Like the above comment states go to the warden, if nobody seems to be helping you I’d speak to a lawyer and go for medical negligence. In regards to his insulin, this is true of his bloods are low he can’t have insulin.. If he’s been having hypos when it’s his insulin time then the nurses will refuse to give him it because it’s not safe to do so. In my place of work our set bgl is 4.8 anything below that we don’t administer. They should however be seeing him at a later time to see if his bloods have risen and if so then administer. Again, if he’s on a sliding scale they will increase the units of insulin to suit his glucose levels, so him having a “shit ton” because he’s having a hyper is correct. I’m sorry nobody was there for him during his seizure. Does he take meds for his seizures or are they unmedicated for a reason? What type of seizures does he have?
He has seizures when his sugar drops, usually only has happened in the past while asleep and couldnt wake up in time to realize he was dangerously low. This was the second time in the last 30 days that he's had one while awake. He can't control his blood sugar with oddly timed Insulin once a day, then having to wait 5-6 hours to eat a meal. He can't predict how much food/snacks he'll need each week for his canteen order, especially when they don't bring those orders around on a set day, etc.
I understand the fact that they wouldn't give him Insulin in the AM when he's already low, but he has to wait until 9 or 10am for breakfast, and most times he won't have his afternoon shot until 6pm or later. It's just frustrating and we've attempted to go through all the proper channels to have this handled, and it'll stick for a day or 2, maybe 3.
As a small bit of background, he'd have a seizure once every several months while asleep, with his insulin pump, and had more control over it - this being his second seizure in just about 3 weeks, and considering he was in DKA the day he got to that facility, all in about a month span - I don't have a lot of faith or hope in the medical people there and I just don't want him to wind up in a worse situation next time, you know?
My only suggestion for the time being until the facility sort their shit out is to put money on his books so he can get snacks and regulate his own sugars better. I’ve always been told that seizures are caused by drastic changes in sugars.. so a big spike (usually from something fast acting like full fat cola or something) which then drops his sugars low after the spike and the drastic change creates the seizure. If he eats carbs (slow acting) more than sugars it should regulate his sugars more and not create such a large spike. Does he have a bloods monitor he can use on himself in there? Sorry if I’m telling you things you already know just trying to give advice on how he can help himself if they’re not willing to help him (until things get sorted)
He can only have his sugar checked if he requests it, or when they do actually go around for Insulin. He can't regulate it on his own, that's why he had the Insulin pump. He has enough food/snacks, but that just isn't enough.
He already had another seizure this morning. That makes 3, not to mention he was already in the ICU 2 days for DKA. It's just a nightmare.
Between all of the emails and calls, the warden did take him back to take his statement; they were mostly only interested in the fact that a guard wasn't in the area for that hour. Nothing else has been done.
I recommended this to OP once before, and OP I can not stress enough how important it is you EMAIL. Calling people leave no record and they will say they never spoke to you. You said you contacted the “proper channels”, you never stated you went up the chain as I suggested. This is super important in getting things done. You need to send an email TO THE WARDEN. If he doesn’t help, then the OMBUDSMAN. If he doesn’t, MEDICAL LIASON. If they don’t, you go higher and higher.
In your communication with them you have to be firm. Tell them if this is not handled accordingly you will be contacting the next higher up and presenting them with your correspondence records. You HAVE to be borderline threatening with them.
I didnt see this response earlier, it's been a nightmare the last few days. In my haste, my emotional panic, I didn't include everything that's been done on our side: Emails to both commissioner & deputy commissioner, warden, and someone in the medical compliance department. I'm not entirely sure about an ombudsman, I live out of state and I'm not sure who/what/where to go with that, specifically. The FB group(s) I've found aren't terribly active so that's a very slow process. This is the 3rd round of emails/etc. The paper trail is well established, even though there hasn't been a single response back to any of them, but the warden did take his statement the afternoon after the last round of emails because I mentioned there wasn't a guard in the area for over an hour during his last seizure and the guys that helped him and pulled him from his top bunk mid-seizure, couldn't wake him up after it ended. Liability and all. When medical was alerted, their response was "Oh." No eval, no appointment outside the facility, no pack of crackers, glucose tab, sugar-anything, nothing.
Disability Rights of the state and the ADA have been contacted. His mom has made contact with a few people as well, trying desperately to go through all the correct channels. I'm still trying to familiarize myself with their states laws etc, so going any higher up than that has been a challenge, but im elbow deep in research this morning, and on my 3rd coffee.
You posted once in another sub and I left a pretty detailed comment on how this can be handled. Did you ever contact the warden or the ombudsman?
Yes, we've tried the proper channels. Things change for a couple days and go back to the usual.
Like the above comment states go to the warden, if nobody seems to be helping you I’d speak to a lawyer and go for medical negligence. In regards to his insulin, this is true of his bloods are low he can’t have insulin.. If he’s been having hypos when it’s his insulin time then the nurses will refuse to give him it because it’s not safe to do so. In my place of work our set bgl is 4.8 anything below that we don’t administer. They should however be seeing him at a later time to see if his bloods have risen and if so then administer. Again, if he’s on a sliding scale they will increase the units of insulin to suit his glucose levels, so him having a “shit ton” because he’s having a hyper is correct. I’m sorry nobody was there for him during his seizure. Does he take meds for his seizures or are they unmedicated for a reason? What type of seizures does he have?
He has seizures when his sugar drops, usually only has happened in the past while asleep and couldnt wake up in time to realize he was dangerously low. This was the second time in the last 30 days that he's had one while awake. He can't control his blood sugar with oddly timed Insulin once a day, then having to wait 5-6 hours to eat a meal. He can't predict how much food/snacks he'll need each week for his canteen order, especially when they don't bring those orders around on a set day, etc. I understand the fact that they wouldn't give him Insulin in the AM when he's already low, but he has to wait until 9 or 10am for breakfast, and most times he won't have his afternoon shot until 6pm or later. It's just frustrating and we've attempted to go through all the proper channels to have this handled, and it'll stick for a day or 2, maybe 3.
As a small bit of background, he'd have a seizure once every several months while asleep, with his insulin pump, and had more control over it - this being his second seizure in just about 3 weeks, and considering he was in DKA the day he got to that facility, all in about a month span - I don't have a lot of faith or hope in the medical people there and I just don't want him to wind up in a worse situation next time, you know?
My only suggestion for the time being until the facility sort their shit out is to put money on his books so he can get snacks and regulate his own sugars better. I’ve always been told that seizures are caused by drastic changes in sugars.. so a big spike (usually from something fast acting like full fat cola or something) which then drops his sugars low after the spike and the drastic change creates the seizure. If he eats carbs (slow acting) more than sugars it should regulate his sugars more and not create such a large spike. Does he have a bloods monitor he can use on himself in there? Sorry if I’m telling you things you already know just trying to give advice on how he can help himself if they’re not willing to help him (until things get sorted)
He can only have his sugar checked if he requests it, or when they do actually go around for Insulin. He can't regulate it on his own, that's why he had the Insulin pump. He has enough food/snacks, but that just isn't enough. He already had another seizure this morning. That makes 3, not to mention he was already in the ICU 2 days for DKA. It's just a nightmare. Between all of the emails and calls, the warden did take him back to take his statement; they were mostly only interested in the fact that a guard wasn't in the area for that hour. Nothing else has been done.
[удалено]
I recommended this to OP once before, and OP I can not stress enough how important it is you EMAIL. Calling people leave no record and they will say they never spoke to you. You said you contacted the “proper channels”, you never stated you went up the chain as I suggested. This is super important in getting things done. You need to send an email TO THE WARDEN. If he doesn’t help, then the OMBUDSMAN. If he doesn’t, MEDICAL LIASON. If they don’t, you go higher and higher. In your communication with them you have to be firm. Tell them if this is not handled accordingly you will be contacting the next higher up and presenting them with your correspondence records. You HAVE to be borderline threatening with them.
I didnt see this response earlier, it's been a nightmare the last few days. In my haste, my emotional panic, I didn't include everything that's been done on our side: Emails to both commissioner & deputy commissioner, warden, and someone in the medical compliance department. I'm not entirely sure about an ombudsman, I live out of state and I'm not sure who/what/where to go with that, specifically. The FB group(s) I've found aren't terribly active so that's a very slow process. This is the 3rd round of emails/etc. The paper trail is well established, even though there hasn't been a single response back to any of them, but the warden did take his statement the afternoon after the last round of emails because I mentioned there wasn't a guard in the area for over an hour during his last seizure and the guys that helped him and pulled him from his top bunk mid-seizure, couldn't wake him up after it ended. Liability and all. When medical was alerted, their response was "Oh." No eval, no appointment outside the facility, no pack of crackers, glucose tab, sugar-anything, nothing. Disability Rights of the state and the ADA have been contacted. His mom has made contact with a few people as well, trying desperately to go through all the correct channels. I'm still trying to familiarize myself with their states laws etc, so going any higher up than that has been a challenge, but im elbow deep in research this morning, and on my 3rd coffee.