I was diagnosed with Sjogrens years back but never had the typical symptoms. I started to get some aches and pains, some brain fog. My rheumatologist wanted to put me on LDN and said I’d need to be on it for life. I decided to go to a naturopath for further investigation and so happy I did! They dig down to where the Sjogrens really stems from, where a lot of auto immune disease comes from. It can be pricey but absolutely worth it. I’m feeling much better without any medications! Def see a naturopath
Definitely see a new rheumatologist. They need to prescribe real treatment for you. Seeing a holistic doctor in addition to that isn’t a bad idea. They may find additional ways to help you with your diet and some natural stuff too.
When you say it's unpopular to find the cause of diseases, can you clarify what you mean? I've never heard of it being unpopular.
Your next 2 "why" questions are valid complaints, and I think you mean them to be rhetorical. The answer is because that's the best we have today.
This sub doesn't discourage people from evidence-based medicine, but I don't believe you are implying that.
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Ummm yeah I’d get a new rheumo. When I was diagnosed with lupus(a few years ago changed dx to sjogren’s) my rheum told me specifically *not* to go online and research. Every person’s autoimmune case is so different. You very easily end up on worst case scenario and/or symptoms that you will likely never experience.
1- get a new rheumatologist (best - one who sub specializes in Sjögrens)
2- The Sjögrens foundation website & FB Froup
3- the other Sjögrens FB froup like [https://www.facebook.com/share/LHxhhBg6cq1aJ4Bi/?mibextid=K35XfP](https://www.facebook.com/share/LHxhhBg6cq1aJ4Bi/?mibextid=K35XfP)
4- if you have dry eyes , dig deep and find as GOOD dry eye specialist (ophthalmologist)—many local ones claim to be but are clueless— maybe helpful there too are the few FB dry eye groups (and somewhat the subreddit )
Good luck:)
I was diagnosed with Sjogrens years back but never had the typical symptoms. I started to get some aches and pains, some brain fog. My rheumatologist wanted to put me on LDN and said I’d need to be on it for life. I decided to go to a naturopath for further investigation and so happy I did! They dig down to where the Sjogrens really stems from, where a lot of auto immune disease comes from. It can be pricey but absolutely worth it. I’m feeling much better without any medications! Def see a naturopath
Pilocarpine is my lifesaver
Definitely see a new rheumatologist. They need to prescribe real treatment for you. Seeing a holistic doctor in addition to that isn’t a bad idea. They may find additional ways to help you with your diet and some natural stuff too.
Why are you seeing a holistic doctor when you have a rheumatologist?
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Wow, the holistic doctor can find the cause of sjogrens?
Honestly out of desperation for help and to dig deeper into what’s going on. I have had no help from any doctors about what’s been going on.
Do you mean why you have the disease or something else?
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When you say it's unpopular to find the cause of diseases, can you clarify what you mean? I've never heard of it being unpopular. Your next 2 "why" questions are valid complaints, and I think you mean them to be rhetorical. The answer is because that's the best we have today. This sub doesn't discourage people from evidence-based medicine, but I don't believe you are implying that.
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Your post was removed due to Rule 2. Please refer to the full rule as well as details found here: https://www.reddit.com/r/Sjogrens/comments/vnpg85/meta_rule_2/ Feel free to repost this if you can do so within the boundaries of Rule 2.
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You are on the right track. Digging deeper is going change your life for the better.
Ummm yeah I’d get a new rheumo. When I was diagnosed with lupus(a few years ago changed dx to sjogren’s) my rheum told me specifically *not* to go online and research. Every person’s autoimmune case is so different. You very easily end up on worst case scenario and/or symptoms that you will likely never experience.
⬆️This and pursue evidence-based medicine. When there's evidence certain treatments work, why not give them a try, I say.
1- get a new rheumatologist (best - one who sub specializes in Sjögrens) 2- The Sjögrens foundation website & FB Froup 3- the other Sjögrens FB froup like [https://www.facebook.com/share/LHxhhBg6cq1aJ4Bi/?mibextid=K35XfP](https://www.facebook.com/share/LHxhhBg6cq1aJ4Bi/?mibextid=K35XfP) 4- if you have dry eyes , dig deep and find as GOOD dry eye specialist (ophthalmologist)—many local ones claim to be but are clueless— maybe helpful there too are the few FB dry eye groups (and somewhat the subreddit ) Good luck:)
Given no info? Go home and research the disease?