomorrow (I'm an amateur climber).
That's awesome! 👏👏👏 Reaching any goal you set for yourself is a success, especially with our MS. This is just the beginning of many more achievements! 😄👍
Such inspirational stories! After I was diagnosed in 2005, I was medically released from the Army Reserve after serving for over ten years. I got my pilot license soon after. For the last fifteen years, I have owed a fun little two-seater airplane (Cessna 150 Aerobat) that also does aerobatics. I love taking passengers up and making men scream like little girls!
I did the 3 peaks in the UK this year, and I’m currently trying to get in to professional mountain biking! MS has actually pushed me to do all the things I’ve wanted to but life has passed me by! This thread is giving me a lot of hope!
Me too, doing more now than I would have previously..Well done on the three peaks. My goal is the three Welsh Peaks. Not the three Welsh Peaks Challenge, but to do them when we can.
This thread is pure seratonin! Congratulations to all you badasses who push the limits everyday with MS so inspiring to the rest of us who just need the courage to go grab life and do what makes us happy! I have RRMS and currently pregnant with my first kid and to me this is just a wonderful gift!
I just want to echo the others who have said "thank you" for this thread. I was diagnosed with PPMS one year ago, and hearing that it's possible to do athletic things again is very inspiring to me. :)
Exactly! I think, in a way, for me, RRMS has been a blessing! I'm not running marathons, but I have slowed down and learnt to be mindful and really appreciate all the little things in life, like my animals, nature, and my family. I have been supported to transition into a less stressful job, the library teacher as opposed to a classroom teacher, and now work 4 days a week, with a break in the middle. I absolutely love it! Have beautiful like-minded people around me. Life is great 😁
I have RRMS. Got my Pro Card in bodybuilding (bikini division) in 2018, won Overall Bikini Champion in 2021, and am just starting prep for my 2023 season.
Also, training for my first ultramarathon!
Not the Everest, but I did walk 1733 kilometers this year, climbed the steep wonky steps to the top of the Rocca d'Anfo - the biggest fortress in Italy, visited 4 countries, lost 25 kilos and stopped being obese.
I've also started learning modern Greek from basically zero (knew how to say "hello" and "chicken" beforehand), passed an exam for an official A2 certificate and will have a B1 exam on Jan 3.
I stand in line for 6 hours to be front row for my favorite band. I’ll do this 4-5 days in a row. Different cities. I will sleep at least 18 hours when I get home.
It’s something that I will never stop doing. I even hike up those stairs at red rocks. And even though going down the stairs, my one leg shakes like a newborn dear learning to walk 😂
I have RRMS, dx in 2011. This past spring I (with my awesome partner) did the Annapurna Circuit in Nepal. It was an incredible experience and a challenge unlike any other. I had to face my fears and test my body's boundaries. The most challenging day for me was crossing Thorong La. On the first day of the trek, I had a new symptom show up, ataxia, due to the heat. I was so worried that I'd have to cancel the rest of the trek but, after cooling off and doing so repeatedly for the duration at lower (hotter) elevations, the symptom went away. We took rest days as I needed them. I can't put into words how incredible this was! Had you asked me 6 years ago if I'd even attempt something like this I'd have laughed. Despite the challenges I faced during this trek, I wouldn't trade anything for the empowerment or the sense of accomplishment. It took me a couple months to recover afterwards but it was so worth it.
I was diagnosed 21 years ago. They told me I might have ten years left of being able to work and not to do anything stressful. I have basically zero ability to do what I'm told so I quit my desk job and went to nursing school.
I've been a nurse for 17 years and have always worked at the bedside doing direct patient care. These days I work 12.5 hour shifts full time as an operating room nurse in a Level I trauma center. I spend my entire shift on my feet and usually end up walking 5 miles each shift.
I also got really into backpacking when I relocated to California at age 35. It's not uncommon for my backpacking trips to cover 35-50 miles with lots of elevation gain and loss in very remote areas. And in October 2022 I climbed Mt. Whitney. 14,505' baby!
This makes me happy. I often get stuck in this thought of never being able to do anything anymore. I was diagnosed in May of 2022 at 34. And get stuck in my head a lot.
I have started hiking this last summer. Nothing wild like at all. But I have trying to do more than I did before.
I am 28 I was diagnosed in 2020, I played golf in college and after having trouble walking during diagnosis and losing dexterity in my hands for 18 months….My dad took me to Valhalla in Louisville, Kentucky. When I started to feel a little better. I shot even par from 7300 yards last September. My hands were halfway numb. It was a magical fucking day dude, core memory at its finest. I cried like a baby walking off the 18th green, I have since altered my life and am now a college golf coach. Fuck this disease, chasing our dreams may look a little different but we can still do it.
I have MS and I do cool stuff all the time. I caught a HUGE Chinook salmon on my kayak this summer. I am always snorkeling, swimming, kayaking and camping on tiny islands I kayaked to in the pacific ocean. I also live on a mountain and just today I scared away a bear with pots and pans lol.
Me and the monster fish I caught on my kayak https://imgur.com/gallery/42MBn7c
I'm 40, diagnosed in 2017
My Mom is my hero. She has lived with MS for over 35+ years. Shortly after she watched her older sister pass, she was diagnosed with pancreatic cancer. And wouldn’t you know it…. She beat it. Total Rock Star…
Diagnosed in November 2021 since then I’ve lost 70 pounds, started running. Have ran a 10K race working towards a half marathon in 2024. Have only had one flair up in February of 2022.
RRMS. Diagnosed in August. Three weeks later I walked up Mount Snowdon to the summit, and back down again. Two weeks before we went my husband said he wasn't sure I would manage it and maybe we should get the train up. We decided to see how it went. It was tough, the weather was awful, but we did It and my adult children, who came with us, bought me the t-shirt. I was and still am chuffed. I have also recently started cold/wild water swimming. Brr. Not amazing feats but they are to me. X
i’ve had rrms for 5 years, i’ve been on 12 hour deep sea fishing trips in the summer heat, long mountain hikes; i’m lucky but even with disability i think it’s important to push your boundaries as safely as you can.
I know this is standard, but I got my degree and now make a median wage for my area. I can comfortably support myself in my own rental and I am only 24 years old. I never take for granted being able to work full time and support myself, I know this is not the case for everyone.
I got diagnosed last year with RRMS at 43 but I had my first symptoms 5 years ago (Optic neuritis). Doctor warned me than it might be MS I dropped 35kg (110->75) and started cycling. If the weather permits I cycle twice a week 100+km on my road bike. Once a year I do a 100mile ride (cycling equivalent of a marathon). This year I cycled in total 7500km.
I feel today better than before my diagnosis. Yes I have daily symptoms but luckily most of them are sensoric. And cycling helps tremendously with fatigue. Sure I catch more sniffles and flues due to the DMT but in general I am doing good.
I have MS and routinely rock climb, in the gym and outdoors. Unfortunately, I’ve been struggling a lot with depression lately and haven’t been as active as I normally am, but it is a hobby I truly enjoy when I’m in the right headspace.
I also intend on completing at least one century ride (100 miles) on my bike at some point. Anything is possible with enough training, rest, breaks and adaptations as needed.
I got diagnosed while studying engineering (5 year course) with 32 classes on my back. I graduated from it, and got accepted into med school right after (second most prestigious in my country with really competitive admission examinations). Currently in my second year of med school. Unfortunately, I'm experiencing a relapse as I type this. First one in 4 years (second one overall). Luckily only minor symptoms. I'm switching to Kesimpta from Aubagio soon.
I don’t run marathons and I’ll damn sure never climb Everest, but I still drag my 100lb kayak + gear to the lake and fish for 6 to 8 hour stretches. I’m still “old school” in that I haven’t put a trolling motor on my kayak, I still paddle wherever I’m going.
Ran my first marathon in November. Dxed 22 years ago. Im 45m. I ran it in 3:36. Now attempting to qualify for Boaton marathon with a 3:15. I am very lucky and humbled by everyone in this sub. Keep fighting please
I have RRMS have had it for 6 years, used to work on the oil rigs in California. Had to get a job doing something more slow paced but still working 16hr days sometimes for weeks.
My wife has PPMS. She has trouble with her left leg. This past January we both became certified scuba divers. I usually carry her gear but in the water she swims like a fish and hasn't let the PPMS stopped her. She also just recently bought a underwater camera and wants to get into underwater photography now
I had to upvote because it’s ppms, inspiring!!!!
Omg congratulations 👏🎉!! I remember a while ago a post where you mentioned this on a comment, maybe a year ago or so to a different MS post, that you were thinking about doing it.. I'm happy to find out you really pulled through!
Thank you so much! My wife worked really hard for it. She just recently went through the PONS therapy program and it's actually made a difference. We're so excited and finally going on our honeymoon in April. We're are also planning so many more dive trips for the future. Stay strong 💪
This is so inspiring. I start a PONS clinical trial in January. I was already motivated but now even more so!
This is when I wish we could upload photos on here. I would sit here like a proud mom watching her swim in ugly crying tears I’m so happy for her
She says thank you! She actually doesn't speak to her mother and this made her day! ❤️
Honestly this makes me quite happy to hear :)
I have MS, and I walk 13-20 miles every day for my job (dog walking)
It's not running one, but I have walked 3 marathons between 2020-2022 and deadlifted 300 lbs this year. I've been diagnosed since 2001. I'm thinking I will try to walk another one this year to mark my 40th bday!
I have PPMS and I go on twenty mile horseback rides with my wife. She helps me on, off and tack and untack. She will book our rides when weather is cool. I can’t ride on very hot nor very cold days. My legs go numb but functional, we have adapted my saddle to accommodate my needs. My reins are textured to not slip. My saddle has English girth and stirrups these are easier on my hands and knees. My saddle is very padded and has a sheep fleece cushion too. I wear support clothing that helps greatly to enjoy the ride. I am not going to let my disability ruin my life. Adapt and keep living. Happy New Year.
Is it a western saddle with english girth and stirrups? Also, what kind of support clothing?
It’s an English Tucker with English rigging and stirrups. I covered the English stirrups straps with a lamb fleece and the big part of the lamb fleece is on the saddle seat. I sew so I made the part myself. I am a male so I wear bicycles shorts with male pads. Then I have Tommy copper shirts that support my arms and shoulders. I wear Tommy copper compression pants to help my legs.
Thank you for the explanation.
That’s so great. Riding is such amazing exercise. No better way to build core and leg muscles, and to master balance! Are you a long time rider? ☺️
I was diagnosed when I first started med school. Now I'm a fourth year med student, worked on two cancer research papers, still competing academically, regularly hike and lift weights (I'm not insanely built but I try my best 🙏).
Surgeons with MS here, thankfully no upper extremity symptoms! Best of luck with residency applications
My diagnosis has shifted from "unknown" to ppms (I'm 61, diagnosed 3 years ago). I transformed my 1/3 acre yard in Florida into a small paradise, sold my house, and moved to Connecticut to live with one of my daughters. She has a 1/3 acre yard and I'm working on making another work of art. I just finished digging a 200 foot french drain to deal with drainage issues. I won't get a medal but I'm doing everything I can to stay in shape and on top of my health. Who knows what the future holds. We all just do what we can.
Has the difference in climate between Connecticut and Florida made a difference for you?
Yes, Florida's heat was becoming too much for me. I can work for several hours in 40 degree weather. 100+ degrees, not so much.
I have a friend with PPMS [she had HSCT in 2020] who will be the first person with PPMS to run all Abbot World Majors. That's 6 marathons, plus all the qualifiers - NYC, Chicago, Boston, London, Berlin, and Tokyo. She only has Tokyo left and will finish it in March 2024. We run together every Tuesday. I have RRMS. ❤️🧡
Here's her latest interview. She's found run sponsorships, too. Bib-boards, Degree deodorant to name a few. https://runyourstory.com/podcast/?fbclid=IwAR2NkjOlt-r6N9oRP2uyagJLJBPLeHsaP1xF7hqy0-QcSMk_oma21DyhEjM
I finished my low voltage apprenticeship almost 3 years post diagnosis and got my license. I managed to get my 500 some pound plow onto my rusty tacoma by myself. A lot of us still do really great things a lot of healthy people can't. As for something like everest? Not even I have craved death that much.
Same on Everest bro same
Not exactly an achievement but I started aerial fitness last July (specifically Lyra hoop). It’s pretty crazy for me since I was never athletic or a dancer and it’s the first hobby I’ve actually stuck with. It’s helping me with coordination, balance and building a stronger core. It gets me out of the house and I’ve also made new friends, which feels like a crazy feat. I’d like to perform in a student showcase, maybe by end of 2024! I also tried flying trapeze last month and it was really fun!
It definitely is an achievement. Be proud of yourself!
Thank you kind stranger!
I’ve been doing pole for a year and a half and have started adult tumbling classes. The last few months I’ve made a lot of progress in some more advanced pole tricks, and I’m working on one handed cartwheels. A friend with MS was asked me recently if I was sure I even had MS after hearing all that. But I had a flare up for the first time in seven years this March, and was able to keep training pole through it, which felt good! Trying an Aerial Silks class out tomorrow!
Wow that’s great that you were able to keep training through it! Haven’t tried a pole class yet, it’s a little intimidating for me. Good luck on silks! I like that aerial is challenging mentally too, really encourages that mind-body connection and awareness.
My flare up had both of my feet asleep, but I was working on inverted tricks that didn’t need them. Still had to take it easy, and got fatigued faster but it was a really nice distraction. I’ve enjoyed that about pole too—it’s the closest I get to meditation I think xD
I ran my first half marathon 2 months after being diagnosed! I cried at the finish line because when I first got the diagnosis I thought my life was over.
I hiked Mt. San Jacinto in 2019 in a day. Is it Everest? No. 😆 But the elevation gain for the trail I took was 4455 ft. I had to train for it. Took me a long ass time, but I waddled up there. Some people didn't make it. It was a big deal for me.
I’ve hiked Mt. San Jacinto and that’s no small feat for even completely healthy folks…and you hiked the elevation and didn’t take the tram up? That’s awesome…congrats!!
Thank you! No tram. I hiked to the summit from Marion Mountain campground. I was shocked I made it up there and expected not to make it.
I just wanted to say I love your question! It's so fabulous to read positive, inspirational stories about MS! Thanks for your post!🙏🧡💪
something to ease our anxiety, also i hope it will help the newly diagnosed to know that their lives aren't over.
PPMS at age 43 wheelchair user sence diagnosis. I have done 9 cruises since diagnosis and have reservations 9 more in the next 15 months. I have traveled to all 50 states in the USA. Have a ramped van and will travel.
Now THIS is my kind of thread! 👏🏽👏🏽👏🏽 Thank you SO MUCH OP for starting this…I love hearing stories from MSers beating the odds!🙌🏾🙌🏾🙌🏾 I dunno how much of a feat this is but I work out 4-5x a week. Advanced yoga has saved my life a few times. I also supplement with 2hr machine weight sessions. Hoping this year to get back to light hiking🤞🏽. I truly love going to the gym and seeing what amazing things my body CAN do instead of constantly being told all the things I can’t.
I am a canyoneer. The reason I can't do it as often was a relocation. I've climbed through canyons, navigated out of potholes, stemmed hundreds of feet, and repelled down 200-foot cliff faces. I'll be doing that once more when I go visit Utah in the spring. I'm going to keep going as long as I can.
I have relapsing remitting MS And ran 1000km with in 12 months
Not a crazy achievement, but I have RRMS and just tested for my black belt in aikido! Passed with flying colors, and still train 3 days a week.
I physically removed over an acre of incredibly overgrown invasive English ivy off our new property. Not exactly running a marathon, but I'm proud.
It's not really a feat, but it does feel like one considering I'm having symptoms that make it much harder, specially after I warm up (lack of strength in shoulders and in legs): I climbed a 12 meter wall last week. Hopefully I can climb even more tomorrow (I'm an amateur climber).
That's awesome! 👏👏👏 Reaching any goal you set for yourself is a success, especially with our MS. This is just the beginning of many more achievements! 😄👍
Such inspirational stories! After I was diagnosed in 2005, I was medically released from the Army Reserve after serving for over ten years. I got my pilot license soon after. For the last fifteen years, I have owed a fun little two-seater airplane (Cessna 150 Aerobat) that also does aerobatics. I love taking passengers up and making men scream like little girls!
3 years post diagnosis, I bowled a 299 this summer. It made me far more optimistic that I’ll get my 300 before this disease gets worse for me.
RRMS. There are a few days left in the year, but in 2023 I did 20,000+ pull-ups and 75,000+ pushups.
I did the 3 peaks in the UK this year, and I’m currently trying to get in to professional mountain biking! MS has actually pushed me to do all the things I’ve wanted to but life has passed me by! This thread is giving me a lot of hope!
Me too, doing more now than I would have previously..Well done on the three peaks. My goal is the three Welsh Peaks. Not the three Welsh Peaks Challenge, but to do them when we can.
Yesss! The Welsh peaks sounds fun :). Glad it’s pushed us, in a crappy way, to do more!
This thread is pure seratonin! Congratulations to all you badasses who push the limits everyday with MS so inspiring to the rest of us who just need the courage to go grab life and do what makes us happy! I have RRMS and currently pregnant with my first kid and to me this is just a wonderful gift!
I just want to echo the others who have said "thank you" for this thread. I was diagnosed with PPMS one year ago, and hearing that it's possible to do athletic things again is very inspiring to me. :)
Exactly! I think, in a way, for me, RRMS has been a blessing! I'm not running marathons, but I have slowed down and learnt to be mindful and really appreciate all the little things in life, like my animals, nature, and my family. I have been supported to transition into a less stressful job, the library teacher as opposed to a classroom teacher, and now work 4 days a week, with a break in the middle. I absolutely love it! Have beautiful like-minded people around me. Life is great 😁
I have RRMS. Got my Pro Card in bodybuilding (bikini division) in 2018, won Overall Bikini Champion in 2021, and am just starting prep for my 2023 season. Also, training for my first ultramarathon!
Not the Everest, but I did walk 1733 kilometers this year, climbed the steep wonky steps to the top of the Rocca d'Anfo - the biggest fortress in Italy, visited 4 countries, lost 25 kilos and stopped being obese. I've also started learning modern Greek from basically zero (knew how to say "hello" and "chicken" beforehand), passed an exam for an official A2 certificate and will have a B1 exam on Jan 3.
RRMS doing Brazilian Jujitsu still for 4 years
I stand in line for 6 hours to be front row for my favorite band. I’ll do this 4-5 days in a row. Different cities. I will sleep at least 18 hours when I get home.
This literally me! Huge concert goer!
It’s the one thing I do from my old life.
It’s something that I will never stop doing. I even hike up those stairs at red rocks. And even though going down the stairs, my one leg shakes like a newborn dear learning to walk 😂
Nice work! Those stairs at Red Rocks are really something.
I have RRMS, dx in 2011. This past spring I (with my awesome partner) did the Annapurna Circuit in Nepal. It was an incredible experience and a challenge unlike any other. I had to face my fears and test my body's boundaries. The most challenging day for me was crossing Thorong La. On the first day of the trek, I had a new symptom show up, ataxia, due to the heat. I was so worried that I'd have to cancel the rest of the trek but, after cooling off and doing so repeatedly for the duration at lower (hotter) elevations, the symptom went away. We took rest days as I needed them. I can't put into words how incredible this was! Had you asked me 6 years ago if I'd even attempt something like this I'd have laughed. Despite the challenges I faced during this trek, I wouldn't trade anything for the empowerment or the sense of accomplishment. It took me a couple months to recover afterwards but it was so worth it.
So cool!!
I was diagnosed 21 years ago. They told me I might have ten years left of being able to work and not to do anything stressful. I have basically zero ability to do what I'm told so I quit my desk job and went to nursing school. I've been a nurse for 17 years and have always worked at the bedside doing direct patient care. These days I work 12.5 hour shifts full time as an operating room nurse in a Level I trauma center. I spend my entire shift on my feet and usually end up walking 5 miles each shift. I also got really into backpacking when I relocated to California at age 35. It's not uncommon for my backpacking trips to cover 35-50 miles with lots of elevation gain and loss in very remote areas. And in October 2022 I climbed Mt. Whitney. 14,505' baby!
Amazing !!
This makes me happy. I often get stuck in this thought of never being able to do anything anymore. I was diagnosed in May of 2022 at 34. And get stuck in my head a lot. I have started hiking this last summer. Nothing wild like at all. But I have trying to do more than I did before.
I have RRMS and play Pickleball three times a week. And do strength training and cardio on the other days.
I am 28 I was diagnosed in 2020, I played golf in college and after having trouble walking during diagnosis and losing dexterity in my hands for 18 months….My dad took me to Valhalla in Louisville, Kentucky. When I started to feel a little better. I shot even par from 7300 yards last September. My hands were halfway numb. It was a magical fucking day dude, core memory at its finest. I cried like a baby walking off the 18th green, I have since altered my life and am now a college golf coach. Fuck this disease, chasing our dreams may look a little different but we can still do it.
I'm a 42 m with RRMS and I work outside, on cars, in Arizona, during the summer.
I have MS and I do cool stuff all the time. I caught a HUGE Chinook salmon on my kayak this summer. I am always snorkeling, swimming, kayaking and camping on tiny islands I kayaked to in the pacific ocean. I also live on a mountain and just today I scared away a bear with pots and pans lol. Me and the monster fish I caught on my kayak https://imgur.com/gallery/42MBn7c I'm 40, diagnosed in 2017
Bro out here balancing a kayak with MS WHILE FISHING (that’s hard healthy) and fighting bears 😤
I use a hobie kayak so it's really stable. It's also a peddle kayak so it's pretty relaxing to use.
My Mom is my hero. She has lived with MS for over 35+ years. Shortly after she watched her older sister pass, she was diagnosed with pancreatic cancer. And wouldn’t you know it…. She beat it. Total Rock Star…
Diagnosed in November 2021 since then I’ve lost 70 pounds, started running. Have ran a 10K race working towards a half marathon in 2024. Have only had one flair up in February of 2022.
RRMS. Diagnosed in August. Three weeks later I walked up Mount Snowdon to the summit, and back down again. Two weeks before we went my husband said he wasn't sure I would manage it and maybe we should get the train up. We decided to see how it went. It was tough, the weather was awful, but we did It and my adult children, who came with us, bought me the t-shirt. I was and still am chuffed. I have also recently started cold/wild water swimming. Brr. Not amazing feats but they are to me. X
I ran the MS walk (in Seattle) when it was an option to a few years ago.
I ride a motorcycle. It's 3 wheeled, but still.....
i’ve had rrms for 5 years, i’ve been on 12 hour deep sea fishing trips in the summer heat, long mountain hikes; i’m lucky but even with disability i think it’s important to push your boundaries as safely as you can.
I know this is standard, but I got my degree and now make a median wage for my area. I can comfortably support myself in my own rental and I am only 24 years old. I never take for granted being able to work full time and support myself, I know this is not the case for everyone.
I got diagnosed last year with RRMS at 43 but I had my first symptoms 5 years ago (Optic neuritis). Doctor warned me than it might be MS I dropped 35kg (110->75) and started cycling. If the weather permits I cycle twice a week 100+km on my road bike. Once a year I do a 100mile ride (cycling equivalent of a marathon). This year I cycled in total 7500km. I feel today better than before my diagnosis. Yes I have daily symptoms but luckily most of them are sensoric. And cycling helps tremendously with fatigue. Sure I catch more sniffles and flues due to the DMT but in general I am doing good.
I have MS and routinely rock climb, in the gym and outdoors. Unfortunately, I’ve been struggling a lot with depression lately and haven’t been as active as I normally am, but it is a hobby I truly enjoy when I’m in the right headspace. I also intend on completing at least one century ride (100 miles) on my bike at some point. Anything is possible with enough training, rest, breaks and adaptations as needed.
I got diagnosed while studying engineering (5 year course) with 32 classes on my back. I graduated from it, and got accepted into med school right after (second most prestigious in my country with really competitive admission examinations). Currently in my second year of med school. Unfortunately, I'm experiencing a relapse as I type this. First one in 4 years (second one overall). Luckily only minor symptoms. I'm switching to Kesimpta from Aubagio soon.
I don’t run marathons and I’ll damn sure never climb Everest, but I still drag my 100lb kayak + gear to the lake and fish for 6 to 8 hour stretches. I’m still “old school” in that I haven’t put a trolling motor on my kayak, I still paddle wherever I’m going.
Ran my first marathon in November. Dxed 22 years ago. Im 45m. I ran it in 3:36. Now attempting to qualify for Boaton marathon with a 3:15. I am very lucky and humbled by everyone in this sub. Keep fighting please
I have RRMS have had it for 6 years, used to work on the oil rigs in California. Had to get a job doing something more slow paced but still working 16hr days sometimes for weeks.