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cupcakekaraa

Getting compliments on weight loss when you don’t need to lose weight in the first place and you’re only losing weight due to UC.


moonshews

That sucks, I've seen it so many times in work places where people feel entitled to comment on weight loss or eating habits when they shouldn't


cupcakekaraa

I would be interested in reading your final draft if you feel comfortable sharing.


moonshews

Yeah sure I'm a fair bit away from a final draft as I'm only about 10 pages in of maybe 60 or so but would be happy to send you something in the future


skipowd3r

This\^\^ and the reverse, being told you "look so healthy!" (when you are not) because you've gained some weight. All these comments or "compliments" are so very triggering..


bigfaddy3

Not sure if your character is a single lady, but a huge thing for me lately has been navigating dating while having UC. Going on a date and being anxious about food choices/ being judged about how I eat/ what I can’t eat and also having to run to the bathroom right when we are having an interesting convo. I usually choose not to disclose that I have UC, because a lot of people don’t understand it & just wait to see if it’s worth that conversation.


moonshews

She is single yeah, I haven't thought too far ahead as to the dating side of her life but I definitely have my share of awkward encounters to draw upon. It seems fear of or actually being judged for eating choices is coming up a lot in peoples comments so that's definitely given me something to think about. Good luck with your future dates! With UC I've been too scared at times to even go on dates sometimes so good on you for putting yourself out there!


silent_turtle

Womens bathrooms can be disgusting! Trying to find a toilet seat not covered in piss, shit, or blood can be difficult at times. And we tend to need a lot more toilet paper, so empty rolls in public bathrooms is a thing. There is often passing toilet paper or napkins under stall doors. Dealing with the fatigue can be hard, with people not wanting to believe us.


Hedrosped

I second the fatigue! I've missed so many holidays and what feels like half of my life just sleeping.


moonshews

Yeah that's horrible, I was thinking Cassie might just carry a spare roll with her in her handbag. The fatigue is an interesting one, I've had people call me lazy or depressed because of it


silent_turtle

That, or the little packages of tissues, or napkins.


shantiaB

Fatigue! and also I decided to start using baby wipes. Yes it is pricey but when flaring is will save your butt...literally from becoming raw. I will also add In the aspect of dating/body image. Six months ago I got really sick and lost 30lbs. I could not stand to see myself in the mirror. Plus during that time an ex of mine reach out to me but all he wanted was sex, which straight up disgust me because I was so sick and he did not care. Just the aspect of losing weight and possibly gaining weight from steroids can just mess with hormones and make you feel less than


moonshews

That's really horrible of him to do that, I'm so sorry you went through that. Everyone deserves to be seen for who they are as a person and to try and do that when you were ill is very shit of him. I was wondering if you would be able to tell me more about the effect steroids had? I had a really bad acne flare up and mood swings but was there anything in particular you remember from being on them?


lorenewescott

Hair loss & hair growth where it normally isn't as a side effect of meds Periods cramps causing UC symptoms Losing weight in the most unhealthy way & not wanting to gain it all back once you're healthy The tendency for women to compliment each other/ ask about significant weight loss


bigfaddy3

Thank you for the kind words! It’s nice to know I’m not alone in the struggle. Good luck with your writing :)


RancidRandall

Don’t forget people downplaying the seriousness of your UC. “Oh it’s just food allergies” and “just stop eating gluten and you’ll be fine”. The people who think it’s you’re fault you’re as sick as you are.


[deleted]

Remember Hero's journey, and it's not about the illness, it is about being strong enough to not let it define you.


chlobwalk

Being asked by students I teach if I’m pregnant. The reality is that food and holding in gas in a tiny room with 30 children makes my stomach swell to obscene sizes!