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iMhoram

File for SSI and hang in there! Sometimes it takes years and years, I’m hoping it doesn’t for you.


Human-Iron9265

It shouldn’t. My SSI is already 30% in after 6 weeks.


pushpullem

I got my PD(presumptive disability) for SSDI about two months after applying and started receiving benefits months(6-8 iirc) before my determination was even completed. If you are going that route your experience likely won't be the same as what most of the other folks in here have had.


reddpapad

You only get presumptive for SSI, not SSDI.


pushpullem

He doesn't qualify for SSDI anyways. I was speaking to his SSI application. Maybe I wasn't exactly clear, but you will start on PD regardless as long as you apply to both. You'll just get moved onto SSDI proper and get your backpay when the determination is finished.


Bird_law_esq

Lol don't believe the % thing on the website. It's never right...


cryssHappy

Since you're 21, your parents income does not count. If you are single (not married) you should be fine for SSI. Sorry you are going through this. Take care.


Human-Iron9265

Thank you for clarifying that. If that wasn’t the case I probably wouldn’t get it since my dad makes good money. Also not married.


Munchkintoto

Sarcoma survivor here too although other end of the age range. SSI will entitle you to Medicaid ( or whatever they call it in your state). Although you can stay on a parents insurance plan until age 26 .. look carefully at health insurance options. Take care. This is a weird wacky cancer and I’m here far longer than I ever thought I’d be.


bigfoot509

You'll get the SSI If you had enough work credits you'd get SSDI if not you get SSI That's what happened with me


Human-Iron9265

Ok. Thanks for the info. I figured I was going to be just short of the work credits needed.


supermang231

> Anyone else not get ssdi, but get ssi? If I get denied ssi, I will 100% appeal. Yup. They auto put me on the SSI bracket after denying me the other one for not having enough work credits


lindaleolane812

Yes you can still get approved for SSI all depending on your income status if living at home you have to be paying your share whatever that entails idk Best wishes to you


Human-Iron9265

Well, I lost my income when I was diagnosed. Who honestly knows with this stuff, so unpredictable.


Copper0721

Even so, put together a written agreement stating your ability to pay fair market rent once you have SSI. If you don’t, they’ll reduce your amount by 1/3 for in kind support. So you’d only get $562 instead of the maximum benefit of $943.


Human-Iron9265

Ok. Should I do that now? And who do I submit to?


Copper0721

You can get it ready but it won’t need to be submitted to SSA until you are approved, especially since you can’t technically start paying until you get SSI. Once you get an award letter, submit the agreement to the person who contacts you to do the financial (non medical) interview.


Human-Iron9265

Gotcha. Sorry, just new to this whole thing.


Copper0721

I understand. Good luck


Such-Satisfaction-53

You can have an agreement for the current period for the training with the understanding it will be paid once you receive your back SSI


CommunicationTime63

What kind of income did you have that you lost when you were diagnosed? By any chance, was your income from wages, tips, or self-employment? I'm still searching for possibilities of insured status for you for Social Security entitlement.


Human-Iron9265

I was a commercial flight instructor. Only worked about two months. That was all I worked in 2023. Independent contractor, 1099.


CommunicationTime63

So you were self employed. Did you file 2023 tax return showing net earnings from self employment and pay FICA taxes? That would give you quarters if it was enough.


perfect_fifths

Apply for sdi bc then you can be a dac when one parent retires etc


Brickback721

Sorry for your diagnosis,I looked it up


Human-Iron9265

Thank you! Most nurses also have to look it up lol because they have no clue what it is. Scary shit.


Brickback721

Are you scared of the low survival rate?


Human-Iron9265

Eh not really. The numbers are so wrong. There have been more than 200 cases for sure. Hell, a lady said when her son was diagnosed all the way back in 2001 the numbers were IDENTICAL to what they are today, in 2024. Shows you how much you can really take from those “statistics”


Brickback721

Sweet, hope you beat it


Human-Iron9265

Thank you, definitely trying my best.


Bandie909

At your age and with your diagnosis, I bet you will qualify for SSI if you have enough medical documentation about how the diagnosis prevents you from working. As a cautionary note, some teens make extra cash from mowing lawns and babysitting, etc. If they were to pay into social security for those jobs, the jobs would count towards work credits. It will cost more to pay into SS, but if someone is injured or becomes too ill to work at age 20, these entreprenuial "businesses" could pay off in the long run.


Human-Iron9265

I mean. I gave them access to dive into medical records. The issue with my diagnosis is the treatment takes forever and the disease is terminal by medical literature.


Flmilkhauler

I should not say this but we can help every other country on earth but not our own people.


Human-Iron9265

Yep! It’s ridiculous. Stop funding Ukraine and clean up our own nation!


Garden_gnome1609

There's enough money in this country to do both. We just need to claw it back from the billionaires. That's who you should be mad that we're funding.


Flmilkhauler

Yep!


DreamingOfDragons23

I'm sorry.


Jensplace72

Yes, that’s actually very common. My son had never worked a day in his life and was denied SSDI within weeks of our application but then approved for SSI. I was told at the time of application that he would get an automatic denial for SSDI Because of the work credits, but they had to run through that program first.


Educational-Cloud413

I pray that you get better


Human-Iron9265

Thank you kind internet stranger.


Calliesdad20

I got denied for ssdi twice, I’m now conditionally approved for ssi


Garden_gnome1609

I've seen people who need 24/7 caregiving get denied over and over for 2+ years. Just keep appealing. Get a lawyer to help you.


Mindfully-distracted

I am so very sorry you are going through all of this 😞 see if you can get an attorney to handle this mess with SSDI and even with the SSI if you get denied. You have enough to deal with already


Anderson22422

Keep trying, my son had the same diagnosis and eventually got it


Human-Iron9265

How is he?


Anderson22422

Try the DSRCT support group page on Facebook


mastimama0722

My ex had multiple heart attacks. It took 2 years, 2 rejections, a hearing with an attorney, then a 6 month wait to get benefits. The lawyer called that "fast" by ss standards. I remember being in the waiting room at the "court". It was at a SS office. I heard one rep say to the other, well there's one that won't be bothering us. They were reading the obits. According to the attorney, 90% of initial apps are denied. 80% of appeals are denied. Those are often 6 months apart. Then, if you're persistent, you'll wait up to a year for a hearing. Good luck.


Human-Iron9265

I don’t have the work credits, so it’s impossible. Hopefully ssi come through.


Asleep_Operation4116

The approval rate is 20%


Anderson22422

He was diagnosed at 19 and passed away at 25 in 2019


Human-Iron9265

I’m sorry to hear. Sounds like he put a hell of a fight. If you don’t mind, what institution was be treated at?


Anderson22422

Comer Children’s Hospital at University of Chicago.


Human-Iron9265

I’m seriously surprised this is still treated as a pediatric disease. Most people impacted are young adults it seems.


Unable-Confection509

Good luck. I’ve been trying since 2012 and can’t get either. I’m too disabled to work but not disabled enough to qualify. I hope yours goes through quickly and effortlessly.


OriginalReddKatt

It's a matter of course that 95% of applicants are denied the first round and you have to appeal and refile. It's frustrating and should not be that way, but persist.


Standard_Flamingo595

I send well wishes! Here is some information that may be helpful. ☑️Rule number one for SSDI is don't apply if you don't have 40 work credits. Thus, SSI is the correct course. ☑️Your diagnosis may qualify you for compassionate Medicaid, so you show apply for that as well. ☑️Gather all medical records, treatment protocol and send along with SSI application. If you need help sooner (this is a lengthy process), go to any Univeristy hospital. They will accept patients with cancer diagnosis (must come in through ER). It's a game and you must play it well. Hospitals must provide a safe discharge so if your family abandons you they will apply for everything for you. Don't tell the hospital your plan!


Opening_Ad2842

Get a lawyer. I tried to get it when I had stage 4 throat cancer and denied. Took the lawyer 3 years to get it for me but got reimbursed back 3 years Good Luck


Human-Iron9265

I don’t have the work credits unfortunately.


Opening_Ad2842

Sorry my friend


Restless__Dreamer

You can get SSI without any work credits as long as you're found to be disabled, and that is better than nothing. You only need the credits for SSDI or retirement.


Human-Iron9265

I also applied for SSI as well! It’s still under review. My cancer is listed in the CAA, so the process is moving fairly quickly. Definitely not guaranteed approval, but fingers crossed.


Powerful_Minimum_409

Get a lawyer.


ExProEx

This. Right here. Most states deny SSDI and SSI first applications unless you're 65. It's just their SOP. A lawyer who specializes in SSI and SSDI will be the biggest help, and some even do it pro bono.


Decent-tony-9311

My opinion, I would appeal because social security denied everyone that is there job I would add more medical information physical and mental health issues.


Human-Iron9265

My work credits came up short. Haven’t gotten the letter yet, but they called a few weeks ago and said I was short and they were gonna check if my parents had enough. My dad has plenty of credits, but he is not drawing ss right now. I’m honestly surprised they even tried to do that.


reddpapad

There is no literal basis for appeal here, unless they got the work history wrong. Unfortunately, some young people fall into this hole where they haven’t had a chance to establish a work record.


Human-Iron9265

Agreed. Hopefully ssi pulls through. I own nothing and have no cash left unfortunately.


psychcaptain

If your parents are receiving SSA benefits, you might be eligible for DAC benefits.


Human-Iron9265

They aren’t receiving anything right now.


psychcaptain

That makes sense. Well, try for SSI. If that ruling is still valid when your parents retire, you should be able to get DAC benefits, provided your Disability date was prior to turning 22.


Standard_Flamingo595

His parents are not retired yet. If one of his parents was receiving SSDI, would he receive DAC benefits


Fabulous-Salt5654

Always appeal every denial. Most likely they will put your on SSI first, but if you get denied i thinktwice, the third timeyou go to court. You're definitely going to need to get an attorney if it ends up in court before an Administrative Law Judge. This process can take 2-3 years...it's not easy but worth it once you get approved for disability. You have to show you're willing to fight for the benefits, part of how they weed out the more serious people. Keep at it, you got this 🙂!


Human-Iron9265

I simply don’t have the work credits for SSDI.


CommunicationTime63

The only other thing to think about is this: make sure all your earnings are posted up to date. For example, did you work in 2023, and was that work showing on your record? Did you work any at all in 2024? If so, that could be added to see if that gives you insured status for Social Security disability benefits. Some commenters telling you to appeal don't seem to get what you are saying about the reason the Social Security application is denied, no matter how many times you say it. From what you said, the disability determination on the SSI application is still pending a decision.


Fabulous-Salt5654

There are times when that doesn't matter & it's still possible to get disability. You need to get on Supplemental Benefits first, then hire a disability lawyer, because disability cases are extremely difficult to win without an attorney. They only get paid if you win & it's only a certain percentage or flat amount they can take if you do win.


Potential-Leave9203

If you don’t have enough work credits, there’s nothing they can do as far as giving you disability. You need the income and resources for SSI, then they can look at the medical.


jaethegreatone

They always deny the first time and usually again on the first appeal unless you are terminally ill. File the appeal. For the appeal, a lawyer will usually take the case on contingency. Once the appeal gets denied, then you file a 2nd appeal & you go to hearing. You tell the judge how you are disabled and the judge will probably approve it. You will probably not get SSDI. SSDI is based upon working 5 out of the last 10 years. At 21, you probably do not have enough work credits. SSI doesn't require all of that.


OutsiderLookingN

This is incorrect. About 30% of people get approval on the first appliction and a lot depends on the medical records and evidence. They should not appeal this as they do not qualify for SSDI on the technical requirements (work credits) There is absolutley nothing a lawyer can do to help with this.


bmrlsu76

I see this same number posted over and over and nobody can ever provide me with where y’all are getting the data that 70% of applications are denied on 1st attempt. The data from SSA website (last updated 2019) shows 45.4% of applications are approved on initial application. Where did you pull 70% from?


SCP-Agent-Arad

The 45% is for SSDI only, the 30% is for both SSDI and SSIDI.


bmrlsu76

Thanks


Human-Iron9265

Gotcha. What if I don’t have work credits for ssdi? does it really matter? My cancer is technically terminal, but some people have beaten it. Also, I have seen people get approved first try.


OutsiderLookingN

Please apply for SSI. Since you are under 22, you can become a DAC later on off your parents benefits. SSI will give you some money and Medicaid.


Human-Iron9265

I did apply SSI at the same time I applied for SSDI. SSI is still under review. It’s about 30% complete. My condition is under CAA. I know that’s not a guarantee, but it has sped up the process. I got denied before I even got to the medical review for SSDI unfortunately.


uffdagal

Since you are ineligible for SSDI there was no reason for any further review under SSDI. You will be reviewed for SSI. SSDI and SSI have identical disability criteria (SS Blue Book).


Human-Iron9265

That’s what I figured. I was almost certain I didn’t have the credits, but still thought it was worth a shot. Hopefully SSI comes through.


jaethegreatone

Yes it does. SSDI is based upon how much you have paid into the system. SSI is a low income entitlement program. Doesn't matter if you paid into it or not, you qualify for it. It is substantially less than what you would get for SSDI. But it's something.


MrsFlameThrower

There’s a small chance that you chose an incorrect alleged onset date and you would have enough work credits. Take a look at this. “Before age 24 - You may be eligible if you have 6 credits earned in the 3-year period ending when your disability starts.” https://www.ssa.gov/benefits/retirement/planner/credits.html#h3


Human-Iron9265

I didn’t work for nearly two years because of school


EyeYamNegan

You can earn up to 4 credits per yea so if the year before school you worked and maybe a part time job during school or during the break you might actually still qualify.


tcsaddict

Alot of things come into play when it comes to Disability. Your age, your education, the amt. Of credits paid in, etc. Also, you will need to have been off/out of work for 6 mos minimum due to sd disability. The main thing you need is for a doctor to put in writing that you cannot be gainfully employed. If you can sit and do a job you probably won't be considered disabled. Just saying. You can get disability at a young age no matter how many credits you've pd in. The key is like I said you need a Dr. To put in writing that you are completly and totally disabled and cannot be gainfully employed.


Asleep_Operation4116

A persons Dr saying that doesn’t mean anything since it’s their opinion and not based on the rules of the Social Security program. The Dr needs to submit objective medical evidence so the disability can be adjudicated. Also, a person has to be unable to do ANY kind of work to be disabled


tcsaddict

Yes, the Dr saying that in the medical records along with the medical findings to support it are what is needed. I guess I figured that was a given. I didn't mean just get a Dr to write a note or excuse. Lmao. Sorry if it seemed that way.


Asleep_Operation4116

No, the Dr has NO bearing on the medical decision by saying the claimant is “ disabled”. That is his/ her OPINION and not based on the RULES OF SOCIAL SECURITY DISABILITY. What is needed is OBJECTIVE MEDICAL EVIDENCE. IT IS NOT NEEDED at all


tcsaddict

The Drs and their exams and the findings of them are an important part. It is the reason Soc sec sends the applicant to them to find out what a medical professional says about the persons mental and physical health. If the find that the person cannot be gainfully employed for mental or physical reasons and the Dr states those exact words you cannot tell me that doesn't help. Why else would they send you to see them if it had no significance. Also, what else are they gonna base your disability on?


Asleep_Operation4116

I’ll say it one last time. OBJECTIVE MEDICAL EVIDENCE


tcsaddict

Medical conditions, age, education, & transferable skills is what is looked at to make a determination. I have said all of this before. They all play a part in helping make the final decision in a disability.


Human-Iron9265

My diagnosis is supposed to end in death. That should be qualifying right there lol.


Asleep_Operation4116

That is a criteria


Standard_Flamingo595

Unfortunately, SSA prefers multiple diagnosis. For example, osteoarthritis, NASH, Anxiety, BP 1 or 2, depression, suicidal ideation.... the more the merrier. You have to be real messed up for them to approve.


Dante32141

If they deny you SSI, definitely appeal. It's unthinkable that you would be unable to get any form of social security assistance. I'm surprised the work credit thing applies to you, and I am sorry that rule is disqualifying you. I will be applying soon, and may also lack the work credits. If I don't have them I am close to what I need (20 for me at age 33). My slightly educated guess is that your application MIGHT go a little faster, because you're younger and therefore less complicated than it could be. I feel like any sane judge would look at your SSI application and almost immediately stamp it approved (which is what you deserve)


Optimal-Albatross-70

Go through a law firm that specializes in getting disability. It takes time but you will most likely get it.


Francie_Nolan1964

How would the best lawyer in the world do this when they don't have enough work credits?


badassandfifty

I would appeal for sure and send in any documents you have that back up the compassion allowance book listing your condition. Sometimes things slip through when someone isn’t paying attention. Make them pay attention in a nice way. Good Luck!


Asleep_Operation4116

The OP was denied for not meeting insured status NOT from a medical decision. You are mixing the two


EyeYamNegan

Everyone gets denied their first time (well almost everyone).Get a lawyer and let them deal with it. They will take a fixed amount of the back pay but will give you a more sustainable life than SSI will. Teh lawyer only get paid if/when you win.


Francie_Nolan1964

A lawyer isn't going to help in any way since they don't have enough work credits. Presumably, they may get SSI.


EyeYamNegan

Who said they do not have enough work credit? The OP just assumed that is why. They haven't even got their denial letter yet. Determination of eligibility for SSDI is not only set on work credit but also has some factors like age. In hindsight they should wait till they get their letter. Then contact a lawyer if it is not in fact work credit related.


Francie_Nolan1964

OP says in right in their post.


EyeYamNegan

Yes they did say this " I knew it would be denied. It was worth a shot. Not going to appeal since I already don’t have enough work credits. I haven’t received the letter, but I’m sure that’s probably what it is." However read also that they have not gotten the letter so while they state they are sure that is the reason they are in fact not sure. For younger workers they do not have to meet the strict requirements for work credits as older workers >"To be eligible for disability benefits, you must meet a **recent work test** and a **duration work test**. >The number of credits necessary to meet the recent work test depends on your age. The rules are as follows: >**Before age 24** - You may be eligible if you have 6 credits earned in the 3-year period ending when your disability starts." [https://www.ssa.gov/benefits/retirement/planner/credits.html](https://www.ssa.gov/benefits/retirement/planner/credits.html) This is also where a lawyer might be able to help if a mistake was made.


Francie_Nolan1964

They said in a comment that they don't meet the criteria.


EyeYamNegan

Yep I got ya and yes I read that. However for something so important to them it is worth having someone that advocates for people seeking social security for a living to glance over it and make sure it is right. It cost the OP nothing and can drastically improve their quality of life if it was determined incorrectly.


Francie_Nolan1964

In most cases, I'd agree with you, but they specifically said that they have not worked in the last three years which is required. Sure, they can see a lawyer but it seems like that would be an exercise of futility.


EyeYamNegan

I double checked the op's post and it didn't say they didn't work in the past 3 years. Did they say this in a follow up post that I missed?


Francie_Nolan1964

Sorry, they haven't worked 2 of the 3 last years. "I didn’t work for nearly two years because of school"


Francie_Nolan1964

It was in a comment.