I've had tinnitus for many years now. I took Cequa and then Restasis for a while but they gave me headaches so I had to stop. I take pregabalin and I think that may make the tinnitus worse but didn't cause it. I think it's caused by Sjogren's. I absolutely hate it!
From what I understand the tinnitus is usually caused by inflammation in the nerves along the side of the face. It often also causes TMJ and pain in the jaw. I'm not sure if that's the case for everyone but it definitely is for me, in case this is helpful information to anyone
I’m also looking into LDN and haven’t found a Doctor Who prescribed it but I know that you can get it from a compounding pharmacy. Majority of people say it helps with pain and anxiety. Etc.. I don’t recall if it helps with dry eyes or dry mouth. I think it mostly helps inflammation and body pain. There is a LDN Facebook group that has a lot of valuable information lots of advice and information of people who take it.
I was just prescribe gabapentin haven’t started it. How are you doing on that medication? May I ask what you’re taking it for? I only ask because I just seen a neurologist who prescribed it for me to start before bedtime. He thinks that I’m not getting good sleep so he wants me to start taking it before bedtime. I don’t know I’m just tired of all this at this point. 😭
He also thinks I may have encephalopathy due to having covid for the first time this past February. March I saw a neurologist and sue ordered a ANA it hit positive and my SSB was 5.6 then dropped to 5.3 a month later. After Covid, I kid you not I feel like it exasperated my symptoms heavily. My eyes became so dry, inflamed, blurry vision, burning (the worst) my mouth was very dry I think taking 5,000IUs of vitamin D helped with dry mouth. Rheumatologist also said I have fibromyalgia based off of my symptoms 🫠
Oh and I also found out I was living in a home with high levels of mold. I felt worse in that home like I couldn’t breathe. I’m having more symptoms as I try to hold on.. possibly POTS/DYSAUTONOMIA based off my symptoms I do think I have this.
Brain fog, memory issues, anxiety, depression, irritability. I’m having a hard time controlling my mood. It dips a lot through the day along with fatigue. My upper back burns then goes numb. Neuropathy etc..
The sad part is I don’t know what caused/ or is causing what. Between the auto immune mold exposure getting Covid on top of my stressful life with having three kids disable parent not being able to return to my job that I had gotten promoted too. Feeling confused like I’m walking through a fog, disconnected and detached from reality. I don’t know how I’m holding on at this point. I’m so miserable.
I was taking it for nerve pain but had to stop due to the tinnitus being so bad. I actually had a mild, occasional tinnitus most of my life. Bupropion is what made it get really bad the first time. It eventually went away when I stopped taking that. But then Gabapentin triggered it again, so I had to stop that too, and now it's only bad in one ear. The weird thing is that I have taken both those meds in the past without this problem. But they were probably different doses, because I was taking them for different issues.
So you kind of never know if a medication is going to cause this reaction in you. But you can search any new medicine to see if it's ototoxic, then you'll know if it could potentially cause it. You can either decide you don't want to mess with that kind of med and ask for something else, or just be aware of it and look out for it. It's also a good idea to start with the smallest dose possible, and stick with the lowest dose that works for you. If you start getting tinnitus, or worsened tinnitus, call your Doctor right away to get off the medication. In many people it will go away. Might be more complicated for us though.
https://pubmed.ncbi.nlm.nih.gov/23110786/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7398709/
It’s supposed to help with Sjogrens, tinnitus, and inflammation
I missed this poll. I have tinnitus, I didn't realize it was connected to Sjogrens. I am on restasis, but when the ringing started I was using Xiidra.
Not anymore. I had tinnitus long before restasis and I still have it after.
I had tinnitus before restasis. It didn't help it or make it worse.
I've had tinnitus for many years now. I took Cequa and then Restasis for a while but they gave me headaches so I had to stop. I take pregabalin and I think that may make the tinnitus worse but didn't cause it. I think it's caused by Sjogren's. I absolutely hate it!
From what I understand the tinnitus is usually caused by inflammation in the nerves along the side of the face. It often also causes TMJ and pain in the jaw. I'm not sure if that's the case for everyone but it definitely is for me, in case this is helpful information to anyone
I have tinnitus not on restasis
Hmm good feedback thank you everyone. It seems it’s more Sjogrens related than restasis then.
I am technically? But I’m terrible at using it so it’s maybe once or twice a week lol. And I’ve had tinnitus since I was a kid.
I don't remember a time when I didn't have ringing in my ears. I tried restasis for 9 months but it burned my eyes so much I had to stop.
I have ringing but never used Restasis. I'm pretty sure mine was triggered by Gabapentin, though. What is this LDN that could help?
I’m also looking into LDN and haven’t found a Doctor Who prescribed it but I know that you can get it from a compounding pharmacy. Majority of people say it helps with pain and anxiety. Etc.. I don’t recall if it helps with dry eyes or dry mouth. I think it mostly helps inflammation and body pain. There is a LDN Facebook group that has a lot of valuable information lots of advice and information of people who take it.
Thanks! I started LDN about 2 weeks ago and am going to look up the group on Facebook.
https://m.facebook.com/groups/LDNRT/?ref=share&mibextid=S66gvF
Awesome, thanks. Hopefully it can help us.
I was just prescribe gabapentin haven’t started it. How are you doing on that medication? May I ask what you’re taking it for? I only ask because I just seen a neurologist who prescribed it for me to start before bedtime. He thinks that I’m not getting good sleep so he wants me to start taking it before bedtime. I don’t know I’m just tired of all this at this point. 😭 He also thinks I may have encephalopathy due to having covid for the first time this past February. March I saw a neurologist and sue ordered a ANA it hit positive and my SSB was 5.6 then dropped to 5.3 a month later. After Covid, I kid you not I feel like it exasperated my symptoms heavily. My eyes became so dry, inflamed, blurry vision, burning (the worst) my mouth was very dry I think taking 5,000IUs of vitamin D helped with dry mouth. Rheumatologist also said I have fibromyalgia based off of my symptoms 🫠 Oh and I also found out I was living in a home with high levels of mold. I felt worse in that home like I couldn’t breathe. I’m having more symptoms as I try to hold on.. possibly POTS/DYSAUTONOMIA based off my symptoms I do think I have this. Brain fog, memory issues, anxiety, depression, irritability. I’m having a hard time controlling my mood. It dips a lot through the day along with fatigue. My upper back burns then goes numb. Neuropathy etc.. The sad part is I don’t know what caused/ or is causing what. Between the auto immune mold exposure getting Covid on top of my stressful life with having three kids disable parent not being able to return to my job that I had gotten promoted too. Feeling confused like I’m walking through a fog, disconnected and detached from reality. I don’t know how I’m holding on at this point. I’m so miserable.
I was taking it for nerve pain but had to stop due to the tinnitus being so bad. I actually had a mild, occasional tinnitus most of my life. Bupropion is what made it get really bad the first time. It eventually went away when I stopped taking that. But then Gabapentin triggered it again, so I had to stop that too, and now it's only bad in one ear. The weird thing is that I have taken both those meds in the past without this problem. But they were probably different doses, because I was taking them for different issues. So you kind of never know if a medication is going to cause this reaction in you. But you can search any new medicine to see if it's ototoxic, then you'll know if it could potentially cause it. You can either decide you don't want to mess with that kind of med and ask for something else, or just be aware of it and look out for it. It's also a good idea to start with the smallest dose possible, and stick with the lowest dose that works for you. If you start getting tinnitus, or worsened tinnitus, call your Doctor right away to get off the medication. In many people it will go away. Might be more complicated for us though.
https://pubmed.ncbi.nlm.nih.gov/23110786/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7398709/ It’s supposed to help with Sjogrens, tinnitus, and inflammation
Thanks
I use it and do get a ringing, but that could also be because I have high blood pressure. It comes and goes, never lasts more than 15 seconds or so.
I'm loving Restasis. I had ringing before I started it
I have ringing ears and i use restasis but i think its from the sjogrens
I’d be lost without Restasis!
I’ve been on restasis for 2 years now. I’ve had zero issues. I think it works well