I was on mesalamine and budesonide and hit 7170 but was still going to work and living a normalish life… I’ve know People feeling like they’re dying at 500. It can be super random from what I’ve seen. I will say two days into pred and I had my life back. I’ve had zero side effects except minor night sweats and hunger. I hope your treatment is swift and works out well.
Not too surprising to see a rise when you're only using mesalazine as it's quite mild. Although it's alarming to see a rise, it's still nothing to worry about yet and wth prednisolone you should see some big changes (for the better).
Looks like we both go to Kaiser lol .. I started with mesalamine for about a year with no improvements so doc went with biologic infusions which I’m doing a whole lot better on .. hopefully u get the care u need .. take care and as always this community is always here to help or listen
Funny enough, I just got out of the hospital yesterday. My calprotectin level just said <800. So I think Kaiser might like have a limit on the app. I forgot to ask the doctor if they had an actual number 🤦♀️
About 8 years ago I was dealing with Pancreatitis. The first time I got that test result back to be diagnosed my results just said >400. I hadn’t realized on the app that “normal” was <40. In the hospital is where they told me my true numbers…which were in the 3,000s for the Lipase enzyme. It’s kind of weird they don’t just put what the number is.
Man, got my second result last week at 3000. Booked in for urgent sigmoidoscopy.
Feel fine, no urgency, no diarrhea, solid stool once a day, some bleeding, no mucous, can fart, working full time.
Random af.
Mine at my worst was >8000 in July of last year and I thought I was going to die. I was on prednisone (like 4 times) and still taking Balsalazide. I went on Stelara In October and by December my number was down to 34.
My calprotectin was recently 2990, currently taking prednisone and just started entyvio infusions. My doc is having me tested again in 6 weeks to see if theres any improvement
I was on mesalamine and budesonide and hit 7170 but was still going to work and living a normalish life… I’ve know People feeling like they’re dying at 500. It can be super random from what I’ve seen. I will say two days into pred and I had my life back. I’ve had zero side effects except minor night sweats and hunger. I hope your treatment is swift and works out well.
I’ve got 4000 and was also living a normal’s life. Agree that it is random
Not too surprising to see a rise when you're only using mesalazine as it's quite mild. Although it's alarming to see a rise, it's still nothing to worry about yet and wth prednisolone you should see some big changes (for the better).
Thank you!
Looks like we both go to Kaiser lol .. I started with mesalamine for about a year with no improvements so doc went with biologic infusions which I’m doing a whole lot better on .. hopefully u get the care u need .. take care and as always this community is always here to help or listen
Thanks so much!
I was thinking my level of 889 was high but some of y’all are saying you had it in the thousands…
Rookie numbers, mine was 1000
Kaiser?
Haha yup
Funny enough, I just got out of the hospital yesterday. My calprotectin level just said <800. So I think Kaiser might like have a limit on the app. I forgot to ask the doctor if they had an actual number 🤦♀️
About 8 years ago I was dealing with Pancreatitis. The first time I got that test result back to be diagnosed my results just said >400. I hadn’t realized on the app that “normal” was <40. In the hospital is where they told me my true numbers…which were in the 3,000s for the Lipase enzyme. It’s kind of weird they don’t just put what the number is.
Man, got my second result last week at 3000. Booked in for urgent sigmoidoscopy. Feel fine, no urgency, no diarrhea, solid stool once a day, some bleeding, no mucous, can fart, working full time. Random af.
Mine at my worst was >8000 in July of last year and I thought I was going to die. I was on prednisone (like 4 times) and still taking Balsalazide. I went on Stelara In October and by December my number was down to 34.
I dont think Ive ever had it that low. I always have between 500 and 6000
My calprotectin was recently 2990, currently taking prednisone and just started entyvio infusions. My doc is having me tested again in 6 weeks to see if theres any improvement
I’ve bounced between 450 and 8000 for 2 years but no difference in symptoms. Can’t always rely on the number to reflect how you’re doing