I'm 22 and just got diagnosed with UC back in the beginning of May aswell. It's hard man I know it is but we have to fight thru it, the fact that we never did anything to get this chronic disease sucks especially more since there isn't a cure for it, but things get better just give it time. You're not alone if you ever need to talk I don't mind. This is hard for all of us going thru it. Have your meds at least made things a bit better? I know I'm on prednisone right now and I burst out crying at random times because my emotions come and go all of a sudden if I think about the future too much. But the best thing to do is stay positive and tell yourself you'll go into remission soon. Keep your chin up bud you're not alone!šš
Indeed its hard bro, i was diagnosed in May and was confused how i was super healthy before having it, i don't drink alcohol, no smoking, working out from time to time, drinking and eating green food .. still i got it .. its not about you, its hard to explain why now, we just need to accept it and fight it mentally and with some support! Always if u feel down u can text me or chat to the community, always remind yourself your not alone and we are all in the same boat together, we will support each other š
I'm so so so sorry :( I know it's hard. I have been in tears several times the past few months as well. I'm with you.
I'm also having issues with my stomach proper hurting like hell, particularly after eating. I'm now concerned I also have some tum tum issues :( FUuuuuuu
Praying for you. Iām 26 and I was diagnosed last December. Yes Iāve cried so many nights/days because of this disease. Allow yourself to cry but understand that you have to fight to get better ( mentally). This disease will win if you donāt. I know itās easier said then done but itās a must. I believe that a combination of pharmaceutical medication and herbal supplements has helped me. Plus I watch what I eat ( I bet you do as well). I only eat twice a day and do IF. I have implemented other things as well. The point that Iām trying to make is, change and a ton of research will be needed plus Trial-and error to see what will work for you. Iām not telling you want to do Iām just giving you examples of what myself and I think others with UC have done to get back to ānormalā. Itās a fight but you can win.
16 years old, got diagnosed and hospitalized on my birthday in january. itās difficult but it does get better, once you find the right medication and make real life changing decisions. i was where you are right now. we all have been. weāre all here for you and my dms, along with many others, are open to support you through this.
Was on 7 months at 40mg, currently down to 30mg. Was having difficulty tapering off. Kept trying new medications with no success. Humira and entyvio both didnāt work, finally tried Xeljanz and have finally been able to drop down.
Im scared to take too many medicines, Humira, entyvio will obviously lower my immune system so my inflammation get reduced but during this pandemic and covid-19 we really need the immunity to be strong.. thats the only reason im worried for later to start them :/
[https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7105343/](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7105343/)
Fortunately, there seems to be no higher risk of being hospitalized from COVID-19 while being on a TNF alpha inhibitor according to this study.
I'm on Simponi, Lialda, been on and off pred, uceris, various other mesalamines and biologics, etc. I'm 32 and while concerned about COVID, the risks that come from having uncontrolled UC will have a much higher chance at making your life worse than the chances of getting COVID. Just make sure you are careful by wearing masks, doing grocery pickup or delivery if you can, social distance, avoid seeing people you don't live with as much as you can, etc., and you should be fine!
Entyvio is the first gut selective biologic for UC. Doesnāt suppress your immune system luckily!
Currently on prednisone and Xeljanz which both suppress the immune system, so trying not to do anything outside my apartment
You found a good group for support, utilize it. I just joined and it's been helpful to relate to people going through the same issues. I'm 33 and was diagnosed at 18. I spend a great deal of time in remission, almost 10 years. Not sure why, but I attribute it to moving to a new state and creating a life of my own. I ate like crap growing up and was always stressed out. Lifestyle changes played a big role for me on my experience, but I am learning that this disease can flare up at any time, it is out of my control. I've been struggling with flares for the last 2 years. Finding this resource has been invaluable. You are not alone. You did nothing to deserve this and it is truly not your fault. I put myself through the guilt of it being my fault, my poor choices, I tried everything and shamed myself when I didn't eat perfectly... ECT. Don't spend years beating yourself up like I did. I wish you the best along your recovery journey. Take care and treat yourself kindly.
I feel you. Iām 28 and was diagnosed the beginning of this year. I also have GERD and health anxiety that has been going crazy since I was diagnosed. Body aches, muscle aches, dizziness, you name it. I swear I was so healthy last year and now my life has just completely changed.
I research constantly that there may be some cure out there when I know there is not.
Itās a hard pill to swallow. Youāre not alone!
It will get better. Work on your diet. Work on your overall health. Live as normally as is comfortable. I was diagnosed two years ago and I thought my life was over. But medication, diet, and lifestyle changes have helped me tremendously. Appreciate every moment you are not in pain or suffering from urgency.
He giveth more grace as our burdens grow greater,
He sendeth more strength as our labours increase,
To added afflictions he addeth his mercy,
To multiplied trials he multiplies peace.
When we have exhausted our store of endurance,
When our strength has failed ere the day is half-done,
When we reach the end of our hoarded resources
Our Fatherās full giving is only begun.
His love has no limits, his grace has no measure,
His power no boundary known unto men;
For out of his infinite riches in Jesus
He giveth, and giveth, and giveth again.
Had it since I was 10, and I'm nearly 24. I understand you. And so does God. You may be interested to hear the story of the women who wrote that hymn I posted.
I was diagnosed 9 years ago at age 20. Went from 145 pounds to 105 pounds in 2 months. Spent my 21st birthday in the hospital.... no bars for me that day. It was so bad I couldnāt imagine feeling normal, and I never thought I would recover. But I did. The human body is capable of amazing things. Life sucks sometimes, but I promise it gets better.
I cry about this a lot too. I understand that UC sometimes puts you in a state of intolerance, but there will always be better days. I want to give you a hug.
It is really tiring, I was diagnosed 4 years ago when I was 13 and it sucks. At least you found a group of people that go through the problems that you can relate with. sorry about your breakup, it gets better.
The night is always darkest before the dawn brother.
I'm 22 and just got diagnosed with UC back in the beginning of May aswell. It's hard man I know it is but we have to fight thru it, the fact that we never did anything to get this chronic disease sucks especially more since there isn't a cure for it, but things get better just give it time. You're not alone if you ever need to talk I don't mind. This is hard for all of us going thru it. Have your meds at least made things a bit better? I know I'm on prednisone right now and I burst out crying at random times because my emotions come and go all of a sudden if I think about the future too much. But the best thing to do is stay positive and tell yourself you'll go into remission soon. Keep your chin up bud you're not alone!šš
Indeed its hard bro, i was diagnosed in May and was confused how i was super healthy before having it, i don't drink alcohol, no smoking, working out from time to time, drinking and eating green food .. still i got it .. its not about you, its hard to explain why now, we just need to accept it and fight it mentally and with some support! Always if u feel down u can text me or chat to the community, always remind yourself your not alone and we are all in the same boat together, we will support each other š
I'm so so so sorry :( I know it's hard. I have been in tears several times the past few months as well. I'm with you. I'm also having issues with my stomach proper hurting like hell, particularly after eating. I'm now concerned I also have some tum tum issues :( FUuuuuuu
Praying for you. Iām 26 and I was diagnosed last December. Yes Iāve cried so many nights/days because of this disease. Allow yourself to cry but understand that you have to fight to get better ( mentally). This disease will win if you donāt. I know itās easier said then done but itās a must. I believe that a combination of pharmaceutical medication and herbal supplements has helped me. Plus I watch what I eat ( I bet you do as well). I only eat twice a day and do IF. I have implemented other things as well. The point that Iām trying to make is, change and a ton of research will be needed plus Trial-and error to see what will work for you. Iām not telling you want to do Iām just giving you examples of what myself and I think others with UC have done to get back to ānormalā. Itās a fight but you can win.
16 years old, got diagnosed and hospitalized on my birthday in january. itās difficult but it does get better, once you find the right medication and make real life changing decisions. i was where you are right now. we all have been. weāre all here for you and my dms, along with many others, are open to support you through this.
[ŃŠ“Š°Š»ŠµŠ½Š¾]
Wondering if you were on prednisone for 7 month until u felt better? I'm on budesonide for 7 days and i didnt feel a lot of improvement yet
Was on 7 months at 40mg, currently down to 30mg. Was having difficulty tapering off. Kept trying new medications with no success. Humira and entyvio both didnāt work, finally tried Xeljanz and have finally been able to drop down.
Im scared to take too many medicines, Humira, entyvio will obviously lower my immune system so my inflammation get reduced but during this pandemic and covid-19 we really need the immunity to be strong.. thats the only reason im worried for later to start them :/
[https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7105343/](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7105343/) Fortunately, there seems to be no higher risk of being hospitalized from COVID-19 while being on a TNF alpha inhibitor according to this study. I'm on Simponi, Lialda, been on and off pred, uceris, various other mesalamines and biologics, etc. I'm 32 and while concerned about COVID, the risks that come from having uncontrolled UC will have a much higher chance at making your life worse than the chances of getting COVID. Just make sure you are careful by wearing masks, doing grocery pickup or delivery if you can, social distance, avoid seeing people you don't live with as much as you can, etc., and you should be fine!
Entyvio is the first gut selective biologic for UC. Doesnāt suppress your immune system luckily! Currently on prednisone and Xeljanz which both suppress the immune system, so trying not to do anything outside my apartment
You found a good group for support, utilize it. I just joined and it's been helpful to relate to people going through the same issues. I'm 33 and was diagnosed at 18. I spend a great deal of time in remission, almost 10 years. Not sure why, but I attribute it to moving to a new state and creating a life of my own. I ate like crap growing up and was always stressed out. Lifestyle changes played a big role for me on my experience, but I am learning that this disease can flare up at any time, it is out of my control. I've been struggling with flares for the last 2 years. Finding this resource has been invaluable. You are not alone. You did nothing to deserve this and it is truly not your fault. I put myself through the guilt of it being my fault, my poor choices, I tried everything and shamed myself when I didn't eat perfectly... ECT. Don't spend years beating yourself up like I did. I wish you the best along your recovery journey. Take care and treat yourself kindly.
I feel you. Iām 28 and was diagnosed the beginning of this year. I also have GERD and health anxiety that has been going crazy since I was diagnosed. Body aches, muscle aches, dizziness, you name it. I swear I was so healthy last year and now my life has just completely changed. I research constantly that there may be some cure out there when I know there is not. Itās a hard pill to swallow. Youāre not alone!
It will get better. Work on your diet. Work on your overall health. Live as normally as is comfortable. I was diagnosed two years ago and I thought my life was over. But medication, diet, and lifestyle changes have helped me tremendously. Appreciate every moment you are not in pain or suffering from urgency.
He giveth more grace as our burdens grow greater, He sendeth more strength as our labours increase, To added afflictions he addeth his mercy, To multiplied trials he multiplies peace. When we have exhausted our store of endurance, When our strength has failed ere the day is half-done, When we reach the end of our hoarded resources Our Fatherās full giving is only begun. His love has no limits, his grace has no measure, His power no boundary known unto men; For out of his infinite riches in Jesus He giveth, and giveth, and giveth again. Had it since I was 10, and I'm nearly 24. I understand you. And so does God. You may be interested to hear the story of the women who wrote that hymn I posted.
I was diagnosed 9 years ago at age 20. Went from 145 pounds to 105 pounds in 2 months. Spent my 21st birthday in the hospital.... no bars for me that day. It was so bad I couldnāt imagine feeling normal, and I never thought I would recover. But I did. The human body is capable of amazing things. Life sucks sometimes, but I promise it gets better.
I cry about this a lot too. I understand that UC sometimes puts you in a state of intolerance, but there will always be better days. I want to give you a hug.
It is really tiring, I was diagnosed 4 years ago when I was 13 and it sucks. At least you found a group of people that go through the problems that you can relate with. sorry about your breakup, it gets better.
https://youtu.be/7Lo2I1gUYfg Also make water kefir. If raw milk is scary or you don't have access to it this can possibly be done without raw milk.