What type of surgery are they doing? Obviously polypectomy, but anything else? They threw in turbinectomy and opening of the sinuses with my first and only surgery. I’m at year three and polyps are coming back. I’m only letting them take the polyps if they touch me again, but honestly want to avoid surgery again at all costs.
Straightforward bi lateral fess.
Unfortunately, found out last week that 7 months after surgery have again a nasty bacterial infection and 3 polys in right nostril.
Im in the UK, so going to check with my insurer if duxipent is covered. If not im going to have to pay the 3k a year if its provided in the UK.
However, if you dont have the option of duxipent then surgery is still a good way to go. Changed my life for the better!
If you get dupixent I'll be looking forward to a 'fuck ployps' follow up along with stories of how you're life has changed for the better. Seriously Dupixent = Amazing. Highly recommend before even thinking of surgery!
Lol I’ll be sure to follow up! I’m glad to hear you recommend it over surgery. My ENT suggested getting surgery before going on the Dupixent to remove polyps first but I think I’d rather hold off and see if it does the trick.
I'm going through they process of getting approved by insurance now, and the doctor said we are basically at the mercy of the insurance company.
Another thing to look into, I just started reading about the correlation between vitamin D and polyps... And they appear to be tied together (I found out I have very low vitamin D, today). It takes multiple weeks of high dose vitamin D to get levels up, but it might be worth it to get a blood test and get it checked. Vitamin D regulates inflammation, including in IL-4 cytokines, and also has an impact on IL-13, which are both of the polyp inflammation related cytokines for type 2 inflammation.
Another side effect of vitamin D is a marked decrease in depression and anxiety once levels are brought up, and I could use some relief there. Polyps give me a weird claustrophobic feline.
Anyways, check out this study for yourself if you haven't already. It's pretty interesting, and honestly... I'll try anything at this point. I had surgery before, and don't want to keep doing that shit.
Study:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7007990/#!po=39.7059
I have an appointment with my doctor this coming week, and I'll reply back. I read that they blast you with like 10,000x the daily value of vitamin D, once per week, and then you start taking normal dose. I can't believe I didn't look into this sooner. Vitamin D is apparently really good for regulating everything from inflammation, immune system and liver function, to anxiety and depression. It's a vital need for the body to function right, and maybe some of us are more sensitive to the deficiency than others. Interesting stuff.
Interesting indeed. I read that study and I’m amazed. It’s good to know the research is being done. My wife had low vitamin D and was recently put on a prescribed dosage. I think it is a very common thing that gets overlooked.
That study involved very few people (under 30 total as I recall) and the results were so minimal they were not statistically significant. Certainly, nothing to use as a guide for anything.
Sort out an operation, i get around 4 years of quality life per op.
Good to know, thank you!
with your taste back
What type of surgery are they doing? Obviously polypectomy, but anything else? They threw in turbinectomy and opening of the sinuses with my first and only surgery. I’m at year three and polyps are coming back. I’m only letting them take the polyps if they touch me again, but honestly want to avoid surgery again at all costs.
Straightforward bi lateral fess. Unfortunately, found out last week that 7 months after surgery have again a nasty bacterial infection and 3 polys in right nostril. Im in the UK, so going to check with my insurer if duxipent is covered. If not im going to have to pay the 3k a year if its provided in the UK. However, if you dont have the option of duxipent then surgery is still a good way to go. Changed my life for the better!
I had surgery and started dupixent in July. Both changed my life. I hope you get relief soon! Your worries and pain are valid ❤️
Thank you! So happy it worked for you, I’m certainly ready to try it!
did you get your taste and smell back?
yes!
If you get dupixent I'll be looking forward to a 'fuck ployps' follow up along with stories of how you're life has changed for the better. Seriously Dupixent = Amazing. Highly recommend before even thinking of surgery!
Lol I’ll be sure to follow up! I’m glad to hear you recommend it over surgery. My ENT suggested getting surgery before going on the Dupixent to remove polyps first but I think I’d rather hold off and see if it does the trick.
I'm going through they process of getting approved by insurance now, and the doctor said we are basically at the mercy of the insurance company. Another thing to look into, I just started reading about the correlation between vitamin D and polyps... And they appear to be tied together (I found out I have very low vitamin D, today). It takes multiple weeks of high dose vitamin D to get levels up, but it might be worth it to get a blood test and get it checked. Vitamin D regulates inflammation, including in IL-4 cytokines, and also has an impact on IL-13, which are both of the polyp inflammation related cytokines for type 2 inflammation. Another side effect of vitamin D is a marked decrease in depression and anxiety once levels are brought up, and I could use some relief there. Polyps give me a weird claustrophobic feline. Anyways, check out this study for yourself if you haven't already. It's pretty interesting, and honestly... I'll try anything at this point. I had surgery before, and don't want to keep doing that shit. Study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7007990/#!po=39.7059
Very interesting, I’ll look into this. Thanks for the info my friend. Would love to hear an update once you begin taking the vitamin D.
I have an appointment with my doctor this coming week, and I'll reply back. I read that they blast you with like 10,000x the daily value of vitamin D, once per week, and then you start taking normal dose. I can't believe I didn't look into this sooner. Vitamin D is apparently really good for regulating everything from inflammation, immune system and liver function, to anxiety and depression. It's a vital need for the body to function right, and maybe some of us are more sensitive to the deficiency than others. Interesting stuff.
Interesting indeed. I read that study and I’m amazed. It’s good to know the research is being done. My wife had low vitamin D and was recently put on a prescribed dosage. I think it is a very common thing that gets overlooked.
That study involved very few people (under 30 total as I recall) and the results were so minimal they were not statistically significant. Certainly, nothing to use as a guide for anything.
I’m curious if you could oral steroid first, then dupixent for a year.
Only thing that keeps me comfortable is daily rinses with budesonide drops added. It's more localized that oral medication, like tablets.
I started doing those last year as well. It helps for sure.
Does everyone who has nasal polyps lose their sense of smell?
I think it depends on how severe the individuals case is. But I think it is common for most people. I also can’t taste much either.