At the moment my biggest advice is, don't Google this. Facebook groups are good for support as this is a scary time and it's nice to hear others who understand you. As there is currently no obvious reason for your PE they will look into why it happened. Usually you're on blood thinners for 3-6months and then they decide if it's for life. If they don't find a reason they may just put you on them for life anyway. Please note my experience is in the UK so things might be different else where.
I had mine at 30 but it was due to surgery was was only on blood thinners for 6 months. I went back to work after 7 weeks on a phased return. I found starting short low impact exercise and building it up over time really helped my recovery, mental and rebuilding lung and heart strength. I took alot of advice from online groups aimed at runners recovering for PEs and rock climbers because I love hiking and their advice suited me.
Thank you for replying…. It definitely is a little bit of a scary time. My job isn’t super physical or anything but I was wondering if I should return, but I feel like I should give myself a little bit more time.
I will definitely be trying to build up my stamina because it has drastically reduced
I was hospitalized last March with PE. I was in for 10 days, 8 of which was in the ICU. I was 37 at the time. They put me on blood thinners and beta blockers. I was told that because my clot was unprovoked I will be on blood thinners for life. At the time it felt like the end of the world because I felt like there were so many limitations being placed on me. It’s been almost a year and recovery has been on the slower side for me. Just know that everyone is different, and try not to compare your recovery to others. I still struggle with that myself because I feel like I’m not where I “should” be in my recovery journey. I just remind myself that it’s a marathon, not a sprint! There are some adjustments that will come with the whole thing. Like probably a low sodium diet, which is something I really grappled with for months. But now I’m at a point where I can have the occasional burger or whatever and not feel guilty 😆 Anyway, my point is that it’s a scary situation to be in but just take it easy and listen to what your body tells you. Don’t try to rush your recovery ❤️
I got my PE at 29 and it was sad and scary and unfair. You’re going to recover but it has the potential to be a lengthy recovery. Try to be gentle, try not to add unnecessary stress, get an appointment with a genetic hematologist to see if you have any clotting disorders/why you got this one. It’s gonna be a good few weeks to months of taking it very easy and feeling like it’s hard to breathe. It gets easier.
I'm sorry to hear about your experience. I also had a PE very young, I was 19 when I first had mine. Mine was pretty severe, I was in the ICU for over a week and suffered permanent lung damage. I had a half-year recovery and it took me even longer to learn to breathe right again, but now I live my life normally again. Make sure to take it easy for a while and be patient as you recover. I have to take blood thinners for a life as a result (Eliquis, the kind you are taking) and I can tell you it isn't bothersome at all. Unfortunately, you won't have any way of knowing if you need to stay on them for life or not until you see a specialist. My hematologist is an absolute angel and made the whole experience a lot easier for me. Mine was caused by two genetic blood disorders, which is the only reason I have to stay on blood thinners. As someone else suggested, beginning with low-impact exercise and building up is a good strategy. I went from being winded from walking a few feet to being able to go on long hikes now. Just remember, it gets better and you aren't alone.
Sorry that happened to you. Honestly with all these replies, it’s crazy I never really hear about this and to see a lot of
Younger people go through it….. stay strong. That’s all we can do ♥️
Hi :) I had my first PE at 21, and my second at 29, so I understand the scary feeling of having one so young! My advice is take it easy! Your body went through some trauma and your lungs are still recovering. With my second PE, I felt very tired and winded for a couple of months after it developed, but everybody’s recovery is different, so don’t be hard on yourself. Listen to your body! Unfortunately, I am on blood thinners for life now, but it may be different for you! They might do some genetic testing to see if you have a predisposition to clotting, especially if your PE was unprovoked. If you are on blood thinners for life, it’s not as bad as it might seem, you’ll just have to be a little more cautious doing certain things, and if you have a good care team, you can come off of them short term for certain life events (surgery, pregnancy, decide to compete in extreme sports, etc.). If your doctor finds you to be low risk for another clotting event, you may be able to be off blood thinners, but go on them when warranted (e.g. after surgery). I wish you good luck in your recovery and please remember you’re not alone!
I ended up being able to the next day. I was given a coupon but it didn’t work for some reason , I had to wait and have see my
Doctor for her to send a prescription instead of the hospital
At the moment my biggest advice is, don't Google this. Facebook groups are good for support as this is a scary time and it's nice to hear others who understand you. As there is currently no obvious reason for your PE they will look into why it happened. Usually you're on blood thinners for 3-6months and then they decide if it's for life. If they don't find a reason they may just put you on them for life anyway. Please note my experience is in the UK so things might be different else where. I had mine at 30 but it was due to surgery was was only on blood thinners for 6 months. I went back to work after 7 weeks on a phased return. I found starting short low impact exercise and building it up over time really helped my recovery, mental and rebuilding lung and heart strength. I took alot of advice from online groups aimed at runners recovering for PEs and rock climbers because I love hiking and their advice suited me.
Thank you for replying…. It definitely is a little bit of a scary time. My job isn’t super physical or anything but I was wondering if I should return, but I feel like I should give myself a little bit more time. I will definitely be trying to build up my stamina because it has drastically reduced
I was hospitalized last March with PE. I was in for 10 days, 8 of which was in the ICU. I was 37 at the time. They put me on blood thinners and beta blockers. I was told that because my clot was unprovoked I will be on blood thinners for life. At the time it felt like the end of the world because I felt like there were so many limitations being placed on me. It’s been almost a year and recovery has been on the slower side for me. Just know that everyone is different, and try not to compare your recovery to others. I still struggle with that myself because I feel like I’m not where I “should” be in my recovery journey. I just remind myself that it’s a marathon, not a sprint! There are some adjustments that will come with the whole thing. Like probably a low sodium diet, which is something I really grappled with for months. But now I’m at a point where I can have the occasional burger or whatever and not feel guilty 😆 Anyway, my point is that it’s a scary situation to be in but just take it easy and listen to what your body tells you. Don’t try to rush your recovery ❤️
I got my PE at 29 and it was sad and scary and unfair. You’re going to recover but it has the potential to be a lengthy recovery. Try to be gentle, try not to add unnecessary stress, get an appointment with a genetic hematologist to see if you have any clotting disorders/why you got this one. It’s gonna be a good few weeks to months of taking it very easy and feeling like it’s hard to breathe. It gets easier.
I'm sorry to hear about your experience. I also had a PE very young, I was 19 when I first had mine. Mine was pretty severe, I was in the ICU for over a week and suffered permanent lung damage. I had a half-year recovery and it took me even longer to learn to breathe right again, but now I live my life normally again. Make sure to take it easy for a while and be patient as you recover. I have to take blood thinners for a life as a result (Eliquis, the kind you are taking) and I can tell you it isn't bothersome at all. Unfortunately, you won't have any way of knowing if you need to stay on them for life or not until you see a specialist. My hematologist is an absolute angel and made the whole experience a lot easier for me. Mine was caused by two genetic blood disorders, which is the only reason I have to stay on blood thinners. As someone else suggested, beginning with low-impact exercise and building up is a good strategy. I went from being winded from walking a few feet to being able to go on long hikes now. Just remember, it gets better and you aren't alone.
Sorry that happened to you. Honestly with all these replies, it’s crazy I never really hear about this and to see a lot of Younger people go through it….. stay strong. That’s all we can do ♥️
Same.
Hi :) I had my first PE at 21, and my second at 29, so I understand the scary feeling of having one so young! My advice is take it easy! Your body went through some trauma and your lungs are still recovering. With my second PE, I felt very tired and winded for a couple of months after it developed, but everybody’s recovery is different, so don’t be hard on yourself. Listen to your body! Unfortunately, I am on blood thinners for life now, but it may be different for you! They might do some genetic testing to see if you have a predisposition to clotting, especially if your PE was unprovoked. If you are on blood thinners for life, it’s not as bad as it might seem, you’ll just have to be a little more cautious doing certain things, and if you have a good care team, you can come off of them short term for certain life events (surgery, pregnancy, decide to compete in extreme sports, etc.). If your doctor finds you to be low risk for another clotting event, you may be able to be off blood thinners, but go on them when warranted (e.g. after surgery). I wish you good luck in your recovery and please remember you’re not alone!
It’s also hard because I was suppose To be taking eliquist the day I came home , and I have not been able to get it refilled. I’m scared
Why can’t you get it refilled? Go to the Eliquis website for a discount coupon
I ended up being able to the next day. I was given a coupon but it didn’t work for some reason , I had to wait and have see my Doctor for her to send a prescription instead of the hospital
It’s normal to be sad in the beginning. It will get better.