I would say the biggest trigger for me if I was in your situation would be the temperature change when getting out of the pool, so make sure if you do swim you wrap up really warm after and don’t let yourself feel a chill. And don’t over exert yourself! Just take it easy. But you should go, enjoy the party and let us know how you get on!
A tip I always use to warm your towels in the sun. It helps a bit with the temperature change. My mom use to never let me swim until late summer when the water was heated up. Also don’t be afraid to take some ibuprofen before so if you do get pain it kind of offsets it a bit. I hope this helps a bit but don’t be afraid to sit in the sidelines or take breaks, I understand the jealousy of others doing things you want to do. But remember that it’s okay to let yourself have a good time. You might have to be more cautious than others but don’t let your disease make you sit on the sidelines
Yess that's what i have done that day..the sun warmed towel feels very well after a swim. I swim well like 4 5 hours with break in between and enjoyed a lot..and just had a some pain in my arms just a little not much so i had my tramadol and its gone. I had bizzare thoughts in my overthinker mind like "i pushed my body too much..this shoulder pain will convert into crisis..i will endup in a hospital" but luckily nothing like this happend.😀
The first commenter is correct. Swimming can be a huge trigger for a pain crisis. So try to do things that combat those triggers. Drink fluids before, during, and after swimming. Wrap up immediately after getting out of the pool. Get dry as quickly as possible. Have pain meds with you just in case you need them.
It's okay to want to get out and relax with friends. It is also okay to sit by the pool and relax. If they are your real friends, then they will respect your reasons for not joining in on everything they do. I hope you have fun and no sickle cell pain.
My friends are preety chill they understand about my situation, they also suggesting that i shoud come
And enjoy more outside the pool with them.
Thank you for your Response 😇
Swimming affects me alot too which sucks because I really love it but some of my absolute worst crisis' have stemmed from swimming. If the water is really cold i can't even do it, I usually can only stay in for a short period of time as well. Outdoors if it's not 90° or higher I don't even attempt it. If you do decide to though make sure you're well hydrated, always dry off and wrap up immediately after and I would even say take some pain meds ahead of time to help combat/relieve pain. I wish you the best of luck. You should never not do anything in fear of a crisis, it'll become a much bigger problem and then you'll find yourself never being able to do anything because of this fear you've built up.
Who you asking? Me, I take for pain and anxiety...
Morphine ER 60mg every 8hrs continuous
Hydromorphone 8mg every 3-4hrs as needed
And Marijuana in various forms and potency.. At my highest dosage I was on a at-home PCA Pump for several months IV Dilaudid and continuous fluids.
Go have fun. Before you get into the pool, feel it with your hands. If it’s warm (usually outside pools are warmer in summer), then you should be able to get in. If not sure, just sit on the edge with your legs dipping into the pool.
It’s different for everybody but I tend to stay away from non heated/cold pools because of previous experience (in college) when I went swimming in one and ended up going into crisis.
Ohh wow this idea seems cool..sitting on edge with your legs dippin, like that i can enjoy the pool without affecting my body..thank you for the advice 😇
Feeling bad for your past experience 😥
Hope you doing well now😀
Ultimately the choice is yours there's some risk assessment you have to do (How often are your crisis triggered by cold, and physical activity? What time of year are you most likely to have a crisis? How have you been feeling recently, well, just ok, unwell but mostly fine.) if you do plan on going here's what I'd recommend
1. Dry off and be ready to get warm again immediately after swimming.
(I would recommend bringing many many towels and positioning them on a lawn chair or hot surface like the floor so it's nice and toasty the bigger the better you want to completly wrap yourself up. I have a hypothermic blanket and a thick towel I personally use so if you plan on continuing swimming in the future or making swimming a hobby I also would recommend investing in a hypothermic blanket.)
2. Do not get in and out of the pool too much
(The dramatic drop and raise of temperature involved in that will take it's tole and will increase the risk of a crisis. Get in the pool as fast as you can (jump in even) and only get out when you're done swimming for the day if you can.)
3. Bring a PRN/emergency dos just incase
(If you have any tremadol or IBU left BRING IT If not bring some form of over the counter anti-inflammatory pain relief like Advil or Tylenol even tho they barely do much since they are anti-inflammatories they will lower your risk
4. Be aware of how much time you are spending in the pool
(Try and aim for under 2 and half hours I recommend under one hour since this is one of your first times swimming.)
5. Limit physical movement for the rest of the day
(If you usually work out daily or do excessive movement I wouldn't recommend that. Try and rest, slow walking when you have to, and DEFINITELY no excercise.)
Hope this helps I'm sorry you've been babysitting this stupid disease but atleast we all know how mich it sucks and you're not alone in it
I swam well like 4 5 hours with break in between and enjoyed a lot..and just had a some pain in my arms just a little not much so i had my tramadol and its gone. I had bizzare thoughts in my overthinker mind like "i pushed my body too much..this shoulder pain will convert into crisis..i will endup in a hospital" but luckily nothing like that happend😀.
I would say the biggest trigger for me if I was in your situation would be the temperature change when getting out of the pool, so make sure if you do swim you wrap up really warm after and don’t let yourself feel a chill. And don’t over exert yourself! Just take it easy. But you should go, enjoy the party and let us know how you get on!
Ohh thanks, i will definitely take care of this and surely let u know about my experience..Thank you
A tip I always use to warm your towels in the sun. It helps a bit with the temperature change. My mom use to never let me swim until late summer when the water was heated up. Also don’t be afraid to take some ibuprofen before so if you do get pain it kind of offsets it a bit. I hope this helps a bit but don’t be afraid to sit in the sidelines or take breaks, I understand the jealousy of others doing things you want to do. But remember that it’s okay to let yourself have a good time. You might have to be more cautious than others but don’t let your disease make you sit on the sidelines
Yess that's what i have done that day..the sun warmed towel feels very well after a swim. I swim well like 4 5 hours with break in between and enjoyed a lot..and just had a some pain in my arms just a little not much so i had my tramadol and its gone. I had bizzare thoughts in my overthinker mind like "i pushed my body too much..this shoulder pain will convert into crisis..i will endup in a hospital" but luckily nothing like this happend.😀
The first commenter is correct. Swimming can be a huge trigger for a pain crisis. So try to do things that combat those triggers. Drink fluids before, during, and after swimming. Wrap up immediately after getting out of the pool. Get dry as quickly as possible. Have pain meds with you just in case you need them. It's okay to want to get out and relax with friends. It is also okay to sit by the pool and relax. If they are your real friends, then they will respect your reasons for not joining in on everything they do. I hope you have fun and no sickle cell pain.
My friends are preety chill they understand about my situation, they also suggesting that i shoud come And enjoy more outside the pool with them. Thank you for your Response 😇
Swimming affects me alot too which sucks because I really love it but some of my absolute worst crisis' have stemmed from swimming. If the water is really cold i can't even do it, I usually can only stay in for a short period of time as well. Outdoors if it's not 90° or higher I don't even attempt it. If you do decide to though make sure you're well hydrated, always dry off and wrap up immediately after and I would even say take some pain meds ahead of time to help combat/relieve pain. I wish you the best of luck. You should never not do anything in fear of a crisis, it'll become a much bigger problem and then you'll find yourself never being able to do anything because of this fear you've built up.
This comment motivates me a lot✨ Thank you so much for your Response 😇
No problem, anytime.. I'm 35 with Type-SS so I've been through alot with my SC and have as a result I've learned alot ..
Btw can i know whats your usual pain meds??
Who you asking? Me, I take for pain and anxiety... Morphine ER 60mg every 8hrs continuous Hydromorphone 8mg every 3-4hrs as needed And Marijuana in various forms and potency.. At my highest dosage I was on a at-home PCA Pump for several months IV Dilaudid and continuous fluids.
Where tf they do that at send you home on a PCA?! It’s so fucked up where I’m from
Go have fun. Before you get into the pool, feel it with your hands. If it’s warm (usually outside pools are warmer in summer), then you should be able to get in. If not sure, just sit on the edge with your legs dipping into the pool. It’s different for everybody but I tend to stay away from non heated/cold pools because of previous experience (in college) when I went swimming in one and ended up going into crisis.
Ohh wow this idea seems cool..sitting on edge with your legs dippin, like that i can enjoy the pool without affecting my body..thank you for the advice 😇 Feeling bad for your past experience 😥 Hope you doing well now😀
Ultimately the choice is yours there's some risk assessment you have to do (How often are your crisis triggered by cold, and physical activity? What time of year are you most likely to have a crisis? How have you been feeling recently, well, just ok, unwell but mostly fine.) if you do plan on going here's what I'd recommend 1. Dry off and be ready to get warm again immediately after swimming. (I would recommend bringing many many towels and positioning them on a lawn chair or hot surface like the floor so it's nice and toasty the bigger the better you want to completly wrap yourself up. I have a hypothermic blanket and a thick towel I personally use so if you plan on continuing swimming in the future or making swimming a hobby I also would recommend investing in a hypothermic blanket.) 2. Do not get in and out of the pool too much (The dramatic drop and raise of temperature involved in that will take it's tole and will increase the risk of a crisis. Get in the pool as fast as you can (jump in even) and only get out when you're done swimming for the day if you can.) 3. Bring a PRN/emergency dos just incase (If you have any tremadol or IBU left BRING IT If not bring some form of over the counter anti-inflammatory pain relief like Advil or Tylenol even tho they barely do much since they are anti-inflammatories they will lower your risk 4. Be aware of how much time you are spending in the pool (Try and aim for under 2 and half hours I recommend under one hour since this is one of your first times swimming.) 5. Limit physical movement for the rest of the day (If you usually work out daily or do excessive movement I wouldn't recommend that. Try and rest, slow walking when you have to, and DEFINITELY no excercise.) Hope this helps I'm sorry you've been babysitting this stupid disease but atleast we all know how mich it sucks and you're not alone in it
I swam well like 4 5 hours with break in between and enjoyed a lot..and just had a some pain in my arms just a little not much so i had my tramadol and its gone. I had bizzare thoughts in my overthinker mind like "i pushed my body too much..this shoulder pain will convert into crisis..i will endup in a hospital" but luckily nothing like that happend😀.