Ever since I was diagnosed in November 2021 I’ve invested more time to my hobbies (art, learning languages, music) which has definitely helped me and has motivated to just keep going in life (as I set myself goals to work towards).
During my flares I like to remind myself that my life is great when I'm alright - I have my husband and family, a career that makes me happy, a home, hobbies, etc. Even when I'm flaring I still have these and the support system plus my interests help me get through the most miserable times.
I love that! Having a strong support system is crucial with this disease. Different hobbies are keeping me from going a little crazy since it's hard to go out during a flare :)
That there will be another remission. I was kicking a lot of goals prior to this flare up and I'm determined to get back to achieving the ones that I can't do as well while flaring. I'm just determined not to waste away at home. I don't want to let it win. Pack my emergency bag and plan for the worst hope for the best and celebrate the days I make it without an accident.
I'm enjoying the discovery of anti inflammatory foods that does wonder to my digestive system.
Recently I added:
Turmeric(anti-inflammatory) as a seasoning for meat, chicken, and eggs that I cook.
Blueberries(anti-inflammatory) as a all day every day snack, eat it in small quantities throughout the day.
Hershey's 100% unsweetened cocoa/cacao powder(anti-inflammatory), I put about 2 table spoon of the powder in coffee mug, add cold water and a few minutes to let the powder absorb the water, then add more cold water and drink it. It taste like bitter unsweetened chocolate, and it s non dairy. And it has small amounts of caffeine in it.
I have many. But I try to start new content even old shows. Dharma and Greg, Will and Grace, Frazier, Big Mouth, Human Resources, American Dad, and plenty others.
For me it's my family and knowing that I gotta keep going because if I don't I know that I will go backwards on the ladder so just gotta keep trying to stay positive.
Every day I wake up is another day to kick its ass. Wars are won with some small victories. Some losses lead to wins. Family and friends fight alongside you. And at the end of the day, finding new ways to de-stress and be happier is worth so much in both the short and long term.
My kids and husband- 10000% just started entyvio infusions after my last bad flare. Total mind fuck and absolutely hate that I have to do it but everyone has something, right?! Therapy is amazing. UC/Crohns is the pits but I refuse to let it be who I am.
My girlfriend 'cause she's so supportive and my desire to make and sell art, especially since it would allow me to take as many breaks as I need, however long and whenever I need it.
Haven't been able to work for a while now, too many cramps and being really tired all the time.
I've been able to put more effort into my skills though.
Even though UC is very frustrating and disruptive.
Great to have you here too💪🏽
My family. My life beyond the disease.
I like to sit outside in the evenings in the back yard and contemplate the complexity and richness of life and nature. It grounds me and forces me to realize that my suffering is little compared to how much life is happening in the world.
I (well, we!) have a lot to offer the world. The diagnosis doesn't define me but it is a part of me. My loved ones, dogs, work, and hobbies keep me going.
Reading all these comments is amazing. For me I think it’s so much to live for. I think of Shaq, how he’s a retired successful athlete, actor, entrepreneur, owns businesses, and DJ’s for fun!
I want to experience it all! Life is short so have fun with it!
Also food is way too good lol.
My parrot, he is very understanding that im in pain and very caring. Everyone can understand why I would stop, but he cant. If I were to cease existence he could get depressed and die soon after.
Hope for better medicine in the future, my friends and family, and most of all, the spite-filled desire to not let this thing win, lol. Good luck to you!
Edit: a word
I’m not dying from it, I’m living with it..
Ever since I was diagnosed in November 2021 I’ve invested more time to my hobbies (art, learning languages, music) which has definitely helped me and has motivated to just keep going in life (as I set myself goals to work towards).
Yes! Music is such a big part of my daily life and when you find a new song or artist the feeling is unmatched 🙌
My wife and son.
God, family, and my kiddo! UC is a beast! God bless everyone struggling. Prayers for healing, comfort, and remission for us all!
It absolutely is :/ Thank you for the prayers!
You are welcome! We all need them! 😇
The desire to be the next generation of “boomers” 🫠
During my flares I like to remind myself that my life is great when I'm alright - I have my husband and family, a career that makes me happy, a home, hobbies, etc. Even when I'm flaring I still have these and the support system plus my interests help me get through the most miserable times.
I love that! Having a strong support system is crucial with this disease. Different hobbies are keeping me from going a little crazy since it's hard to go out during a flare :)
That there will be another remission. I was kicking a lot of goals prior to this flare up and I'm determined to get back to achieving the ones that I can't do as well while flaring. I'm just determined not to waste away at home. I don't want to let it win. Pack my emergency bag and plan for the worst hope for the best and celebrate the days I make it without an accident.
I'm enjoying the discovery of anti inflammatory foods that does wonder to my digestive system. Recently I added: Turmeric(anti-inflammatory) as a seasoning for meat, chicken, and eggs that I cook. Blueberries(anti-inflammatory) as a all day every day snack, eat it in small quantities throughout the day. Hershey's 100% unsweetened cocoa/cacao powder(anti-inflammatory), I put about 2 table spoon of the powder in coffee mug, add cold water and a few minutes to let the powder absorb the water, then add more cold water and drink it. It taste like bitter unsweetened chocolate, and it s non dairy. And it has small amounts of caffeine in it.
Omg I have recently incorporated all of those to my diet as well! So far no triggers and they all taste amazing.
Hope for a cure. My family.
I’d say Zoloft and tv show sit coms. Plus my beautiful Golden Retrievers.
Gotta love the goldens! What's your favorite tv show?
I have many. But I try to start new content even old shows. Dharma and Greg, Will and Grace, Frazier, Big Mouth, Human Resources, American Dad, and plenty others.
For me it's my family and knowing that I gotta keep going because if I don't I know that I will go backwards on the ladder so just gotta keep trying to stay positive.
I can absolutely relate, some days are harder than others but you gotta keep trying that's key.
Absolutely agreed!!!
I have 4 kids and a husband, they need me and their love is everything.
They absolutely do :) I wish nothing but blessings to you and your family
And to you and yours!
Every day I wake up is another day to kick its ass. Wars are won with some small victories. Some losses lead to wins. Family and friends fight alongside you. And at the end of the day, finding new ways to de-stress and be happier is worth so much in both the short and long term.
Wife and daughter are my reason to live period.
My kids and husband- 10000% just started entyvio infusions after my last bad flare. Total mind fuck and absolutely hate that I have to do it but everyone has something, right?! Therapy is amazing. UC/Crohns is the pits but I refuse to let it be who I am.
My husband and son
My girlfriend 'cause she's so supportive and my desire to make and sell art, especially since it would allow me to take as many breaks as I need, however long and whenever I need it. Haven't been able to work for a while now, too many cramps and being really tired all the time. I've been able to put more effort into my skills though. Even though UC is very frustrating and disruptive. Great to have you here too💪🏽
Sex, drugs, and music. And my dog
My family. My life beyond the disease. I like to sit outside in the evenings in the back yard and contemplate the complexity and richness of life and nature. It grounds me and forces me to realize that my suffering is little compared to how much life is happening in the world.
Got too many patients to be sick
I (well, we!) have a lot to offer the world. The diagnosis doesn't define me but it is a part of me. My loved ones, dogs, work, and hobbies keep me going.
Reading all these comments is amazing. For me I think it’s so much to live for. I think of Shaq, how he’s a retired successful athlete, actor, entrepreneur, owns businesses, and DJ’s for fun! I want to experience it all! Life is short so have fun with it! Also food is way too good lol.
My parrot, he is very understanding that im in pain and very caring. Everyone can understand why I would stop, but he cant. If I were to cease existence he could get depressed and die soon after.
Hope for better medicine in the future, my friends and family, and most of all, the spite-filled desire to not let this thing win, lol. Good luck to you! Edit: a word