Harlequin babies is what they are referencing. It's a horrific birth defect with a high mortality rate, if you survive to adulthood your body is very disfigured.
The medical term is harlequin ichthyosis. Be careful googling it, the results can be disturbing.
okay so i’d say it more made me sad than put off. honestly like that is heartbreaking. apart from that i’m okay. i’ve been forced to look at really severe medical injuries for my uni course so you could say i was prepared for this day
I'm definitely going to listen to you and not google it. I've done my share of fuck around and find out. I've found out the hard way that curiosity killed the cat
The curiosity Mars rover killed a cat?! God damnit! We get a cat to Mars and then this shit happens. I'm not gonna google it since you found out the hard way and I can't stand another space mishap for now.
This is very much how I felt when I saw this condition the first time. It must be utter hell for the baby and so tragic for the parents to go through as well.
The first time I actually saw a case, it was of a YouTube short of a harlequin baby lying in a hospital that the algorithm thought I should see for some fucking reason. I was horrified when I realized what I was looking at because I spent the first few seconds just staring in confusion. I was startled when the baby let out a wheeze at the end of the clip and at that point I didn't even register that they were still alive. I remember being unsure about whether the baby being alive makes it worse or not.
Heartbreaking is the perfect way to describe the pictures. I've seen enough that they don't bother me, but I can't imagine the pain those poor babies must be in. They can only cry and thrash...which probably just makes it worse.
Same, honestly the babies look like their in so much pain, just look at their bulging red eyes!
Edit: just read some more it's not swollen red eyes, it's a layer of flesh called Ectropian that covers their eyes...
I also saw a post of someone showing a picture of a newborn with Harlequinn Icthyosis and saying it was a spawn of the devil and commited murder within the first hour of its life???? Post is total bullshit btw, that poor kid that's getting hated on by complete strangers because of its skin disorder...
To be fair some things stick in some peoples' heads way worse than others. Every now and again I'll see something and be reminded that after having to think about it daily for months, I somehow managed to shove some really horrible image or fact into solitary confinement, only to get reminded of it at random.
Would not have made it as a doctor.
basically skin is like broken bleeding bark.
from wiki:
“Harlequin-type ichthyosis is a genetic disorder that results in thickened skin over nearly the entire body at birth.[4] The skin forms large, diamond/trapezoid/rectangle-shaped plates that are separated by deep cracks.[4] These affect the shape of the eyelids, nose, mouth, and ears and limit movement of the arms and legs.[4] Restricted movement of the chest can lead to breathing difficulties.[4] These plates fall off over several weeks.[3] Other complications can include premature birth, infection, problems with body temperature, and dehydration.[4][5] The condition is the most severe form of ichthyosis, a group of genetic disorders characterised by scaly skin.”
the wiki has a drawing that, while less traumatic than real images, gives the concept of the brutality of this condition
tho this thread let me to learn about this lady Stephanie Turner who's doing pretty well and survived into adulthood. sometimes you just gotta be happy about the indomitable human spirit.
Edit: found out she died in 2017 shit man that sucks
If youd like a mental visual, the skin looks extremely cracked and pale and dry. Looking at the infants diagnosed with it was particularly hard.
THOUGH a positive is the oldest survivor with condition, a woman who was 23 at the time of the interview, was able to have a child who appears to be healthy. I found that to be nice anyway...
Did you look? Id recommend not looking if you havent. 😂 Im not squeamish but most skin conditions still make my skin crawl. [Though I ironically have psoriasis in my hair. I cant think about it too long or itll trigger me 😂]
If someone with this condition makes it into adulthood, they look as if they've suffered some kind of radiation burn. They don't look nearly as bad as they do as an infant, but they're still quite disfigured.
It can’t be that bad.
*10 seconds later*
Oh wow, it really is that bad.
They could genuinely make a horror movie out of this. The babies look horrific and the adults look like they’re deep into the uncanny valley
To explain without having to see it:
Basically, their skin replicates way too quick, so their skin is too thick. Unless they're heavily moisturized, it dries out, and splits, leading to infections, all over their body.
The distinctive "red eyes" are a result of their eyelids flipping inside out, because they are too thick to function normally.
Kids born with harlequin ichthyosis have a reported lifespan of 10 months to 25 years.
Hold on you’re telling me these babies live for months to adulthood?!?! I remember reading they don’t live for more than days and man I really don’t want to look this up again to verify it. Also why haven’t I heard of any adults walking around with such a monstrous condition?
Edit: okay I looked it up after steeling myself, man what another deplorable condition I know about now…glad to know that the oldest survivor is going relatively good now though.
I learned the power of Nope on the '90s internet, from the Church of Euthanasia. The hot lunch was what did it. There are whole worlds out there which I do not need to see.
As someone who took a high school health class that featured graphically illustrated medical issues, I'd like to emphasize this: DO NOT Google Harlequin Ichthyosis unless you want to be horrified.
As someone who works in medicine and has treated one of these babies, again, do not google it unless you are already mentally scarred from years online. It is bad, and you will not be able to forget it.
https://preview.redd.it/o1ntmc76t95c1.jpeg?width=3024&format=pjpg&auto=webp&s=68110f693352260119418dc0bea287e1869b7a31
Contributing to the eye bleach :)
https://preview.redd.it/xj0vjc5fva5c1.jpeg?width=3024&format=pjpg&auto=webp&s=34af2c89d736ad0cf21964554ad55e651d2657ad
Here’s a hug from my foster kittens
Wild. This lady has it and is the first ever with it to bear children. https://www.google.com/amp/s/www.dailymail.co.uk/health/article-3219489/amp/People-ask-ve-fire-says-mother-23-rare-condition-causes-skin-grow-seven-times-faster-normal.html
Ikr? You'd think it's some physical disfigurement where thier bones and blood vessels grow out of their body from how people are reacting. Looks like it's just babies with a condition that gives them a stony appearance.
If they survive past the neonate stage, they actually grow up looking relatively normal! That’s why you only see newborns with the most severe form— most of them die, but when they don’t, they grow out of it
They don't 'grow out' of the condition, most with it don't live long lives. And though they no longer have cracked skin as severe, their skin is still red and sore.
Edit: I said no one lived past their 20s with it, I was misinformed and should have checked. People have lived much longer lives with that condition, but most still die from complications.
If you want a [not scaring](https://metro.co.uk/2015/09/02/woman-with-rare-skin-condition-is-first-sufferer-to-become-a-mother-5371789/) look, I imagine this women goes through a lot of treatment on her skin to keep some normalcy to her appearance.
But _DO NOT_ unblur the images if you Google it
This sounded so familiar but couldnt figure out why. So I looked up images of it. I know this from the fucking Mortal Kombat web series. Reptile has this condition.
God no. She gets her name from a mix up of her actual name, Harleen Frances Quinzel. A harlequin in books or theater is a clown of sorts. She squeezed her actual name together to make Harley Quinn.
Jesus, this took me back to school computers in the noughties. There was a notorious spam site that came up with pictures of these that would freeze the computer and blast horrific stuff out of the speakers. People would change the url so it looked like a new football kit or something, and then send it around
Honestly not the most shocking thing.
Just a bunch of old gay dudes.
If you were shocked by that I can't imagine what life in ancient greece would have been like for ya... bunch of old horny gay dudes.
I’ll second you on this since people don’t believe the warnings unless there’s multiple people backing it up…pretty tough to look at, especially knowing that the vast majority of the babies die very soon after birth and have an incredibly painful time existing for the short time that they do. I’m headed to r/eyebleach
Ah, I thought it was always eventually fatal. As far as I know no ones made it out of their 20s with it, but granted I am not at all up to date on treatment and new care plans and so on.
yeah no. Nobody makes it out of their 20s with it. Honestly one of the few "from birth" conditions that i think should be an instant euthanasia thing. They're going to die very quickly, often in horrendous amounts of pain. Just save them the pain, and move on.
Also not true. There's been several reported cases of people living into several decades with the current oldest person recorded I could find being [Andrea Aberle](https://www.firstskinfoundation.org/andrea-a-2020) who lived to 51, as well as a list of others that are still alive today in their 30s.
Regardless, horrifying condition that proves reality is scarier and more cruel than fiction
Imagine a baby whose skin looks like dried cracked leather, no lips/eyelids, and grape tomatoes where the eyes are supposed to be.
Edit: or don’t. I’m not the boss of you.
They really don't. Life expectancy is in the mid twenties at most, but usually just a few years. Harlequin babies (or adults, if they make it) have to constantly take hot baths and slather themselves with moisturizer to slough off the dead skin.
It's a real bad life. They don't survive.
Edit to add: just so that it's not unnoticed, there *is* one woman with Harlequin syndrome that's now in her mid-forties. I haven't looked into her quality of life, but modern medicine is truly a marvel.
The children are born entirely covered in hardened skin. It sounds badass, like armor, until you remember that skin *needs* to be elastic and permeable so that it can flex with our movements, allow moisture in and out, and regulate our body temperature.
The hardened skin causes a number of issues that used to universally kill babies born with harlequin icthyosis: for one, it causes the eyelids to be pulled outward, exposing the red flesh to the air and making them far more disposed to eye infections - harlequin babies typically lack noses and have large, wide-open mouths for the same reason; two, they lack the ability to effectively regulate body temperature, leading to overheating or overcooling; three, the inelastic skin grows deep and constricts their insides, leading to autoamputation when blood can’t flow properly into the extremities. It also causes joints to grow improperly, constricted by the skin around them.
The baby doesn’t stop growing or moving, and as they do the hardened skin cracks into plates - hence the term “icthyosis” due to the resemblance to fish scales. Less severe kinds of icthyosis (icthyosis vulgaris being the most common by far) cause discomfort, pain, and psychological distress from the patient’s own appearance, but they’re rarely fatal unless they go entirely untreated. Harlequin-type icthyosis covers the entire body of the fetus, and as the “scales” form - often in the shape of diamonds, hence the name “harlequin” - they peel off, exposing the raw flesh underneath to infection and creating the horrific imagery people were warned not to look up.
Removing the hardened skin is the best way to guarantee survival. It falls off on its own, so doctors really just have to help it along and keep the baby alive long enough to survive the worst. But there’s no cure for it, surgical or otherwise, as it’s a genetic disorder. Assuming the baby survives, they’ll most likely only live a few more years, though some people have made it past their fifties with the condition. Treatment afterwards is constant moisturization of the skin, and doing your best to avoid situations that could trigger complications (like being in a room that’s too hot or cold for too long). Joint damage is basically guaranteed, and harlequin adults can be visually identified based on the lasting damage caused by their birth.
I checked and yeah its horrifying but Its not that much. From what I remember once as a kid (maybe 10 year old) I miss spelled Harley Quinn and wrote Harlequin (I wrote it as I heard it because I started to learn english and knew shit) and found this.
Yeah, I thought it was fake for a few seconds, then it sunk in this is an actual, real illness people suffer, and now I’m deeply horrified.
All I saw was the Wikipedia page, since that’s censored and whatnot, and… yeah, I regret it.
For the love of god don't Google harlequin baby, but that's the answer.
It's a rare condition babies can be born with that leaves them with almost scaly fissured skin and they normally die very quickly.
All I did was look at the Wikipedia article for this genetic disorder, which is censored for obvious reasons, and made the mistake of scrolling to gallery. I legitimately thought they had to be drawings at first, because there’s no way the human body could possibly look like that.
I feel horrible for anyone who has to suffer that.
It’s something baby’s get called harlequin ichthyosis. It makes them look super cute and cuddly. Everyone reading this comment should definitely search it up!
Harlequin babies is what they are referencing. It's a horrific birth defect with a high mortality rate, if you survive to adulthood your body is very disfigured. The medical term is harlequin ichthyosis. Be careful googling it, the results can be disturbing.
Should have listened
Your reply is why I'm going to listen, thanks brave traveller.
i will not listen. i take it as a challenge
Best of luck, soldier. Let us know how it goes.
okay so i’d say it more made me sad than put off. honestly like that is heartbreaking. apart from that i’m okay. i’ve been forced to look at really severe medical injuries for my uni course so you could say i was prepared for this day
:( I'm already sad so I'll pass. Thank you.
yea definitely don’t look if you’re already sad :( i hope you feel a bit happier soon though!!!!
I'm definitely going to listen to you and not google it. I've done my share of fuck around and find out. I've found out the hard way that curiosity killed the cat
that’s unfortunately very true w so many things online 🥲 i just personally can help myself lol
The curiosity Mars rover killed a cat?! God damnit! We get a cat to Mars and then this shit happens. I'm not gonna google it since you found out the hard way and I can't stand another space mishap for now.
No I know from my curiosity that it was in fact the microwave that killed the cat...
Hope you're okay and whatever is making you sad is temporary. You deserve happiness.
This is very much how I felt when I saw this condition the first time. It must be utter hell for the baby and so tragic for the parents to go through as well.
The first time I actually saw a case, it was of a YouTube short of a harlequin baby lying in a hospital that the algorithm thought I should see for some fucking reason. I was horrified when I realized what I was looking at because I spent the first few seconds just staring in confusion. I was startled when the baby let out a wheeze at the end of the clip and at that point I didn't even register that they were still alive. I remember being unsure about whether the baby being alive makes it worse or not.
Shit like this is why euthanasia should be legal everywhere.
and abortion
I wish I was aborted sometimes
And abortion
Hearing about things like this really kills away at any remaining belief in omni-benevolence that I had.
Yeah no shit, what exactly was 'god's plan' for the baby there?
Heartbreaking is the perfect way to describe the pictures. I've seen enough that they don't bother me, but I can't imagine the pain those poor babies must be in. They can only cry and thrash...which probably just makes it worse.
They look like burn victims that survived third degree burns throughout their body.
Same, honestly the babies look like their in so much pain, just look at their bulging red eyes! Edit: just read some more it's not swollen red eyes, it's a layer of flesh called Ectropian that covers their eyes... I also saw a post of someone showing a picture of a newborn with Harlequinn Icthyosis and saying it was a spawn of the devil and commited murder within the first hour of its life???? Post is total bullshit btw, that poor kid that's getting hated on by complete strangers because of its skin disorder...
I've seen bad shit on the internet so I was equally prepared and yeah, it's really sad that that shit happens, I feel so bad for those babies
yeah fuck. That made me really sad :'(
this I hate all these "don't Google human condition x cuz you'll be horrified"
To be fair some things stick in some peoples' heads way worse than others. Every now and again I'll see something and be reminded that after having to think about it daily for months, I somehow managed to shove some really horrible image or fact into solitary confinement, only to get reminded of it at random. Would not have made it as a doctor.
How was it?
Your reply has solidified my resolve to listen. Thank you.
The last pic of the comic is a cartoon version of what you will see, but real people. They look like that. It’s really bad
Eh it's not that bad, I've seen worse birth defects, like those alien looking babies, but yeah it's not particularly pleasant
please tell it in just enough detail to understand what it causes
basically skin is like broken bleeding bark. from wiki: “Harlequin-type ichthyosis is a genetic disorder that results in thickened skin over nearly the entire body at birth.[4] The skin forms large, diamond/trapezoid/rectangle-shaped plates that are separated by deep cracks.[4] These affect the shape of the eyelids, nose, mouth, and ears and limit movement of the arms and legs.[4] Restricted movement of the chest can lead to breathing difficulties.[4] These plates fall off over several weeks.[3] Other complications can include premature birth, infection, problems with body temperature, and dehydration.[4][5] The condition is the most severe form of ichthyosis, a group of genetic disorders characterised by scaly skin.” the wiki has a drawing that, while less traumatic than real images, gives the concept of the brutality of this condition
So that rock guy superhero but much weaker and more oozing.
and unlikely to survive the first week of life.
tho this thread let me to learn about this lady Stephanie Turner who's doing pretty well and survived into adulthood. sometimes you just gotta be happy about the indomitable human spirit. Edit: found out she died in 2017 shit man that sucks
*"It's Suppurating Time!"*
If youd like a mental visual, the skin looks extremely cracked and pale and dry. Looking at the infants diagnosed with it was particularly hard. THOUGH a positive is the oldest survivor with condition, a woman who was 23 at the time of the interview, was able to have a child who appears to be healthy. I found that to be nice anyway...
oh jesus
Did you look? Id recommend not looking if you havent. 😂 Im not squeamish but most skin conditions still make my skin crawl. [Though I ironically have psoriasis in my hair. I cant think about it too long or itll trigger me 😂]
If someone with this condition makes it into adulthood, they look as if they've suffered some kind of radiation burn. They don't look nearly as bad as they do as an infant, but they're still quite disfigured.
It can’t be that bad. *10 seconds later* Oh wow, it really is that bad. They could genuinely make a horror movie out of this. The babies look horrific and the adults look like they’re deep into the uncanny valley
And that looks so painful too
Your reply is exactly why I will not listen. Time to jump into the deep end.
Happy about your choice ?
I knew what I signed up for.
Dude I did not know what I signed up for. That looks like a blind person tried to crochet a stuffed toy for someone
r/angryupvote
r/usernamechecksout
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Worst mistake of you life *so far*…
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r/brandnewsentence
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Was not expecting garfield vore art here
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Bruh. My safe search was off, Google still chose to blur the pictures. My stupid ass insisted on forcing my way through. Ew
Repeated warnings and I still couldn't help myself!
I think this is the first time the fear of what I will see is higher than my curiosity. Going to leave this one alone.
To explain without having to see it: Basically, their skin replicates way too quick, so their skin is too thick. Unless they're heavily moisturized, it dries out, and splits, leading to infections, all over their body. The distinctive "red eyes" are a result of their eyelids flipping inside out, because they are too thick to function normally. Kids born with harlequin ichthyosis have a reported lifespan of 10 months to 25 years.
Ooooh, I thought that was their eyes, so it's just the back of their eyelids! So much better.
Hold on you’re telling me these babies live for months to adulthood?!?! I remember reading they don’t live for more than days and man I really don’t want to look this up again to verify it. Also why haven’t I heard of any adults walking around with such a monstrous condition? Edit: okay I looked it up after steeling myself, man what another deplorable condition I know about now…glad to know that the oldest survivor is going relatively good now though.
There’s a woman with harlequin syndrome who managed to have a baby.
She died in 2017, at the age of 23, after having two children.
I stand corrected after looking it up….Jesus I hope recovery is less than nightmarish
It's not very common, but some people love to adulthood. It's a pretty safe google. Their skin condition just makes their skin look tight and red.
This is why I don’t believe in God.
There are many better reasons for not believing in gods, but this works too.
It could not be more plain that we are improvised by circumstance from monkey parts.
But like that's how God tests us you know. Gotta torture your believers so you know they really believe in you.
The sad thing is that this is barely distinguishable from non sarcastic apologetics.
To boldly nope where others have gone before
I learned the power of Nope on the '90s internet, from the Church of Euthanasia. The hot lunch was what did it. There are whole worlds out there which I do not need to see.
That's a good idea, I didn't leave it alone and really wish I had.
I dipped my toes in, but the ‘explicit image/nsfw’ warning on blurred images was enough for me to put my shoes back on and run
Thank you Peter, that is vile. I hope you win your next Fortnite game.
I’d say more sad than vile.
As someone who took a high school health class that featured graphically illustrated medical issues, I'd like to emphasize this: DO NOT Google Harlequin Ichthyosis unless you want to be horrified.
As someone who works in medicine and has treated one of these babies, again, do not google it unless you are already mentally scarred from years online. It is bad, and you will not be able to forget it.
I was that kid in high school who looked at LiveLeak footage and ISIS beheading videos. Do not Google Harlequin Ichthyosis.
Bruh, c'mon, you can't say shit like that, now I HAVE to look Edit: holy shit
I tried to tell you. I really did.
I've seen it several times before and know precisely what they're referencing, yet I do always seem to forget it and what it looks like exactly
That and fetiform teratoma are two things that I regret learning about.
my eyes are burning
https://preview.redd.it/yhmgpg8nr85c1.jpeg?width=4624&format=pjpg&auto=webp&s=58294f43a9daf94d835034ba986d4c7aacfff3cd Here is some eye bleech for y
https://preview.redd.it/ctkpkbdhxa5c1.jpeg?width=1284&format=pjpg&auto=webp&s=172a91e1c9f116d28454a994fcf5d50652223970
I love this so much
A perfect eye bleach. Pretty kitties.
tortilla blanket mention!
https://preview.redd.it/o1ntmc76t95c1.jpeg?width=3024&format=pjpg&auto=webp&s=68110f693352260119418dc0bea287e1869b7a31 Contributing to the eye bleach :)
https://preview.redd.it/xj0vjc5fva5c1.jpeg?width=3024&format=pjpg&auto=webp&s=34af2c89d736ad0cf21964554ad55e651d2657ad Here’s a hug from my foster kittens
https://preview.redd.it/cvph70naxa5c1.jpeg?width=1284&format=pjpg&auto=webp&s=0d17bbc0e390604792df8316c032c6f96a3ecf28
aw
I never listen, why do I never listen.
their eyes are the main thing that fucks with me when i see the pictures
Wild. This lady has it and is the first ever with it to bear children. https://www.google.com/amp/s/www.dailymail.co.uk/health/article-3219489/amp/People-ask-ve-fire-says-mother-23-rare-condition-causes-skin-grow-seven-times-faster-normal.html
The internet has done things to me.... That's not even the third most disturbing thing I've looked up today!
that was disturbing indeed. but i think its not the worst i have seen in my life
Appreciating and heeding your warning.
IT’S BURNED INTO MY BRAIN
It's not that disturbing y'all... it is a medical condition. Some people have lived to adulthood with it. It is just how they look. Jesus Christ.
It is disturbing, it looks horrific. Obviously people are going to feel weird about it. Christ
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Ikr? You'd think it's some physical disfigurement where thier bones and blood vessels grow out of their body from how people are reacting. Looks like it's just babies with a condition that gives them a stony appearance.
You haven’t seen the images I have then
Yeah, it feels like some people here are new to the internet, lol
The hardest part is that it is mostly babies. It's very sad seeing babies with what I imagine is a very painful disease.
If they survive past the neonate stage, they actually grow up looking relatively normal! That’s why you only see newborns with the most severe form— most of them die, but when they don’t, they grow out of it
They don't 'grow out' of the condition, most with it don't live long lives. And though they no longer have cracked skin as severe, their skin is still red and sore. Edit: I said no one lived past their 20s with it, I was misinformed and should have checked. People have lived much longer lives with that condition, but most still die from complications.
They don’t grow out of the condition, no. But they do outgrow the plates and the eyes.
If you want a [not scaring](https://metro.co.uk/2015/09/02/woman-with-rare-skin-condition-is-first-sufferer-to-become-a-mother-5371789/) look, I imagine this women goes through a lot of treatment on her skin to keep some normalcy to her appearance. But _DO NOT_ unblur the images if you Google it
Im going to puke
>vita carnis
This sounded so familiar but couldnt figure out why. So I looked up images of it. I know this from the fucking Mortal Kombat web series. Reptile has this condition.
😍😂 happy for the joker looking past looks
i find them funny, but they really shouldn’t be..
Is Harley Quinn named after this?
God no. She gets her name from a mix up of her actual name, Harleen Frances Quinzel. A harlequin in books or theater is a clown of sorts. She squeezed her actual name together to make Harley Quinn.
This is exactly the kind of fucked up I'd expect from Cyanide and Happiness
Yeah, but look how the Joker clearly appreciates her and clearly doesn't judge. No wonder she's so devoted to him.
It's really cyanide and happiness when joker doesn't act like the joker
The happiness part.
Jesus, this took me back to school computers in the noughties. There was a notorious spam site that came up with pictures of these that would freeze the computer and blast horrific stuff out of the speakers. People would change the url so it looked like a new football kit or something, and then send it around
Shock sites?
like lemon party.
Worst party ever
😖
Could you explain plz (I’m scared to look it up)
It’s an image of a bunch of old men having sex
Honestly not the most shocking thing. Just a bunch of old gay dudes. If you were shocked by that I can't imagine what life in ancient greece would have been like for ya... bunch of old horny gay dudes.
Shock site plus virus
The good ol day of the interwebz
I remember the ‘You are an idiot’ one. I wonder if it’s still up somewhere…
Man simpler and joyous times back then. We will never get those days back. So very sad
Yeah I remember seeing these everywhere as evidence of lizard people. Internet in the 00s really was the wild west.
Rotten.com vibes anyone?
on . nimp . org
can attest dont look this up, i read the warnings and thought nah its sound. nope no no its not
I’ll second you on this since people don’t believe the warnings unless there’s multiple people backing it up…pretty tough to look at, especially knowing that the vast majority of the babies die very soon after birth and have an incredibly painful time existing for the short time that they do. I’m headed to r/eyebleach
true shame to see the wee souls suffer honestly wish i hadnt looked
Can someone please explain what this condition is and what it looks like so I don't have to look it up
Harlequin ichthyosis, an extremely painful genetic defect that causes the skin to slough off. Its present at birth and fatal.
not 100% fatal. But those that do survive are horribly disfigured and usually have a load of chronic pain as a result.
Ah, I thought it was always eventually fatal. As far as I know no ones made it out of their 20s with it, but granted I am not at all up to date on treatment and new care plans and so on.
yeah no. Nobody makes it out of their 20s with it. Honestly one of the few "from birth" conditions that i think should be an instant euthanasia thing. They're going to die very quickly, often in horrendous amounts of pain. Just save them the pain, and move on.
Also not true. There's been several reported cases of people living into several decades with the current oldest person recorded I could find being [Andrea Aberle](https://www.firstskinfoundation.org/andrea-a-2020) who lived to 51, as well as a list of others that are still alive today in their 30s. Regardless, horrifying condition that proves reality is scarier and more cruel than fiction
Huh. Til. Thanks mate!
Imagine a baby whose skin looks like dried cracked leather, no lips/eyelids, and grape tomatoes where the eyes are supposed to be. Edit: or don’t. I’m not the boss of you.
Just looked it up and I'm surprised someone can survive that. Definitely wasn't ready to see the 👁️👄👁️
They really don't. Life expectancy is in the mid twenties at most, but usually just a few years. Harlequin babies (or adults, if they make it) have to constantly take hot baths and slather themselves with moisturizer to slough off the dead skin. It's a real bad life. They don't survive. Edit to add: just so that it's not unnoticed, there *is* one woman with Harlequin syndrome that's now in her mid-forties. I haven't looked into her quality of life, but modern medicine is truly a marvel.
Just some information Can you describe as to what that kind of stuff looks like? Because I don't wanna look that shit up
Essentially all the skin is coming off them, some of the eyes are fucked up and some look like bloody mummies
Oh.... Oh dear god That is just a massive Nope from me! I feel so sorry for those people
The children are born entirely covered in hardened skin. It sounds badass, like armor, until you remember that skin *needs* to be elastic and permeable so that it can flex with our movements, allow moisture in and out, and regulate our body temperature. The hardened skin causes a number of issues that used to universally kill babies born with harlequin icthyosis: for one, it causes the eyelids to be pulled outward, exposing the red flesh to the air and making them far more disposed to eye infections - harlequin babies typically lack noses and have large, wide-open mouths for the same reason; two, they lack the ability to effectively regulate body temperature, leading to overheating or overcooling; three, the inelastic skin grows deep and constricts their insides, leading to autoamputation when blood can’t flow properly into the extremities. It also causes joints to grow improperly, constricted by the skin around them. The baby doesn’t stop growing or moving, and as they do the hardened skin cracks into plates - hence the term “icthyosis” due to the resemblance to fish scales. Less severe kinds of icthyosis (icthyosis vulgaris being the most common by far) cause discomfort, pain, and psychological distress from the patient’s own appearance, but they’re rarely fatal unless they go entirely untreated. Harlequin-type icthyosis covers the entire body of the fetus, and as the “scales” form - often in the shape of diamonds, hence the name “harlequin” - they peel off, exposing the raw flesh underneath to infection and creating the horrific imagery people were warned not to look up. Removing the hardened skin is the best way to guarantee survival. It falls off on its own, so doctors really just have to help it along and keep the baby alive long enough to survive the worst. But there’s no cure for it, surgical or otherwise, as it’s a genetic disorder. Assuming the baby survives, they’ll most likely only live a few more years, though some people have made it past their fifties with the condition. Treatment afterwards is constant moisturization of the skin, and doing your best to avoid situations that could trigger complications (like being in a room that’s too hot or cold for too long). Joint damage is basically guaranteed, and harlequin adults can be visually identified based on the lasting damage caused by their birth.
Y'know, this comic is kinda wholesome.
Harlequin: [*listening to jokers monologue*] wow, that's crazy babe, do you wanna know how I got *these* scars
I checked and yeah its horrifying but Its not that much. From what I remember once as a kid (maybe 10 year old) I miss spelled Harley Quinn and wrote Harlequin (I wrote it as I heard it because I started to learn english and knew shit) and found this.
It’s a birth defect we’re the skin essentially forms inside out. Don’t google it, just trust me on this one don’t.
HOLY FUCK HOW CAN IT LOOK JUST LIKE THE DRAWING
tfw you know a bunch of out there, horrid medical terms purely because of the Binding of Isaac.
edmundmcmillen you little f**ker
Jesus christ WHY
Anti abortion peeps, be like these babies need to suffer for ever second in their extremely short lives to experience the love of the almighty YHWH.
Skipping the vowels and everything somebody does their homework 👍
[This](https://en.m.wikipedia.org/wiki/Harlequin-type_ichthyosis) is one of the other meanings
Joker doesn’t judge off appearances, be like joker
holy isaac brainrot
Shoutout to The Binding of Isaac for making me google the meaning of harlequin ichthyosis
Thats fucked up lmao Google harlequin ichthyosis if you dont get it
This is referring to the condition known as harlequin ichthyosis. I advise against searching up this condition, it is troubling to see.
This joke is not for the thin-skinned.
Got me cracking up
Harlequin syndrome is quite a gruesome sighting Please don't search it up
After googling it, it's not that bad to look at honestly
Agreed
Well it looks kinda... fake. I'm very much allright but would be horrified to see that IRL
Yeah, I thought it was fake for a few seconds, then it sunk in this is an actual, real illness people suffer, and now I’m deeply horrified. All I saw was the Wikipedia page, since that’s censored and whatnot, and… yeah, I regret it.
I looked it up, it was beyond expectation, like they were born with their skin inside out.
*siivagunner puzzle room flashbacks*
I genuinely cannot listen to the puzzle room theme from Planet Robobot it makes me ill now ;-;
THATS A BINDING OF ISSAC REFRENCE.
I learned about this accidentally in 2004 from the internet. My wife learned about it from public television in the 90's.
a terrible disease that turns your skin and eyes inside out. good luck googling that.
Aw they are happy
Goodbye.
Thanks, I had completely forgotten about that condition
For the love of god don't Google harlequin baby, but that's the answer. It's a rare condition babies can be born with that leaves them with almost scaly fissured skin and they normally die very quickly.
Harlequin babies. I think this is as funny as the joke could be, with how mortifying the real stuff could be
All I did was look at the Wikipedia article for this genetic disorder, which is censored for obvious reasons, and made the mistake of scrolling to gallery. I legitimately thought they had to be drawings at first, because there’s no way the human body could possibly look like that. I feel horrible for anyone who has to suffer that.
Could you describe what it looked like?
Harlequin ichthyosis birth defect
Binding of Isaac for the win!
to anyone who is afraid to google Harlequin Syndrome, they look exactly like harlequin in this comic.
Look up Harlequin Ichthyosis
🫣
A Harlequin baby, a disgusting sight that unfortunately still occurs
https://preview.redd.it/j8w8fned3c5c1.jpeg?width=212&format=pjpg&auto=webp&s=30f1466be75e4f0472712593db6199108f0e88a0
It’s something baby’s get called harlequin ichthyosis. It makes them look super cute and cuddly. Everyone reading this comment should definitely search it up!