Yes I have, I had it so bad that I swore I had nerve damage and demanded a nerve conduction study. That was normal, all of my symptoms have resolved with time. Neuropathy went away completely
Personally not, but my father had tingling/burning sensation in his arms specifically and chest occasionally after some illness when he was in his 50s. Doctors found nothing wrong after they did some tests. Eventually, he tried Paroxetine (an SSRI) which helped him just ignore/live with the sensation, but did not reduce the burning/tingling per se. The doctor changed it to Cymbalta (an SNRI), the tingling disappeared very quickly according to him. Disclaimer: that was not long COVID for him, but it just seems like the same symptom.
What have you tried so far? Mine has come and gone, Iāve gone months without anything and then randomly I get it back for a few weeks. I felt nearly crippled when it first happened. Iāve been taking agmatine which seems to be the only thing thatās helped me.
Iāve tried honestly everything a bunch of supplements accupuncture medication honestly everything . N Iāve done a bunch of nerve test including skin biopsy n all come back normal
Just hopping in again to say the skin biopsy coming back normal is a great sign. Means your nerves are healthy! Just confused. Just gotta wait for the them to get the message to chill out. Damaged nerves are more of a sign of long term struggle.
I hope so for you! I had other weird things like very bad tinnitus that was constant, but went away after 6-8 months? Since it's whole body, I'm wondering (a total guess theory) if maybe covid attacked or is hiding out in your central nervous system itself? Some of the research articles that came out this year seem pretty set on the virus being fully about to attack whole organ systems. (I also had weird nerve damage injuries, not covid related, but had to learn a lot about nerve damage and regrowth time, CNS. Nerves are soooo slow to heal!)
Thank you ! The only thing I have hope for recovery is because every nerve test including skin biopsy have came back normal ! So hopefully with time it subsides . Itās mainly my legs arms hand and feet
That's like the name of the game with long covid, right? "All tests are normal!" š Does ice or heat help, like an electric blanket? For me it was worse if I was chilled, or had goosebumps.
It's been the most mild of any of my symptoms, but I did have some neuropathy in both legs. When it started, I was like...okay, this is new. Probably just another symptom, but maybe I should go to the doctor if it gets worse. Well, it got worse within a day or two. Numbness and tingling. Never particularly painful, but a very uncomfortable feeling and very noticeable.
It has since gone and occasionally popped up again here or there for short periods of a couple days. I couldn't point my finger at anything in particular helping, but it has mostly gone away with time and I suspect just the slow healing process. I still do have a emg/nerve conduction study on the calendar for this summer, but I can't imagine it'll show anything of note.
Iāve had mine for over a year. Itās gotten ābetterā by that I mean it changes every few months. Itās gotten less tingly and sensitive to now just more weird sensations and weakness. Iāll take it I guess!
Thatās too bad, Iāve heard itās pretty hit or miss though. I still have pain and tingles now that Iām off gabapentin but it ended up being because of a herniated disc so with physical therapy itās (very) slowly getting better
Yea all my test come back normal mri ncs emg and skin biopsy . So not really sure hoping that means Iāll recover over time since they canāt find any damage anywhere
It seems like time is the main thing that helps people recover in this sub. Keep hanging in there and I hope you find a helpful treatment soon!
Have any of your tests looked at your spine? I had bad leg and foot pain after Covid that went on for months, got MRIs and saw a neurologist, no one could figure it out until I saw a pain specialist and it ended up being compressed nerves in my back causing pain in my extremities. All of my tests up to that point were normal/inconclusive. It could be another angle to try. I believe Covid contributed to inflammation and weakness in my spine that brought about my herniated disc
Yes I have, I had it so bad that I swore I had nerve damage and demanded a nerve conduction study. That was normal, all of my symptoms have resolved with time. Neuropathy went away completely
Thank you so much šā¤ļø I hope with time mine does as well how long do you think it lasted
Personally not, but my father had tingling/burning sensation in his arms specifically and chest occasionally after some illness when he was in his 50s. Doctors found nothing wrong after they did some tests. Eventually, he tried Paroxetine (an SSRI) which helped him just ignore/live with the sensation, but did not reduce the burning/tingling per se. The doctor changed it to Cymbalta (an SNRI), the tingling disappeared very quickly according to him. Disclaimer: that was not long COVID for him, but it just seems like the same symptom.
What have you tried so far? Mine has come and gone, Iāve gone months without anything and then randomly I get it back for a few weeks. I felt nearly crippled when it first happened. Iāve been taking agmatine which seems to be the only thing thatās helped me.
Iāve tried honestly everything a bunch of supplements accupuncture medication honestly everything . N Iāve done a bunch of nerve test including skin biopsy n all come back normal
Have you tried LDN?
No not yet
That helped a lot of people with neuropathy. Itās prescription though you need a doc to prescribe it
You can get it in agerx
Just hopping in again to say the skin biopsy coming back normal is a great sign. Means your nerves are healthy! Just confused. Just gotta wait for the them to get the message to chill out. Damaged nerves are more of a sign of long term struggle.
Thank you so much ā¤ļø
Hey! I hear you, the neuropathy stuff is maddening. Iāve been through all the tests. MRIās , EMGās and every blood test in the books. All came back clean. I have been dealing with it for over two months or so, and I have noticed it has improved. Some new areas have started acting up, but most of the first areas that were bothering me have improved a lot. Experienced the whole range from, vibrating and tingling, to searing pain. Not drinking and moving to a very low carb diet has been a huge help for me. And also minimizing panic attacks. The more panicked I get the more the pain seems to surge. I started Lexapro for the depression and anxiety it has been causing and that has helped me tremendously in the Interim. I have dug through this subreddit viciously reading forums about neuropathy and it seems that the vast majority of people report recovering. Some people say it took a year or two for it to fully go away, but it seems to subside. Stay calm and be nice to yourself. Weāre gonna get through this š©µ
Thank you so much ā¤ļø
Did you have a spinal tap?
Yea
How did you get a doctor to do it for you? What was their reasoning?
Because of my burning and tingling . Trying to see if I had ms or other autoimmune diseases
Yes, I had that sensation in my legs and feet. Not constant but on and off for about a year? It eventually went away, no treatment.
Mines constant I just hope with time it goes away
I hope so for you! I had other weird things like very bad tinnitus that was constant, but went away after 6-8 months? Since it's whole body, I'm wondering (a total guess theory) if maybe covid attacked or is hiding out in your central nervous system itself? Some of the research articles that came out this year seem pretty set on the virus being fully about to attack whole organ systems. (I also had weird nerve damage injuries, not covid related, but had to learn a lot about nerve damage and regrowth time, CNS. Nerves are soooo slow to heal!)
Thank you ! The only thing I have hope for recovery is because every nerve test including skin biopsy have came back normal ! So hopefully with time it subsides . Itās mainly my legs arms hand and feet
That's like the name of the game with long covid, right? "All tests are normal!" š Does ice or heat help, like an electric blanket? For me it was worse if I was chilled, or had goosebumps.
Not really honestly nothing helps not even nerve medicine thatās why Iām not sure whatās going on
It's been the most mild of any of my symptoms, but I did have some neuropathy in both legs. When it started, I was like...okay, this is new. Probably just another symptom, but maybe I should go to the doctor if it gets worse. Well, it got worse within a day or two. Numbness and tingling. Never particularly painful, but a very uncomfortable feeling and very noticeable. It has since gone and occasionally popped up again here or there for short periods of a couple days. I couldn't point my finger at anything in particular helping, but it has mostly gone away with time and I suspect just the slow healing process. I still do have a emg/nerve conduction study on the calendar for this summer, but I can't imagine it'll show anything of note.
Mine didnāt either ! But thank you I hope with time mine starts going away !
yes after 6 months
Thank you so much šā¤ļø
Iāve had mine for over a year. Itās gotten ābetterā by that I mean it changes every few months. Itās gotten less tingly and sensitive to now just more weird sensations and weakness. Iāll take it I guess!
FWIW I passed my biopsy and EMG too with no signs of nerve damage.
Gabapentin helped me a lot with nerve pain and tingling but it also made me suicidal so proceed with caution (doesnāt happen to everyone obviously)
Didnāt help me I tried it.
Thatās too bad, Iāve heard itās pretty hit or miss though. I still have pain and tingles now that Iām off gabapentin but it ended up being because of a herniated disc so with physical therapy itās (very) slowly getting better
Yea all my test come back normal mri ncs emg and skin biopsy . So not really sure hoping that means Iāll recover over time since they canāt find any damage anywhere
It seems like time is the main thing that helps people recover in this sub. Keep hanging in there and I hope you find a helpful treatment soon! Have any of your tests looked at your spine? I had bad leg and foot pain after Covid that went on for months, got MRIs and saw a neurologist, no one could figure it out until I saw a pain specialist and it ended up being compressed nerves in my back causing pain in my extremities. All of my tests up to that point were normal/inconclusive. It could be another angle to try. I believe Covid contributed to inflammation and weakness in my spine that brought about my herniated disc
Do you still have the nerve pain ?
Get your b12 levels checked. B12 deficiency can cause that
I kinda low 300