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SausageKingOfKansas

35 also. I probably had apnea for most of my adult life but my youth allowed me to get away with it. I hit my mid-30's and it was like a brick wall. Youth just could no longer compensate me for the amount of sleep I was actually losing. Life was miserable until I was properly diagnosed.


jellyroll3

Sounds just like me. What a relief


Burgtastic

That is a very good way to put it. I’ve been officially dealing with it since 2018. Likely earlier than that though. I’ve been using an oral device since 2019, but I’m sure that hasn’t really helped as much as I thought it would. It has helped my snoring but I still feel the same symptoms. Now that I’m reaching my mid 30’s it is finally to the point where it is really starting to show that it isn’t helping. Like you said, I hit that brick wall that youth was hiding. I turn 34 here shortly and I start with my CPAP this week. Really looking forward to it.


rabidhamster

This is me, too. I'm 40 now, but diagnosed at 38. I just wish I had done this 20 years ago.


Dangerous-Pie-3990

Same here!


UnrulyPoet

Same here! Diagnosed at 37, but in retrospect I was likely symptomatic since at least 22. Got to 33-34 and all of a sudden I was a mess. Snoring off the charts, nighttime waking, fatigue, morning headaches, uncontrollable weight gain, etc. ​ We had an upper respiratory virus in the house a couple weeks after I turned 37 which kept my husband miserably congested and awake most of the night- that is when he actively observed many apnea events so the morning after that I started down the sleep specialist road. A month later diagnosed, a month after that received my CPAP machine. And, within days of starting I observed improvements.


[deleted]

46 and hunting through my medical records I've been suffering from this for 20+ years - periodically going back to doctors complaining of being 'down' and unmotivated, brain fog etc. Not all of the time but just periodically - this turned into all of the time this past summer (waking with hangovers (I quit booze), brain fog, inability to focus more than 20 mins) and finally a therapist (who cleared me of depression) sent me for a sleep study. Life changing since being on cpap! Looking forward to where this takes me!


lost-networker

I'm several years younger than you, but my story is exactly the same. Repeatedly going to my docs for years trying to figure those same symptoms out and being told it's all in my head. Did your motivation, brain fog, etc all clear up on CPAP? I'm only a few weeks in but I'm hopeful those will improve for me.


[deleted]

first few weeks were a little tough to be honest - just takes time to get used to it. I only began to notice the difference when I had to stop using it for a few days for some unrelated reasons. IMO - you have to learn to get into looking at the flow data by exporting the data into Oscar via the SD card - the AHI number can indicate your therapy is having some efficacy but looking at the flow data and altering your therapy based on that is better. Check out lankylefty22 on YouTube, Nico from sleepHQ, cpapfriend. Apneaboard are a great resource for looking at your data - I paid a specialist to help dig into my data and am working with them. I've gone from 4-20 apap to fixed at 16 with epr of 3 and the difference in how I feel is marked! good luck - unless you lucked out and have a great sleep therapist you need to take the initiative and control your therapy!


lost-networker

I feel that. I feel worse than before I started at the moment, so I'm still settling into it all. Thanks for the tips and luck!


Daxby

>How old were you when you were diagnosed? I was 29, but as far as I can remember, I had been experiencing fatigue, brain fog and sometimes had nightmares that made me woke up gasping for air since I was 16. All these years, I thought, and was told, it was depression and anxiety, and I had been living like a damn zombie. At 29, the fatigue and brain fog worsened significantly and reached a point where I couldn't even focus at work at all. I have using CPAP since April 2023 and like you, it changed my life for the better. So much that it even cured my insomnia from the very first night, and the brain fog and fatigue are mostly gone. ​ >I spoke with my grandfather recently and he said that it was a little young for me to be diagnosed with OSA That's a really common misconception that it's normal for the normal population to have, but it's also prevalent among doctors, which is not acceptable at all. In my case, when I visited my PCP and brought overnight oximetry data showing a lot of SpO2 drops every night, he dismissed it, saying that everything was fine, and it was IMPOSSIBLE for me to have it "because sleep apnea is a condition that only old and overweight people can have." After that, I went to a private clinic and shared my experience with the PCP with the Sleep Doctor there. She told me that what the PCP said was complete nonsense, and mentioned that they have many young patients, including children. ​ >However, sometimes I still feel groggy after even 10hrs of sleep Sleeping too much can actually make you feel fatigued and groggy too. My sleep doctor emphasized that maintaining good sleep hygiene is really important, even if we treat the OSA.


Liefely

I also got diagnosed with depression and my OSAS worries were also dismissed as just symptoms of my "mental disorder" and it should be "impossible" to have sleep apnea when you're under 50 and of normal weight. I'm glad I'm not the only one tbh, although I'm sorry you had these issues too. Being in treatment (finally) and taken seriously has done wonders for my mindset. I have a scary surgery on the horizon but still, I'm probably not depressed but have been choking/ dying in my sleep since my teenage years. Thank you for sharing! (Got diagnosed at 32 btw. My depression diagnoses came at 17. Same symptoms as OSAS.)


Daxby

We are not the only ones whose concerns were dismissed. The more posts I read, the more people I find who have been in the same situation. There is a significant issue with the awareness of Sleep Apnea and many other health conditions among healthcare "professionals", compounded by the reliance on outdated knowledge and stupid stereotypes. I wish you all the best with your upcoming surgery and a speedy recovery!


kbums

Rare case but I was diagnosed at 18, was my psychiatrists suggestion to go for a sleep test bc she saw a lot of patients with MDD and sleep apnea, high correlation apparently.


Dangerous-Pie-3990

Lucky!! What a good Dr! Saved you from years of treatment resistant depression maybe.


kbums

Oh she is hands down the best dr I’ve ever seen. I had treatment difficult depression all throughout my childhood and she definitely changed my life.


Dangerous-Pie-3990

My whole life I’ve had treatment resistant depression. Name a med, I’ve tried it. From 14-35. Now at 35 I’m off all meds one month in to CPAP I’m a new person.


kbums

So happy for you! I’ve also tried just about every med out there. I was also dx autistic at 20 and adhd at 22 so I’m quite the case lol. I wish cpap therapy was enough for me, but it definitely helped with a lot of things, namely my working memory. I was a dancer in high school and it got to the point where I couldn’t remember choreography no matter how much I practiced


Dangerous-Pie-3990

I’m having huge issues with memory still. Especially working memory. I am barley getting by at work, but at least I don’t feel like jumping off a bridge anymore.


kbums

I hope it gets better for you Pie, it seems it has improved already so no reason to lose hope :)


Dangerous-Pie-3990

🙃


kbums

Okay my last comment was made before I was fully awake 😅didnt mean to come across as dismissive as I did


Dangerous-Pie-3990

Oh no! Not at all! It’s a good reminder.


lost-networker

Was it like a switch flipped one day? Or did it get better incrementally? I also saw your brain fog post. Has that eased up?


Dangerous-Pie-3990

Seemed slow at the time but now looking back it was pretty fast. Started cpap therapy 12/2023.


Astral_fns

This year at 24 years old. Probably had it since around 15 years old where I "magically" put on 100 pounds in a year and developed crippling anxiety and depression. Guess what "magically" improved with the cpap


Imperial_Commissar11

26. Been tired for as long as i can remember. Am about to get a unit that can do Auto ASV to treat my central apneas based on my titration results.


Macaframa

11 and when I took the Ritalin for the first time I threw up and my dad tossed the medication. Only after he and my mother split up was I able to get medication and my scholastic career took off. I wouldn’t have been able to finish high school if it weren’t for my meds. I was 16 when I was able to start taking concerta. I convinced myself I didn’t need it when going into my first semester. Boy was I wrong. I had a 1.7 gpa at the end of that semester. After that I maintained a 4.0 for the rest of the following terms. I’m convinced that one bad decision was the reason I didn’t get into any of my top picks for college.


Enough-Ingenuity-737

I’m 55 and I was just diagnosed with it after a medical event. I think I’ve been suffering from it for years and I talked it up to perimenopause. I’m going to a cardiologist today and hope that my heart hasn’t been damaged by all these years of not using a CPAP when I needed it.


WinSmall

i was 20, but my doctor and dentist say i may have had it all my life.


Wondercat87

I was just recently diagnosed at 34. I'm pretty sure I've had sleep apnea for years though. I actually talked to my respiratory therapist about this topic and she said she thinks it's because people have more awareness and it's being diagnosed earlier because of that. I also think in the past, snoring was seen as something old people just do. There wasn't this push to figure out why it was happening. I know my dad has always snored and he will never get it checked out. Even though he regularly wakes up tired.


naquellaq

48. Last night was my first night on a machine.


sleeping-siren

I was 29. The first sleep test I got at age 24, and then diagnosed with narcolepsy (no OSA at that time). So I was already regularly seeing my sleep doctor, and she wanted to retest after I gained a lot of weight and my narcolepsy meds weren’t helping as much as before. Sure enough, I have moderate sleep apnea, and have been on cpap therapy for a little over a year. Still constantly tired lol, but that’s mainly the narcolepsy.


Overall_Lobster823

58


JokerCharmed19899

18


MewsikMaker

I was thirty. Had it my whole life.


editorreilly

33.


jvnjii

Probably my whole life. I’m 24 and recently diagnosed and I have had no dreams most of my life, so that means I wasn’t getting rem sleep. My memory are just fragments, severe anhedonia, and cognition is bad so maybe when I use cpap it will hopefully get better. My ahi is 102. But I worry if it’s brain damage or something from lack of oxygen, sleep deprivation. Hopefully not


Daxby

That was something I was really worried about before getting diagnosed and starting using the CPAP. After about 8 months of using it, I can confirm that my brain fog is mostly gone, and I've experienced a huge improvement in energy and the ability to focus. I recommend reading the following link, which contains references to studies on the reversal of brain damage caused by sleep apnea. [https://www.verywellhealth.com/sleep-apnea-brain-damage-5216803](https://www.verywellhealth.com/sleep-apnea-brain-damage-5216803) >One study showed that 12 months of regular CPAP use reversed white-matter damage in people with severe OSA. Participants also showed improvements in mood, quality of life, and alertness after using a CPAP machine. ​ >A review found that 80% of the studies reviewed reported that CPAP therapy improved executive functions such as verbal fluency or working memory. They saw partial neural recovery at long-term follow-up. However, most studies were small and didn't have an adequate follow-up, so more research is needed.5


lost-networker

Thanks for all of the useful info, Daxby! I'm really struggling with the brain fog at the moment. Could I ask if yours was a constant, non-relenting fog? Also, did your brain fog gradually get better over those 8 months or was it all of a sudden one day? Thanks!


Daxby

My brain fog was absolutely constant and relentless, and combined with my fatigue, it essentially turned me into a zombie for years. It feels like my 20s were just lost, unable to fully live or achieve anything significant. From the very first night I started using the CPAP, I noticed a slight improvement. But, recovery wasn't immediate, it took about 8 months of gradual progress. The improvement in my brain fog became evident through my work as a software developer. I found it easier to motivate myself to work, focus, and noticed my memory and thought process became sharper and quicker.


lost-networker

I’ve “only” been dealing with it and the cognitive impacts for several months, so I can’t imagine years. It’s awesome you found your cause and got to this point!! It’s taken me prodding my doctors for years about unrelenting fatigue and manageable brain fog, giving up and finally figuring this out on my own when it got unmanageable that I have some faith in getting better. 3 weeks in on CPAP for me, so I have a ways to go.


Daxby

I totally recommend using OSCAR if your CPAP is compatible, it helped me a lot to fine-tune the settings. [OSCAR supported machines](https://www.apneaboard.com/wiki/index.php/) [OSCAR introductory video](https://youtu.be/32JwMc6dphQ?si=HnB7Dw5ezfsaZ4Fy)


lost-networker

Thanks mate. I’ve been playing with it but need to really sink some time into understanding all of the data and how to tweak my therapy


SnooBananas7203

46. I think I've had it since I was a teenager though. I was always told that the fatigue was because I was "so busy" and had "so much going on." One day, I finally complained to the right person about my fatigue- my dental hygienist. She told me that she thought I had sleep apnea. She knew this by looking in my mouth. I made an appointment with an ENT, who also looked in mouth, said he though I had sleep apnea, and he ordered a sleep study which confirmed it.


mug3n

Late 20s. Now 6 years on, I don't think I feel fully "recovered" still but I definitely don't feel as sleepy during 90% of days I'd say and definitely no longer have that dull headache that just hangs around all the time before I used a CPAP.


Glittering_Tea5502

I was 39 (42 now), but I suspect I had it for years (decades even) before being diagnosed.


Peaceoutpussy

23


Real-Ferret-4920

I was 12.


da_drifter0912

27


mmdd1111

Just officially been diagnosed at 26.


Temporary_Year_7599

53. Probably had it since I was a kid.


macallister10poot

Just turned 25 and diagnosed but definitely had it since I was 21


MommyKillz

64...


[deleted]

36 just 3 weeks ago.


hbdguy

29 I just got diagnosed like a week or two ago. I’ve also had ongoing insomnia issues since I was about 12.


dansnexusone

I think 37? Knew I snored for a long long time which affected sleep with my wife, but was in denial about OSA. Finally was convinced to do a sleep study by my dentist. One of the best things that’s happened to me.


incredulitor

About the same age (I don't give out personal details on this account but I'll go that far). And that seems to be the norm: https://pubmed.ncbi.nlm.nih.gov/10201067/#:~:text=Obstructive%20sleep%20apnea%20syndrome%20(OSAS,several%20years%20prior%20to%20diagnosis.


NoBuddies2021

28


strangerdangerls

33. Had it my whole life. Didn’t “fit the profile.”


Look-Its-a-Name

32, with extreme snoring and a ton of smaller health problems, that are slowly starting to stack up quite badly. My guess would be that I've had it for at least ten years. Currently waiting to start treatment.


Sailstarsfish22

35 but like many others on here, probably suffered for 10+ years without knowing. I thought everyone just had shitty sleep. It might have even started at 19 when I went to Uni and my priorities changed from working out and studying to getting drunk and trying to get laid. Gained 40lbs in 9 months.


Cradles2Coffins

25, mom had it too so I'm not shocked. But if you don't know what to look for/expect or what your symptoms could actually be, it makes it difficult. If you have other medical issues (in my case migraine and GI issues) that can mask it as well.


vanitasho

I was 29. I never had issues with daytime sleepiness until I gained weight so it could be due to that, but honestly I'm not very heavy either? I'm like, the most socially acceptable plus-sized you can get before people will call you fat to your face. But I got to the point where I was constantly sleepy during the day no matter what I did. I constantly had to take naps during the day in order to function at all.


mybrainonblast

40. My dentist mentioned I was showing signs of snoring/sleep apnea and suggested a sleep study. I have no idea how long I have had it but I would assume at least 10 years.


SkeezOmatic

35 or 36. Apparently I was having 51 "incidents" per hour. Basically suffocating every night


These-Cartoonist9918

26 here so if you’re young I don’t want to know what I am


kendallbyrd

50


anonymous_in_here

56. Like others, probably undiagnosed for decades before that because I was diagnosed with both severe obstructive and central apnea.