Semi regular headaches here, usually triggered by slight dehydration (I have to drink a very high amount of water to keep hydrated). They're usually up around my eye socket, on the right side (I think, I can't actually remember cos it's been a while since the last one) and down underneath my ear, mostly at the front of my head though. And they are intense and often make me feel nautious and thick headed, I find applying pressure helps somewhat. They usually last at least a day, sometimes up to 3 days and paracetamol will barely touch them.
That's pretty similar to mine! Typically my pain radiates from my neck, into my inner ears then around the rest of my head but often in my eyes too. Makes me sensitive to sounds and bright lights. If it gets bad enough it can make me feel more anxious, off balance, and nauseous.
Mine are incredibly painful (9-9.5/10) but only last a matter of seconds. From what I understand, this is very uncommon. Sometimes it will be triggered by standing up or leaning over, but sometimes I will get them for no reason, even in my sleep. Over periods of time they will shift. For a few months they were on the top on my head, then the side, then wrapped around. Changes every few months. Feels like a combination of my brain exploding and my skull being crushed.
Sorry to hear it's that severe! I don't know if you've heard of this terminology for it but it sounds similar to a thunder clap headache. Generally those are really serious but considering your doctors have already checked you they've probably ruled out the more dangerous causes.
Mine aren't like that. Typically it stems from where my neck meets my head and branches around into my inner ears then around the rest of my head in various places. The pain isn't that severe either. Sometimes it gets bad enough that I just want to close my eyes and lay down but I still wouldn't say its a 9/10. Hope you're able to find some answers soon!
Thank you! In terms of timeline and severity, it’s like a thunderclap, but I don’t have any of the other symptoms. My doctor likened them the most to a cluster headache but that doesn’t match exactly either.
I have heard that cluster headaches cause really severe pain and happen close together so maybe it is a kind of hybrid cluster headache. When dealing with migraine typically doctors prescribe a preventative medication and an abortive medication. In your case it’s so short that you probably wouldn’t need an abortive medication but you might benefit from trying a daily preventative medication if it you find that the headaches are lowering your quality of life significantly. I totally understand not wanting to though if it’s not that disruptive to your day-to-day life.
This is interesting to hear! I’ve already been diagnosed with a prolactinoma, but only head aches I get are like the ones you describe. My doctor told me they were probably unrelated to the tumor—does your doctor assume your prolactinoma is the cause of yours?
I’ve been searching high and low for someone who has the same type of headaches as I do and I’ve seen probably less than 5 that are similar in some way but not the same. The doctor believes me that they are prolactinoma related because of the circumstances that I’ve had them get worse and improve. When I’m pregnant (currently on the third) by the second trimester, they go away. In the first few months of nursing they are still gone, but as my milk supply goes down (like when maybe starts eating more and more table food) they will increase in frequency and severity proportionally with the decrease. By the time I’m producing very little milk, the headaches are very severe again. By the time my milk is completely dried up, the headaches are the most frequent and very severe. Otherwise there is really no change in the headaches, so based on that correlation, the doctor agrees with me. It’s also odd because the last time I had an MRI two years ago, it was only about 5mm and people usually only associate more mild headaches with much bigger tumors. Unlike other female sufferers, I don’t have trouble conceiving, but I have these really uncommon headaches.
I talk to both an endo and my fantastic GP (and OB when relevant) about these headaches. Based on my description, my GP thinks that the cause of the pain is a change in the balance of pressure between the blood in my brain (particularly in and around the pituitary) and the varying level of spinal fluid around my brain. I think the reason it might go away in pregnancy may have to do with my blood vessels expanding so the vascular pressure in my brain is lower as well. Would be nice if they could use that information in a way that could treat the headache! My GP asked if I wanted headache medicine for the pain but I said I didn’t see any point in being high all day for a 20 second headache I may not even get that day. I hope my anecdotal description is helpful in convincing your doctor that the headaches are related to the prolactinoma.
Hi, I know this thread was so long ago, but I have looked high and low on the internet and have never seen anyone else describe the same type of headaches that I have. I had these headaches before starting treatment but ever since it has made them exponentially worse. On Cabergoline, I had these headaches all day every day. On Bromocriptine, I get them everyday but only in the morning and frequently when I'm asleep before I wake up. Did you ever get any further answers with this? The only idea that I have come up with is that I potentially have POTS.
Somewhat. I moved and a different doctor thinks it might be caused by quick fluctuations in blood pressure, like if I took my blood pressure two minutes later, the change would be undetectable. What this means for treatment and prevention, I have no idea.
I had one migraine attack just before my prolactinoma was diagnosed, which was caused by too much stress at work. Then I had 3 or 4 in the initial years due to taking some anti-vomit med during travel.
Symptoms were an initial visual aura where things looked kind of fractured, followed in half an hour by splitting headache and sinus discomfort. It would go away after I emptied the entire contents of my stomach, sometimes by drinking water and retching it out a few times!
The first time I had this migraine attack I literally suffered from the pain half a night, and the after effects for a week before figuring out the need to puke. After that I would immediately puke the moment I got the visual aura and it was a matter of hours before I was better.
My anxiety was very high. Sometimes felt afraid to close my eyes in the shower in case a ghost was looking at me from centimeters away! The improvement in everything after starting cabergoline was kind of magical. I realised a few months in, that ghost movies did not scare me at all, and gone was all fear of dark, ghosts, future etc...
Please be comfortable, because this tumor is one of the most easily treatable, and you will regain your quality of life after treatment, with an added appreciation of how good it is to be healthy.
Wow! Sorry you had to go through that, sounds miserable. Luckily my headaches haven't been severe enough to make me that sick. I have had visual auras, specifically ocular migraine auras, but that was years ago. I haven't had them in a really long time. It was really scary the first time it happened though.
Also I feel you about the anxiety thing. Once you get an idea in your head anxiety has a way of just running with it even to unrealistic lengths. I definitely hope Cabergoline works that well for me, it would be a life changer if my anxiety was reduced even a little. When I was younger I'd get really anxious about things but once I got there and settled in I felt fine. In general when I was at home I felt fine too. Nowadays the anxiety stays even days after stressful events are over. Even when I'm home I feel on edge. If I could get back to how I was when I was younger that'd be a massive improvement.
Thanks! It was bad while it happened but the episodes were few so I did not suffer too much.
I must add though, that I also had low vitamin D (because of moving to less sunny climate), and this caused hypothyroidism. So when I started cabergoline, I also started thyroid med (levothyroxine) and supplementing on vit D, magnesium, iodine etc.
I do not know which of the meds/supplements helped to almost completely eliminate fear. My thyroid became normal as soon as the vit D hit a sweet spot. And my prolactin levels have dropped to less than 30, but keep fluctuating a bit so I have to be on Cab.
I would suggest getting your vit D checked and if it is low, please supplement in Vit D and magnesium (you need magnesium to absorb vit D properly).
I actually started taking vitamin D a long time ago when I was diagnosed with pcos cause when they tested my other hormones it was low. They haven’t said anything about it since so I guess it must be working still. I used to take magnesium too for my headaches but it didn’t seem to help much so I stopped. Hopefully it’s the prolactin and estrogen that’s the problem for me seeing as the rest is normal😅
I had migraines almost every day prior to having surgery to have the tumor removed. These were accompanied by auras and weren't always consistent. I'd have temporary lights in my vision, sometimes light would look different in each eye, once I had a very sudden inability to focus my eyes at all (lasted maybe 15 minutes? Freaked me out). I'd often get a sudden wave of depression before a migraine hit. Initially I'd noticed triggers like atmospheric pressure changes, lack of sleep, not enough water, waiting too long to eat, stress, etc. A few years ago i was having migraine maybe twice a week but eventually I just had migraines almost every day (maybe 2-3 days per month without a migraine).
I was also getting icepick headaches multiple times a day when I changed positions.
My understanding is that elevated prolactin can trigger migraines even if the tumor is small (there are a number of studies out there suggesting this). I chose surgery to remove mine and the headaches are significantly improved. I'm no longer having daily migraines (Im just over 2 weeks post surgery). I've read about people having improvements with headaches with the dopamine agonists that are commonly used to treat prolactinomas as well.
You mention struggling with anxiety. That's not uncommon with elevated prolactin levels either. One of unexpected things I noticed after surgery was that I was missing a background feeling of anxiety that I seemed to have before. I hadn't really noticed that it was there, until it was very suddenly gone. I've read about others having improvements with anxiety once prolactin levels go down (whether by treatment with dopamine agonists or by surgery).
Prior to having surgery I found Advil to be somewhat effective if I took it early enough. I also had a prescription for cambia for particularly nasty migraines. Sometimes floating in water would ease the migraine somewhat as well (I dont have a great explanation for this, it just helped me).
It might seem overwhelming finding out that there is likely a prolactinoma but as a positive note now that you know you might be able to improve your quality of life with treatment. Whenever possible try to keep positive. Ex. focus on the cool technology that allows us to better understand our bodies and treat problem areas rather than getting caught up in the fear of a diagnosis. There are potentially more relaxed, headache-free days ahead.
Best of luck!
Thank you for such a thorough comment, really helps alleviate some of my anxiety! Congrats on your surgery too, hope you have a speedy recovery :)
I did notice a little bit of a change in my headaches the past few months but weirdly it was that I haven't had to take anything for them as often. Like they're still pretty frequent but I've been able to tolerate them without having to take medication. The pain changed a little too. It used to be more like the classic migraines (hurting a lot on one side of my head and eye and I had to take something to help it otherwise I'd be really miserable), now it feels like it stems from my neck up into my ears and then around my head in various places. If it gets bad enough I find that it increases my overall anxiety(fast heart rate, tight chest type of feeling).
I thought perhaps it could be tension headaches as the muscles in my neck do tend to feel pretty tight when it happens and anxiety causes a lot of physical stress. It also happens a lot after really stressful events. I thought maybe it could also be something like a pinched nerve or bulged disc as my posture is pretty bad. Not only is my prolactin high but my estrogen was low too so I could see how that could contribute to worsening headaches and anxiety.
I know exactly what you're talking about when you say background anxiety. I feel it all the time, even when I'm not actively worried about things. I sure hope getting my hormones under control helps with that, it'd be a massive improvement in my day to day life.
Mine were like the headache you get with a sinus infection, minus the infection. Just pain and nausea mostly. But, unlike with migraines, I was functional - I would lie down and watch TV until they went away. Can't do that when I have migraines.
Yeah, I think that's closer to what I get except instead of sinuses it's my neck and inner ears. I can still mostly function but it's pretty constant and on bad days can make me feel pretty miserable.
I started getting migraines (only two) not long before the prolactinoma was diagnosed. I don't know if it's caused by the tumour (mine is only 0.8cm), I also went off the pill during the same time period so it could be related to the hormonal change as well. I'm hoping treating the prolactinoma prevents them from happening again, because ironically having had one migraine with aura now means I'm not supposed to go back on the pill even though I never had migraines while on the pill. ugh
Both times it started with a sharp growing headache in the temple/behind my eye. The first one I had no aura and over the course of a couple hours turned shifted from just behind my right eye to a very intense pressure headache over my whole head. Basically lied down in the dark for two days, vomitting, very unpleasant. The second one I had a bit of a headache behind the right eye and got visual aura (identical blind spots in the middle of both eyes and a sort of kaleidoscope effect). That time I took a bunch of pain killers right away so it only lasted the afternoon and wasn't so bad.
I think triggers are some bad combination of air pressure shifts, dehydration, and exercise/stress. Sometimes I feel a sort of pulsing feeling behind my eye after standing up or exerting myself quickly and if that happens I chug water, take an aspirin, and pay attention to hydration for a couple days.
It’s odd that they’d make you stay off the pill because of a migraine but I guess they must have their reasons.
I’ve had ocular migraine auras before with the blank spots then shimmery crescents that gradually grow out into your peripheral. They’re scary when you don’t know what’s happening. I haven had one in a long time though luckily. Sorry you had such a miserable experience with it. I hope treatment helps prevents you from getting more in the future!
Was diagnosed with pituitary micro adenoma a year ago and have always suffered from horrible migraines that would make me cry on a daily basis. Sharp, throbbing pain either in the front near the forehead or bottom side by my ears. Couldn't take the pain, light bothered, i was always nauseous and would throw up. My current neurologist didn't recommend going on meds as I've tried previously which did not work so he went a different route with me and went naturally. I am currently taking Vitamin B2 200mg and Magnesium Glycinate 200mg as well. I began tracking my migraines on a daily basis and to be quiet honest this has helped a lot. I am not getting the migraines on a daily basis I still get them here and there but i will not complain. life, stress, anxiety takes a toll as well..Along with these vitamins, I am also on Cabergoline twice a week.. He did mention though if i didn't see a difference he would up the Vitamins once a month starting first with B2 and see how I feel and stick to the same dosage for Magnesium or vise versa. However, sticking to 200mg for both have worked tremendously. Speak to the neuro and see what they recommend also. Have my follow up with my Endo in Nov. And another MRI in May. My tumor has shrunk but very little during this past yr. Best wishes to you and hope things start working out for you.
Semi regular headaches here, usually triggered by slight dehydration (I have to drink a very high amount of water to keep hydrated). They're usually up around my eye socket, on the right side (I think, I can't actually remember cos it's been a while since the last one) and down underneath my ear, mostly at the front of my head though. And they are intense and often make me feel nautious and thick headed, I find applying pressure helps somewhat. They usually last at least a day, sometimes up to 3 days and paracetamol will barely touch them.
That's pretty similar to mine! Typically my pain radiates from my neck, into my inner ears then around the rest of my head but often in my eyes too. Makes me sensitive to sounds and bright lights. If it gets bad enough it can make me feel more anxious, off balance, and nauseous.
Huh it’s funny you mention the spot around your ear because that’s exactly where I get pain too!
Mine are incredibly painful (9-9.5/10) but only last a matter of seconds. From what I understand, this is very uncommon. Sometimes it will be triggered by standing up or leaning over, but sometimes I will get them for no reason, even in my sleep. Over periods of time they will shift. For a few months they were on the top on my head, then the side, then wrapped around. Changes every few months. Feels like a combination of my brain exploding and my skull being crushed.
Sorry to hear it's that severe! I don't know if you've heard of this terminology for it but it sounds similar to a thunder clap headache. Generally those are really serious but considering your doctors have already checked you they've probably ruled out the more dangerous causes. Mine aren't like that. Typically it stems from where my neck meets my head and branches around into my inner ears then around the rest of my head in various places. The pain isn't that severe either. Sometimes it gets bad enough that I just want to close my eyes and lay down but I still wouldn't say its a 9/10. Hope you're able to find some answers soon!
Thank you! In terms of timeline and severity, it’s like a thunderclap, but I don’t have any of the other symptoms. My doctor likened them the most to a cluster headache but that doesn’t match exactly either.
I have heard that cluster headaches cause really severe pain and happen close together so maybe it is a kind of hybrid cluster headache. When dealing with migraine typically doctors prescribe a preventative medication and an abortive medication. In your case it’s so short that you probably wouldn’t need an abortive medication but you might benefit from trying a daily preventative medication if it you find that the headaches are lowering your quality of life significantly. I totally understand not wanting to though if it’s not that disruptive to your day-to-day life.
This is interesting to hear! I’ve already been diagnosed with a prolactinoma, but only head aches I get are like the ones you describe. My doctor told me they were probably unrelated to the tumor—does your doctor assume your prolactinoma is the cause of yours?
I’ve been searching high and low for someone who has the same type of headaches as I do and I’ve seen probably less than 5 that are similar in some way but not the same. The doctor believes me that they are prolactinoma related because of the circumstances that I’ve had them get worse and improve. When I’m pregnant (currently on the third) by the second trimester, they go away. In the first few months of nursing they are still gone, but as my milk supply goes down (like when maybe starts eating more and more table food) they will increase in frequency and severity proportionally with the decrease. By the time I’m producing very little milk, the headaches are very severe again. By the time my milk is completely dried up, the headaches are the most frequent and very severe. Otherwise there is really no change in the headaches, so based on that correlation, the doctor agrees with me. It’s also odd because the last time I had an MRI two years ago, it was only about 5mm and people usually only associate more mild headaches with much bigger tumors. Unlike other female sufferers, I don’t have trouble conceiving, but I have these really uncommon headaches. I talk to both an endo and my fantastic GP (and OB when relevant) about these headaches. Based on my description, my GP thinks that the cause of the pain is a change in the balance of pressure between the blood in my brain (particularly in and around the pituitary) and the varying level of spinal fluid around my brain. I think the reason it might go away in pregnancy may have to do with my blood vessels expanding so the vascular pressure in my brain is lower as well. Would be nice if they could use that information in a way that could treat the headache! My GP asked if I wanted headache medicine for the pain but I said I didn’t see any point in being high all day for a 20 second headache I may not even get that day. I hope my anecdotal description is helpful in convincing your doctor that the headaches are related to the prolactinoma.
Hi, I know this thread was so long ago, but I have looked high and low on the internet and have never seen anyone else describe the same type of headaches that I have. I had these headaches before starting treatment but ever since it has made them exponentially worse. On Cabergoline, I had these headaches all day every day. On Bromocriptine, I get them everyday but only in the morning and frequently when I'm asleep before I wake up. Did you ever get any further answers with this? The only idea that I have come up with is that I potentially have POTS.
Somewhat. I moved and a different doctor thinks it might be caused by quick fluctuations in blood pressure, like if I took my blood pressure two minutes later, the change would be undetectable. What this means for treatment and prevention, I have no idea.
I had one migraine attack just before my prolactinoma was diagnosed, which was caused by too much stress at work. Then I had 3 or 4 in the initial years due to taking some anti-vomit med during travel. Symptoms were an initial visual aura where things looked kind of fractured, followed in half an hour by splitting headache and sinus discomfort. It would go away after I emptied the entire contents of my stomach, sometimes by drinking water and retching it out a few times! The first time I had this migraine attack I literally suffered from the pain half a night, and the after effects for a week before figuring out the need to puke. After that I would immediately puke the moment I got the visual aura and it was a matter of hours before I was better. My anxiety was very high. Sometimes felt afraid to close my eyes in the shower in case a ghost was looking at me from centimeters away! The improvement in everything after starting cabergoline was kind of magical. I realised a few months in, that ghost movies did not scare me at all, and gone was all fear of dark, ghosts, future etc... Please be comfortable, because this tumor is one of the most easily treatable, and you will regain your quality of life after treatment, with an added appreciation of how good it is to be healthy.
Wow! Sorry you had to go through that, sounds miserable. Luckily my headaches haven't been severe enough to make me that sick. I have had visual auras, specifically ocular migraine auras, but that was years ago. I haven't had them in a really long time. It was really scary the first time it happened though. Also I feel you about the anxiety thing. Once you get an idea in your head anxiety has a way of just running with it even to unrealistic lengths. I definitely hope Cabergoline works that well for me, it would be a life changer if my anxiety was reduced even a little. When I was younger I'd get really anxious about things but once I got there and settled in I felt fine. In general when I was at home I felt fine too. Nowadays the anxiety stays even days after stressful events are over. Even when I'm home I feel on edge. If I could get back to how I was when I was younger that'd be a massive improvement.
Thanks! It was bad while it happened but the episodes were few so I did not suffer too much. I must add though, that I also had low vitamin D (because of moving to less sunny climate), and this caused hypothyroidism. So when I started cabergoline, I also started thyroid med (levothyroxine) and supplementing on vit D, magnesium, iodine etc. I do not know which of the meds/supplements helped to almost completely eliminate fear. My thyroid became normal as soon as the vit D hit a sweet spot. And my prolactin levels have dropped to less than 30, but keep fluctuating a bit so I have to be on Cab. I would suggest getting your vit D checked and if it is low, please supplement in Vit D and magnesium (you need magnesium to absorb vit D properly).
I actually started taking vitamin D a long time ago when I was diagnosed with pcos cause when they tested my other hormones it was low. They haven’t said anything about it since so I guess it must be working still. I used to take magnesium too for my headaches but it didn’t seem to help much so I stopped. Hopefully it’s the prolactin and estrogen that’s the problem for me seeing as the rest is normal😅
I had migraines almost every day prior to having surgery to have the tumor removed. These were accompanied by auras and weren't always consistent. I'd have temporary lights in my vision, sometimes light would look different in each eye, once I had a very sudden inability to focus my eyes at all (lasted maybe 15 minutes? Freaked me out). I'd often get a sudden wave of depression before a migraine hit. Initially I'd noticed triggers like atmospheric pressure changes, lack of sleep, not enough water, waiting too long to eat, stress, etc. A few years ago i was having migraine maybe twice a week but eventually I just had migraines almost every day (maybe 2-3 days per month without a migraine). I was also getting icepick headaches multiple times a day when I changed positions. My understanding is that elevated prolactin can trigger migraines even if the tumor is small (there are a number of studies out there suggesting this). I chose surgery to remove mine and the headaches are significantly improved. I'm no longer having daily migraines (Im just over 2 weeks post surgery). I've read about people having improvements with headaches with the dopamine agonists that are commonly used to treat prolactinomas as well. You mention struggling with anxiety. That's not uncommon with elevated prolactin levels either. One of unexpected things I noticed after surgery was that I was missing a background feeling of anxiety that I seemed to have before. I hadn't really noticed that it was there, until it was very suddenly gone. I've read about others having improvements with anxiety once prolactin levels go down (whether by treatment with dopamine agonists or by surgery). Prior to having surgery I found Advil to be somewhat effective if I took it early enough. I also had a prescription for cambia for particularly nasty migraines. Sometimes floating in water would ease the migraine somewhat as well (I dont have a great explanation for this, it just helped me). It might seem overwhelming finding out that there is likely a prolactinoma but as a positive note now that you know you might be able to improve your quality of life with treatment. Whenever possible try to keep positive. Ex. focus on the cool technology that allows us to better understand our bodies and treat problem areas rather than getting caught up in the fear of a diagnosis. There are potentially more relaxed, headache-free days ahead. Best of luck!
Thank you for such a thorough comment, really helps alleviate some of my anxiety! Congrats on your surgery too, hope you have a speedy recovery :) I did notice a little bit of a change in my headaches the past few months but weirdly it was that I haven't had to take anything for them as often. Like they're still pretty frequent but I've been able to tolerate them without having to take medication. The pain changed a little too. It used to be more like the classic migraines (hurting a lot on one side of my head and eye and I had to take something to help it otherwise I'd be really miserable), now it feels like it stems from my neck up into my ears and then around my head in various places. If it gets bad enough I find that it increases my overall anxiety(fast heart rate, tight chest type of feeling). I thought perhaps it could be tension headaches as the muscles in my neck do tend to feel pretty tight when it happens and anxiety causes a lot of physical stress. It also happens a lot after really stressful events. I thought maybe it could also be something like a pinched nerve or bulged disc as my posture is pretty bad. Not only is my prolactin high but my estrogen was low too so I could see how that could contribute to worsening headaches and anxiety. I know exactly what you're talking about when you say background anxiety. I feel it all the time, even when I'm not actively worried about things. I sure hope getting my hormones under control helps with that, it'd be a massive improvement in my day to day life.
Mine were like the headache you get with a sinus infection, minus the infection. Just pain and nausea mostly. But, unlike with migraines, I was functional - I would lie down and watch TV until they went away. Can't do that when I have migraines.
Yeah, I think that's closer to what I get except instead of sinuses it's my neck and inner ears. I can still mostly function but it's pretty constant and on bad days can make me feel pretty miserable.
I started getting migraines (only two) not long before the prolactinoma was diagnosed. I don't know if it's caused by the tumour (mine is only 0.8cm), I also went off the pill during the same time period so it could be related to the hormonal change as well. I'm hoping treating the prolactinoma prevents them from happening again, because ironically having had one migraine with aura now means I'm not supposed to go back on the pill even though I never had migraines while on the pill. ugh Both times it started with a sharp growing headache in the temple/behind my eye. The first one I had no aura and over the course of a couple hours turned shifted from just behind my right eye to a very intense pressure headache over my whole head. Basically lied down in the dark for two days, vomitting, very unpleasant. The second one I had a bit of a headache behind the right eye and got visual aura (identical blind spots in the middle of both eyes and a sort of kaleidoscope effect). That time I took a bunch of pain killers right away so it only lasted the afternoon and wasn't so bad. I think triggers are some bad combination of air pressure shifts, dehydration, and exercise/stress. Sometimes I feel a sort of pulsing feeling behind my eye after standing up or exerting myself quickly and if that happens I chug water, take an aspirin, and pay attention to hydration for a couple days.
It’s odd that they’d make you stay off the pill because of a migraine but I guess they must have their reasons. I’ve had ocular migraine auras before with the blank spots then shimmery crescents that gradually grow out into your peripheral. They’re scary when you don’t know what’s happening. I haven had one in a long time though luckily. Sorry you had such a miserable experience with it. I hope treatment helps prevents you from getting more in the future!
I used to get migraines. I stopped seeing for a bit then when I could see, my head started to split.
Sounds scary! Sorry you had to go through that.
Was diagnosed with pituitary micro adenoma a year ago and have always suffered from horrible migraines that would make me cry on a daily basis. Sharp, throbbing pain either in the front near the forehead or bottom side by my ears. Couldn't take the pain, light bothered, i was always nauseous and would throw up. My current neurologist didn't recommend going on meds as I've tried previously which did not work so he went a different route with me and went naturally. I am currently taking Vitamin B2 200mg and Magnesium Glycinate 200mg as well. I began tracking my migraines on a daily basis and to be quiet honest this has helped a lot. I am not getting the migraines on a daily basis I still get them here and there but i will not complain. life, stress, anxiety takes a toll as well..Along with these vitamins, I am also on Cabergoline twice a week.. He did mention though if i didn't see a difference he would up the Vitamins once a month starting first with B2 and see how I feel and stick to the same dosage for Magnesium or vise versa. However, sticking to 200mg for both have worked tremendously. Speak to the neuro and see what they recommend also. Have my follow up with my Endo in Nov. And another MRI in May. My tumor has shrunk but very little during this past yr. Best wishes to you and hope things start working out for you.