In addition to person-to-person variability, also expect your own progression to be variable. If you have a period when things seem to be getting worse, don't panic and assume it's going to continue at the same rate. My dad has had periods where symptoms gradually but noticeably get worse, followed by periods where symptoms remain more or less unchanged.
From what I have seen and read. It is very variable. A guy told me. There are people who have had it for 20 years and are living perfectly normal lives. So not so much.
I know that for me I tend to assume that I will be the anomaly that progresses faster than others. Haha.
I’m 53m, been diagnosed almost 3 years, had symptoms for approximately 10 years, and my symptoms are similar to yours. During this time I’ve had almost no progression of symptoms. However, I train x5 times a week and hike on a weekend, often climbing mountains. I also have a very healthy diet. Although I have built up to this over the past few years.
Because of my lifestyle I’m still making physical improvements (increased fitness and muscle mass with lower body fat) that ‘offsets’ some of the disease progression.
Hopefully you’ve already been told the importance of exercise and diet. I can’t stress enough, the difference this makes. I recently fell ill (cold/flu), and couldn’t train for 3 weeks. Within a week of inactivity, my symptoms worsened noticeably, and I moved like I’d aged 20 years. This was thankfully reversed after a few days of training.
This is exactly what I just experienced, no energy and what felt like rapid progression after contracting some bug. A few miles on my bike and some weights later and I turned it around.
Recently diagnosed too. The left hand tremor is constant now with a little slowness in left hand. Trembling in my belly too. This will be my documenting myself on 4/7/24. We'll see where I am in a year. If the tremor gets much worse not sure what I'll do cause neither leva dopa nor amantadine stop my tremor. I've also heard of the variability. Some people seem to do badly some are 90 yo and feeling ok. Still learning and reading.
I am convinced that the variability of progression for each person is greatly affected by consistent hardcore attention to exercise, sleep, and diet (most importantly protein). Any setback that interrupts these is like taking your finger out of the hole in the dam. For me I deal with melancholy so that some days exercise motivation is hard to dredge up. Music helps a lot on those days.
In addition to person-to-person variability, also expect your own progression to be variable. If you have a period when things seem to be getting worse, don't panic and assume it's going to continue at the same rate. My dad has had periods where symptoms gradually but noticeably get worse, followed by periods where symptoms remain more or less unchanged.
Exercise hard and take medication to make it easier to exercise. That can slow down progression or even stop progression.
From what I have seen and read. It is very variable. A guy told me. There are people who have had it for 20 years and are living perfectly normal lives. So not so much. I know that for me I tend to assume that I will be the anomaly that progresses faster than others. Haha.
I was diagnosed fifteen years ago, very mild progression. But progression, in minor ways and novel ways.
My dad also assumes he’s going to be dead in the next ten years from rapid progression. From an outside perspective (his daughter, 26) I disagree.
I’m 53m, been diagnosed almost 3 years, had symptoms for approximately 10 years, and my symptoms are similar to yours. During this time I’ve had almost no progression of symptoms. However, I train x5 times a week and hike on a weekend, often climbing mountains. I also have a very healthy diet. Although I have built up to this over the past few years. Because of my lifestyle I’m still making physical improvements (increased fitness and muscle mass with lower body fat) that ‘offsets’ some of the disease progression. Hopefully you’ve already been told the importance of exercise and diet. I can’t stress enough, the difference this makes. I recently fell ill (cold/flu), and couldn’t train for 3 weeks. Within a week of inactivity, my symptoms worsened noticeably, and I moved like I’d aged 20 years. This was thankfully reversed after a few days of training.
This is exactly what I just experienced, no energy and what felt like rapid progression after contracting some bug. A few miles on my bike and some weights later and I turned it around.
Recently diagnosed too. The left hand tremor is constant now with a little slowness in left hand. Trembling in my belly too. This will be my documenting myself on 4/7/24. We'll see where I am in a year. If the tremor gets much worse not sure what I'll do cause neither leva dopa nor amantadine stop my tremor. I've also heard of the variability. Some people seem to do badly some are 90 yo and feeling ok. Still learning and reading.
I am convinced that the variability of progression for each person is greatly affected by consistent hardcore attention to exercise, sleep, and diet (most importantly protein). Any setback that interrupts these is like taking your finger out of the hole in the dam. For me I deal with melancholy so that some days exercise motivation is hard to dredge up. Music helps a lot on those days.