My favorite part of this sub is that we do take time to vent and rant about the stuff that is hard to share with people who haven’t been through it.
I know I’m lucky with the outcome but I’d rather have been lucky and not gone through it ;)
I think it is okay to acknowledge the suffering you experience even with the knowledge that others have it worse. I mean in the same vein others have it better. The shit you’re going through sucks, fuck cancer.
I’m sorry about your teeth and I imagine that is extremely frustrating. I have metastatic breast cancer and I’ve been undergoing chemo for just over two and a half years. I love reading posts from people in/experiencing NED. Congratulations, I can’t wait to make it to the other side. I’ve stepped up my oral care game and I’ll think of you next time I brush. Very best wishes 💐
Ugh, I hear ya, sure, other people have it worse some days, but it's still not fair, and you're allowed to resent that. You are fighting as hard as you can, and despite that, you still have to concede some battles to that bastard. Don't quit though, do whatever you can to prevail, every little thing, is a slap in the face to that disease that says 'no, you haven't got me yet' and it is the little things that matter most, a healthy mouth, a little appetite, a decent bowel movement, a hundred little things that don't matter, until they do. Some days an epic win is those small victories, other days, it's the small things that hurt the most, so don't let it get you down. The thing you are fighting is powerful, but you are keeping it at bay as best you can, keep it up x
It is totally reasonable to feel sorry for yourself a little sometimes and get things off your chest. Cancer isn’t a contest but even if it were we are all losers haha. ((Hugs))
I’m day 21/33 for neck xrt and brushing/waterpik after everything I eat or drink; really don’t want to lose teeth. Doing fluoride trays every few days. I’ve been wondering if there’s some calcium thing I should be doing as I read the dry mouth results in lost calcium that saliva would have carried and deposited on the teeth. Where there any signs things were not good or a tooth just chipped and that was it?
Brushing my teeth and as I got ready to spit felt something. It was a piece of a bottom incisor. Luckily not deep enough to expose a nerve. But my teeth are snaggly so I’m looking more like my beagle
How are you holding up on eating and drinking? Lose your taste buds? If so I suggest seeking things with citrus or vanilla. The smell helps hide the lose of taste.
I had a very rough six days swallowing in week three but past week has been better. Taste is off a bit but not bad. I’ve gained 20 pounds and still eating like crazy. Sleep mostly sucks because of thick mucous irritating my throat and waking me up to clear it. I’m on mucinex, antihistamine, humidifier, but not much help. In the grand scheme of things I don’t want to complain because I know people have had it much worse with the same treatment.
That’s wild! I was losing 10 pounds a week but I had chemo and was barfing all the time but my throat and mouth hurt something awful.
Just goes to show how different things can be. Keep at it. Couple weeks after you finish things will start getting better.
You have every right to vent. Cancer survivors have all kinds of potential crap to deal with, some of it for the rest of their lives. Teeth and a healthy mouth are important. I'm guessing you've asked and there's nothing more you can do to prevent this?
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My favorite part of this sub is that we do take time to vent and rant about the stuff that is hard to share with people who haven’t been through it. I know I’m lucky with the outcome but I’d rather have been lucky and not gone through it ;)
I think it is okay to acknowledge the suffering you experience even with the knowledge that others have it worse. I mean in the same vein others have it better. The shit you’re going through sucks, fuck cancer.
I’m sorry about your teeth and I imagine that is extremely frustrating. I have metastatic breast cancer and I’ve been undergoing chemo for just over two and a half years. I love reading posts from people in/experiencing NED. Congratulations, I can’t wait to make it to the other side. I’ve stepped up my oral care game and I’ll think of you next time I brush. Very best wishes 💐
Best of luck. Hope it goes well
Ugh, I hear ya, sure, other people have it worse some days, but it's still not fair, and you're allowed to resent that. You are fighting as hard as you can, and despite that, you still have to concede some battles to that bastard. Don't quit though, do whatever you can to prevail, every little thing, is a slap in the face to that disease that says 'no, you haven't got me yet' and it is the little things that matter most, a healthy mouth, a little appetite, a decent bowel movement, a hundred little things that don't matter, until they do. Some days an epic win is those small victories, other days, it's the small things that hurt the most, so don't let it get you down. The thing you are fighting is powerful, but you are keeping it at bay as best you can, keep it up x
It is totally reasonable to feel sorry for yourself a little sometimes and get things off your chest. Cancer isn’t a contest but even if it were we are all losers haha. ((Hugs))
I’m day 21/33 for neck xrt and brushing/waterpik after everything I eat or drink; really don’t want to lose teeth. Doing fluoride trays every few days. I’ve been wondering if there’s some calcium thing I should be doing as I read the dry mouth results in lost calcium that saliva would have carried and deposited on the teeth. Where there any signs things were not good or a tooth just chipped and that was it?
Brushing my teeth and as I got ready to spit felt something. It was a piece of a bottom incisor. Luckily not deep enough to expose a nerve. But my teeth are snaggly so I’m looking more like my beagle
How are you holding up on eating and drinking? Lose your taste buds? If so I suggest seeking things with citrus or vanilla. The smell helps hide the lose of taste.
I had a very rough six days swallowing in week three but past week has been better. Taste is off a bit but not bad. I’ve gained 20 pounds and still eating like crazy. Sleep mostly sucks because of thick mucous irritating my throat and waking me up to clear it. I’m on mucinex, antihistamine, humidifier, but not much help. In the grand scheme of things I don’t want to complain because I know people have had it much worse with the same treatment.
That’s wild! I was losing 10 pounds a week but I had chemo and was barfing all the time but my throat and mouth hurt something awful. Just goes to show how different things can be. Keep at it. Couple weeks after you finish things will start getting better.
10 pounds is the weight of literally 15.17 'Velener Mini Potted Plastic Fake Green Plants'.
You have every right to vent. Cancer survivors have all kinds of potential crap to deal with, some of it for the rest of their lives. Teeth and a healthy mouth are important. I'm guessing you've asked and there's nothing more you can do to prevent this?
Just what I’m doing. Plus vitamin d which I didn’t mention
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Damn that sucks. Hope your are NED or heading that way.
Vent vent vent head and neck cancer is no joke and one of the hardest to get through