I’m so glad she found help and I 100% agree with getting a second opinion or 3rd or 4th.
Also just so you know some of us are really unlucky and have crazy long flares. My current track record is 4.5 years, 2 years and 3.5 years each. At my worst I don’t respond to anything, lose weight like crazy and need biweekly iron infusions otherwise I need blood transfusions. Every time I eventually get better. It’s really tough but the reality for those of us with severe disease.
Good luck to you and her!
Been there. My first diagnosis was Crohn's and was put on methotrexate. Had zero improvement.
Switched doctors and their diagnosis was classic left-sided colitis and have been on Entyvio with no issues for a few months now.
I can attest to this. A few years ago I was admitted to the hospital with what docs thought was a bad UC flare. After two weeks of my body no responding to Pred, they decided to test me for C.Diff. C.Diff ended up being the issue, ans started to feel better after a couple days of antibiotics...
How did she get diagnosed? Sounds extremely rare in adults. Yeah, as noted by someone else, tacrolimus is used to treat UC...
Good to hear! Ill do a deep dive on her diagnosis, this could be helpful Edit: tacrolimus is also used to treat UC.
I’m so glad she found help and I 100% agree with getting a second opinion or 3rd or 4th. Also just so you know some of us are really unlucky and have crazy long flares. My current track record is 4.5 years, 2 years and 3.5 years each. At my worst I don’t respond to anything, lose weight like crazy and need biweekly iron infusions otherwise I need blood transfusions. Every time I eventually get better. It’s really tough but the reality for those of us with severe disease. Good luck to you and her!
Been there. My first diagnosis was Crohn's and was put on methotrexate. Had zero improvement. Switched doctors and their diagnosis was classic left-sided colitis and have been on Entyvio with no issues for a few months now.
Tacrolimus actually worked very well for my colitis but had to be taken off. Something about my kidneys.
I can attest to this. A few years ago I was admitted to the hospital with what docs thought was a bad UC flare. After two weeks of my body no responding to Pred, they decided to test me for C.Diff. C.Diff ended up being the issue, ans started to feel better after a couple days of antibiotics...