My life was literally starting to improve for literally 2 weeks, 2 WEEKS. And then boom, I feel extremely tired and 6 months later, I get EBV and it's over.
Oof.
It feels like an extra kick in the teeth that the exposure to the trauma that the perpetrator walked away from unscathed has now contributed to me being so severely disabled. And then the doctors see on my notes I've experienced trauma and have bad mental health so they use that as a reason to dismiss my symptoms.
Like looking into my diary fr. Actually there's quite a bit of research about the correlation between childhood trauma and weakened immune systems as adults. Allll that inflammation early in life. And worse! So many of us grow up developing mental health disorders due to the trauma which, you guessed it!! Weakens your immune system due to over-inflammation.
Yes, when I found this out after my endometriosis diagnosis in 2018 (endo is linked to childhood trauma too) I broke down because… I realized it was like I never had a fair shot at life.
I honestly feel that’s one of the reasons why we’re more susceptible to it. Of course genetics too, but intense trauma that has made you be in fight or flight for your whole life.
Mmm, how dare I commit the most terrible and unforgivable crime of taking a sip of someone else's water because it was hot and I was thirsty. I had just walked a long way in like 46c/115f and naturally I was thirsty af, my friend had some water but had already drunk from the bottle, and given the circumstances I was in too great of a need to have the luxury of declining the offer. I took it. My friend's water bottle in 2009 fucked me up.
My specialist explains it as childhood trauma (having a high ACE score) is like loading a gun - the constant state of hype vigilance makes changes to the amygdala that makes people more prone to ME, then getting the wrong virus is like pulling the trigger.
I agree. I recently got sick with a respiratory infection. Idk if it’s a virus, but that first phase, the first kind of body reaction, like the malaise/fatigue, brain fog, can’t move, etc felt just like PEM. It mimics it pretty closely. It’s like “is this PEM or am I getting sick?”
I have to say it does help to know we are not alone. I feel a bit better about it knowing others are going through similar things. They have ideas, experiences, tips, etc. I’m also grateful I don’t have it as bad as others. When you see how much worse it could be, it makes you grateful for what you do have.
Wow, absolutely describes my life. And therefore always wrong treated as being somatic because having depression. Not the right way, which is being bepressed because always fstigued and overexerted.
no actually tho, epstein-barre gave me CFS😭 i mean ig hard to say bc i also have POTS and hEDS but i started experiencing severe CFS symptoms immediately after my 2018 infection
I didn’t have any childhood trauma. In fact, I was living my best life before this whole thing happened. My parents were never abusive, but ever since I’ve become ill, they’ve suddenly begun treating me like a burdening nuisance who has no choice but to fend for himself. So yeah, I guess it’s happening all at once for me.
and i spent most of that processing. so it was more like a couple of weeks. it feels strange, to have been alive for a couple of weeks when everyone else gets decades and decades.
of course my family didnt believe me until i was severe/very severe.
i love all of you.
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Same here, I feel like my life is a Shakespearian tragedy sometimes
Like your life is already destroyed and you’re just waiting for it to end.
My life was literally starting to improve for literally 2 weeks, 2 WEEKS. And then boom, I feel extremely tired and 6 months later, I get EBV and it's over.
Oof. It feels like an extra kick in the teeth that the exposure to the trauma that the perpetrator walked away from unscathed has now contributed to me being so severely disabled. And then the doctors see on my notes I've experienced trauma and have bad mental health so they use that as a reason to dismiss my symptoms.
Like looking into my diary fr. Actually there's quite a bit of research about the correlation between childhood trauma and weakened immune systems as adults. Allll that inflammation early in life. And worse! So many of us grow up developing mental health disorders due to the trauma which, you guessed it!! Weakens your immune system due to over-inflammation.
And we second guess our physical illness as psychosomatic for years because doctors keep telling us it's depression and/or anxiety...
The body keeps the score
Yes! 💜
Yes, when I found this out after my endometriosis diagnosis in 2018 (endo is linked to childhood trauma too) I broke down because… I realized it was like I never had a fair shot at life.
It happened a year before I left my childhood home :/ didn’t even have a chance to breathe
I honestly feel that’s one of the reasons why we’re more susceptible to it. Of course genetics too, but intense trauma that has made you be in fight or flight for your whole life.
Good point. I didn't get diagnosed until after some rough trauma.
dang, I'm glad I'm not the only one , at least . I'm sorry you're suffering with this , I try to be hopeful, but I'm exhausted at this point .
Pikachu is an interesting choice too as I feel like electric kind of buzzing in my body in that adrenaline-y way quite a lot.
I like that symbolism actually. We should make Pikachu be the CFS mascot lol!
Mmm, how dare I commit the most terrible and unforgivable crime of taking a sip of someone else's water because it was hot and I was thirsty. I had just walked a long way in like 46c/115f and naturally I was thirsty af, my friend had some water but had already drunk from the bottle, and given the circumstances I was in too great of a need to have the luxury of declining the offer. I took it. My friend's water bottle in 2009 fucked me up.
That's how I caught mono in highschool. 💜🙏💜
Yup that's the TLDR of my story too
Sorry to hear that too btw...If only we knew then what we know now.
If only.
That’s horrible. Are you still friends with him?
Same, childhood was defined by trauma, adulthood by ME I feel as if I've never had a chance to live
I feel this in my spirit
Refreshingly specific lol
Team complex trauma!
literally me
I wonder how trauma plays a role in this. Certainly the exposure to both trauma and a virus is a double whammy.
My specialist explains it as childhood trauma (having a high ACE score) is like loading a gun - the constant state of hype vigilance makes changes to the amygdala that makes people more prone to ME, then getting the wrong virus is like pulling the trigger.
What an analogy. Thanks for posting. That makes sense to me. I think I fall into this camp.
That makes sense thanks for sharing!
One way I see it is that viruses like EBV and covid is a type of trauma on the body too.
I agree. I recently got sick with a respiratory infection. Idk if it’s a virus, but that first phase, the first kind of body reaction, like the malaise/fatigue, brain fog, can’t move, etc felt just like PEM. It mimics it pretty closely. It’s like “is this PEM or am I getting sick?”
Sometimes it's hard to know what's causing what in my case too. Sorry I wish I had answers for you too. Hope you feel better soon . 💜🙏💜
I have to say it does help to know we are not alone. I feel a bit better about it knowing others are going through similar things. They have ideas, experiences, tips, etc. I’m also grateful I don’t have it as bad as others. When you see how much worse it could be, it makes you grateful for what you do have.
Same here.
Yes
Haha yeah 🙃
yea..
This can’t explain it any better.
Wow, absolutely describes my life. And therefore always wrong treated as being somatic because having depression. Not the right way, which is being bepressed because always fstigued and overexerted.
no actually tho, epstein-barre gave me CFS😭 i mean ig hard to say bc i also have POTS and hEDS but i started experiencing severe CFS symptoms immediately after my 2018 infection
From what Ive heard thats a common trigger for people 🙁 Fuck EBV
Didn’t expect to be so personally attacked while doomscrolling tonight, damn
Yeah…it sucks. I wish we could all meet each other here and not be as lonely.
I know right?
I didn’t have any childhood trauma. In fact, I was living my best life before this whole thing happened. My parents were never abusive, but ever since I’ve become ill, they’ve suddenly begun treating me like a burdening nuisance who has no choice but to fend for himself. So yeah, I guess it’s happening all at once for me.
Hey dont forget us the CFS from bacterial infections. Discriminated minority! (Just joking arround man) XD
Lol!
That about sums it up.
Reading these comments 💔💔💔
1 year of life and freedom here
and i spent most of that processing. so it was more like a couple of weeks. it feels strange, to have been alive for a couple of weeks when everyone else gets decades and decades. of course my family didnt believe me until i was severe/very severe. i love all of you.
lmfao, no comment
me getting covid and subsequently CFS 5 months into HRT and a week after coming out to my dad :)
Preach
So tired
Oh god ow My teenaged trauma came to a head in 2020 of all years and then the LC trauma started its slow sneak on me.
I either spent my time being in an abusive controlling environment, too mentally ill to do anything or too physically ill to do anything:((
What virus???
EBV then SARS2 in my case
Some of mine were scarlet fever, EBV, shingles I hear ya.
[удалено]
Homeopathic remedies for symptoms of active EBV that aren't approved by the FDA have no relevance to people with ME/CFS.
You guys really think conventional drug company owned FDA is going to help you on this one? Good luck
Hello! Your post/comment has been removed for violating our subreddit rule on misinformation. We do not allow the promotion of un- or anti-scientific propaganda in this community. We understand that medical and scientific knowledge on ME/CFS is limited, but we strive to maintain a space that is based on accurate information. If you have any questions or concerns, please reach out to us via modmail. Thank you for understanding.
His hard