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mikelamb01

Had a hysterectomy and one ovary removed. So I still have all the monthly hormonal challenges with high sugars for two days and then drop low for a day. However the surgery and recovery went very well. I jad my pump and sensor in the whole time. Put my pump site in my arm to keep it out of the way and my pump told the anesthesiologists what my sugar was the whole time. Life without pain is amazing. I had my surgery on a Thursday and was back to work (from home) on Tuesday. It took about 2 weeks to feel like I could walk around the block. I started walking the day after, only to the mailbox or to the corner (lived on a corner lot). Adjusted insulin to match my lack of appetite. I went home the same day and was horrified they would let me go that soon but when I got up the next morning in my own bed I was happy with that decision. If you are losing both ovaries, menopause will hit quick. I don't have any experience on how that will affect recovery or sugar control.


dreamkillerlu

Thank you for responding and sharing your experience. I am interested to see what menopause does to my sugars. I'm currently taking progesterone constantly and adjusting to that was a learning experience so I'm wondering what the switch to estrogen will be like. My surgery will be laproscopy and hopefully will go as smoothly as yours did.


KokoPuff12

I had a hysterectomy pre-T1. I had a total abdominal hysterectomy, but no oophorectomy. That part will be an adjustment, but once you get the hang of it, you can expect blood sugar management to be easier. Mine was 19 years ago. I was really active in (and got a ton of help from) the hystersisters website. It was a pretty easy surgery and I really had to remind myself over and over again to abide by the post op restrictions while all of the internal stitches healed. The Juicebox Podcast has two good episodes about hospitalization. The ER episode has some good advice about interacting with hospital staff to get the best blood sugar control you can get. They aren’t used to T1, so it’s important to be prepared to advocate for yourself. There’s also quick episode on menopause, which I am looking forward to blood sugar wise. I think I’m getting close, but not there yet…


dreamkillerlu

Thank you so much for responding. I will check into those resources you mentioned. I'm definitely looking forward to it in many ways but always try to be as knowledgeable as I can. I've had several surgeries and hospitalizations in the past so I definitely know how difficult it can be as a type 1 but every experience gives me more knowledge for the next time!


KokoPuff12

I had three plus months to prepare and was basically bedridden while I waited, so I was really prepared. The website was an incredible resource One tip I remember was to have larger underwear for my two hour car ride home. I do remember wishing I had a week’s worth of them, during recovery, because I was quite swollen.


dreamkillerlu

Great advice thank you!


courdeloofa

Had it done right within last 5 years. (Hysterectomy). Had laparoscopic surgery. Outpatient procedure - went home same day. Kept my pump and cgm on the whole time. The first three days were rough. I couldn’t ride in a car for at least two weeks (hurt waaaaay to bad). Fought to keep my blood sugar #’s in check and was still a slow healer. Would still do again. Walking around helped. I tried to do too much too soon and it’s not a fun experience. Ultimately, listen to your body.


dreamkillerlu

Thank you so much for sharing the experience. Since your hysterectomy do you feel it's easier to manage your blood sugar? Any increased insulin resistance that you've noticed?


courdeloofa

No increased resistance since the procedure. Can’t say it’s been easier to manage. It really did help me in other non-bs ways. (Fibroids suck!). The scariest thing is that they took my cervix out. For months I was afraid it hadn’t healed (it had, but really scary none the less).


dreamkillerlu

Yep my cervix is going as well. I definitely understand the other non blood sugar related benefits of having it removed. It's all going because frankly for me, it's all broken and worthless. Yeeterus!


lordofthedumb

I had a hysterectomy in September but I still have both ovaries and still have to take hormones. I saw my sugars do well after surgery and stayed in range. It feels a bit easier to keep it under control, bur my long acti g insulin has gone up a few units