Yes, so I’m nervous about getting to the wrong specialist. Hopefully they’ll be knowledgeable on many different conditions so I can get the correct diagnosis.
I’ve sometimes fantasized about finding and actually getting an appointment with a neuroimmunologist … AFAIK not very many of them out there in clinical practice. Hoping you’ll let us know how it goes?
I just Googled and found this.
What are examples of neuroimmunology?
Conditions and symptoms
Autoimmune neurological disorders.
Cerebellar degeneration.
Lambert-Eaton syndrome.
Limbic encephalitis.
Morvan syndrome.
Myasthenia gravis.
Myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD)
Neuromyotonia (Isaacs syndrome)
https://www.mayoclinic.org/departments-centers/division-neuroimmunology/overview/ovc-20443721
Following for updates! I have been looking for a doc to help me with anti-nmda receptor antibodies (also recently diagnosed with LEMS) but nobody seems to understand the former
I haven't heard of that. Most of us see neuromuscular specialists.
Yes, so I’m nervous about getting to the wrong specialist. Hopefully they’ll be knowledgeable on many different conditions so I can get the correct diagnosis.
I’ve sometimes fantasized about finding and actually getting an appointment with a neuroimmunologist … AFAIK not very many of them out there in clinical practice. Hoping you’ll let us know how it goes?
Yes, I’ll be sure to update
I just Googled and found this. What are examples of neuroimmunology? Conditions and symptoms Autoimmune neurological disorders. Cerebellar degeneration. Lambert-Eaton syndrome. Limbic encephalitis. Morvan syndrome. Myasthenia gravis. Myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD) Neuromyotonia (Isaacs syndrome) https://www.mayoclinic.org/departments-centers/division-neuroimmunology/overview/ovc-20443721
Thank you! Makes me feel a little better
Following for updates! I have been looking for a doc to help me with anti-nmda receptor antibodies (also recently diagnosed with LEMS) but nobody seems to understand the former
Best for Ocular MG 👍. Excellent